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Individual and Family Determinants for Quality of Life in Parents of Children with Inborn Errors of Metabolism Requiring a Restricted Diet: A Multilevel Analysis Approach.
Ouattara, Abdoulaye; Resseguier, Noemie; Cano, Aline; De Lonlay, Pascale; Arnoux, Jean-Baptiste; Brassier, Anais; Schiff, Manuel; Pichard, Samia; Fabre, Alexandre; Hoebeke, Celia; Guffon, Nathalie; Fouilhoux, Alain; Broué, Pierre; Touati, Guy; Dobbelaere, Dries; Mention, Karine; Labarthe, Francois; Tardieu, Marine; De Parscau, Loïc; Feillet, Francois; Bonnemains, Chrystèle; Kuster, Alice; Labrune, Philippe; Barth, Magalie; Damaj, Lena; Lamireau, Delphine; Berbis, Julie; Auquier, Pascal; Chabrol, Brigitte.
Afiliación
  • Ouattara A; Department of Epidemiology and Health Economics, AP-HM / EA 3279 CEReSS (Centre d'Etude et de Recherche sur les Services de Santé et la Qualité de vie), Aix-Marseille Univ, Marseille, France.
  • Resseguier N; Department of Epidemiology and Health Economics, AP-HM / EA 3279 CEReSS (Centre d'Etude et de Recherche sur les Services de Santé et la Qualité de vie), Aix-Marseille Univ, Marseille, France. Electronic address: noemie.resseguier@univ-amu.fr.
  • Cano A; Reference Center of Inherited Metabolic Disorders, Timone Enfants Hospital, Marseille, France.
  • De Lonlay P; Reference Center of Inherited Metabolic Disorders, Necker Hospital, Paris, France.
  • Arnoux JB; Reference Center of Inherited Metabolic Disorders, Necker Hospital, Paris, France.
  • Brassier A; Reference Center of Inherited Metabolic Disorders, Necker Hospital, Paris, France.
  • Schiff M; Reference Center of Inherited Metabolic Disorders, Necker Hospital, Paris, France.
  • Pichard S; Reference Center of Inherited Metabolic Disorders, Robert Debré Hospital, Paris, France.
  • Fabre A; Reference Center of Inherited Metabolic Disorders, Timone Enfants Hospital, Marseille, France.
  • Hoebeke C; Reference Center of Inherited Metabolic Disorders, Timone Enfants Hospital, Marseille, France.
  • Guffon N; Reference Center of Inherited Metabolic Disorders, Femme Mère Enfant Hospital, Lyon, France.
  • Fouilhoux A; Reference Center of Inherited Metabolic Disorders, Femme Mère Enfant Hospital, Lyon, France.
  • Broué P; Reference Center of Inherited Metabolic Disorders, Purpan Hospital, Toulouse, France.
  • Touati G; Reference Center of Inherited Metabolic Disorders, Purpan Hospital, Toulouse, France.
  • Dobbelaere D; Reference Center of Inherited Metabolic Disorders, Jeanne de Flandres Hospital, Lille, France.
  • Mention K; Reference Center of Inherited Metabolic Disorders, Jeanne de Flandres Hospital, Lille, France.
  • Labarthe F; Reference Center of Inherited Metabolic Disorders, Clocheville Hospital, Tours, France.
  • Tardieu M; Reference Center of Inherited Metabolic Disorders, Clocheville Hospital, Tours, France.
  • De Parscau L; Competence Center of Inherited Metabolic Disorders, Brest Hospital, Brest, France.
  • Feillet F; Reference Center of Inherited Metabolic Disorders, Brabois Hospital, Nancy, France.
  • Bonnemains C; Reference Center of Inherited Metabolic Disorders, Brabois Hospital, Nancy, France.
  • Kuster A; Pediatric Intensive Care Unit, Nantes Hospital, Nantes, France.
  • Labrune P; Reference Center of Rare Liver Disease, Antoine Beclere Hospital, Clamart, France.
  • Barth M; Competence Center of Inherited Metabolic Disorders, Angers Hospital, Angers, France.
  • Damaj L; Competence Center of Inherited Metabolic Disorders, Rennes Hospital, Rennes, France.
  • Lamireau D; Competence Center of Inherited Metabolic Disorders, Pellegrin Hospital, Bordeaux, France.
  • Berbis J; Department of Epidemiology and Health Economics, AP-HM / EA 3279 CEReSS (Centre d'Etude et de Recherche sur les Services de Santé et la Qualité de vie), Aix-Marseille Univ, Marseille, France.
  • Auquier P; Department of Epidemiology and Health Economics, AP-HM / EA 3279 CEReSS (Centre d'Etude et de Recherche sur les Services de Santé et la Qualité de vie), Aix-Marseille Univ, Marseille, France.
  • Chabrol B; Reference Center of Inherited Metabolic Disorders, Timone Enfants Hospital, Marseille, France.
J Pediatr ; 254: 39-47.e4, 2023 03.
Article en En | MEDLINE | ID: mdl-36265570
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Texto completo: 1 Base de datos: MEDLINE Asunto principal: Calidad de Vida / Errores Innatos del Metabolismo Tipo de estudio: Observational_studies / Prognostic_studies / Risk_factors_studies Idioma: En Revista: J Pediatr Año: 2023 Tipo del documento: Article
Texto completo
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Base de datos: MEDLINE Asunto principal: Calidad de Vida / Errores Innatos del Metabolismo Tipo de estudio: Observational_studies / Prognostic_studies / Risk_factors_studies Idioma: En Revista: J Pediatr Año: 2023 Tipo del documento: Article