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1.
Clin Rehabil ; 33(9): 1503-1514, 2019 Sep.
Artículo en Inglés | MEDLINE | ID: mdl-31056938

RESUMEN

OBJECTIVE: To test a model of spiritual well-being and resilience among individuals with spinal cord injuries and their family members. DESIGN: Prospective cross-sectional observational data were analyzed by structural equation modelling. SETTING: Inpatient and community services at one rehabilitation hospital. SUBJECTS: Individual with spinal cord injury (n = 50) and family member (n = 50) dyads. INTERVENTIONS: Standard rehabilitation, both inpatient and community. MAIN MEASURE(S): Functional assessment of chronic illness therapy - spiritual well-being scale - expanded, Connor-Davidson resilience scale, positive and negative affect scale, depression anxiety and stress scale-21, satisfaction with life scale. RESULTS: Median time post-injury was 8.95 months (IQR (interquartile range) = 14.15). Individuals with spinal cord injury and family members reported high scores for both spiritual well-being (66.06 ± 14.89; 68.42 ± 13.75) and resilience (76.68 ± 13.88; 76.64 ± 11.75), respectively. Analysis found the model had acceptable fit (e.g. chi-square goodness of fit statistic = 38.789; P = .263). For individuals with spinal cord injury, spiritual well-being was positively associated with resilience which, in turn, was associated with increasing positive affect and satisfaction with life. Among family members, spiritual well-being was positively associated with resilience. Resilience was then associated with lowered levels of depression and mediated the impact of depression on satisfaction with life. Limited evidence was found for mutual dyadic links, with the only significant pathway finding that resilience in the individual with spinal cord injury was associated with increased satisfaction with life among family members. CONCLUSION: Increased spirituality and resilience make a significant contribution (both independently and in combination) to positive psychological outcomes for both individuals with spinal cord injury and their family members.


Asunto(s)
Ajuste Emocional , Familia/psicología , Resiliencia Psicológica , Traumatismos de la Médula Espinal/psicología , Espiritualidad , Adaptación Psicológica , Estudios Transversales , Femenino , Humanos , Masculino , Persona de Mediana Edad , Satisfacción Personal , Escalas de Valoración Psiquiátrica , Traumatismos de la Médula Espinal/rehabilitación
2.
Brain Inj ; 32(13-14): 1612-1622, 2018.
Artículo en Inglés | MEDLINE | ID: mdl-30182741

RESUMEN

OBJECTIVE: To identify the extent of research which has investigated spirituality or closely related meaning-making constructs after traumatic brain injury (TBI). DESIGN: A scoping review was employed to capture the broadest possible range of studies. METHODS: Search terms 'spirituality', 'religion', 'beliefs', 'faith', 'hope', 'meaning', 'purpose in life', 'sense of coherence' and 'posttraumatic growth' were combined with search terms related to TBI. Findings were restricted to empirical studies published in English, in peer-reviewed journals and conducted over a 20-year period between 1997 and 2016. RESULTS: Nine studies were identified, conducted in the USA, Canada and the UK. These included eight quantitative studies and one qualitative study. Definitions and measurement of spirituality varied widely among the studies. Findings revealed that spirituality was closely related to a number of positive outcomes following TBI including psychological coping, physical health, mental health, productivity, life satisfaction, functional independence and posttraumatic growth. CONCLUSIONS: The limited research conducted into spirituality following TBI suggests it can play an important role in the recovery process. Further research is necessary to identify the particular spiritual needs of this population, and how clinical staff may be supported to address such needs.


Asunto(s)
Adaptación Psicológica/fisiología , Lesiones Traumáticas del Encéfalo/fisiopatología , Lesiones Traumáticas del Encéfalo/psicología , Espiritualidad , Canadá , Bases de Datos Bibliográficas/estadística & datos numéricos , Humanos , Investigación Cualitativa , Calidad de Vida/psicología , Reino Unido
3.
J Health Care Chaplain ; 29(4): 368-380, 2023.
Artículo en Inglés | MEDLINE | ID: mdl-35788182

RESUMEN

The value of spiritual care training for all staff working in health and aged care has been demonstrated. This study investigated how spiritual care specialists (SCSs) perceive their role in delivering spiritual care education to other staff. Fourteen SCSs participated in three online focus groups. Two key themes were identified: First, SCSs build upon existing capacity of staff by: (i) recognising existing strengths and capabilities; (ii) using relevant stories; (iii) using language which makes spiritual care accessible; (iv) making training relevant and practical; (v) tapping into staff vocation or calling; and (vi) building awareness of one's own spirituality. Second, SCSs assist staff to draw upon SCS expertise by establishing a trusting relationship and developing staff awareness of the SCS role. The SCS's role in delivering spiritual care education is an important one, and further consideration regarding how to support them in this role is warranted.

4.
J Health Care Chaplain ; 28(3): 295-309, 2022.
Artículo en Inglés | MEDLINE | ID: mdl-33369532

RESUMEN

The global coronavirus pandemic (COVID-19) has brought about physical, psychological and spiritual challenges within health and aged care services across Australia. The aim of this study was to consider the impact of COVID-19 from the perspective of Australian chaplains. Semi-structured interviews were conducted with 17 chaplains. A grounded theory analysis identified three overarching themes: (1) a changing healthcare environment; (2) the impact of the virus; and (3) chaplains responding to the crisis. Increased healthcare restrictions in response to COVID-19 raised levels of fear and anxiety among patients, residents, family members and staff, and generated feelings of isolation and disconnection. Chaplains responded by providing a calm presence, being available, holding out hope, introducing creative ways to provide spiritual care and seeking spiritual nourishment themselves. The value of chaplaincy in health and aged care services is discussed in light of these findings.


Asunto(s)
COVID-19 , Cuidado Pastoral , Anciano , Australia , Clero/psicología , Humanos , Espiritualidad
5.
Disabil Rehabil ; 44(8): 1409-1418, 2022 04.
Artículo en Inglés | MEDLINE | ID: mdl-32976734

RESUMEN

PURPOSE: This study explored the impact of a brief spiritual care training program upon the perceptions and self-reported practice of rehabilitation professionals working in traumatic injury. METHODOLOGY AND METHODS: A qualitative study. Semi-structured interviews were held with staff from a rehabilitation hospital in Sydney, Australia, between six and eight weeks after participation in spiritual care training. A thematic analysis was conducted. RESULTS: Of the 41 rehabilitation professionals who attended the training (1 h online, 1.5 h face to face), 16 agreed to be interviewed. The majority worked in spinal cord injury and were female. Half reported holding a Christian affiliation. One overarching theme and six sub-themes were identified from the qualitative data. The overarching theme was "spirituality is everybody's business". The six sub-themes were: (i) increased awareness of the nature of spirituality, (ii) realisation of the importance of spirituality to clients, (iii) a desire to keep spirituality on the radar, (iv) identifying barriers to providing spiritual care (v) incorporating spirituality into practice, and, (vi) recognising spirituality as personally meaningful. CONCLUSIONS: A brief spiritual care training program can impact positively upon perceptions and practice of rehabilitation professionals. Ongoing training is needed to ensure that staff retain what was learnt.IMPLICATIONS FOR REHABILITATIONBrief spiritual care training can impact positively upon rehabilitation professionals' perceptions of spirituality and lead to practice change in the delivery of spiritual care across many clinical disciplines.The stories of patients and family members are powerful staff education tools in spiritual care training.Client spirituality is an under recognised resource that staff can draw upon in supporting and enhancing the rehabilitation process.


Asunto(s)
Traumatismos de la Médula Espinal , Terapias Espirituales , Australia , Femenino , Humanos , Masculino , Investigación Cualitativa , Traumatismos de la Médula Espinal/rehabilitación , Espiritualidad
6.
J Pain Symptom Manage ; 62(3): e261-e278, 2021 09.
Artículo en Inglés | MEDLINE | ID: mdl-33757893

RESUMEN

CONTEXT: Spirituality has been demonstrated to play an important role in healthcare, yet many staff feel ill-equipped to deliver spiritual care. Spiritual care training programs have been developed to address this need. OBJECTIVE: The aim of this mixed-methods systematic review was to identify spiritual care training programs for healthcare professionals or students, and to investigate program content, teaching methods, key outcomes, and identified challenges and facilitators. METHODS: A mixed-methods systematic review was conducted. The search terms ('religio*' OR 'spiritual*' OR 'existenti*') were combined with ('educat*' OR 'train*' OR 'curricul*' OR 'program*'), AND ('care' OR 'therap*' OR 'treatment' OR 'competenc*'). Search terms were entered into the following data bases: PsycINFO, Medline, Cinahl and Web of Science. Findings were restricted to peer-reviewed studies published in English between January 2010 and February 2020. RESULTS: Fifty-five studies were identified. The quality of studies was mixed. Programs encompassed a range of content and teaching methods. Reported outcomes included increased levels of competency across intrapersonal spirituality, interpersonal spirituality, and spiritual assessment and interventions. Identified barriers included competing healthcare priorities, negative perceptions of spirituality and spiritual care, resistance towards focusing on one's own spirituality, staff feeling inadequate, and the need for ongoing training. Facilitators included opportunities for reflection, involvement of chaplains, application of practical tools, opportunities for practice, online training, and managerial support. CONCLUSIONS: Positive outcomes following spiritual care training were identified. Further research is needed to identify patient-related outcomes of staff training, and to examine how the benefits of such training can be maintained over time.


Asunto(s)
Terapias Espirituales , Espiritualidad , Atención a la Salud , Personal de Salud , Humanos
7.
NeuroRehabilitation ; 46(1): 17-30, 2020.
Artículo en Inglés | MEDLINE | ID: mdl-32039867

RESUMEN

BACKGROUND: Spirituality has been positively associated with key adjustment indicators for individuals affected by traumatic brain injury or spinal cord injury. OBJECTIVE: To explore the perceptions of health professionals working in rehabilitation in relation to spirituality and spiritual care practice. METHODS: An observational study. An adapted version of the Royal College of Nursing Spirituality Survey was emailed to specialty networks of rehabilitation health professionals across Australia. RESULTS: The majority of the 125 participants were female (92.8%), from a nursing (67.2%) background, and selected 'Christian' as their religious affiliation (68.8%). A range of spiritual needs for rehabilitation clients were identified, including a source of hope and strength. Although 84% agreed that spirituality was a fundamental aspect of healthcare, 85% agreed that staff did not receive enough education or training. Thematic analysis identified three key ways participants felt their workplaces could better address spirituality: increasing staff knowledge and skills in providing spiritual care, incorporating spirituality into rehabilitation processes, and providing patients with access to spiritual resources. CONCLUSIONS: Spirituality is considered to play an important role after traumatic injury, but most staff do not feel well equipped to provide spiritual care. Training in spiritual care for rehabilitation professionals is warranted.


Asunto(s)
Actitud del Personal de Salud , Personal de Salud/psicología , Traumatismos de la Médula Espinal/rehabilitación , Espiritualidad , Adulto , Australia , Femenino , Esperanza , Humanos , Masculino , Traumatismos de la Médula Espinal/psicología , Encuestas y Cuestionarios
8.
NeuroRehabilitation ; 46(1): 3-15, 2020.
Artículo en Inglés | MEDLINE | ID: mdl-32039872

RESUMEN

BACKGROUND: A deficits approach to understanding psychological adjustment in family caregivers of individuals with a neurological disability is extensive, but further research in the field of positive psychology (spirituality, resilience, hope) may provide a potential avenue for broadening knowledge of the family caregiver experience after traumatic brain injury (TBI) or spinal cord injury (SCI). OBJECTIVE: To test a proposed model of spirituality among family caregivers of individuals with TBI or SCI, using structural equation modelling (SEM). METHODS: A cross-sectional design was employed to survey ninety-nine family participants (TBI = 76, SCI = 23) from six rehabilitation units from NSW and Queensland. Assessments comprised Functional Assessment of Chronic Illness Therapy-Spiritual Well-being Scale-Expanded, Connor -Davidson Resilience Scale, Herth Hope Index, and three measures of psychological adjustment including Caregiver Burden Scale, Positive and Negative Affect Scale, and Depression Anxiety Stress Scale. RESULTS: SEM showed the proposed model was a good fit. The main findings indicated spirituality had a direct negative link with burden. Spirituality had a direct positive association with hope which, in succession, had a positive link with resilience. Spirituality influenced positive affect indirectly, being mediated by resilience. Positive affect, in turn, had a negative association with depression in caregivers. CONCLUSIONS: This study contributes to better targeting strength-based family interventions.


Asunto(s)
Adaptación Psicológica , Lesiones Traumáticas del Encéfalo/psicología , Cuidadores/psicología , Modelos Psicológicos , Traumatismos de la Médula Espinal/psicología , Adulto , Lesiones Traumáticas del Encéfalo/rehabilitación , Femenino , Esperanza , Humanos , Masculino , Persona de Mediana Edad , Resiliencia Psicológica , Traumatismos de la Médula Espinal/rehabilitación , Espiritualidad
9.
NeuroRehabilitation ; 46(1): 41-52, 2020.
Artículo en Inglés | MEDLINE | ID: mdl-32039873

RESUMEN

BACKGROUND: Stroke is the leading cause of disability in Australia and the third-leading cause of disability worldwide and a significant burden on caregivers. OBJECTIVE: To map the extent, range and nature of the literature investigating spirituality and resilience among family caregivers of survivors of stroke. METHOD: A scoping review. RESULTS: Six studies were identified, conducted in the United States, United Kingdom, China and Turkey. These included two quantitative, one experimental and three qualitative designs. No studies linked spirituality to resilience. For the qualitative studies, spirituality was the primary focus of one, and the secondary focus of two others. Qualitative data reflected the lived experience of caregivers drawing upon spirituality to help cope with the burden of caregiving. For the two quantitative studies, spirituality was measured as a secondary focus and showed no significant links between spirituality or adjustment in caregivers. The one experimental study comprised a psycho-educational intervention focused on building resilience, finding a significant increase in social support not reflected in a matched control group. Clinical implications suggested the need for strength-based interventions, including spiritual needs and religious beliefs of the family caregiver. CONCLUSIONS: Spirituality and resilience following stroke are essential factors in caregiver adjustment following stroke. Further research with a focus on causality and the link between spirituality, resilience and adjustment in this population is needed.


Asunto(s)
Cuidadores/psicología , Familia/psicología , Resiliencia Psicológica , Espiritualidad , Rehabilitación de Accidente Cerebrovascular/psicología , Accidente Cerebrovascular/psicología , Adaptación Psicológica , Anciano , Femenino , Humanos , Masculino , Persona de Mediana Edad
10.
NeuroRehabilitation ; 47(4): 393-403, 2020.
Artículo en Inglés | MEDLINE | ID: mdl-33164955

RESUMEN

BACKGROUND: Spirituality may play an important role in neurorehabilitation, however research findings indicate that rehabilitation professionals do not feel well equipped to deliver spiritual care. OBJECTIVE: To evaluate a spiritual care training program for rehabilitation professionals. METHODS: An exploratory controlled trial was conducted. Participants enrolled in a two-module spiritual care training program. Spiritual care competency was measured with the Spiritual Care Competency Scale. Confidence and comfort levels were measured using the Spiritual Care Competency Scale domains. The Spirituality and Spiritual Care Rating Scale assessed participant attitudes and knowledge. Measures were administered three times: pre-program, post-program and six weeks follow-up. RESULTS: The training (n = 41) and control (n = 32) groups comprised rehabilitation professionals working in spinal cord or traumatic brain injury units. No between-group differences were observed on the study variables at the pre-program time point. Multilevel models found that levels of spiritual care competency, confidence, comfort, and ratings on existential spirituality increased significantly for the training group (versus control) post-program (p < 0.05) and these significant differences were maintained at follow-up. CONCLUSIONS: A brief spiritual care training program can be effective in increasing levels of self-reported competency, confidence and comfort in delivery of spiritual care for rehabilitation professionals.


Asunto(s)
Lesiones Encefálicas/rehabilitación , Personal de Salud/educación , Traumatismos de la Médula Espinal/rehabilitación , Espiritualidad , Adulto , Lesiones Encefálicas/psicología , Femenino , Personal de Salud/psicología , Humanos , Masculino , Persona de Mediana Edad , Centros de Rehabilitación , Traumatismos de la Médula Espinal/psicología , Resultado del Tratamiento , Adulto Joven
11.
Rehabil Psychol ; 63(4): 521-531, 2018 Nov.
Artículo en Inglés | MEDLINE | ID: mdl-30024204

RESUMEN

PURPOSE/OBJECTIVE: The aim of this exploratory study was to consider how spirituality (encompassing meaning, hope and purpose), may facilitate family resilience after spinal cord injury (SCI) over time. Research Method/Design: A qualitative, longitudinal study design was adopted. Semistructured interviews were conducted with 10 family dyads (consisting of the individual with SCI and a nominated family member) on 2 occasions, 6 months apart. A thematic analysis was conducted. RESULTS: Participants reported drawing upon a range of different sources of spirituality, including religious faith, the natural world, inner strength, and meaningful connectedness with others. These sources of spirituality were often tested in some way after the SCI. Meaning-making responses to these tests were linked with 3 key outcomes: gratitude, hope, and deeper connectedness with others, assisting families to move forward in their journey after SCI. Over time sources of spirituality did not change significantly; however, the intensity of spiritual experience lessened for some families. CONCLUSIONS: This study indicated that spirituality after SCI plays an important role for both the injured individual and their family members. Families draw upon a range of sources of spirituality, and these sources of spirituality may assist the family to move forward together after SCI. Further investigation of how health professionals can better address spirituality during spinal rehabilitation is warranted. (PsycINFO Database Record (c) 2018 APA, all rights reserved).


Asunto(s)
Actitud Frente a la Salud , Familia/psicología , Resiliencia Psicológica , Traumatismos de la Médula Espinal/psicología , Traumatismos de la Médula Espinal/rehabilitación , Espiritualidad , Adulto , Anciano , Australia , Estudios Transversales , Femenino , Esperanza , Humanos , Entrevistas como Asunto , Estudios Longitudinales , Masculino , Persona de Mediana Edad , Adulto Joven
12.
Artículo en Inglés | MEDLINE | ID: mdl-29951279

RESUMEN

STUDY DESIGN: Descriptive, qualitative study. OBJECTIVES: To explore the perspectives of health professionals (HPs) regarding the role of spirituality in spinal cord injury (SCI) rehabilitation. SETTING: Single centre rehabilitation hospital, NSW, Australia. METHODS: Two focus groups (n = 12) were conducted with HPs (e.g., nursing, allied health, medical) working in SCI inpatient rehabilitation. A semi-structured interview was employed, consisting of questions about spirituality and its role in SCI rehabilitation. The groups were audio recorded and transcribed. An inductive thematic analysis was conducted. RESULTS: Six themes were identified from the focus group data: (i) the meaning of spirituality; (ii) spirituality as a help; (iii) spirituality as a hindrance; (iv) how spirituality is indirectly addressed in practice; (v) perceived barriers to incorporating spirituality into practice; (vi) how spirituality can be better integrated into practice. HPs recognised that spirituality played an important role in the adjustment of many individuals and their families after SCI. However, spirituality was not proactively addressed during SCI rehabilitation, and most often arose during informal interactions with clients. Spirituality, and specifically religious belief, was perceived to sometimes raise difficulties for clients and staff. The use of physical space and a review of rehabilitation processes were suggested by HPs as two ways spirituality could be better incorporated into practice. CONCLUSIONS: The findings of this study reveal that spiritual needs of clients and their family members during SCI rehabilitation are important and could be better addressed. A range of initiatives are proposed, including staff training and the use of standardised spiritual assessment tools.

13.
Health Soc Care Community ; 26(4): 433-448, 2018 07.
Artículo en Inglés | MEDLINE | ID: mdl-28795463

RESUMEN

The International Network for Social Workers in Acquired Brain Injury (INSWABI) commissioned a systematic scoping review to ascertain the social work-generated evidence base on people with traumatic brain injury (TBI) of working age. The review aimed to identify the output, impact and quality of publications authored by social workers on this topic. Study quality was evaluated through assessment frameworks drawn from the United Kingdom National Service Framework for Long-Term Conditions. In the 40-year period from 1975 to 2014, 115 items were published that met the search criteria (intervention studies, n = 10; observational studies, n = 52; literature reviews, n = 6; expert opinion or policy analysis, n = 39; and others, n = 8). The publications could be grouped into five major fields of practice: families, social inclusion, military, inequalities and psychological adjustment. There was a significant increase in the number of publications over each decade. Impact was demonstrated in that the great majority of publications had been cited at least once (80.6%, 103/115). Articles published in rehabilitation journals were cited significantly more often than articles published in social work journals. A significant improvement in publication quality was observed across the four decades, with the majority of studies in the last decade rated as high quality.


Asunto(s)
Lesiones Traumáticas del Encéfalo/terapia , Medicina Basada en la Evidencia/estadística & datos numéricos , Servicio Social/estadística & datos numéricos , Lesiones Encefálicas/terapia , Lesiones Traumáticas del Encéfalo/epidemiología , Humanos , Grupos de Población , Reino Unido
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