Common content between quality of life questionnaires for children with cystic fibrosis and the International Classification of Functionality, Disability and Health.
J Rehabil Med
; 51(8): 582-586, 2019 Sep 03.
Article
en En
| MEDLINE
| ID: mdl-31233182
ABSTRACT
OBJECTIVE:
To identify the most common quality of life instruments for children with cystic fibrosis and link the content with the International Classification of Functioning, Disability and Health (ICF).METHODS:
The study was conducted in 2 stages. The first stage involved a review of the literature to select quality of life questionnaires. In the second stage 2 independent reviewers identified questionnaire items and categories corresponding to the ICF, according to approved methodology. The degree of agreement was calculated using the kappa coefficient.RESULTS:
Two questionnaires were selected the Cystic Fibrosis Questionnaire and DISABKIDS®. A total of 130 concepts were identified from the 112 items. Forty-seven different ICF categories were linked (k>0.62 for all questionnaires), 21 (44.7%) were related to the "body function" domain, 20 (42.6%) to "activity and participation" and 6 (12.8%) to "environmental factors". Thirteen items (10%) could not be linked because they represent personal factors or are not covered by the ICF.CONCLUSION:
Body functions were the category most linked to the ICF. Environmental factors were poorly described, and no items were related to body structures in any of the instruments.Palabras clave
Texto completo:
1
Base de datos:
MEDLINE
Asunto principal:
Calidad de Vida
/
Clasificación Internacional del Funcionamiento, de la Discapacidad y de la Salud
/
Fibrosis Quística
/
Evaluación de la Discapacidad
Tipo de estudio:
Prognostic_studies
/
Qualitative_research
Idioma:
En
Revista:
J Rehabil Med
Asunto de la revista:
REABILITACAO
Año:
2019
Tipo del documento:
Article