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Community advisory board members' perspectives on their contributions to a large multistate cluster RCT: a mixed methods study.
Bosak, Julie; Drainoni, Mari-Lynn; Christopher, Mia; Medley, Bethany; Rodriguez, Sandra; Bell, Sydney; Kim, Erin; Stotz, Caroline; Hamilton, Greer; Bigsby, Carol; Gillen, Faizah; Kimball, Jennifer; McClay, Craig; Powers, Kim; Walt, Galya; Battaglia, Tracy; Chassler, Deborah; Sprague Martinez, Linda; Lunze, Karsten.
Afiliación
  • Bosak J; Boston Medical Center, Boston, MA, USA.
  • Drainoni ML; Boston University School of Public Health, Boston, MA, USA.
  • Christopher M; Boston Medical Center, Boston, MA, USA.
  • Medley B; Boston University School of Public Health, Boston, MA, USA.
  • Rodriguez S; Boston University Chobanian & Avedisian School of Medicine, Boston, MA, USA.
  • Bell S; Columbia University, New York, NY, USA.
  • Kim E; Columbia University, New York, NY, USA.
  • Stotz C; Community Advisory Board Member, Boston, MA, USA.
  • Hamilton G; Columbia University, New York, NY, USA.
  • Bigsby C; Columbia University, New York, NY, USA.
  • Gillen F; Columbia University, New York, NY, USA.
  • Kimball J; Boston Medical Center, Boston, MA, USA.
  • McClay C; Boston University School of Social Work, Boston, MA, USA.
  • Powers K; Boston Medical Center, Boston, MA, USA.
  • Walt G; Boston Medical Center, Boston, MA, USA.
  • Battaglia T; Boston Medical Center, Boston, MA, USA.
  • Chassler D; Community Advisory Board Member, Boston, MA, USA.
  • Sprague Martinez L; Boston Medical Center, Boston, MA, USA.
  • Lunze K; Boston Medical Center, Boston, MA, USA.
J Clin Transl Sci ; 8(1): e1, 2024.
Article en En | MEDLINE | ID: mdl-38384918
ABSTRACT

Background:

Community advisory boards (CABs) are an established approach to ensuring research reflects community priorities. This paper examines two CABs that are part of the HEALing Communities Study which aims to reduce overdose mortality. This analysis aimed to understand CAB members' expectations, experiences, and perspectives on CAB structure, communication, facilitation, and effectiveness during the first year of an almost fully remote CAB implementation. Current literature exploring these perspectives is limited.

Methods:

We collected qualitative and survey data simultaneously from members (n = 53) of two sites' CABs in the first 9 months of CAB development. The survey assessed trust, communication, and relations; we also conducted 32 semi-structured interviews. We analyzed the survey results descriptively. The qualitative data were analyzed using a deductive codebook based on the RE-AIM PRISM framework. Themes were drawn from the combined qualitative data and triangulated with survey results to further enrich the findings.

Results:

CAB members expressed strong commitment to overall study goals and valued the representation of occupational sectors. The qualitative data described a dissonance between CAB members' commitment to the mission and unmet expectations for influencing the study within an advisory role. Survey results indicated lower satisfaction with the research teams' ability to create a mutually beneficial process, clear communication, and sharing of power.

Conclusion:

Building a CAB on a remote platform, within a study utilizing a community engagement strategy, still presents challenges to fully realizing the potential of a CAB. These findings can inform more effective operationalizing of community-engaged research through enhanced CAB engagement.
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Texto completo: 1 Base de datos: MEDLINE Idioma: En Revista: J Clin Transl Sci Año: 2024 Tipo del documento: Article

Texto completo: 1 Base de datos: MEDLINE Idioma: En Revista: J Clin Transl Sci Año: 2024 Tipo del documento: Article