Challenging behavior in mucopolysaccharidoses types I-III and day-to-day coping strategies: a cross sectional explorative study.

Hoffmann, Frederik; Hoffmann, Susanne; Kunzmann, Kevin; Ries, Markus

Hoffmann, Frederik; Hoffmann, Susanne; Kunzmann, Kevin; Ries, Markus.

Afiliación

Hoffmann F; Center for Pediatric and Adolescent Medicine, St. Annastift-Hospital Ludwigshafen am Rhein, Karolina-Burger-Straße 5, 67065, Ludwigshafen am Rhein, Germany. frederik.hoffmann@stud.uni-heidelberg.de.
Hoffmann S; Pediatric Neurology and Metabolic Medicine, Center for Rare Diseases, Center for Pediatric and Adolescent Medicine, Heidelberg University Hospital, Im Neuenheimer Feld 430, Heidelberg, 69120, Germany. frederik.hoffmann@stud.uni-heidelberg.de.
Kunzmann K; Center for Psychiatry, PZN Wiesloch, Heidelberger Straße 1a, Wiesloch, 69168, Germany.
Ries M; Institute of Medical Biometry and Informatics, University of Heidelberg, Im Neuenheimer Feld 347, Heidelberg, 69120, Germany.

Orphanet J Rare Dis ; 15(1): 275, 2020 10 02.

Article en En | MEDLINE | ID: mdl-33008435

Asunto(s)

Mucopolisacaridosis; Mucopolisacaridosis III; Mucopolisacaridosis I; Adaptación Psicológica; Niño; Estudios Transversales; Humanos

Palabras clave

Challenging behavior; Coping; Day-to-day coping; Hunter; Hurler; MPS; Mucopolysaccharidoses; Sanfilippo

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Texto completo: 1 Base de datos: MEDLINE Asunto principal: Mucopolisacaridosis I / Mucopolisacaridosis / Mucopolisacaridosis III Tipo de estudio: Observational_studies / Prevalence_studies / Qualitative_research / Risk_factors_studies Idioma: En Revista: Orphanet J Rare Dis Asunto de la revista: MEDICINA Año: 2020 Tipo del documento: Article

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