RESUMEN
Family caregivers of people with cancer encounter a wide range of problems including challenges managing patients' symptoms, difficulties navigating complex healthcare systems, and financial stressors associated with caregiving. Outpatient palliative care teams are ideally positioned to help caregivers respond to these challenges; however, little evidence is available to inform problem-solving support for caregivers in this setting. This article presents results from a secondary analysis of data obtained as part of a randomized clinical trial of a problem-solving intervention for family caregivers of people with cancer receiving outpatient palliative care. It describes the extent to which caregivers report adoption of positive and negative problem orientations and use of rational, impulsive, and avoidant problem-solving styles, and examines whether these problem-solving dimensions differ by age and gender. Results reveal statistically significant negative correlations between caregiver age and positive and negative problem orientations and use of a rational problem-solving style, and statistically significant gender differences with regard to negative problem orientation and use of an impulsive problem-solving style. Findings from this exploratory study highlight unique potential strengths and needs of caregivers, and set the stage for future research on problem-solving among cancer caregivers in the growing field of outpatient palliative care.
Asunto(s)
Neoplasias , Cuidados Paliativos , Humanos , Cuidados Paliativos/métodos , Cuidadores , Pacientes Ambulatorios , Solución de ProblemasRESUMEN
In Hungary, as in most other countries, faces an aging population. Chronic illnesses, including cancer, among older adults often require assistance from family and formal caregivers. This study's objective was to understand Hungarian social (formal) caregivers' challenges providing care in the home for older adults diagnosed with cancer. A focus group design explored the experiences of 28 Hungarian social caregivers and 6 social work supervisors who work for county agencies responsible for formal caregiving services to older adults. The data reveal that the older adults often developed dependence on these caregivers for physical (personal), health-related, and "emotional" care. Caregivers also related difficult interactions with health providers and observation of ethical problems (autonomy, truth-telling, and justice). The complex nature of providing social care for Hungarian older adults with serious illness calls for policies that set increased requirements of educational competence and training.
Asunto(s)
Servicios de Atención de Salud a Domicilio , Neoplasias , Humanos , Anciano , Cuidadores , Hungría , Apoyo Social , Neoplasias/terapiaAsunto(s)
Cuidados Paliativos , Servicio Social , Cuidado Terminal , Actitud Frente a la Muerte , Humanos , EspiritualidadRESUMEN
Due to the unprecedented increase in the United States aging demographics, many more people are living longer and reaching older ages than ever before. However, a longer life is not necessarily a better life, as the vast majority will face a period of prolonged deteriorating health prior to death. Although notable efforts have been underway that are designed to improve the end-of-life experience, increasing numbers of individuals express a desire and/or act upon an intent to end their lives precipitously. Though still limited, the options to actively participate in their own deaths are growing. Requests for a hastened death can occur among people of all ages and includes those with advanced illness as well as others wanting to die due to unbearable suffering. This article provides an overview of the ongoing discourse about the experience of dying faced by many older adults, including aspects frequently associated with "a good death." The limitations of established practices which seek to provide a "better" dying experience are identified followed by discussion of the growing availability of alternative options. Reflective considerations are presented to guide practice vis-à-vis the changing landscape surrounding options in dying.