Collection and determinants of patient reported outcome measures in haemodialysis patients in Scotland.
QJM
; 111(1): 15-21, 2018 Jan 01.
Article
en En
| MEDLINE
| ID: mdl-29025150
ABSTRACT
BACKGROUND/INTRODUCTION:
Patient reported outcome measures (PROMs) can evaluate the quality of health in patients with established renal failure. There is limited experience of their use within national renal registries.AIM:
To describe the Scottish Renal Registry's (SRR) experience of collecting PROMS in the haemodialysis population and correlate PROMS to demographic and clinical parameters.DESIGN:
Retrospective observational cross-sectional study.METHODS:
Haemodialysis patients in Scotland were invited to complete the KDQOL™-36 questionnaire on the day of the annual SRR census in 2015 and 2016. Questionnaires were linked to census demographic and clinical variables.RESULTS:
In 2016, 738 questionnaires were linked to census data (39% of prevalent haemodialysis population). Response rates differed with age (≥ 65 years 42%, < 65 years 36%) [χ2P = 0.006]; duration of renal replacement therapy (<1 year 46%, ≥1 < 5 years 38%, ≥ 5 years 33%) [χ2P = 0.002] and social class (Scottish Index of Multiple Deprivation (SIMD) Class 1 32%, Class 2 41%, Class 3 40%, Class 4 48%, Class 5 40%) [χ2P < 0.001]. There were significant differences in PROMs with age, SIMD quintile and primary renal diagnosis. Achieving a urea reduction ratio of >65% and dialysing through arteriovenous access were associated with significantly higher PROMs. PROMs were not affected by haemoglobin or phosphate concentration. DISCUSSION/CONCLUSIONS:
Routine collection of PROMs is feasible and can identify potentially under-recognized and treatable determinants to quality of life. The association between attaining recommended standards of care and improved PROMs is striking. Individual and population-wide strategies are required to improve PROMs.
Texto completo:
1
Base de datos:
MEDLINE
Asunto principal:
Calidad de Vida
/
Diálisis Renal
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Insuficiencia Renal
/
Medición de Resultados Informados por el Paciente
Tipo de estudio:
Guideline
/
Observational_studies
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Prevalence_studies
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Prognostic_studies
/
Risk_factors_studies
País/Región como asunto:
Europa
Idioma:
En
Revista:
QJM
Asunto de la revista:
MEDICINA
Año:
2018
Tipo del documento:
Article