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How to Ensure Inclusivity in Large-Scale General Population Cohort Studies? Lessons Learned with Regard to Including and Assessing Sex, Gender, and Sexual Orientation.
Ballering, Aranka V; Burke, Sarah M; Maeckelberghe, Els L M; Rosmalen, Judith G M.
Afiliación
  • Ballering AV; Department of Psychiatry, University Medical Center Groningen, University of Groningen, P.O. Box 30.001, 9700 RB, Groningen, The Netherlands. a.v.ballering@umcg.nl.
  • Burke SM; Department of Psychiatry, University Medical Center Groningen, University of Groningen, P.O. Box 30.001, 9700 RB, Groningen, The Netherlands.
  • Maeckelberghe ELM; University Medical Center Groningen, Wenckebach Institute for Training and Education, University of Groningen, Groningen, The Netherlands.
  • Rosmalen JGM; Department of Psychiatry, University Medical Center Groningen, University of Groningen, P.O. Box 30.001, 9700 RB, Groningen, The Netherlands.
Arch Sex Behav ; 52(5): 2163-2172, 2023 07.
Article en En | MEDLINE | ID: mdl-37186037
Despite recent advances in the measurement of sex, gender, and sexual orientation in large-scale cohort studies, the three concepts are still gaining relatively little attention, may be mistakenly equated, or non-informatively operationalized. The resulting imprecise or lacking information hereon in studies is problematic, as sex, gender, and sexual orientation are important health-related factors. Omission of these concepts from general population cohort studies might dismiss participants' identity and experiences and pushes research on sexual or gender minority populations toward purposive sampling, potentially introducing selection bias. It also reinforces the unintentional notion of irrelevance of these concepts to health research, ultimately disadvantaging sexual and gender minority populations. Similarly, a lack of uniform measures on sex, gender, and sexual orientation hampers multi-cohort studies in which data from multiple studies are combined, facilitating increased statistical power. This paper discusses the encountered pitfalls and lessons learned on including and assessing sex, gender, and sexual orientation in large-scale general population cohort studies, exemplified by the Dutch Lifelines Cohort Study. Additionally, we propose hands-on strategies on how to operationalize these concepts in an inclusive manner that is useful for large-scale general population cohort studies.
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Texto completo: 1 Base de datos: MEDLINE Asunto principal: Conducta Sexual / Minorías Sexuales y de Género Tipo de estudio: Etiology_studies / Incidence_studies / Observational_studies / Risk_factors_studies Idioma: En Revista: Arch Sex Behav Año: 2023 Tipo del documento: Article

Texto completo: 1 Base de datos: MEDLINE Asunto principal: Conducta Sexual / Minorías Sexuales y de Género Tipo de estudio: Etiology_studies / Incidence_studies / Observational_studies / Risk_factors_studies Idioma: En Revista: Arch Sex Behav Año: 2023 Tipo del documento: Article