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Current challenges and opportunities in the care of patients with fibrodysplasia ossificans progressiva (FOP): an international, multi-stakeholder perspective.
Pignolo, Robert J; Bedford-Gay, Christopher; Cali, Amanda; Davis, Michelle; Delai, Patricia L R; Gonzales, Kristi; Hixson, Candace; Kent, Alastair; Newport, Hope; Robert, Manuel; Scott, Christiaan; Kaplan, Frederick S.
Afiliación
  • Pignolo RJ; Department of Medicine, Mayo Clinic, Rochester, MN, USA. Pignolo.Robert@mayo.edu.
  • Bedford-Gay C; International FOP Association, Kansas City, MO, USA.
  • Cali A; FOP Friends, Manchester, UK.
  • Davis M; The Radiant Hope Foundation, Mountain Lakes, NJ, USA.
  • Delai PLR; The Ian Cali FOP Research Fund, PENN Medicine, Center for Research in FOP & Related Disorders, Philadelphia, PA, USA.
  • Gonzales K; Tin Soldiers: Global Patient Identification Program, Johannesburg, South Africa.
  • Hixson C; International FOP Association, Kansas City, MO, USA.
  • Kent A; Hospital Israelita Albert Einstein, Instituto de Ensino E Pesquisa, Sao Paolo, Brazil.
  • Newport H; International FOP Association, Kansas City, MO, USA.
  • Robert M; International FOP Association, Kansas City, MO, USA.
  • Scott C; Independent Patient Advocacy Consultant, Downham Market, UK.
  • Kaplan FS; International FOP Association, Kansas City, MO, USA.
Orphanet J Rare Dis ; 17(1): 168, 2022 04 18.
Article en En | MEDLINE | ID: mdl-35436894
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Texto completo: 1 Base de datos: MEDLINE Asunto principal: Osificación Heterotópica / Miositis Osificante Tipo de estudio: Diagnostic_studies / Guideline / Prognostic_studies Idioma: En Revista: Orphanet J Rare Dis Asunto de la revista: MEDICINA Año: 2022 Tipo del documento: Article
Texto completo
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Base de datos: MEDLINE Asunto principal: Osificación Heterotópica / Miositis Osificante Tipo de estudio: Diagnostic_studies / Guideline / Prognostic_studies Idioma: En Revista: Orphanet J Rare Dis Asunto de la revista: MEDICINA Año: 2022 Tipo del documento: Article