Rare Disease, Advocacy and Justice: Intersecting Disparities in Research and Clinical Care.

Halley, Meghan C; Halverson, Colin M E; Tabor, Holly K; Goldenberg, Aaron J

Halley, Meghan C; Halverson, Colin M E; Tabor, Holly K; Goldenberg, Aaron J.

Afiliación

Halley MC; Stanford University School of Medicine.
Halverson CME; Indiana University School of Medicine.
Tabor HK; Charles Warren Fairbanks Center for Medical Ethics.
Goldenberg AJ; Stanford University School of Medicine.

Am J Bioeth ; 23(7): 17-26, 2023 07.

Article en En | MEDLINE | ID: mdl-37204146

Asunto(s)

Enfermedades Raras; Justicia Social; Humanos; Estados Unidos

Palabras clave

Bioethics; genetics; health equity; patient advocacy; rare diseases; word

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Texto completo: 1 Base de datos: MEDLINE Asunto principal: Justicia Social / Enfermedades Raras País/Región como asunto: America do norte Idioma: En Revista: Am J Bioeth Asunto de la revista: ETICA Año: 2023 Tipo del documento: Article

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