A call for an integrated approach to improve efficiency, equity and sustainability in rare disease research in the United States.

Halley, Meghan C; Smith, Hadley Stevens; Ashley, Euan A; Goldenberg, Aaron J; Tabor, Holly K

Halley, Meghan C; Smith, Hadley Stevens; Ashley, Euan A; Goldenberg, Aaron J; Tabor, Holly K.

Afiliación

Halley MC; Stanford Center for Biomedical Ethics, Stanford University School of Medicine, Stanford, CA, USA. mhalley@stanford.edu.
Smith HS; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX, USA.
Ashley EA; Department of Genetics, Division of Cardiovascular Medicine, Stanford University School of Medicine, Stanford, CA, USA.
Goldenberg AJ; Department of Bioethics, Case Western Reserve University School of Medicine, Cleveland, OH, USA.
Tabor HK; Stanford Center for Biomedical Ethics, Stanford University School of Medicine, Stanford, CA, USA.

Nat Genet ; 54(3): 219-222, 2022 03.

Article en En | MEDLINE | ID: mdl-35256804

Asunto(s)

Accesibilidad a los Servicios de Salud; Enfermedades Raras; Humanos; Enfermedades Raras/genética; Enfermedades Raras/terapia; Estados Unidos

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Texto completo: 1 Base de datos: MEDLINE Asunto principal: Enfermedades Raras / Accesibilidad a los Servicios de Salud País/Región como asunto: America do norte Idioma: En Revista: Nat Genet Asunto de la revista: GENETICA MEDICA Año: 2022 Tipo del documento: Article

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