COMPLETE (Communication Plan Early Through End of Life): Development of a Research Program to Diminish Suffering for Children at End of Life.
J Pediatr Nurs
; 61: 454-456, 2021.
Article
en En
| MEDLINE
| ID: mdl-34452795
ABSTRACT
While overall survival has improved significantly for children with cancer over the past 75 years, cancer remains the leading cause of death from disease among children and adolescents. Further, despite the many advances in medical and nursing care, children with cancer still experience significant physical and emotional suffering over the course of their illness, especially at the end of life (EOL). Children endure significant rates of high-intensity medical interventions (e.g., intubation, intensive care unit admission) at the EOL despite many parents, adolescents, and young adult patients identifying home as their preferred location of death. Hospice care has the potential to ease suffering at the EOL and facilitate home deaths, and yet, most children still die in acute care settings without hospice care. Numerous barriers prevent timely enrollment in hospice among children with cancer who are in the EOL period. This report describes the development and testing of a palliative care/EOL communication intervention designed to overcome some of these barriers and improve EOL outcomes (i.e., earlier hospice enrollment, less use of high-intensity medical interventions, reduced pain and suffering) among children with cancer and their parents (i.e., less emotional distress and uncertainty, improved hope and healthcare satisfaction).
Palabras clave
Texto completo:
1
Base de datos:
MEDLINE
Asunto principal:
Cuidado Terminal
/
Cuidados Paliativos al Final de la Vida
/
Neoplasias
Idioma:
En
Revista:
J Pediatr Nurs
Asunto de la revista:
ENFERMAGEM
/
PEDIATRIA
Año:
2021
Tipo del documento:
Article