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1.
Aging Ment Health ; 25(8): 1483-1492, 2021 08.
Artículo en Inglés | MEDLINE | ID: mdl-33258686

RESUMEN

OBJECTIVE: The current study translated the Resources for Enhancing Alzheimer's Caregiver Health: Offering Useful Treatments (REACH OUT), a skills-building stress and burden intervention, for the primary care setting and pilot the resulting intervention. METHODS: The 16-week intervention consisted of a combination of clinic-based group and one-on-one sessions offered within a medical home, geriatrics clinic. A quasi-experimental pre- and post-test study design without a control group tested the resulting intervention. Semi-structured qualitative exit interviews evaluated program satisfaction. RESULTS: Twenty-five caregivers participated in one of four intervention groups; 21 caregivers completed the intervention (attended at least five of six group sessions). Caregiver burden on standardized assessments was significantly reduced between pre- and post-intervention, specifically for physical/emotional strain and caregiving uncertainty. Significant reductions were found in the frequency of reported disruptive behaviors; increased caregiver confidence in handling behavior problem frequency, depressive symptoms, disruptive behaviors, and memory-related problems; and decreased bother with respect to behavioral problem frequency and care recipient depression. Program satisfaction was high. CONCLUSION: This work suggests that the REACH OUT program can be successfully modified for use within a primary-care medical home setting.


Asunto(s)
Enfermedad de Alzheimer , Cuidadores , Enfermedad de Alzheimer/terapia , Humanos , Proyectos Piloto , Atención Primaria de Salud , Evaluación de Programas y Proyectos de Salud
2.
Aging Ment Health ; 22(4): 458-467, 2018 04.
Artículo en Inglés | MEDLINE | ID: mdl-28282730

RESUMEN

OBJECTIVES: Little is known about the patterns of psychotropic medication use in community-dwelling minority persons with dementia (PWD). The purpose of this study was to investigate racial/ethnic differences in psychotropic medication use across a diverse population of community-dwelling PWD and to examine the extent to which caregiver characteristics influence this use. METHOD: Data were drawn from the baseline assessment of the Resources for Enhancing Alzheimer's Caregiver Health II trial. Generalized linear models were used to identify racial/ethnic differences in psychotropic medication use. Akaike Information Criterion (AIC) model selection was used to evaluate possible explanations for observed differences across racial/ethnic group. RESULTS: Differences in anxiolytic and antipsychotic medication use were observed across racial/ethnic groups; however, race/ethnicity alone was not sufficient to explain those differences. Perceptions of caregiving and caregiver socioeconomic status were important predictors of anxiolytic use while PWD characteristics, including cognitive impairment, functional impairment, problem behavior frequency, pain, relationship to the caregiver, sex, and age were important for antipsychotic use. CONCLUSION: Racial/ethnic differences in psychotropic medication use among community-dwelling PWD cannot be explained by race/ethnicity alone. The importance of caregiver characteristics in predicting anxiolytic medication use suggest that interventions aimed at caregivers may hold promise as an effective alternative to pharmacotherapy.


Asunto(s)
Ansiolíticos/uso terapéutico , Antipsicóticos/uso terapéutico , Cuidadores/estadística & datos numéricos , Demencia/tratamiento farmacológico , Prescripciones de Medicamentos/estadística & datos numéricos , Vida Independiente/estadística & datos numéricos , Adulto , Anciano , Anciano de 80 o más Años , Demencia/epidemiología , Femenino , Investigación sobre Servicios de Salud , Humanos , Masculino , Persona de Mediana Edad , Estados Unidos/epidemiología
3.
Aging Ment Health ; 20(12): 1297-1304, 2016 12.
Artículo en Inglés | MEDLINE | ID: mdl-26304301

RESUMEN

OBJECTIVES: The current practice of prescribing psychotropic medication for the management of dementia-related behavioral disturbances is under substantial debate. Using Pearlin's stress process model as theoretical underpinning, the aim of this investigation is to identify caregiver and care recipient characteristics as predictors of anxiolytic, antipsychotic, and antidepressant use among community-dwelling dementia patients. We hypothesized that caregiving burden and patient characteristics, particularly behavior disturbances and pain, would be positively associated with psychotropic medication use. METHODS: Data for this exploratory, cross-sectional study were drawn from the baseline assessment of the Resources for Enhancing Alzheimer's Caregiver Health II trial. Only participants with full baseline information were examined (N = 598). Caregiver characteristics, such as confidence managing problematic behaviors, and care recipient characteristics including pain, problem behaviors, cognitive impairment, and functional impairment, were examined in relation to care recipient psychotropic medication use. RESULTS: Contrary to our hypothesis, behavioral disturbances and burden associated with these disturbances were not significantly associated with psychotropic use. Rather, caregiver characteristics such as race and overall vigilance, and care recipient characteristics such as cognitive status, functional status, and pain were significantly associated with the use of psychotropic medication. Findings differed by class of medication. CONCLUSION: These exploratory findings suggest the utility of a holistic approach to understanding the factors associated with pharmacotherapy among community-dwelling elders with dementia. Significant associations between caregiver characteristics and care recipient psychotropic medication use suggest that educating caregivers in non-pharmacologic strategies hold promise for a more balanced biopsychosocial approach to maintaining dementia patients in the community.


Asunto(s)
Cuidadores , Demencia/tratamiento farmacológico , Vida Independiente , Psicotrópicos/uso terapéutico , Anciano , Cuidadores/psicología , Estudios Transversales , Femenino , Humanos , Masculino , Persona de Mediana Edad
4.
Alzheimers Dement ; 12(3): 334-69, 2016 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-26868060

RESUMEN

INTRODUCTION: Under the U.S. national Alzheimer's plan, the National Institutes of Health identified milestones required to meet the plan's biomedical research goal (Goal 1). However, similar milestones have not been created for the goals on care (Goal 2) and support (Goal 3). METHODS: The Alzheimer's Association convened a workgroup with expertise in clinical care, long-term services and supports, dementia care and support research, and public policy. The workgroup reviewed the literature on Alzheimer's care and support; reviewed how other countries are addressing the issue; and identified public policies needed over the next 10 years to achieve a more ideal care and support system. RESULTS: The workgroup developed and recommended 73 milestones for Goal 2 and 56 milestones for Goal 3. DISCUSSION: To advance the implementation of the U.S. national Alzheimer's plan, the U.S. government should adopt these recommended milestones, or develop similar milestones, to be incorporated into the national plan.


Asunto(s)
Enfermedad de Alzheimer/epidemiología , Enfermedad de Alzheimer/terapia , Cuidados a Largo Plazo/métodos , Investigación Biomédica , Humanos , National Institutes of Health (U.S.)/normas , National Institutes of Health (U.S.)/tendencias , Política Pública , Estados Unidos/epidemiología
5.
Aging Ment Health ; 18(4): 411-24, 2014 May.
Artículo en Inglés | MEDLINE | ID: mdl-24359036

RESUMEN

OBJECTIVES: The purpose of this pilot study was to conduct limited-efficacy testing of the newly developed Preserving Identity and Planning for Advance Care (PIPAC) intervention on self-reported and proxy-reported emotional and health-related outcomes of individuals in the early stages of dementia. METHOD: A two-group comparison design was implemented. Blocked randomization was used to assign individuals with mild dementia and a family contact to either (1) the four-session, multi-component intervention group focused on reminiscence and future planning or (2) the minimal support phone contact comparison group. Of the 19 enrolled dyads, 18completed post-treatment assessments (i.e. 10 intervention and 8 comparison group). Individuals with dementia were M=82.8 (SD=6.46) years old; 31.6% were men and 68.4% were women. Participants were predominantly white/Caucasian (n=18, 94.7%) with one black/African-American (5.3%). RESULTS: Analyses of covariance controlling for baseline differences revealed clinically meaningful differences (with medium to large effect sizes) between groups at post-treatment for depressive symptoms, quality of life, health-related quality of life indicators, and decisional conflict. Individuals in the intervention group were also observed to exhibit higher levels of coping. Feasibility data collected from participants and interventionists were encouraging. CONCLUSION: Emotion-focused, patient-centered interventions like PIPAC hold promise for advancing treatment options in the early and mild stages of dementia. A full-scale, randomized clinical trial of this intervention is warranted to determine both short-term and long-term impacts on clinical outcomes including improved depressive symptomatology, quality of life, and health-related factors that impact daily functioning in social environments.


Asunto(s)
Planificación Anticipada de Atención , Demencia/psicología , Atención Dirigida al Paciente/métodos , Psicoterapia/métodos , Adaptación Psicológica/fisiología , Anciano , Anciano de 80 o más Años , Demencia/terapia , Depresión/psicología , Depresión/terapia , Estudios de Factibilidad , Femenino , Humanos , Masculino , Proyectos Piloto , Calidad de Vida/psicología , Autoimagen , Índice de Severidad de la Enfermedad , Identificación Social , Apoyo Social , Estrés Psicológico/psicología , Estrés Psicológico/terapia , Resultado del Tratamiento
6.
Aging Ment Health ; 14(3): 303-9, 2010 Apr.
Artículo en Inglés | MEDLINE | ID: mdl-20425649

RESUMEN

OBJECTIVE: We examined predictors of staff-reported need-driven behaviors and resistiveness to care in nursing home residents with dementia and predictors of certified nursing assistant (CNA) burden related to both constructs. Background and proximal factors from the need-driven dementia-compromised behavior model [Algase, D.L., Beck, C., Kolanowski, A., Whall, A., Berent, S., Richards, K., et al. (1996). Need-driven dementia-compromised behavior: An alternative view of disruptive behavior. American Journal of Alzheimer's Disease, 5, 10-19] were examined as potential predictors of need-driven behaviors (NDBs) and resistiveness to care and CNA burden. METHOD: We used secondary data analysis of prospective data from 10 nursing homes in Birmingham, Alabama. One-hundred and sixty-one residents (83.43 +/- 8.56 years) with mini mental state examination (MMSE) score = 6.41 (+/- 6.66) were assessed via chart review, resident surveys, and surveys of CNAs. RESULTS: Multiple regression models revealed that cognitive functioning, activities of daily living functioning, race, gender, and CNA-reported weekly resident pain intensity were associated with resident NDBs. Regression models also revealed that weekly pain intensity and medical comorbidity were associated with CNA burden associated with the resident NDBs. However, we were unable to explain a significant amount of variance in the resistiveness to care or CNA burden associated with resistiveness to care. DISCUSSION: Results underscore the role of pain in both resident NDBs and associated CNA burden. Future research should focus on predictors of resident resistiveness to care and the relation of pain assessment and management practices to CNA burden. Moreover, interventions to improve resident care should seek to include CNAs in institutional pain assessment and management processes.


Asunto(s)
Técnicos Medios en Salud , Demencia/psicología , Demencia/terapia , Casas de Salud , Aceptación de la Atención de Salud/psicología , Actividades Cotidianas , Anciano , Anciano de 80 o más Años , Alabama , Cognición , Costo de Enfermedad , Femenino , Objetivos , Humanos , Masculino , Escala del Estado Mental , Personal de Enfermería , Dolor , Estudios Prospectivos , Agitación Psicomotora , Trastorno de la Conducta Social , Recursos Humanos
7.
Psychol Aging ; 24(1): 177-83, 2009 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-19290749

RESUMEN

The authors examined perceived income inadequacy as a predictor of self-reported depressive symptomatology and anxiety in the original sites of the Resources for Enhancing Alzheimer's Caregiver Health I project. Perceived income inadequacy, self-reported household income, and control factors (e.g., subjective health) were entered into hierarchical regression analyses predicting psychological distress. Findings suggest that perceived income inadequacy and not household income significantly predicted more self-reported depressive symptomatology and greater self-reported anxiety. This supports previous findings that objective income measures alone are not adequate indicators of socioeconomic status in older adults.


Asunto(s)
Enfermedad de Alzheimer/psicología , Trastornos de Ansiedad/psicología , Cuidadores/psicología , Costo de Enfermedad , Trastorno Depresivo/psicología , Renta , Pobreza/psicología , Actividades Cotidianas/psicología , Adaptación Psicológica , Anciano , Trastornos de Ansiedad/diagnóstico , Trastorno Depresivo/diagnóstico , Femenino , Humanos , Masculino , Escala del Estado Mental , Persona de Mediana Edad , Calidad de Vida/psicología , Factores Socioeconómicos
8.
J Am Acad Audiol ; 20(9): 529-38, 2009 Oct.
Artículo en Inglés | MEDLINE | ID: mdl-19902701

RESUMEN

BACKGROUND: It is currently estimated that the resident population of individuals over the age of 65 living in nursing homes will double by 2020. Nearly one-third of all nursing home residents have difficulty seeing or hearing, 46% have some form of dementia, and 30-84% of those with dementia in nursing homes show some form of agitation. Nursing home residents who do not receive appropriate audiological services may experience social isolation, cognitive decline and decreased mobility. PURPOSE: To examine the effectiveness of standard audiological testing procedures for nursing home residents and to discuss the purpose of adapting assessment procedures that can lead to more effective audiological assessments for this population. RESEARCH DESIGN: A retrospective chart analyses. A 33-item coding form was used to complete descriptive analysis of original audiological data and demographic data for 307 nursing home residents for a study to examine the effects of auditory stimulation on dementia-related behavior problems exhibited by nursing home residents through audiotape exposure to environmental sounds or soothing voice. RESULTS: Although 77% (n = 235) of the 307 residents were considered compliant for the testing process and 74% (n = 288) tolerated putting on headphones, audiological assessment using air conduction testing could be completed in both ears on 32% (n = 100) of the residents. In fact, only 5% (n = 16) of the 307 residents were able to complete a full traditional audiometric assessment protocol. CONCLUSIONS: Proper identification of hearing impairment through effective and appropriate audiological assessment is crucial for preserving and enhancing quality-of-life in nursing home residents. This study served as an introduction to the problem of using traditional behavioral testing for hearing assessment of nursing home residents. Much work needs to be done to establish best practices for audiometric assessment in this population.


Asunto(s)
Demencia/epidemiología , Evaluación Geriátrica/métodos , Pérdida Auditiva/epidemiología , Pruebas Auditivas/métodos , Casas de Salud/estadística & datos numéricos , Anciano , Anciano de 80 o más Años , Comorbilidad , Demencia/diagnóstico , Femenino , Pérdida Auditiva/diagnóstico , Humanos , Masculino , Persona de Mediana Edad , Aceptación de la Atención de Salud , Estudios Retrospectivos
9.
Psychol Aging ; 23(3): 567-576, 2008 Sep.
Artículo en Inglés | MEDLINE | ID: mdl-18808246

RESUMEN

Previous studies have suggested that 4 latent constructs (depressed affect, well-being, interpersonal problems, somatic symptoms) underlie the item responses on the Center for Epidemiological Studies Depression (CES-D) Scale. This instrument has been widely used in dementia caregiving research, but the fit of this multifactor model and the explanatory contributions of multifactor models have not been sufficiently examined for caregiving samples. The authors subjected CES-D data (N = 1,183) from the initial Resources for Enhancing Alzheimer's Caregiver Health Study to confirmatory factor analysis methods and found that the 4-factor model provided excellent fit to the observed data. Invariance analyses suggested only minimal item-loading differences across race subgroups and supported the validity of race comparisons on the latent factors. Significant race differences were found on 3 of the 4 latent factors both before and after controlling for demographic covariates. African Americans reported less depressed affect and better well-being than White caregivers, who reported better well-being and fewer interpersonal problems than Hispanic caregivers. These findings clarify and extend previous studies of race differences in depression among diverse samples of dementia caregivers.


Asunto(s)
Cuidadores/psicología , Demencia , Trastorno Depresivo/diagnóstico , Grupos Raciales/estadística & datos numéricos , Adulto , Negro o Afroamericano/psicología , Negro o Afroamericano/estadística & datos numéricos , Factores de Edad , Anciano , Anciano de 80 o más Años , Enfermedad de Alzheimer/rehabilitación , Demencia/rehabilitación , Trastorno Depresivo/epidemiología , Trastorno Depresivo/psicología , Escolaridad , Análisis Factorial , Femenino , Estado de Salud , Hispánicos o Latinos/psicología , Hispánicos o Latinos/estadística & datos numéricos , Humanos , Masculino , Persona de Mediana Edad , Modelos Estadísticos , Grupos Raciales/psicología , Reproducibilidad de los Resultados , Población Blanca/psicología , Población Blanca/estadística & datos numéricos
10.
J Aging Health ; 20(8): 937-53, 2008.
Artículo en Inglés | MEDLINE | ID: mdl-18936242

RESUMEN

Objective. This study explored how male and female family caregivers of Alzheimer's disease (AD) patients differ in their use of formal services and informal support and how religiousness may affect such differences. Methods. Data were from a sample of 720 family caregivers of AD patients who participated in the Resources for Enhancing Alzheimer's Caregiver Heath (REACH I) study sites in Birmingham, Boston, Memphis, and Philadelphia. Results. Female caregivers were less likely to use in-home services than males (M = 0.83 vs. M = 1.06, p < .01) but reported more use of transportation services (21.6% vs. 12.7%, p < .01) and more use of informal support (M = 13.9 vs. M = 10.7, p < .01). Mediation tests suggested that three measures of religiousness helped explain the relationship between gender and use of formal services and informal support. Discussion. These findings highlight the necessity to assess AD caregivers' religiousness to better understand their circumstances.


Asunto(s)
Enfermedad de Alzheimer , Cuidadores , Servicios de Atención de Salud a Domicilio/estadística & datos numéricos , Religión , Apoyo Social , Femenino , Humanos , Masculino , Factores Sexuales , Socialización
11.
Psychol Aging ; 22(2): 361-71, 2007 Jun.
Artículo en Inglés | MEDLINE | ID: mdl-17563191

RESUMEN

The authors examined the influence of positive aspects of caregiving (PAC) as a moderator of treatment outcome across 12 months in 1 of the original sites of the Resources for Enhancing Alzheimer's Caregiver Health I project. They used multilevel random coefficients regression analysis to predict time-varying PAC, depression, behavioral bother, and daily care burden in Alzheimer's caregivers (N = 243; mean age = 60.89, SD = 14.19). They found that time-varying PAC was predicted by time-varying daily care burden. They also found significant effects of time-varying PAC for depression, behavioral bother, and daily care burden. Notably, a PAC x Phase x Treatment effect was found for daily care burden, such that individuals who endorsed less PAC benefited most from the intervention across 12 months. The tendency to positively appraise the caregiving experience (i.e., PAC) in response to chronic stressors such as Alzheimer's caregiving may affect individuals' responsiveness to, and benefit from, interventions, whereas only daily care burden affected the tendency to find enjoyment in caregiving across 12 months. Future intervention research should assess individual PAC in order to better tailor interventions to caregiving needs.


Asunto(s)
Enfermedad de Alzheimer/psicología , Cuidadores/psicología , Actividades Cotidianas/psicología , Adaptación Psicológica , Anciano , Anciano de 80 o más Años , Enfermedad de Alzheimer/etnología , Enfermedad de Alzheimer/rehabilitación , Población Negra/psicología , Costo de Enfermedad , Depresión/etnología , Depresión/psicología , Depresión/rehabilitación , Femenino , Humanos , Control Interno-Externo , Masculino , Trastornos Mentales/etnología , Trastornos Mentales/psicología , Trastornos Mentales/rehabilitación , Escala del Estado Mental , Persona de Mediana Edad , Terapia Ocupacional , Medio Social , Factores Socioeconómicos , Población Blanca/psicología
12.
Gerontologist ; 47(5): 642-9, 2007 Oct.
Artículo en Inglés | MEDLINE | ID: mdl-17989406

RESUMEN

PURPOSE: Agitation frequently accompanies cognitive decline among nursing home residents. This study used cross-sectional and longitudinal (up to 18 months) methods to examine agitation among profoundly and moderately impaired residents using both staff report and direct observation methods. DESIGN AND METHODS: The study included participants (N = 78) from a larger study who completed either 12 or 18 months of data collection. There were four measurement points, each separated by 6-month intervals. We recorded agitation using two measures: (a) the computer-assisted behavioral observation system (CABOS) and (b) the staff-completed Nursing Home Behavior Problem Scale. We used longitudinal hierarchical linear modeling to capture the dynamic nature of behavior change as a function of individual resident characteristics and time. RESULTS: The profoundly cognitively impaired residents (M Mini-Mental State Examination [MMSE] score = 1.7) displayed more agitation than the moderately impaired group (M MMSE score = 15.4) at Epoch 1 (cross-sectional analyses). Longitudinal analysis found a significant linear and quadratic trend only with the profoundly impaired residents using the CABOS. These residents showed slight improvements in agitation up to 12 months, with agitation increasing significantly from 12 to 18 months. IMPLICATIONS: With nursing homes receiving an increasing number of profoundly cognitively impaired residents, these results have potential cost and policy implications. Measuring agitation over time by using both staff report and observation measures presents various problems, and we present an alternative measure that may help to avoid these difficulties.


Asunto(s)
Individualidad , Casas de Salud , Agitación Psicomotora , Anciano , Anciano de 80 o más Años , Estudios Transversales , Demencia , Femenino , Humanos , Estudios Longitudinales , Masculino , Modelos Teóricos , Pennsylvania/epidemiología , Agitación Psicomotora/epidemiología
13.
J Aging Health ; 19(1): 3-21, 2007 Feb.
Artículo en Inglés | MEDLINE | ID: mdl-17215199

RESUMEN

This study explored differences and similarities in the experiences of African American and White family caregivers of dementia patients living in rural Alabama. This cross-sectional survey used a caregiving stress model to investigate the interrelationships between caregiving burden, mediators, and outcomes. Random-digit-dialing telephone interviews were used to obtain data on a probability sample of 74 non-Hispanic White and 67 African American caregivers. White caregivers were more likely to be married and older, used acceptance and humor as coping styles, and had fewer financial problems. African American caregivers gave more hours of care, used religion and denial as coping styles, and were less burdened. The authors have developed a methodology for obtaining a representative sample of African American and White rural caregivers. Further investigations are needed of the interactions between urban/rural location and ethnic/racial backgrounds of dementia caregivers for heuristic and applied reasons.


Asunto(s)
Adaptación Psicológica , Población Negra , Cuidadores , Demencia , Atención Domiciliaria de Salud/psicología , Población Rural , Estrés Psicológico , Población Blanca , Alabama/etnología , Cuidadores/psicología , Costo de Enfermedad , Demografía , Familia , Humanos , Calidad de Vida/psicología , Religión , Apoyo Social , Estrés Psicológico/etnología , Estrés Psicológico/psicología
14.
Gerontologist ; 46(1): 81-8, 2006 Feb.
Artículo en Inglés | MEDLINE | ID: mdl-16452287

RESUMEN

PURPOSE: We developed and evaluated an explicit procedure for obtaining self-report pain data from nursing home residents across a broad range of cognitive status, and we evaluated the consistency, stability, and concurrent validity of resident responses. DESIGN AND METHODS: Using a modification of the Geriatric Pain Measure (GPM-M2), we interviewed 61 residents from two nursing homes (Mini-Mental State Examination score, M = 15 +/- 7) once a week for 4 consecutive weeks. We collected additional data by means of chart review, cognitive status assessments, and surveys of certified nursing assistants. We used descriptive and correlational analyses to address our primary aims. RESULTS: Eighty-nine percent of residents completed all four scheduled interviews. Cognitive status was not significantly correlated with number of nonresponses and prompts for yes-no questions, but it was significantly correlated with nonresponses and prompts for Likert-scale questions (r = -.48, p <.001 and r = -.59, p <.001, respectively). Completion time for the 17-item pain measure (M = 13 min) was not predicted by cognitive status. Residents' scores on the GPM-M2 were significantly correlated with number of chronic pain-associated diagnoses, r =.37, p <.01, and internal consistency was excellent, alpha = 0.87 - 0.91. Residents' GPM-M2 scores were stable over time, r =.74-.80, p <.0001, for all comparisons. IMPLICATIONS: Using explicit protocols and reporting procedural data allows researchers and clinicians to better understand and apply results of self-report studies with cognitively impaired elders. Results suggest that many nursing home residents can provide consistent and reliable self-report pain data, given appropriate time and assistance.


Asunto(s)
Trastornos del Conocimiento , Hogares para Ancianos , Casas de Salud , Dimensión del Dolor/métodos , Pacientes/psicología , Autorrevelación , Anciano , Anciano de 80 o más Años , Recolección de Datos , Femenino , Humanos , Masculino , Persona de Mediana Edad
15.
Gerontologist ; 56(2): 357-67, 2016 Apr.
Artículo en Inglés | MEDLINE | ID: mdl-26035882

RESUMEN

PURPOSE OF THE STUDY: To describe the experience of recruiting, training, and retaining retired senior volunteers (RSVs) as interventionists delivering a successful reminiscence and creative activity intervention to community-dwelling palliative care patients and their caregivers. DESIGN AND METHODS: A community-based participatory research framework involved Senior Corps RSV programs. Recruitment meetings and feedback groups yielded interested volunteers, who were trained in a 4-hr session using role plays and real-time feedback. Qualitative descriptive analysis identified themes arising from: (a) recruitment/feedback groups with potential RSV interventionists; and (b) individual interviews with RSVs who delivered the intervention. RESULTS: Themes identified within recruitment/feedback groups include questions about intervention process, concerns about patient health, positive perceptions of the intervention, and potential characteristics of successful interventionists. Twelve RSVs achieved 89.8% performance criterion in treatment delivery. Six volunteers worked with at least one family and 100% chose to work with additional families. Salient themes identified from exit interviews included positive and negative aspects of the experience, process recommendations, reactions to the Interventionist Manual, feelings arising during work with patient/caregiver participants, and personal reflections. Volunteers reported a strong desire to recommend the intervention to others as a meaningful volunteer opportunity. IMPLICATIONS: RSVs reported having a positive impact on palliative care dyads and experiencing personal benefit via increased meaning in life. Two issues require further research attention: (a) further translation of this cost-effective mode of treatment delivery for palliative dyads and (b) further characterization of successful RSVs and the long-term impact on their own physical, cognitive, and emotional functioning.


Asunto(s)
Cuidadores/psicología , Investigación Participativa Basada en la Comunidad , Memoria , Cuidados Paliativos/psicología , Investigación Cualitativa , Calidad de Vida , Voluntarios/psicología , Anciano , Femenino , Humanos , Masculino , Motivación , Estudios Retrospectivos
16.
Gerontologist ; 45(5): 661-6, 2005 Oct.
Artículo en Inglés | MEDLINE | ID: mdl-16199401

RESUMEN

PURPOSE: The purpose of this study was to examine group differences in verbal agitation, verbal interaction, bed restraint, pain, analgesic and neuroleptic medication use, and medical comorbidity among agitated nursing home residents who died during a 6-month clinical trial compared with residents of the same gender and similar initial cognitive status who did not die during the trial. DESIGN AND METHODS: We conducted a two-group secondary data analysis of prospective observational data from 10 nursing homes in Birmingham, Alabama. By means of chart review, resident assessments, surveys of certified nursing assistants, and direct observation of residents' daily behaviors and environment, 32 residents (87.34 +/- 7.29 years) with a Mini-Mental State Examination (MMSE) score = 4.31 (+/-5.54) who died were compared with 32 residents (84 +/- 6.96 years) with a mean MMSE score = 4.28 (+/-5.49) who did not die during the clinical trial. RESULTS: Residents who died displayed more verbal agitation, less time in verbal interaction with staff, and almost twice as much time restrained in bed during observation time in comparison with residents who did not die during the clinical trial. However, groups did not differ significantly in severity of comorbid illness, functional status, number of painful diagnoses, certified nursing assistants' reports of residents' pain, or opioid or nonopioid analgesic prescription or dosage. Surviving residents were more likely to receive neuroleptic medication than residents who died. IMPLICATIONS: Results suggest that agitated nursing home residents may exhibit a heightened level of verbal agitation, decreased verbal interaction with staff, and increased bed restraint up to 3 months prior to death. Prospective observational studies are needed to identify markers for imminent mortality among nursing home residents.


Asunto(s)
Actividades Cotidianas/psicología , Conducta , Demencia/epidemiología , Hogares para Ancianos , Casas de Salud , Agitación Psicomotora/tratamiento farmacológico , Agitación Psicomotora/epidemiología , Cuidado Terminal , Anciano de 80 o más Años , Alabama , Analgésicos/uso terapéutico , Antipsicóticos/uso terapéutico , Comorbilidad , Femenino , Humanos , Masculino , Dolor/prevención & control , Agitación Psicomotora/psicología , Restricción Física , Conducta Verbal
17.
J Aging Health ; 17(2): 148-71, 2005 Apr.
Artículo en Inglés | MEDLINE | ID: mdl-15750049

RESUMEN

UNLABELLED: To evaluate psychometric properties and response patterns of the Care-giver Assessment of Function and Upset (CAFU), a 15-item multidimensional measure of dependence in dementia patients and caregiver reaction. METHOD: 640 families were administered the CAFU (53% White, 43% African American, and 4% mixed race and ethnicity). We created a random split of the sample and conducted exploratory factor analyses on Sample 1 and confirmatory factor analyses on Sample 2. Convergent and discriminant validity were evaluated using Spearman rank correlation coefficients. RESULTS: A two-factor structure for functional items was derived, and excellent factorial validity was obtained. Convergent and discriminant validity were obtained for function and upset measures. Differential response patterns for dependence and caregiver upset were found for caregiver race, relationship, and care recipient gender but not for caregiver gender. DISCUSSION: The CAFU is easily administered, reliable, and valid for evaluating appraisals of dependencies and upsetting care areas.


Asunto(s)
Actividades Cotidianas , Cuidadores/psicología , Costo de Enfermedad , Demencia , Psicometría , Anciano , Dependencia Psicológica , Femenino , Humanos , Masculino , Estados Unidos
18.
J Am Geriatr Soc ; 51(4): 534-8, 2003 Apr.
Artículo en Inglés | MEDLINE | ID: mdl-12657075

RESUMEN

OBJECTIVES: To examine correlates of analgesic medication prescription and administration in communicative, cognitively impaired nursing home residents. Residents' behaviors were assessed using computer-assisted real-time observations as potential adjunctive indicators of pain. DESIGN: Cross-sectional study over a 4-week period. SETTING: Five nursing homes in the greater Birmingham, Alabama, area. PARTICIPANTS: Ninety-two residents (mean age +/- standard deviation = 83.86 +/- 8.55) with a mean Mini-Mental State Examination (MMSE) score of 13.81 +/- 6.34. MEASUREMENTS: Data were obtained via chart review, resident assessments, questionnaire completion by certified nursing assistants familiar with residents' care, and direct observation of residents' daily behaviors. RESULTS: Receipt of analgesic medication was related to self-report of pain (F2,89 = 9.89, P =.0001), MMSE (F2,88 = 3.98, P =.022), and time spent inactive (F2,89 = 3.04, P =.053). Residents who received analgesic medication reported greater intensity of pain than other residents. Residents who received analgesics had higher MMSE scores than those who did not receive analgesics. Residents who received analgesics spent less time being inactive than those not prescribed analgesics. Receipt of higher dosage of opioid analgesic medication was associated with more time spent with others in verbal interaction (r =.22, P =.03). CONCLUSION: This study refines the methodology of measuring analgesic medication dosage and its effect on resident behavior. Analgesic prescription and administration patterns are related to time residents spend being inactive. Results suggest that opioid analgesics may hold particular promise in alleviating pain, as indicated by resident behaviors.


Asunto(s)
Analgésicos Opioides/farmacología , Antiinflamatorios no Esteroideos/farmacología , Conducta/efectos de los fármacos , Comunicación , Hogares para Ancianos , Casas de Salud , Anciano , Anciano de 80 o más Años , Alabama , Analgésicos Opioides/uso terapéutico , Antiinflamatorios no Esteroideos/uso terapéutico , Trastornos del Conocimiento , Computadores , Estudios Transversales , Femenino , Humanos , Masculino , Persona de Mediana Edad , Dolor/tratamiento farmacológico
19.
J Am Geriatr Soc ; 50(1): 152-6, 2002 Jan.
Artículo en Inglés | MEDLINE | ID: mdl-12028260

RESUMEN

OBJECTIVES: The primary purpose of this preliminary study was to investigate the associations between certified nursing assistant (CNA) report of pain, Minimum Data Set (MDS) report of pain, and analgesic medication use in cognitively impaired nursing home residents. DESIGN: Correlational study. SETTING: Three nursing homes in the greater Birmingham, Alabama area. PARTICIPANTS: Fifty-seven cognitively impaired nursing home residents with a mean Mini-Mental State Examination (MMSE) score of 11.1. MEASUREMENTS: Pain was assessed using a three-item proxy pain questionnaire (PPQ), developed by the researchers and administered to the residents' primary CNA. MDS and analgesic medication data corresponding with the time of PPQ data collection were gathered from medical records. Cognitive status was measured with the MMSE. RESULTS: The PPQ elicited substantially higher estimates of pain prevalence than the MDS (48% versus 20%), and the PPQ and the MDS were not well correlated (pain frequency: r=.19, P=.18; pain intensity: r=.22, P=.11). The PPQ was also more strongly associated with analgesic medication use than the MDS. Cognitive status was significantly associated with pain report on the PPQ but not on the MDS. Test-retest reliability coefficients for the three items of the PPQ were excellent, ranging from.84 to.87 (P

Asunto(s)
Analgésicos/uso terapéutico , Indicadores de Salud , Dimensión del Dolor/métodos , Dolor/tratamiento farmacológico , Encuestas y Cuestionarios , Anciano , Anciano de 80 o más Años , Recolección de Datos/métodos , Demencia/complicaciones , Evaluación Geriátrica , Humanos , Casas de Salud , Dolor/clasificación , Dolor/complicaciones , Proyectos Piloto , Reproducibilidad de los Resultados
20.
Psychol Aging ; 18(4): 886-95, 2003 Dec.
Artículo en Inglés | MEDLINE | ID: mdl-14692873

RESUMEN

Confirmatory factor analysis of the Revised Memory and Behavior Problems Checklist--Nursing Home (RMBPC) replicated the factor structure of the community-based RMBPC (L. Teri et al., 1992). The reliability of the total score was high as indexed by estimates of internal consistency (alpha = .95), test-retest reliability (r = .86), and interrater reliability between 2 interviewers (r = .88). Notably, the interrater reliability between 2 independent certified nursing assistants (CNAs) regarding residents' behavior problem frequency was more modest (r = .46), possibly reflecting the degree to which resident behaviors capture individual CNA's attention. This may have implications for the interpretation of data from the Minimum Data Set. CNAs reported moderately severe burden associated with behavior problems in 47% of residents under their care.


Asunto(s)
Demencia/complicaciones , Demencia/psicología , Evaluación Geriátrica/métodos , Trastornos de la Memoria , Asistentes de Enfermería , Casas de Salud , Trastorno de la Conducta Social , Adulto , Anciano , Anciano de 80 o más Años , Envejecimiento/psicología , Costo de Enfermedad , Análisis Factorial , Femenino , Humanos , Masculino , Persona de Mediana Edad , Relaciones Profesional-Paciente , Índice de Severidad de la Enfermedad , Recursos Humanos
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