NFDI4Health Local Data Hubs Implementing a Tailored Metadata Schema for Health Data.
Stud Health Technol Inform
; 317: 115-122, 2024 Aug 30.
Article
en En
| MEDLINE
| ID: mdl-39234713
ABSTRACT
INTRODUCTION:
NFDI4Health is a consortium funded by the German Research Foundation to make structured health data findable and accessible internationally according to the FAIR principles. Its goal is bringing data users and Data Holding Organizations (DHOs) together. It mainly considers DHOs conducting epidemiological and public health studies or clinical trials.METHODS:
Local data hubs (LDH) are provided for such DHOs to connect decentralized local research data management within their organizations with the option of publishing shareable metadata via centralized NFDI4Health services such as the German central Health Study Hub. The LDH platform is based on FAIRDOM SEEK and provides a complete and flexible, locally controlled data and information management platform for health research data. A tailored NFDI4Health metadata schema for studies and their corresponding resources has been developed which is fully supported by the LDH software, e.g. for metadata transfer to other NFDI4Health services.RESULTS:
The SEEK platform has been technically enhanced to support extended metadata structures tailored to the needs of the user communities in addition to the existing metadata structuring of SEEK.CONCLUSION:
With the LDH and the MDS, the NFDI4Health provides all DHOs with a standardized and free and open source research data management platform for the FAIR exchange of structured health data.Palabras clave
Texto completo:
1
Base de datos:
MEDLINE
Asunto principal:
Metadatos
País/Región como asunto:
Europa
Idioma:
En
Revista:
Stud Health Technol Inform
/
Stud. health technol. inform.
/
Studies in health technology and informatics (Online)
Asunto de la revista:
INFORMATICA MEDICA
/
PESQUISA EM SERVICOS DE SAUDE
Año:
2024
Tipo del documento:
Article