Diagnosis concealment behaviors and disclosure beliefs are associated with health and quality of life in people with multiple sclerosis.
Mult Scler Relat Disord
; 87: 105628, 2024 Jul.
Article
en En
| MEDLINE
| ID: mdl-38759425
ABSTRACT
BACKGROUND:
People with multiple sclerosis (pwMS) struggle with whether, how, and how much to disclose their diagnosis. They often expend resources to conceal their diagnosis, and hold beliefs that it may negatively affect their personal relationships and/or professional opportunities. To better understand these effects, we developed a measure to quantify concealment behaviors and disclosure beliefs. Our main objective is to evaluate relationships of DISCO-MS responses to health and quality of life in a multinational cohort.METHODS:
Survey responses were obtained for DISCO-MS and PROMIS-MS scales global health, communication, social roles participation, anxiety, depression, emotional / behavioral dyscontrol, fatigue, lower extremity function, positive affect / well-being, social roles satisfaction, sleep, stigma, upper extremity function, cognitive function, bladder control, bowel control, visual function. Simple linear regression assessed associations.RESULTS:
263 pwMS were include. Higher concealment was associated with higher anxiety (beta= 0.15 [0.07, 0.23]), depression (beta = 0.13 [0.05, 0.21]), emotional dyscontrol (beta = 0.12 [0.04, 0.20]), lower affect / well-being (beta = -0.13 [-0.21, - 0.05]). Higher anticipation of negative consequences of disclosure was associated with lower self-reported physical (beta = -0.15) and mental health (beta = -0.14), lower positive affect / well-being, social roles satisfaction, higher anxiety, depression, emotional dyscontrol, sleep disturbance, and higher perceived stigma.DISCUSSION:
These results reveal potential consequences of diagnosis concealment for physical and mental health and quality of life. Raising awareness and implementing interventions may mitigate negative repercussions of concealment.Palabras clave
Texto completo:
1
Base de datos:
MEDLINE
Asunto principal:
Calidad de Vida
/
Esclerosis Múltiple
Idioma:
En
Revista:
Mult Scler Relat Disord
/
Multiple sclerosis and related disorders
/
Multiple sclerosis and related disorders (Online)
Año:
2024
Tipo del documento:
Article