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1.
BMC Psychiatry ; 22(1): 241, 2022 04 05.
Artículo en Inglés | MEDLINE | ID: mdl-35382790

RESUMEN

BACKGROUND: Depression is highly prevalent in nursing home residents living with moderate to severe dementia. However, assessing depressive symptoms in residents with dementia can be challenging and may vary by rater perspective. We aimed to investigate the concordance of, and factors associated with self- and informant-rated depressive symptoms in nursing home residents with dementia. METHODS: Cross-sectional data was collected from N = 162 nursing home residents with dementia (age: 53-100; 74% women). Self-ratings were assessed with the Geriatric Depression Scale, while the depression and anxiety items of the Neuropsychiatric Inventory were used for informant-ratings. Cohen's Kappa was calculated to determine the concordance of both measures and of each with antidepressant medication. Multivariate associations with sociodemographic variables, self- and informant-rated quality of life, dementia stage, neuropsychiatric symptoms, functional status and antidepressant medication were analysed with linear mixed models and generalized estimating equations. RESULTS: Concordance between self- and single item informant-rated depressive symptoms was minimal (Cohen's Kappa = .22, p = .02). No concordance was found for self-reported depressive symptoms and the combined informant-rated depression-anxiety score. Self-reported depression was negatively associated with self-rated quality of life (ß = -.32; 95%CI: -.45 to -.19, p < .001), informant-rated quality of life (ß = -.25; 95%CI: -.43 to -.07, p = .005) and functional status (ß = -.16; 95%CI: -.32 to -.01, p = .04), whilst single item informant-rated depression revealed negative associations with informant-rated quality of life (ß = -.32; 95%CI: -.52 to -.13, p = .001) and dementia stage (ß = -.31; 95%CI: -.52 to -.10, p = .004). The combined informant-rated depression-anxiety score showed negative associations with self-rated quality of life (ß = -.12; 95%CI: -.22 to -.03, p = .01) and dementia stage (ß = -.37; 95%CI: -.67 to -.07, p = .02) and a positive association with neuropsychiatric symptoms (ß = .30; 95%CI: .10 to .51, p = .004). No concordance was found with antidepressant medication. CONCLUSIONS: In line with our expectations, low agreement and unique association patterns were found for both measures. These findings indicate that both instruments address different aspects of depression und underline the need for comprehensive approaches when it comes to detecting signs of clinically relevant depressive symptoms in dementia. TRIAL REGISTRATION: The trial was registered with the ISRCTN registry (Trial registration number: ISRCTN98947160 ).


Asunto(s)
Demencia , Depresión , Anciano , Anciano de 80 o más Años , Estudios Transversales , Demencia/complicaciones , Demencia/diagnóstico , Demencia/tratamiento farmacológico , Depresión/complicaciones , Depresión/diagnóstico , Femenino , Humanos , Masculino , Persona de Mediana Edad , Casas de Salud , Calidad de Vida/psicología
2.
Int Psychogeriatr ; 34(2): 129-141, 2022 02.
Artículo en Inglés | MEDLINE | ID: mdl-34183087

RESUMEN

OBJECTIVES: To investigate global and momentary effects of a tablet-based non-pharmacological intervention for nursing home residents living with dementia. DESIGN: Cluster-randomized controlled trial. SETTING: Ten nursing homes in Germany were randomly allocated to the tablet-based intervention (TBI, 5 units) or conventional activity sessions (CAS, 5 units). PARTICIPANTS: N = 162 residents with dementia. INTERVENTION: Participants received regular TBI (n = 80) with stimulating activities developed to engage people with dementia or CAS (n = 82) for 8 weeks. MEASUREMENTS: Apathy Evaluation Scale (AES-I, primary outcome), Quality of Life in Alzheimer's Disease scale, QUALIDEM scale, Neuropsychiatric Inventory, Geriatric Depression Scale, and psychotropic medication (secondary outcomes). Momentary quality of life was assessed before and after each activity session. Participants and staff were blinded until the collection of baseline data was completed. Data were analyzed with linear mixed-effects models. RESULTS: Levels of apathy decreased slightly in both groups (mean decrease in AES-I of .61 points, 95% CI -3.54, 2.33 for TBI and .36 points, 95% CI -3.27, 2.55 for CAS). Group difference in change of apathy was not statistically significant (ß = .25; 95% CI 3.89, 4.38, p = .91). This corresponds to a standardized effect size (Cohen's d) of .02. A reduction of psychotropic medication was found for TBI compared to CAS. Further analyses revealed a post-intervention improvement in QUALIDEM scores across both groups and short-term improvements of momentary quality of life in the CAS group. CONCLUSIONS: Our findings suggest that interventions involving tailored activities have a beneficial impact on global and momentary quality of life in nursing home residents with dementia. Although we found no clear advantage of TBI compared to CAS, tablet computers can support delivery of non-pharmacological interventions in nursing homes and facilitate regular assessments of fluctuating momentary states.


Asunto(s)
Demencia , Calidad de Vida , Anciano , Demencia/tratamiento farmacológico , Alemania , Humanos , Casas de Salud , Psicotrópicos/uso terapéutico , Calidad de Vida/psicología
3.
BMC Med Res Methodol ; 21(1): 61, 2021 03 30.
Artículo en Inglés | MEDLINE | ID: mdl-33784967

RESUMEN

BACKGROUND: Recruitment of general practitioners (GPs) and their patients is reported as one of the most challenging steps when undertaking primary care research. The present paper describes the recruitment process of a cluster randomised controlled trial (cRCT) aiming to improve dementia care in the primary care setting. METHODS: Recruitment data was analysed descriptively using frequency tables to investigate comparisons of recruitment rates and results of different recruitment strategies as well as reasons for participation and non-participation of GPs, patients with dementia (PwD) and their caregivers. RESULTS: Over a period of 23 months, N = 28 GPs were successfully included in the cRCT. This represents an overall recruitment rate of 4.6%. The most efficient strategy in terms of high response and low labour-intensity involved the dissemination of calls for participation in a GP research network. Most frequently reported reasons for GP's participation were Improvement of patient's well-being (n = 22, 79%) followed by Interest in dementia research (n = 18, 64%). The most common reasons for non-participation were Lack of time (n = 71, 34%) followed by Not interested in participation (n = 63, 30%). On a patient level, N = 102 PwD were successfully recruited. On average, each GP referred about n = 7 PwD (range: 1-17; mdn = 6; IQR = 3.5) and successfully recruited about n = 4 PwD (range: 1-11; mdn = 3; IQR = 3.5). CONCLUSION: First, our findings propose GP research networks as a promising strategy to promote recruitment and participation of GPs and their patients in research. Second, present findings highlight the importance of including GPs and their interests in specific research topics in early stages of research in order to ensure a successful recruitment. Finally, results do not support cold calls as a successful strategy in the recruitment of GPs. TRIAL REGISTRATION: The trial was prospectively registered with the ISRCTN registry (Trial registration number: ISRCTN15854413 ). Registered 01 April 2019.


Asunto(s)
Demencia , Médicos Generales , Cuidadores , Demencia/terapia , Humanos , Atención Primaria de Salud , Derivación y Consulta
4.
BMC Geriatr ; 21(1): 717, 2021 12 18.
Artículo en Inglés | MEDLINE | ID: mdl-34922486

RESUMEN

BACKGROUND: General practitioners (GPs) play a key role in the care of people with dementia (PwD). However, the role of the German Dementia Guideline in primary care remains unclear. The main objective of the present study was to examine the role of guideline-based dementia care in general practices. METHODS: A cross-sectional analysis of data obtained from the DemTab study was conducted. Descriptive analyses of sociodemographic and clinical characteristics for GPs (N = 28) and PwD (N = 91) were conducted. Adherence to the German Dementia Guideline of GPs was measured at the level of PwD. Linear Mixed Models were used to analyze the associations between adherence to the German Dementia Guideline and GP factors at individual (age, years of experience as a GP, frequency of utilization of guideline, perceived usefulness of guideline) and structural (type of practice, total number of patients seen by a participating GP, and total number of PwD seen by a participating GP) levels as well as between adherence to the German Dementia Guideline and PwD's quality of life. RESULTS: Self-reported overall adherence of GPs was on average 71% (SD = 19.4, range: 25-100). Adherence to specific recommendations varied widely (from 19.2 to 95.3%) and the majority of GPs (79.1%) reported the guideline as only partially or somewhat helpful. Further, we found lower adherence to be significantly associated with higher numbers of patients (γ10 = - 5.58, CI = - 10.97, - 0.19, p = .04). No association between adherence to the guideline and PwD's quality of life was found (γ10 = -.86, CI = - 4.18, 2.47, p = .61). CONCLUSION: The present study examined the role of adherence to the German Dementia Guideline recommendations in primary care. Overall, GPs reported high levels of adherence. However, major differences across guideline recommendations were found. Findings highlight the importance of guidelines for the provision of care. Dementia guidelines for GPs need to be better tailored and addressed. Further, structural changes such as more time for PwD may contribute to a sustainable change of dementia care in primary care. TRIAL REGISTRATION: The DemTab trial was prospectively registered with the ISRCTN registry (Trial registration number: ISRCTN15854413 ). Registered 01 April 2019.


Asunto(s)
Demencia , Adhesión a Directriz , Estudios Transversales , Demencia/diagnóstico , Demencia/epidemiología , Demencia/terapia , Humanos , Atención Primaria de Salud , Calidad de Vida
5.
Qual Life Res ; 29(6): 1721-1730, 2020 Jun.
Artículo en Inglés | MEDLINE | ID: mdl-31955375

RESUMEN

PURPOSE: Our aim was to examine whether quality of life which was repeatedly assessed over time is related with the comprehensive assessment of quality of life (QoL) and thereby to validate a brief QoL assessment. METHOD: This longitudinal study used a comprehensive assessment of quality of life at baseline (QUALIDEM; 37 items) to validate an eight-item version of QUALIDEM to assess momentary quality of life which was repeatedly administered using a tablet device after baseline. In all, 150 people with dementia from 10 long-term facilities participated. Momentary quality of life and comprehensive quality of life, age, gender, activities of daily living (Barthel Index), Functional assessment staging (FAST), and Geriatric Depression (GDS) have been assessed. RESULTS: Comprehensive and momentary quality of life showed good internal consistency with Cronbach's alpha of .86 and .88 to .93, respectively. For multiple associations of momentary quality of life with the comprehensive quality of life, momentary quality of life was significantly related to comprehensive quality of life (B = .14, CI .08/.20) and GDS (B = - .13, CI - .19/- .06). More specifically, the comprehensive QUALIDEM subscales 'positive affect', 'negative affect', 'restlessness', and 'social relationships' showed significant positive associations with momentary quality of life (p < .001). CONCLUSION: We found that momentary quality of life, reliably assessed by tablet, was associated with comprehensive measures of quality of life and depressive symptoms in people with dementia. Broader use of tablet-based assessments within frequent QoL measurements may enhance time management of nursing staff and may improve the care quality and communication between staff and people with dementia.


Asunto(s)
Demencia/psicología , Psicometría/métodos , Calidad de Vida/psicología , Actividades Cotidianas/psicología , Anciano , Anciano de 80 o más Años , Depresión/psicología , Femenino , Humanos , Estudios Longitudinales , Masculino , Casas de Salud/estadística & datos numéricos , Psicometría/instrumentación , Calidad de la Atención de Salud
6.
BMC Geriatr ; 20(1): 271, 2020 08 05.
Artículo en Inglés | MEDLINE | ID: mdl-32758135

RESUMEN

BACKGROUND: There is a need to improve psychotherapeutic approaches to treatment for vulnerable older adults with depression in terms of both clinical practice and health care supply. Against this background, PSY-CARE is testing the feasibility and effectiveness of outpatient psychotherapy for home-living older adults in need of care with depression in Berlin, Germany, and neighboring suburban areas. METHODS: In a two-arm single-center pragmatic randomized controlled trial (RCT), manual-guided outpatient psychotherapy will be compared to brief psychosocial counseling. The study population will be compromised of older adults with clinically significant depressive symptoms who have a long-term care grade, as assessed by the German compulsory state nursing care insurance. In the intervention group, individual cognitive-behavioral psychotherapy tailored to the specific needs of this population will be offered by residential psychotherapists as part of the regular healthcare service. In the active control group, participants will receive individual psychosocial telephone counselling and a self-help guide. The planned sample size is N = 130 (n = 65 participants per group). The reduction of depressive symptoms (primary outcome) as well as the maintaining of activities of daily living, quality of life, and functioning will be assessed with questionnaires provided at baseline, after the end of the intervention and after three months. Feasibility and process evaluation will be conducted qualitatively based on documentation and interviews with psychotherapists, gatekeepers and the participants. DISCUSSION: PSY-CARE investigates the potentials and limitations of providing outpatient psychotherapeutic treatment meeting the demands of vulnerable home-living older adults with depression under the real conditions of the health care system. The study will provide practical implications to improve access to and quality of outpatient psychotherapy for this poorly supplied population. TRIAL REGISTRATION: The trial is registered at ISRCTN55646265 ; February 15, 2019.


Asunto(s)
Terapia Cognitivo-Conductual , Depresión , Anciano , Depresión/diagnóstico , Depresión/terapia , Alemania , Humanos , Pacientes Ambulatorios , Psicoterapia , Resultado del Tratamiento
7.
Int Psychogeriatr ; 30(1): 39-47, 2018 01.
Artículo en Inglés | MEDLINE | ID: mdl-28737120

RESUMEN

BACKGROUND: The aim of the present study was to investigate the psychometric characteristics of the Perceived Stress Scale (PSS) in a sample of dementia patients and their spousal caregivers. METHODS: We investigated the reliability and validity of the 14-item PSS in a sample of 80 couples, each including one spouse who had been diagnosed with mild to moderate dementia (mean age 75.55, SD = 5.85, 38.7% female) and one spousal caregiver (mean age 73.06, SD = 6.75, 61.3% female). We also examined the factor structure and sensitivity of the scale with regard to gender differences. RESULTS: Exploratory factor analysis of the PSS revealed a two-factor solution for the scale; the first factor reflected general stress while the second factor consisted of items reflecting the perceived ability to cope with stressors. A confirmatory factor analysis verified that the data were a better fit for the two-factor model than a one-factor model. The two factors of the PSS showed good reliability for patients as well as for caregivers ranging between α = 0.73 and α = 0.82. Perceived stress was significantly positively correlated with depressive symptomatology in both caregivers and patients. Mean PSS scores did not significantly differ between male and female patients nor did they differ between male and female caregivers. CONCLUSION: The present data indicate that the PSS provides a reliable and valid measure of perceived stress in dementia patients and their caregivers.


Asunto(s)
Adaptación Psicológica , Cuidadores/psicología , Demencia/psicología , Psicometría/estadística & datos numéricos , Estrés Psicológico/psicología , Anciano , Demencia/diagnóstico , Análisis Factorial , Femenino , Humanos , Masculino , Persona de Mediana Edad , Percepción , Escalas de Valoración Psiquiátrica , Reproducibilidad de los Resultados , Estrés Psicológico/diagnóstico
8.
Aging Ment Health ; 22(8): 1008-1016, 2018 08.
Artículo en Inglés | MEDLINE | ID: mdl-28594233

RESUMEN

OBJECTIVES: In patients with early-stage dementia and their caregiving partners, reciprocal dyadic coping (DC) is crucial for preventing or reducing depressive symptoms in both partners. This study examines the relationships between 'own DC' and 'perceived partner DC' with depressive symptoms in couples coping with dementia on individual (actor effects) and cross-person (partner effects) levels. METHOD: 164 individuals (82 patients with early-stage dementia and their 82 caregiving partners; ND = 82 dyads) participated in this prospective study with measures (DC, depressive symptoms, and dementia severity) taken at baseline and at six months. Each partner evaluated their own and the perceived partner DC. Actor-partner interdependence models were applied to the resulting four independent evaluations. RESULTS: Results differed substantially between patients and caregivers. DC was significantly related to patients' but not to caregivers' depressive symptoms, when adjustments were made for individual coping. Perceived partner DC showed a negative association with depressive symptoms in patients, whereas own DC was adversely related for actor as well as for partner effects across individuals. CONCLUSION: The adverse association between the own DC of the caregiver and the patient on depressive symptoms of the patient might be due to inappropriate efforts or to the loss of autonomy as a care-receiver. DC is important in both patients and caregivers, as shown by the negative association between perceived partner DC and depressive symptoms in the patients, which might inform interventions that target the couple as a whole.


Asunto(s)
Adaptación Psicológica , Cuidadores/psicología , Demencia/enfermería , Demencia/psicología , Depresión/psicología , Esposos/psicología , Anciano , Anciano de 80 o más Años , Femenino , Humanos , Masculino , Estudios Prospectivos , Calidad de Vida/psicología , Índice de Severidad de la Enfermedad
11.
Int Psychogeriatr ; 28(11): 1857-1866, 2016 11.
Artículo en Inglés | MEDLINE | ID: mdl-27439563

RESUMEN

BACKGROUND: Given the well-established association between perceived stress and quality of life (QoL) in dementia patients and their partners, our goal was to identify whether relationship quality and dyadic coping would operate as mediators between perceived stress and QoL. METHODS: 82 dyads of dementia patients and their spousal caregivers were included in a cross-sectional assessment from a prospective study. QoL was assessed with the Quality of Life in Alzheimer's Disease scale (QoL-AD) for dementia patients and the WHO Quality of Life-BREF for spousal caregivers. Perceived stress was measured with the Perceived Stress Scale (PSS-14). Both partners were assessed with the Dyadic Coping Inventory (DCI). Analyses of correlation as well as regression models including mediator analyses were performed. RESULTS: We found negative correlations between stress and QoL in both partners (QoL-AD: r = -0.62; p < 0.001; WHO-QOL Overall: r = -0.27; p = 0.02). Spousal caregivers had a significantly lower DCI total score than dementia patients (p < 0.001). Dyadic coping was a significant mediator of the relationship between stress and QoL in spousal caregivers (z = 0.28; p = 0.02), but not in dementia patients. Likewise, relationship quality significantly mediated the relationship between stress and QoL in caregivers only (z = -2.41; p = 0.02). CONCLUSIONS: This study identified dyadic coping as a mediator on the relationship between stress and QoL in (caregiving) partners of dementia patients. In patients, however, we found a direct negative effect of stress on QoL. The findings suggest the importance of stress reducing and dyadic interventions for dementia patients and their partners, respectively.


Asunto(s)
Adaptación Psicológica , Cuidadores/psicología , Demencia/psicología , Relaciones Interpersonales , Calidad de Vida , Esposos/psicología , Estrés Psicológico , Anciano , Femenino , Humanos , Modelos Logísticos , Masculino , Persona de Mediana Edad , Percepción Social , Estrés Psicológico/etiología , Estrés Psicológico/prevención & control , Estrés Psicológico/psicología
12.
Int Psychogeriatr ; 28(6): 1017-27, 2016 06.
Artículo en Inglés | MEDLINE | ID: mdl-26739512

RESUMEN

BACKGROUND: The Neuropsychiatric Inventory (NPI) is one of the most popular and frequently used instruments for assessing so-called challenging behavior in individuals with dementia in research practice. However, no information is available regarding the factor structure of the German version of the Neuropsychiatric Inventory - Nursing Home (NPI-NH). The aim of this study was to evaluate the factor structure (an aspect of construct validity) and internal consistency of the NPI-NH for two different stages of dementia severity in a large German nursing home population. METHODS: A total of 784 residents with dementia from 40 nursing homes in three studies was included in a secondary data analysis. Principal component analysis (PCA) using an orthogonal rotational procedure (with varimax rotation) was used to evaluate the factor structure of the NPI. Cronbach's α was used to assess the stability of the scale. RESULTS: The factors agitation & restless behavior, psychosis, and mood were identified (with factor loading > 0.4 explaining 50% of the variance). The factors showed a moderate internal consistency of 0.55 and 0.68 (Cronbach's α). CONCLUSIONS: The results show the acceptable factor structure of the NPI for a German population in nursing homes and confirm the results of studies from other countries. The three identified factors appear to be robust over the various stages of dementia severity. The results also support the hypothesis that the NPI-NH can be subdivided into multiple domains.


Asunto(s)
Demencia , Evaluación Geriátrica , Pruebas Neuropsicológicas/normas , Casas de Salud , Psicometría/estadística & datos numéricos , Encuestas y Cuestionarios , Anciano , Anciano de 80 o más Años , Demencia/diagnóstico , Demencia/fisiopatología , Demencia/psicología , Alemania , Hogares para Ancianos , Humanos , Escalas de Valoración Psiquiátrica , Psicometría/instrumentación , Reproducibilidad de los Resultados , Índice de Severidad de la Enfermedad
13.
Psychother Psychosom Med Psychol ; 65(6): 238-42, 2015 Jun.
Artículo en Alemán | MEDLINE | ID: mdl-25664441

RESUMEN

We present a combined socio- and psychotherapeutic intervention in couples affected by incipient dementia. We show that the consideration of both social and psychological resources play an important role in the therapy process. 2 additional case reports suggest that those principles of both socio- and psychotherapy can be successfully applied in early dementia.


Asunto(s)
Demencia/terapia , Psicoterapia , Apoyo Social , Terapia Combinada , Demencia/psicología , Composición Familiar , Femenino , Humanos , Masculino , Trastornos de la Memoria/psicología , Trastornos de la Memoria/terapia , Persona de Mediana Edad , Autonomía Personal , Resultado del Tratamiento
14.
Z Gerontol Geriatr ; 48(6): 543-9, 2015 Aug.
Artículo en Alemán | MEDLINE | ID: mdl-25524141

RESUMEN

BACKGROUND: Initial sporadic experiences in a Berlin nursing home showed that residents with dementia responded well to activating therapy with tablet computers. This innovative technology seemed to provide a differentiated and individual therapeutic access. These observations encouraged the nursing home management to contact the Institute of Medical Sociology and Rehabilitation Science at the Charité Universitätsmedizin Berlin with the aim to examine the practical experiences. The Centre for Quality in Care (ZQP) sponsored the 1 year pilot study. OBJECTIVE: An examination of the feasibility and usability of tablet computers in the daily care of nursing home residents with dementia was carried out. MATERIALS AND METHODS: In this study 14 residents (12 women and 2 men) of a special care unit for dementia patients were included in a 3-month intervention of tablet activation 3 times a week. Qualitative and quantitative methods were used to analyze data (e.g. observation protocols and videos, staff interviews, document analysis of nursing records and standardized resident interviews/proxy interviews). RESULTS: Nursing home residents suffering from dementia showed a high degree of acceptance of tablet computers. Most notable benefits were easy handling and the variety of multifunctional applications. Sustainable therapeutic effects resulted in stimulation of communication and interaction, improvement of well-being, memory training and reduction of neuropsychiatric symptoms. Furthermore, contact to family members of several residents was improved. CONCLUSIONS: The use of tablet computers was convincing as an activation therapy for nursing home residents with dementia. Further research and development of specially adapted software are required.


Asunto(s)
Equipos de Comunicación para Personas con Discapacidad , Computadoras de Mano , Demencia/rehabilitación , Hogares para Ancianos , Casas de Salud , Aceptación de la Atención de Salud , Anciano , Anciano de 80 o más Años , Demencia/diagnóstico , Femenino , Alemania , Humanos , Masculino , Persona de Mediana Edad , Terapia Ocupacional/métodos , Proyectos Piloto , Conducta Social , Terapia Asistida por Computador/métodos , Resultado del Tratamiento
15.
Health Qual Life Outcomes ; 11: 91, 2013 Jun 05.
Artículo en Inglés | MEDLINE | ID: mdl-23738658

RESUMEN

BACKGROUND: Quality of life (Qol) is a widely selected outcome in intervention studies. The QUALIDEM is a dementia-specific Qol-instrument from The Netherlands. The aim of this study is to evaluate the scalability and internal consistency of the German version of the QUALIDEM. METHODS: This secondary data analysis is based on a total sample of 634 residents with dementia from 43 nursing homes. The QUALIDEM consists of nine subscales that were applied to a subsample of 378 people with mild to severe dementia and six consecutive subscales that were applied to a subsample of 256 people with very severe dementia. Scalability, internal consistency and distribution scores were calculated for each predefined subscale using the Mokken scale analysis. RESULTS: In people with mild to severe dementia, seven subscales, care relationship, positive affect, negative affect, restless tense behavior, positive self-image, social relations and feeling at home, were scalable (0.31 ≤ H ≤ 0.65) and internally consistent (Rho ≥ 0.62). The subscales social isolation (H = 0.28) and having something to do (H = 0.18) were not scalable and exhibited insufficient reliability scores (Rho ≤ 0.53). For people with very severe dementia, five subscales, care relationship, positive affect, restless tense behavior, negative affect and social relations, were scalable (0.33 ≤ H ≤ 0.65), but only the first three of these subscales showed acceptable internal consistency (Rho 0.59 - 0.86). The subscale social isolation was not scalable (H = 0.20) and exhibited poor internal consistency (Rho = 0.42). CONCLUSIONS: The results show an acceptable scalability and internal consistency for seven QUALIDEM subscales for people with mild to severe dementia and three subscales for people with very severe dementia. The subscales having something to do (mild to severe dementia), negative affect (very severe dementia), social relations (very severe dementia) and social isolation (both versions) produced unsatisfactory results and require revision.


Asunto(s)
Demencia/psicología , Casas de Salud , Psicometría/instrumentación , Calidad de Vida , Encuestas y Cuestionarios/normas , Actividades Cotidianas , Anciano , Anciano de 80 o más Años , Demencia/diagnóstico , Demencia/enfermería , Dependencia Psicológica , Análisis Factorial , Femenino , Alemania , Humanos , Relaciones Interpersonales , Masculino , Países Bajos , Reproducibilidad de los Resultados , Índice de Severidad de la Enfermedad
16.
Pflege ; 24(2): 97-109, 2011 Apr.
Artículo en Alemán | MEDLINE | ID: mdl-21480174

RESUMEN

Shared-Housing Arrangements (SHA) for care-dependent older persons gain increasing importance as a setting for nursing care in Germany, both in terms of numbers and user preference. This article aims to answer the questions in which phases SHA have developed over time, what the initiator's objectives are, and what factors contributed to SHA proliferation. A systematic review of the literature was conducted that finally included 73 articles. As a result it can be demonstrated that SHA started from "individual user initiatives", became "developing novel services" and finally established themselves as "regular services" in the nursing setting. A typology of different models of SHA can be organised along two dimensions: Firstly the temporal dimension of care organisation and secondly the way care services are purchased. Objectives formulated by the initiators of SHA are: Establishment of a family - like environment, inclusion of relatives, community orientation, security of care provision and maintenance of self-determination. Tailor-made financial and legal regulations supported the spread of SHAs. In reflection of the available literature it becomes evident that no satisfactory consensus on those elements exist that are constitutive for SHAs. Furthermore, there is a dearth of research on whether postulated objectives and other health related goals are actually being met in SHAs. Open questions pertain also the level of self-determination achieved in practice and other outcomes attained.


Asunto(s)
Instituciones de Vida Asistida/organización & administración , Enfermedad Crónica/enfermería , Centros de Día/organización & administración , Anciano Frágil , Hogares para Grupos/organización & administración , Programas Nacionales de Salud , Anciano , Atención a la Salud/organización & administración , Demencia/enfermería , Evaluación de la Discapacidad , Femenino , Alemania , Investigación sobre Servicios de Salud , Humanos , Masculino , Autonomía Personal , Medio Social
17.
J Alzheimers Dis ; 68(2): 745-755, 2019.
Artículo en Inglés | MEDLINE | ID: mdl-30775982

RESUMEN

BACKGROUND: Psychosocial interventions may improve the quality of life of both people with dementia (PWD) and their family caregivers. However, research is inconclusive and focused primarily on the quality of life of either the PWD or the caregiver, rather than on both. OBJECTIVE: Our aim was to evaluate the effect of couple-based interdisciplinary psychosocial intervention in patients with mild-to-moderate dementia on quality of life of both partners. METHODS: 108 community-dwelling PWD and their caregiving partners were enrolled in this pragmatic randomized controlled trial. The intervention consisted of 7 sessions at participants' homes led by a psychotherapist and a social worker. Quality of life was evaluated at baseline, one, and six-month follow-up for patients and their partners. Mixed effects models have been applied. RESULTS: Intervention allocation was not associated with an improvement in quality of life in either the patients or their partners. In subgroup analyses, intervention was negatively associated with caregiver performance. However, this was only present in those reporting poor relationship quality. Patients in the intervention group who reported good relationship quality were found to have decreased cognitive decline. CONCLUSION: A couple-based interdisciplinary intervention did not yield improvements in quality of life. This may be the result of a bias caused by an increased awareness due to the intervention. Relationship quality and support in the long-term should be considered when designing and implementing interventions for PWD and their partners.


Asunto(s)
Cuidadores/psicología , Demencia/psicología , Demencia/terapia , Composición Familiar , Psicoterapia/métodos , Trabajadores Sociales/psicología , Adaptación Psicológica/fisiología , Terapia de Parejas/métodos , Femenino , Humanos , Masculino , Sistemas de Apoyo Psicosocial
18.
Contemp Nurse ; 54(1): 13-25, 2018 Feb.
Artículo en Inglés | MEDLINE | ID: mdl-29279003

RESUMEN

BACKGROUND: Information and Communication Technologies (ICTs) could be useful for delivering non-pharmacological therapies (NPTs) for dementia in nursing home settings. AIMS: To identify technology-related expectations and inhibitions of healthcare professionals associated with the intention to use ICT-based NPTs. DESIGN: Cross-sectional multi-method survey. METHODS: N = 205 healthcare professionals completed a quantitative survey on usage and attitudes towards ICTs. Additionally, N = 11 semi-structured interviews were conducted. RESULTS: Participants were classified as intenders to use ICTs (53%), non-intenders (14%) or ambivalent (32%). A MANCOVA revealed higher perceived usefulness for intenders compared to non-intenders and ambivalent healthcare professionals (V =.28, F(12, 292)= 3.94, p <.001). Qualitative interviews revealed generally high acceptance of ICTs in the workplace. Furthermore, benefits for residents emerged as a key requirement. CONCLUSION: Staff trainings should stress specific benefits for residents and healthcare professionals to facilitate successful implementation and acceptance of ICTs in nursing home settings.


Asunto(s)
Actitud del Personal de Salud , Comunicación , Demencia/psicología , Demencia/terapia , Personal de Salud/psicología , Invenciones , Adulto , Anciano , Anciano de 80 o más Años , Estudios Transversales , Femenino , Humanos , Masculino , Persona de Mediana Edad , Casas de Salud , Encuestas y Cuestionarios
19.
PLoS One ; 13(1): e0189849, 2018.
Artículo en Inglés | MEDLINE | ID: mdl-29300741

RESUMEN

PURPOSE: To test whether the negative relationship between perceived stress and quality of life (Hypothesis 1) can be buffered by perceived social support in patients with dementia as well as in caregivers individually (Hypothesis 2: actor effects) and across partners (Hypothesis 3: partner effects and actor-partner effects). METHOD: A total of 108 couples (N = 216 individuals) comprised of one individual with early-stage dementia and one caregiving partner were assessed at baseline and one month apart. Moderation effects were investigated by applying linear mixed models and actor-partner interdependence models. RESULTS: Although the stress-quality of life association was more pronounced in caregivers (ß = -.63, p<.001) compared to patients (ß = -.31, p<.001), this association was equally moderated by social support in patients (ß = .14, p<.05) and in the caregivers (ß = .13, p<.05). From one partner to his or her counterpart, the partner buffering and actor-partner-buffering effect were not present. CONCLUSION: The stress-buffering effect has been replicated in individuals with dementia and caregivers but not across partners. Interventions to improve quality of life through perceived social support should not only focus on caregivers, but should incorporate both partners.


Asunto(s)
Adaptación Psicológica , Demencia/psicología , Composición Familiar , Apoyo Social , Estrés Psicológico , Anciano , Anciano de 80 o más Años , Femenino , Humanos , Masculino , Calidad de Vida
20.
Z Arztl Fortbild Qualitatssich ; 100(8): 609-15, 2006.
Artículo en Alemán | MEDLINE | ID: mdl-17175757

RESUMEN

The present contribution discusses the utilization of the healthcare system by elderly patients in Germany. First, the paper focuses on the detailed characterization of a group of people aged 60 years or more (N = 73,454). Second, the objective is to analyze the data for high utilization of healthcare services by older men and women. The analysis is based on data regularly recorded by a German health insurance agency for the year 2000. High utilization is operationalized by a 10% cutoff for users with the highest number of treatments, highest costs and/or other criteria depending on the respective health service sector. The insured group investigated received approximately 1.4 million prescriptions, producing costs of 42 million E. High utilizers account for 32% of all prescriptions and 44% of the costs, respectively. At the same time, the age groups with the highest prescription rates do not cause the highest costs: So the relationship between age and prescription drug expenses as well as between age and prescription rates does not display an arithmetically increasing pattern. Within the timeframe investigated 26,000 hospital treatments were accounted for by 21.75% of the elderly under research. In total, they caused expenses of 88 million E. High utilization in the hospital sector was operationalized by four criteria. Sex- and age-specific analysis of high utilization of hospital treatment revealed that the four different criteria apply to different insured groups. In summary, the high utilization of healthcare services appears to be a multidimensional phenomenon.


Asunto(s)
Anciano , Servicios de Salud para Ancianos/estadística & datos numéricos , Hospitalización/estadística & datos numéricos , Seguro de Salud/estadística & datos numéricos , Anciano de 80 o más Años , Prescripciones de Medicamentos , Quimioterapia , Femenino , Mal Uso de los Servicios de Salud/tendencias , Humanos , Masculino , Persona de Mediana Edad
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