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1.
J Pediatr Hematol Oncol ; 45(5): e573-e577, 2023 07 01.
Artículo en Inglés | MEDLINE | ID: mdl-36898042

RESUMEN

PURPOSE: Survivorship care plans (SCPs) have been instrumental in aiding transition from cancer treatment to survivorship care, which contains the diagnosis, treatment, potential late effects, and recommended follow-up. There has been paucity of research on its efficacy and lack of guidelines on development and delivery of SCPs. The Next Steps Survivorship Clinic at Children's Wisconsin uses a Survivorship Healthcare Passport (SHP), a SCP pocket-sized card. This study aims to improve understanding of patient and parent use of the SHP at a single institution. MATERIALS AND METHODS: An electronic survey was distributed to cancer survivors (14 to 28 y old) and parents/guardians who received the SCP. Data was analyzed with descriptive and correlation statistics. RESULTS: Older survivors were reliable in carrying their SHP, and endorsed greater confidence in understanding its contents leading to a notion of improved ability to coordinate care. Younger survivors tend to rely on their parents. A preference for a smartphone application as another platform was noted. CONCLUSIONS: This form of SCP has shown to benefit older survivors which directly impacts the notion of efficacy in care coordination. IMPLICATION FOR CANCER SURVIVORS: Providing easy-to-access information may encourage survivors to advocate for their health and to facilitate transition of care.


Asunto(s)
Supervivientes de Cáncer , Neoplasias , Humanos , Niño , Supervivencia , Sobrevivientes , Atención a la Salud , Encuestas y Cuestionarios , Planificación de Atención al Paciente , Neoplasias/terapia
2.
Support Care Cancer ; 31(7): 390, 2023 Jun 10.
Artículo en Inglés | MEDLINE | ID: mdl-37300714

RESUMEN

PURPOSE: Adolescents and young adults (AYAs) with cancer are challenged to manage complex medication regimens during treatment. The aims of the study are to (1) describe the medication self-management behaviors of AYAs with cancer and (2) examine the barriers and facilitators to AYAs' optimal use of medications, including their self-efficacy to manage medications. METHODS: This cross-sectional study enrolled 30 AYAs (18-29 years) with cancer who were receiving chemotherapy. Participants electronically completed a demographic form, a health literacy screen, and the PROMIS Self-efficacy for Medication Management instrument. They completed a semi-structured interview to answer questions about their medication self-management behaviors. RESULTS: Participants (53% female, mean age = 21.9 y) had a variety of AYA cancer diagnoses. Over half (63%) had limited health literacy. Most AYAs had accurate knowledge about their medications and average self-efficacy for managing medications. These AYAs were managing an average of 6 scheduled and 3 unscheduled medications. Oral chemotherapy was prescribed for 13 AYAs; other medications were for prevention of complications and symptom management. Many AYAs relied on a parent for obtaining and paying for medications, used multiple reminders to take medications, and used a variety of strategies to store and organize medications. CONCLUSION: AYAs with cancer were knowledgeable and confident about managing complex medication regimens but needed support and reminders. Providers should review medication-taking strategies with AYAs and ensure a support person is available.


Asunto(s)
Neoplasias , Automanejo , Humanos , Femenino , Adulto Joven , Adolescente , Adulto , Masculino , Estudios Transversales , Neoplasias/tratamiento farmacológico , Padres , Administración Oral
3.
Obstet Gynecol Clin North Am ; 51(3): 453-461, 2024 Sep.
Artículo en Inglés | MEDLINE | ID: mdl-39098772

RESUMEN

Obstetrics and gynecologic hospitalists play a pivotal role in the evolution of perinatal care. Hospitalists improve patient safety by providing on-site, reliable, high-quality care. Hospitalists help to reduce the rates of unnecessary cesarean deliveries and increase the rates of vaginal deliveries.


Asunto(s)
Ginecología , Médicos Hospitalarios , Obstetricia , Seguridad del Paciente , Humanos , Femenino , Embarazo , Obstetricia/normas , Calidad de la Atención de Salud , Atención Perinatal/normas , Parto Obstétrico/normas , Cesárea/estadística & datos numéricos
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