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1.
BMC Med Res Methodol ; 23(1): 118, 2023 05 16.
Artículo en Inglés | MEDLINE | ID: mdl-37194009

RESUMEN

BACKGROUND: Data-sharing is increasingly encouraged or required by funders and journals. Data-sharing is more complicated for lifecourse studies that rely upon ongoing participation, but little is known about perspectives on data-sharing among participants of such studies. The aim of this qualitative study was to explore perspectives on data-sharing of participants in a birth cohort study. METHODS: Semi-structured interviews were conducted with 25 members of the Dunedin Multidisciplinary Health and Development Study when aged between 45 and 48 years. Interviews were led by the Director of the Dunedin Study and involved questions about different scenarios for data-sharing. The sample consisted of nine Dunedin Study members who are Maori (the Indigenous peoples of Aotearoa/New Zealand) and 16 who are non-Maori. RESULTS: Principles of grounded theory were applied to develop a model of participant perspectives on data-sharing. The model consists of three factors that inform a core premise that a one-size-fits-all approach to data-sharing will not suffice in lifecourse research. Participants suggested that data-sharing decisions should depend on the cohort and might need to be declined if any one Dunedin Study member was opposed (factor 1). Participants also expressed a proven sense of trust in the researchers and raised concerns about loss of control once data have been shared (factor 2). Participants described a sense of balancing opportunities for public good against inappropriate uses of data, highlighting variability in perceived sensitivity of data, and thus a need to take this into account if sharing data (factor 3). CONCLUSIONS: Communal considerations within cohorts, loss of control over shared data, and concerns about inappropriate uses of shared data need to be addressed through detailed informed consent before data-sharing occurs for lifecourse studies, particularly where this has not been established from the start of the study. Data-sharing may have implications for the retention of participants in these studies and thus may impact on the value of long-term sources of knowledge about health and development. Researchers, ethics committees, journal editors, research funders, and government policymakers need to consider participants' views when balancing the proposed benefits of data-sharing against the potential risks and concerns of participants in lifecourse research.


Asunto(s)
Difusión de la Información , Consentimiento Informado , Humanos , Persona de Mediana Edad , Estudios de Cohortes , Teoría Fundamentada , Investigación Cualitativa
2.
J Public Health (Oxf) ; 45(2): e225-e233, 2023 Jun 14.
Artículo en Inglés | MEDLINE | ID: mdl-36468999

RESUMEN

BACKGROUND: Past studies have demonstrated better mental health and well-being among transgender youth who had accessed gender-affirming care. However, few existing studies have assessed unmet need for gender-affirming care as a social determinant of mental health inequities. METHODS: Data on unmet need for gender-affirming care, distress and suicidality were analysed from the 2018 Counting Ourselves nationwide community-based survey of transgender people in Aotearoa/New Zealand. Associations between unmet need for gender-affirming care and mental health indicators were tested for transgender youth within the sample (aged 14-26 years; n = 608; Mage = 20.5). RESULTS: Transgender youth reported unmet needs ranging from 42% for gender-affirming hormone to 100% for feminizing surgeries and voice surgeries. Overall unmet need for gender-affirming care was associated with worse mental health. Trans men with an unmet need for chest reconstruction (84%) scored an average of 7.13 points higher on the K10 Psychological Distress Scale relative to those whose need had been met. Participants reporting unmet need for hormones (42%) had twice the odds (adjusted odds ratios = 2.01; CI = 1.02-3.98) of having attempted suicide in the last 12 months. CONCLUSIONS: Dismantling barriers to accessing gender-affirming care could play a crucial role in reducing mental health inequities faced by transgender youth.


Asunto(s)
Personas Transgénero , Masculino , Humanos , Adolescente , Personas Transgénero/psicología , Nueva Zelanda/epidemiología , Determinantes Sociales de la Salud , Salud Mental , Encuestas y Cuestionarios
3.
Fam Pract ; 39(5): 834-842, 2022 09 24.
Artículo en Inglés | MEDLINE | ID: mdl-35259758

RESUMEN

BACKGROUND: Past research has established that transgender people experience significant disparities in mental health outcomes and healthcare dissatisfaction compared with cisgender people, but more research is needed on how supportive healthcare interactions relate to the mental health of transgender people. OBJECTIVES: The 2 main aims of our analyses were: (i) to establish the most common negative experiences in healthcare and the most common supportive experiences specifically with primary care doctors for transgender people; and (ii) to examine the association of supportive experiences with mental health variables after controlling for demographic factors. METHODS: Data from the 2018 Counting Ourselves nationwide survey of transgender people were analysed using regression modelling. The 948 participants with a primary care doctor or general practitioner were included in analyses. Participants were aged 14-83 years old (mean 30.20). RESULTS: The most common supportive experiences involved primary care doctors treating transgender people equitably, with competence, and with respect. Participants with more negative healthcare experiences had higher psychological distress as well as higher likelihood of reporting nonsuicidal self-injury and suicidality. Conversely, participants with more experiences of supportive primary care doctors had lower psychological distress and were less likely to have attempted suicide in the past 12 months. CONCLUSION: When transgender people receive supportive care from their primary care providers they experience better mental health, despite ongoing negative healthcare experiences. Future research is needed to confirm ways of supporting positive trajectories of mental health for transgender people but these findings demonstrate the importance of positive aspects of care.


Asunto(s)
Minorías Sexuales y de Género , Personas Transgénero , Adolescente , Adulto , Anciano , Anciano de 80 o más Años , Humanos , Salud Mental , Persona de Mediana Edad , Nueva Zelanda , Atención Primaria de Salud , Personas Transgénero/psicología , Adulto Joven
4.
Rheumatol Int ; 41(10): 1763-1772, 2021 Oct.
Artículo en Inglés | MEDLINE | ID: mdl-34297180

RESUMEN

The aim of this study was to investigate the effects of lockdown on the mental health (anxiety and depression) and quality of life (QOL) of people with rheumatoid arthritis (RA) and ankylosing spondylitis (AS) in the context of the COVID-19 pandemic and public health measures instituted at a national level by the New Zealand Government. The present cohort was 104 individuals with RA (73.1%) and AS (26.9%) who had previously completed surveys for the Patient Opinion Real-Time Anonymous Liaison (PORTAL) project in 2018. Participants completed an online survey between July and September 2020 assessing their experiences over the first national COVID-19 lockdown in New Zealand (March-May, 2020). Fear of SARS-CoV-2 infection, baseline anxiety, and being younger in age were all predictors of participants' current anxiety levels. Current QOL scores were significantly lower than prior to lockdown and were predicted by baseline QOL and current depression. No variables predicted current depression other than baseline levels. The COVID-19 pandemic appears to have had an impact on QOL and anxiety levels, but not depression for people with RA and AS in New Zealand. These novel findings imply that appropriate screening of mental health issues should be included in planning within the ongoing COVID-19 pandemic and for future pandemics to optimise the wellbeing of people with RA and AS.


Asunto(s)
Ansiedad/psicología , Artritis Reumatoide/psicología , Depresión/psicología , Calidad de Vida , Espondilitis Anquilosante/psicología , Adulto , Anciano , Ansiedad/epidemiología , Artritis Reumatoide/epidemiología , COVID-19/epidemiología , COVID-19/psicología , Control de Enfermedades Transmisibles/legislación & jurisprudencia , Depresión/epidemiología , Miedo/psicología , Femenino , Humanos , Masculino , Salud Mental , Persona de Mediana Edad , Nueva Zelanda , Pandemias , SARS-CoV-2 , Espondilitis Anquilosante/epidemiología , Encuestas y Cuestionarios
5.
BMC Med Res Methodol ; 16: 95, 2016 08 09.
Artículo en Inglés | MEDLINE | ID: mdl-27506386

RESUMEN

BACKGROUND: Many health researchers are clinicians. Dual-role experiences are common for clinician-researchers in research involving patient-participants, even if not their own patients. To extend the existing body of literature on why dual-role is experienced, we aimed to develop a typology of common catalysts for dual-role experiences to help clinician-researchers plan and implement methodologically and ethically sound research. METHODS: Systematic searching of Medline, CINAHL, PsycINFO, Embase and Scopus (inception to 28.07.2014) for primary studies or first-person reflexive reports of clinician-researchers' dual-role experiences, supplemented by reference list checking and Google Scholar scoping searches. Included articles were loaded in NVivo for analysis. The coding was focused on how dual-role was evidenced for the clinician-researchers in research involving patients. Procedures were completed by one researcher (MB) and independently cross-checked by another (JHS). All authors contributed to extensive discussions to resolve all disagreements about initial coding and verify the final themes. RESULTS: Database searching located 7135 records, resulting in 29 included studies, with the addition of 7 studies through reference checks and scoping searches. Two overarching themes described the most common catalysts for dual-role experiences - ways a research role can involve patterns of behaviour typical of a clinical role, and the developing connection that starts to resemble a clinician-patient relationship. Five subthemes encapsulated the clinical patterns commonly repeated in research settings (clinical queries, perceived agenda, helping hands, uninvited clinical expert, and research or therapy) and five subthemes described concerns about the researcher-participant relationship (clinical assumptions, suspicion and holding back, revelations, over-identification, and manipulation). Clinician-researchers use their clinical skills in health research in ways that set up a relationship resembling that of clinician-patient. Clinicians' ingrained orientation to patients' needs can be in tension with their research role, and can set up ethical and methodological challenges. CONCLUSION: The typology we developed outlines the common ways dual-role is experienced in research involving clinician-researchers and patient-participants, and perhaps the inevitability of the experience given the primacy accorded to patient well-being. The typology offers clinician-researchers a framework for grappling with the ethical and methodological implications of dual-role throughout the research process, including planning, implementation, monitoring and reporting.


Asunto(s)
Investigación Biomédica/estadística & datos numéricos , Participación del Paciente/estadística & datos numéricos , Médicos/estadística & datos numéricos , Investigadores/estadística & datos numéricos , Investigación Biomédica/métodos , Promoción de la Salud/métodos , Humanos , Relaciones Médico-Paciente , Rol Profesional , Proyectos de Investigación , Informe de Investigación
6.
Clin Rehabil ; 30(6): 559-76, 2016 Jun.
Artículo en Inglés | MEDLINE | ID: mdl-26198892

RESUMEN

OBJECTIVE: A systematic review and meta-analysis was conducted to illustrate whether people with multiple sclerosis engage in more physical activity following behaviour change interventions. DATA RESOURCES: MEDLINE, CINAHL, PubMed, Web of Sciences, Cochrane Library, SCOPUS, EMBASE and PEDro were searched from their inception till 30 April 2015. TRIAL SELECTION: Randomized and clinical controlled trials that used behaviour change interventions to increase physical activity in people with multiple sclerosis were selected, regardless of type or duration of multiple sclerosis or disability severity. DATA EXTRACTION: Data extraction was conducted by two independent reviewers and the Cochrane Collaboration's recommended method was used to assess the risk of bias of each included study. RESULTS: A total of 19 out of 573 studies were included. Focusing on trials without risk of bias, meta-analysis showed that behaviour change interventions can significantly increase physical activity participation (z = 2.20, p = 0.03, standardised main difference 0.65, 95% confidence interval 0.07 to 1.22, 3 trials, I(2) = 68%) (eight to 12 weeks' duration). Behaviour change interventions did not significantly impact on the physical components of quality of life or fatigue. CONCLUSION: Behaviour change interventions provided for relatively short duration (eight to 12 weeks) may increase the amount of physical activity people with multiple sclerosis engage in, but appear to have no effect on the physical components of quality of life and fatigue. Further high quality investigations of the efficacy of behaviour change interventions to increase physical activity participation that focus on dose, long-term impact and method of delivery are warranted for people with multiple sclerosis.


Asunto(s)
Terapia Conductista/métodos , Ejercicio Físico , Esclerosis Múltiple/rehabilitación , Sesgo , Humanos , Evaluación de Procesos y Resultados en Atención de Salud/estadística & datos numéricos
7.
Int Urogynecol J ; 25(2): 265-71, 2014 Feb.
Artículo en Inglés | MEDLINE | ID: mdl-23955582

RESUMEN

INTRODUCTION AND HYPOTHESIS: This study investigated women's experiences of doing prescribed pelvic floor muscle exercise (PFME) after participation in the Pelvic Organ Prolapse Physiotherapy (POPPY) trial. The aim was to understand post-supervised treatment adherence to PFME and to inform future advice for women being treated for pelvic organ prolapse (POP). METHODS: Five women were purposively selected from the New Zealand branch of the multi-centre, multi-national POPPY trial and took part in a semi-structured interviews about their experiences of PFME. The interviews were subjected to an interpretative phenomenological analysis (IPA). RESULTS: Three core themes were identified in the analysis. The first theme, "Patterns of PFME behaviour", described exercise characteristics and behaviours. The second theme, "Influences on PFME maintenance cycles", captured the participants' responses to and evaluations of their exercise practice and related PFME self-efficacy. The "cycle" referred to the changing influences on exercise behaviour. The third theme, "Family as priority", was expressed in terms of either putting family first or successfully combining the priorities of family and self. CONCLUSION: This study revealed the importance of family in influencing PFME patterns and behaviours in the treatment of POP. It is possible that identifying strategies to help women reach their PFME goals within the context of their families will promote more successful PFME adherence. The importance of family when prescribing exercise for women with other chronic health conditions is also worth exploring.


Asunto(s)
Diafragma Pélvico/fisiopatología , Prolapso de Órgano Pélvico/fisiopatología , Prolapso de Órgano Pélvico/terapia , Modalidades de Fisioterapia , Familia , Femenino , Humanos , Entrevistas como Asunto , Persona de Mediana Edad , Nueva Zelanda , Cooperación del Paciente , Estudios Retrospectivos , Resultado del Tratamiento
8.
J Health Psychol ; 29(12): 1301-1306, 2024 Oct.
Artículo en Inglés | MEDLINE | ID: mdl-39311522

RESUMEN

This editorial reflects on the current and future directions of the Journal of Health Psychology. As the Co-Editors in Chief, we briefly outline our positionality and the importance of our Editorial Board and other peer reviewers in ensuring the rigour of accepted articles. We comment on the middle-ground that has to be struck when considering the scope of open science given that data sharing has to be tempered by ethical and methodological considerations. We re-visit the aims and scope of the journal and reflect on some of the key aspects of diversity that set the journal apart from others. We showcase a selection of Editors' picks that are published in this issue and available as a special collection. The Journal of Health Psychology has a bright future because of the contributions we receive from around the world as well as the outstanding support of peer reviewers.


Asunto(s)
Medicina de la Conducta , Publicaciones Periódicas como Asunto , Humanos , Políticas Editoriales , Revisión de la Investigación por Pares/normas
9.
Nutrients ; 16(17)2024 Aug 30.
Artículo en Inglés | MEDLINE | ID: mdl-39275221

RESUMEN

Disordered eating is a significant issue in university student populations. Currently, access to interventions is limited. Online interventions present an innovative way to increase accessibility to treatment for those in need. The current study explored how an online intervention for disordered eating (everyBody) could be modified to suit the needs of university students in Aotearoa New Zealand. Aotearoa New Zealand is a unique cultural context, with an indigenous population that has a high incidence rate of disordered eating, highlighting the need to adapt everyBody to the local context. Individual interviews were conducted with nine students currently at university in Aotearoa New Zealand, aged between 18 and 33 years old (five females, four males). Three first-order themes were identified using template analysis. The themes indicate that participants perceived the programme as acceptable and feasible for use with Aotearoa New Zealand's university student population. Furthermore, the themes provide insight into potential adaptions to the programme to facilitate engagement and uptake. The suggested changes were largely consistent with previous research on E-therapy design (e.g., content length, therapeutic alliance), and also highlight changes specific to fit Aotearoa New Zealand's cultural context. The findings have implications for universities and other funders deciding on services for students with disordered eating and eating disorders.


Asunto(s)
Terapia Cognitivo-Conductual , Trastornos de Alimentación y de la Ingestión de Alimentos , Investigación Cualitativa , Estudiantes , Humanos , Femenino , Nueva Zelanda , Trastornos de Alimentación y de la Ingestión de Alimentos/terapia , Trastornos de Alimentación y de la Ingestión de Alimentos/psicología , Masculino , Estudiantes/psicología , Adulto Joven , Adolescente , Adulto , Terapia Cognitivo-Conductual/métodos , Universidades , Autocuidado/métodos , Intervención basada en la Internet
10.
Artículo en Inglés | MEDLINE | ID: mdl-39308004

RESUMEN

OBJECTIVE: Little is known about the preferences of people with rheumatoid arthritis (RA) regarding tapering of biologic disease-modifying antirheumatic drugs (bDMARDs). The aim of this study was to assess the preferences of people with RA in relation to potential treatment- related benefits and risks of bDMARD tapering and the healthcare service-related attributes that affect tapering. METHODS: Participants with RA who had experience of taking a bDMARD completed an online discrete choice experiment. Participants were asked their preferences when given three hypothetical treatment scenarios where varying the frequency of treatment, might alter their chance of adverse effects, of regaining disease control, and of other healthcare service-related effects. Preference weights were estimated using a multinomial logit model. RESULTS: There were 142 complete responses. Reduced dosing frequency of bDMARDs treatment had the largest impact on preference (mean:1.0, 95%CI 0.8-1.2), followed by chance of disease flare (mean:0.7, 95%CI 0.6-0.9). Participants were willing to accept an increased risk of flare between 10.6% (95%CI 3.2-17.9) and 60.6% (95%CI 48.1-72.9) in exchange for benefits associated with tapering bDMARDs. Participants with better quality of life were more likely to choose to remain on current treatment. The predicted uptake of bDMARD tapering was high among people with RA, suggesting bDMARD tapering was a favoured option. CONCLUSION: For individuals with RA, making decisions about tapering bDMARDs involves considering several factors, with the most important determinants identified as dosing frequency and the risk of disease flare. Understanding patient perspectives of bDMARD tapering may enable physicians to make patient-focused shared healthcare decisions.

11.
Rheumatology (Oxford) ; 52(1): 81-90, 2013 Jan.
Artículo en Inglés | MEDLINE | ID: mdl-22942402

RESUMEN

OBJECTIVES: Cardiovascular disease (CVD) is responsible for 50% of the excess mortality for patients with RA. This study aimed to evaluate a novel 8-week cognitive behavioural patient education intervention designed to effect behavioural change with regard to modifiable CVD risk factors in people with RA. METHODS: This was a non-blinded randomized controlled trial with a delayed intervention arm. Participants were randomly assigned to receive the cognitive behavioural education intervention or a control information leaflet at a ratio of 1:1. The primary outcome measure was patient's knowledge of CVD in RA; secondary measures were psychological measures relating to effecting behaviour change, actual behaviour changes and clinical risk factors. Data were collected at baseline, 2 and 6 months. RESULTS: A total of 110 participants consented (52 in the intervention group and 58 in the control group) to participate in the study. At 6 months, those in the intervention group had significantly higher knowledge scores (P < 0.001); improved behavioural intentions to increase exercise (P < 0.001), eat a low-fat diet (P = 0.01) and lose weight (P = 0.06); and lower mean diastolic blood pressure by 3.7 mmHg, whereas the control group's mean diastolic blood pressure increased by 0.8 mmHg. There was no difference between the groups on actual behaviours. CONCLUSIONS: Patient education has a significant role to play in CVD risk factor modification for patients with RA, and the detailed development of this programme probably contributed to its successful results. It is disappointing that behaviours, as we measured them, did not change. The challenge, as always, is how to translate behavioural intentions into action. Larger studies, powered specifically to look at behavioural changes, are required. Trial registration. National Institute for Health Research, UKCRN 4566.


Asunto(s)
Artritis Reumatoide/complicaciones , Enfermedades Cardiovasculares/complicaciones , Terapia Cognitivo-Conductual/métodos , Educación del Paciente como Asunto , Anciano , Artritis Reumatoide/psicología , Dieta con Restricción de Grasas , Ejercicio Físico , Femenino , Humanos , Masculino , Persona de Mediana Edad , Folletos , Factores de Riesgo , Resultado del Tratamiento
12.
J Neurol Phys Ther ; 37(2): 51-7, 2013 Jun.
Artículo en Inglés | MEDLINE | ID: mdl-23645142

RESUMEN

BACKGROUND AND PURPOSE: Increasing participation in physical activity is a goal for many health care providers working with persons with disability. In order to reduce the physical and social barriers to participation, there is a need to develop approaches that integrate self-help with professional help for autonomous yet supported health promotion. This study reports on an innovative program, entitled the "Blue Prescription approach", in which physical therapists work collaboratively with persons with a disability to promote community-based physical activity participation. METHODS: We trialed this collaborative approach with two physical therapists and 27 participants with multiple sclerosis (MS) over a three month period. We gathered qualitative data from four sources: (i) individual interviews with our participants, (ii) individual interviews with the physical therapists, (iii) clinical notes, and (iv) Advisory Group meeting notes. We then analyzed these data for categories to inform the content and resources required for delivery of the approach. RESULTS: For most participants, the Blue Prescription approach facilitated regular engagement in the physical activity of their choice. The Advisory Group provided advice to help solve individual contexts that presented as challenges to participants. Based on review of interview transcripts, we identified four strategies or issues to inform the further development of Blue Prescription. DISCUSSION AND CONCLUSIONS: Evidence indicated that the Blue Prescription approach can provide a collaborative and flexible way for physical therapists to work with individuals with MS, to increase participation in community-based physical activity. To further develop the approach, there is a need to address issues related to the use of standardized measures and develop strategies to train physical therapists in collaborative approaches for promotion of physical activity.The integration of self-help and professional help provided by the Blue Prescription approach appeared to result in successful promotion of physical activity in persons with MS. Additional testing is required to examine its efficacy in other health care systems, in conditions beyond MS, and in terms of its economic impact.Video Abstract available (see Video, Supplemental Digital Content 1, http://links.lww.com/JNPT/A46) for more insights from the authors.


Asunto(s)
Personas con Discapacidad , Ejercicio Físico , Conductas Relacionadas con la Salud , Actividad Motora , Esclerosis Múltiple/terapia , Adulto , Anciano , Femenino , Promoción de la Salud , Necesidades y Demandas de Servicios de Salud , Humanos , Masculino , Persona de Mediana Edad , Nueva Zelanda , Modalidades de Fisioterapia , Autocuidado
13.
J Health Psychol ; 28(2): 103-106, 2023 02.
Artículo en Inglés | MEDLINE | ID: mdl-35733411

RESUMEN

The body-positive movement (#bodypositive) champions body acceptance by celebrating a diverse - visual - array of body types and shapes online. Sparked out of collective resistance to unrealistic bodies on social media, the #bodypositive community has assembled a considerable following: having now surpassed one billion engagements on Instagram. To mark this milestone, we highlight the problem, the promise, and the peril of image-focused movements on Instagram. On balance, we argue #bodypositive content on Instagram likely has a positive impact. As the movement continues to grow though, advocates can look to strengthen the content's positive impact with some careful, research-informed, messaging adjustments.


Asunto(s)
Imagen Corporal , Medios de Comunicación Sociales , Humanos , Participación Social
15.
Rheumatology (Oxford) ; 51(5): 858-65, 2012 May.
Artículo en Inglés | MEDLINE | ID: mdl-22210659

RESUMEN

OBJECTIVES: To validate the Dudley Inflammatory Bowel Disease Questionnaire (DISQ) for determining the presence and severity of bowel symptoms in axial SpA. METHODS: Seventy-seven SpA patients were assessed for disease activity using the BASDAI. All participants, including 32 healthy controls and 29 patients with Crohn's Disease (CD), completed the DISQ and an assessment of stool form and frequency. Validation of the DISQ was undertaken in accordance with OMERACT criteria. RESULTS: Validity of the DISQ for measuring bowel symptoms in SpA was confirmed (Cronbach's α 0.79). Mean DISQ scores (s.d.) were: controls 2.6 (2.6), SpA 8.7 (6.1) and CD 17.1 (10.2). Differences were significant between controls and SpA, and SpA and CD, and correlated with disease activity (ρ 0.27, P = 0.02). In SpA, DISQ scores of those taking NSAIDs (n = 59) did not differ from those not taking NSAIDs (n = 18) (P = 0.31). Stool form and frequency differed significantly between SpA patients and healthy controls (P < 0.001). Using the DISQ the prevalence of clinically relevant bowel symptoms in SpA is 31%, and 7.8% experience bowel symptoms equivalent to active CD. CONCLUSION: The DISQ is a valid measure of bowel symptoms in SpA. Bowel symptoms are prevalent in SpA and correlate with disease activity. Symptoms do not relate to treatment with NSAIDs. We conclude that bowel symptoms should be included as a domain in the clinical assessment of patients with SpA and that the DISQ has potential as an outcome measure in clinical trials.


Asunto(s)
Enfermedades Inflamatorias del Intestino/diagnóstico , Espondiloartropatías/complicaciones , Encuestas y Cuestionarios , Adulto , Femenino , Humanos , Enfermedades Inflamatorias del Intestino/complicaciones , Masculino , Persona de Mediana Edad , Psicometría , Calidad de Vida , Reproducibilidad de los Resultados , Índice de Severidad de la Enfermedad
16.
N Z Med J ; 135(1562): 56-62, 2022 09 23.
Artículo en Inglés | MEDLINE | ID: mdl-36137767

RESUMEN

AIMS: This study examines the help-seeking behaviours of cisgender women, cisgender men and gender-diverse university students who have experienced sexual harm. METHODS: We examine an existing data set from a cross-sectional survey of experiences of sexual harm among university students. Bivariate analyses were used to analyse the type of sexual harm experienced and subsequent help-seeking behaviours. RESULTS: Although more cisgender women reported experiencing sexual harm, data from this survey demonstrates cisgender men and gender-diverse persons also report experiencing sexual harm. Of those who reported having experienced sexual harm, only a small proportion (27%) reported having told someone about their experience. People who told, most often told family or friends. Additionally, a small proportion of cisgender women told specialised sexual violence services or other services. Cisgender men were less likely to tell someone about their experience compared to cisgender women. CONCLUSIONS: Sexual harm affects students of all genders on campus but there may be differential help-seeking behaviours depending on gender. Cisgender men and gender-diverse persons may be less likely to reach out to formal service providers. Support services need to consider how to accommodate the support needs of all survivors, including cisgender men and gender-diverse persons.


Asunto(s)
Delitos Sexuales , Personas Transgénero , Estudios Transversales , Femenino , Identidad de Género , Humanos , Masculino , Nueva Zelanda , Conducta Sexual
17.
N Z Med J ; 135(1559): 59-72, 2022 08 05.
Artículo en Inglés | MEDLINE | ID: mdl-35999782

RESUMEN

AIM: This study aims to report primary care experiences among transgender people in Aotearoa New Zealand based on quantitative and qualitative data from a nationwide community-based survey of transgender people. METHODS: Subsamples with a usual general practitioner were employed from the 2018 Counting Ourselves Survey (n=871) and the 2018/19 New Zealand Health Survey to assess inequities between these samples in primary care experiences and barriers. Guided by Andersen's Behavioural Model of healthcare access, we conducted a content analysis on comments from Counting Ourselves participants (n=153) to identify themes about issues of concern for transgender people when accessing primary care. RESULTS: Transgender participants had greater risk of feeling no confidence in their GPs (Mdifference=0.22; Cohen's d=0.39), reporting barriers accessing primary care due to cost (38.4% vs 17.4%; RR=2.21), and transport issues (13.5% vs 3.0%; RR=4.58) compared to the general population. Content analysis uncovered how transgender people's primary care experiences are shaped by healthcare environments, predisposing characteristics, and enabling resources. CONCLUSION: Our findings indicate ways to ensure primary care services are inclusive so that all transgender people feel welcome. This requires all primary healthcare professionals to demonstrate core trans-specific cultural safety when providing healthcare to transgender patients.


Asunto(s)
Personas Transgénero , Transexualidad , Accesibilidad a los Servicios de Salud , Humanos , Nueva Zelanda , Atención Primaria de Salud
18.
J Interpers Violence ; 37(3-4): 1311-1337, 2022 02.
Artículo en Inglés | MEDLINE | ID: mdl-32468917

RESUMEN

This qualitative study explores the experiences of men who self-report victimization from a female intimate partner in four English-speaking countries. Forty-one men who reported any type of intimate partner abuse (IPA) from a female partner were recruited via targeted advertising in Australia, Canada, the United Kingdom, and the United States. Twelve online focus groups were conducted across countries using a phenomenologically informed design. Thematic analysis was carried out from an inductive and realist epistemological position and themes identified at a semantic level. This approach was taken to directly reflect the men's experiences and perspectives, ensuring the voices of this hard-to-reach and overlooked population were heard. Three themes were identified across the countries: an imbalanced experience of harm; living with sustained abuse; and knowledge is power for men experiencing IPA. It was found that most participants underwent physical harm in the context of coercive control and experienced abuse over long periods of time. They were slow to recognize the magnitude of their partners' behavior and act upon it for a range of reasons that are described in detail. In addition, promoting knowledge about the victimization of men by women, using appropriate language and active learning, was found to be important in helping the men gain autonomy and agency to break the pattern of abuse and aid their recovery. The implications of the findings for developing male-friendly IPA policy, practice, and services are discussed, in addition to the need for innovative research methodology to access hard-to-reach populations.


Asunto(s)
Violencia de Pareja , Lenguaje , Femenino , Humanos , Masculino , Hombres , Conducta Sexual , Parejas Sexuales , Estados Unidos
19.
Int J Transgend Health ; 23(3): 334-354, 2022.
Artículo en Inglés | MEDLINE | ID: mdl-35799950

RESUMEN

Background: It is well established that transgender people experience considerable health inequities, which are sustained in part by limited teaching about transgender healthcare for trainee health professionals. Aims: The aim of this study was to explore the perspectives of both teaching staff from health professional education programmes and transgender community members on the best ways to teach about transgender healthcare, with a focus on ways of: 1) overcoming barriers to this teaching; and 2) involving community members in this teaching. Methods: A research advisory committee was convened to guide the project and included transgender community members, teaching staff from health professional programmes, and trainee health professionals in Aotearoa/New Zealand. Three preliminary focus groups were held with 10 transgender community members. These community members were then invited to act as transgender community 'ambassadors' in focus groups with teaching staff based on suggestions from the advisory committee. Six focus groups were conducted with 22 teaching staff from a range of health professional education programmes along with at least two transgender community ambassadors. Results: Teaching staff positioned themselves as lacking the expertise to teach about transgender healthcare but also as expert teachers when applying methods such as small group teaching. Transgender participants also positioned themselves as having expertise arising primarily from their own experiences and acknowledged that effective teaching about transgender healthcare would need to cover a diversity of transgender identities and healthcare outside their own experiences. Teaching staff and transgender community members were keen to pool expertise and thus overcome the shared sense of lacking the expertise to teach about transgender healthcare. Discussion: These findings provide insights into the current barriers to teaching about transgender healthcare and provide future directions for staff development on teaching about transgender healthcare and ways of safely involving transgender community members in teaching.

20.
Artículo en Inglés | MEDLINE | ID: mdl-36497912

RESUMEN

University students globally are consistently identified as a vulnerable group for mental distress and suicide. Despite this, students report low engagement in help-seeking behaviours. This series of studies aimed to assess barriers to help-seeking for students and the impact of an intervention that sought to increase support-seeking intentions. In Study 1, 373 undergraduate psychology students completed items related to depression, anxiety, suicidal ideation, stigma, and help-seeking intentions. In Study 2, 133 undergraduate psychology students were randomly allocated into one of three intervention groups (control, infographic, video) and completed measures as used in Study 1. Despite experiencing clinically relevant symptoms and recent suicidal ideation, students in Study 1 tended to report low intentionality to seek help, citing perceptions that their distress was not serious enough or a desire to handle their issues independently. In Study 2, an infographic about different support services increased student's intentions to access support services and reduced their perception that their issues were not serious enough. Overall, Aotearoa New Zealand students endorsed similar barriers to help-seeking as students in other countries. Importantly, we demonstrated that a simple infographic intervention reduced perceptions regarding these common barriers and may increase students' knowledge about when to seek help.


Asunto(s)
Aceptación de la Atención de Salud , Ideación Suicida , Humanos , Intención , Nueva Zelanda , Aceptación de la Atención de Salud/psicología , Estudiantes/psicología
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