RESUMEN
PhD-trained scientists are essential contributors to the workforce in diverse employment sectors that include academia, industry, government, and nonprofit organizations. Hence, best practices for training the future biomedical workforce are of national concern. Complementing coursework and laboratory research training, many institutions now offer professional training that enables career exploration and develops a broad set of skills critical to various career paths. The National Institutes of Health (NIH) funded academic institutions to design innovative programming to enable this professional development through a mechanism known as Broadening Experiences in Scientific Training (BEST). Programming at the NIH BEST awardee institutions included career panels, skill-building workshops, job search workshops, site visits, and internships. Because doctoral training is lengthy and requires focused attention on dissertation research, an initial concern was that students participating in additional complementary training activities might exhibit an increased time to degree or diminished research productivity. Metrics were analyzed from 10 NIH BEST awardee institutions to address this concern, using time to degree and publication records as measures of efficiency and productivity. Comparing doctoral students who participated to those who did not, results revealed that across these diverse academic institutions, there were no differences in time to degree or manuscript output. Our findings support the policy that doctoral students should participate in career and professional development opportunities that are intended to prepare them for a variety of diverse and important careers in the workforce.
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Eficiencia , Investigadores , Desarrollo de Personal/organización & administración , Interpretación Estadística de Datos , Humanos , Relaciones Interinstitucionales , National Institutes of Health (U.S.) , Edición , Estados UnidosRESUMEN
BACKGROUND: Early career scientists (ECS) are agents of change and driving forces in the promotion of mental health. The German Center for Mental Health (DZPG) is a powerful initiative to guide and support careers in the field of mental health. OBJECTIVE: The DZPG aims to make investments to educate, engage, excite, and empower ECS in an interdisciplinary and interinstitutional scientific community. STRUCTURES, TOPICS AND INITIATIVES: To achieve this, the ECS Board at the DZPG plays a central role and consists of 18 elected ECS representatives. The ECS culture gives members the right of voice and embraces bottom-to-top ideas and acknowledges autonomy and co-determination. The DZPG academy was developed to facilitate communication and networking and encourage collaboration among ECS members. The DZPG also navigates several key issues, such as equality, diversity, inclusion, family friendliness and work-life balance, which are essential for a functioning research landscape. The DZPG also extends opportunities to ECS to develop skills and competencies that are essential for contemporary ECS. It complements nationwide support for ECS with funding opportunities, mental health support at work, careers advice and guidance activities. Importantly, the ECS Board is committed to patient and public involvement and engagement, scientific communication and knowledge transfer to multiple settings. CONCLUSION: The DZPG will contribute to fostering ECS training programs for student and academic exchanges, collaborative research, and pooling of resources to acquire grants and scholarships. It will also support the establishment of hubs for ECS networks and promote the expansion of international competence of ECS in Germany.
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Selección de Profesión , Alemania , Humanos , Salud Mental , Colaboración Intersectorial , Objetivos Organizacionales , Investigadores , Relaciones InterinstitucionalesRESUMEN
BACKGROUND: To help ensure that children and families get the right support and services at the right time, strong and stable relationships between various child service organizations are vital. Moreover, strong and stable relationships and a key network position for gatekeepers are important preconditions for interprofessional collaboration, the timely and appropriate referral of clients, and improved health outcomes. Gatekeepers are organizations that have specific legal authorizations regarding client referral. However, it is largely unclear how strong relations in child service networks are structured, whether the gatekeepers have strong and stable relationships, and what the critical relations in the overall structure are. The aim of this study is to explore these preconditions for integrated care by examining the internal structure and dynamics of strong relations. METHODS: A comparative case study approach and social network analysis of three inter-organizational networks consisting of 65 to 135 organizations within the Dutch child service system. Multiple network measures (number of active organizations, isolates, relations, average degree centrality, Lambda sets) were used to examine the strong relation structure and dynamics of the networks. Ucinet was used to analyze the data, with use of the statistical test: Quadratic Assignment Procedure. Visone was used to visualize the graphs of the networks. RESULTS: This study shows that more than 80% of the organizations in the networks have strong relations. A striking finding is the extremely high number of strong relations that gatekeepers need to maintain. Moreover, the results show that the most important gatekeepers have key positions, and their strong relations are relatively stable. By contrast, considering the whole network, we also found a considerable measure of instability in strong relationships, which means that child service networks must cope with major internal dynamics. CONCLUSIONS: Our study addressed crucial preconditions for integrated care. The extremely high number of strong relations that particularly gatekeepers need to build and maintain, in combination with the considerable instability of strong relations considering the whole network, is a serious point of concern that need to be managed, in order to enable child service networks to improve internal coordination and integration of service delivery.
HIGHLIGHTS: More than 80% of the organizations in the network has strong relations.Gatekeepers need to maintain an extremely high number of strong relations.Child service networks need to cope with major internal dynamics.These insights offer leads for optimizing how a network functions.
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Prestación Integrada de Atención de Salud , Análisis de Redes Sociales , Humanos , Niño , Red Social , Relaciones Interinstitucionales , Derivación y ConsultaRESUMEN
Academic-clinical partnerships describe relationships between 2 groups to advance mutual interests, particularly collaboration on research projects. In this column, members of the Association of Leadership Science in Nursing discuss a 10-year partnership between a nurse professor at a southeast university and a nurse scientist at a health system in the southeast United States, reflections on meeting the criterion standard in our research pursuits, and lessons learned.
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Relaciones Interinstitucionales , Liderazgo , Estados Unidos , Humanos , UniversidadesRESUMEN
ABSTRACT: Innovation is needed to solve nursing workforce issues during times of crisis. A collaborative effort between a hospital system and several universities resulted in the Bridge to Professional Practice Program that was implemented during a period of high patient volume and nursing student downtime. The program provided support for staffing needs and clinical hours to promote readiness for practice for students. The program evaluation outcomes and recommendations for improvement are addressed.
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Bachillerato en Enfermería , Hospitales , Relaciones Interinstitucionales , Personal de Enfermería en Hospital , Humanos , Bachillerato en Enfermería/organización & administración , Estudiantes de Enfermería , Fuerza Laboral en Salud , Innovación Organizacional , Personal de Enfermería en Hospital/provisión & distribución , Investigación en Evaluación de EnfermeríaRESUMEN
The dual enrollment model in which universities collaborate with community colleges to provide the prelicensure Bachelor of Science in Nursing (BSN) education has been identified by the National Academy of Medicine as one of 5 viable academic progression models for transforming nursing education. The New Mexico Nursing Education Consortium (NMNEC) is a successful example of the dual enrollment model, which began in 2015 with one partnership. By 2018, 3 universities and 5 community colleges had partnered to offer the BSN jointly with the community college locations. In this retrospective, descriptive study, the 2 program types were compared to assess for differences in demographic and academic characteristics as well as program outcomes for the BSN graduates (n = 1018) from 2015 to 2018. The results of the analysis show that NMNEC has been successful in increasing the total number and diversity of BSN graduates for New Mexico. Importantly, NMNEC serves as an exemplar academic-practice partnership model because the success of the consortium would not have been possible without the involvement of practice partners. The outcomes from this study support academic-practice partnerships as instrumental in developing a better educated and more diverse nursing workforce that will improve patient outcomes and strive for health equity.
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Bachillerato en Enfermería , Relaciones Interinstitucionales , Modelos Educacionales , Universidades , Bachillerato en Enfermería/organización & administración , Humanos , Investigación en Educación de Enfermería , Estudios RetrospectivosRESUMEN
Cook County Health partnered with the Chicago Departments of Public Health and Family & Support Services and several dozen community-based organizations to rapidly establish a temporary medical respite shelter during the spring 2020 COVID-19 peak for individuals experiencing homelessness in Chicago and Cook County, Illinois. This program provided low-barrier isolation housing to medically complex adults until their safe return to congregate settings. We describe strategies used by the health care agency, which is not a Health Resource and Services Administration Health Care for the Homeless grantee, to provide medical services and care coordination.
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COVID-19/rehabilitación , Redes Comunitarias/organización & administración , Personas con Mala Vivienda/estadística & datos numéricos , Relaciones Interinstitucionales , Servicio Social/organización & administración , COVID-19/epidemiología , Chicago , Enfermedades Transmisibles Emergentes/prevención & control , Humanos , Illinois , Comunicación Interdisciplinaria , Vivienda Popular/estadística & datos numéricos , Poblaciones Vulnerables/estadística & datos numéricosRESUMEN
Immediately following the March 13, 2020 declaration of COVID-19 as a national emergency (1), the U.S. government began implementing national testing programs for epidemiologic surveillance, monitoring of frontline workers and populations at higher risk for acquiring COVID-19, and identifying and allocating limited testing resources. Effective testing supports identification of COVID-19 cases; facilitates isolation, quarantine, and timely treatment measures that limit the spread of SARS-CoV-2 (the virus that causes COVID-19); and guides public health officials about the incidence of COVID-19 in a community. A White House Joint Task Force, co-led by the Department of Health and Human Services (HHS) and the Federal Emergency Management Agency (FEMA), created the Community-Based Testing Sites (CBTS) program working with state and local partners (2). This report describes the timeline, services delivered, and scope of the CBTS program. During March 19, 2020-April 11, 2021, the CBTS program conducted 11,661,923 SARS-CoV-2 tests at 8,319 locations across the United States and its territories, including 402,223 (3.5%) administered through Drive-Through Testing, 10,129,142 (86.9%) through Pharmacies+ Testing, and 1,130,558 (9.7%) through Surge Testing programs. Tests administered through the CBTS program yielded 1,176,959 (10.1%) positive results for SARS-CoV-2. Among tested persons with available race data,* positive test results were highest among American Indian or Alaska Native (14.1%) and Black persons (10.4%) and lowest among White persons (9.9%), Asian persons (7.3%), and Native Hawaiian or Other Pacific Islanders (6.4%). Among persons with reported ethnicity, 25.3% were Hispanic, 15.9% of whom received a positive test result. Overall, 82.0% of test results were returned within 2 days, but the percentage of test results returned within 2 days was as low as 40.7% in July 2020 and 59.3% in December 2020 during peak testing periods. Strong partnerships enabled a rapid coordinated response to establish the federally supported CBTS program to improve access to no-charge diagnostic testing, including for frontline workers, symptomatic persons and close contacts, and persons living in high-prevalence areas. In April 2021, the CBTS Pharmacies+ Testing and Surge Testing programs were expanded into the Increasing Community Access to Testing (ICATT) program. As of November 12, 2021, the CBTS and ICATT programs conducted approximately 26.6 million tests with approximately 10,000 active testing sites. Although the CBTS program represented a relatively small portion of overall U.S. SARS-CoV-2 testing, with its successful partnerships and adaptability, the CBTS program serves as a model to guide current community-based screening, surveillance, and disease control programs, and responses to future public health emergencies.
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Prueba de COVID-19/estadística & datos numéricos , COVID-19/diagnóstico , Servicios de Salud Comunitaria/organización & administración , Adulto , Anciano , Anciano de 80 o más Años , COVID-19/epidemiología , Conducta Cooperativa , Femenino , Accesibilidad a los Servicios de Salud , Necesidades y Demandas de Servicios de Salud , Humanos , Relaciones Interinstitucionales , Masculino , Área sin Atención Médica , Persona de Mediana Edad , Evaluación de Programas y Proyectos de Salud , Estados Unidos/epidemiología , Adulto JovenRESUMEN
BACKGROUND: The Australian Nurse Family Partnership Program (ANFPP) is an evidence-based, home visiting program that offers health education, guidance, social and emotional support to first-time mothers having Aboriginal and/or Torres Strait Islander (First Nations) babies. The community-controlled sector identified the need for specialised support for first time mothers due to the inequalities in birthing and early childhood outcomes between First Nations' and other babies in Australia. The program is based on the United States' Nurse Family Partnership program which has improved long-term health outcomes and life trajectories for mothers and children. International implementation of the Nurse Family Partnership program has identified interagency service integration as key to program recruitment, retention, and efficacy. How the ANFPP integrates with other services in an Australian urban setting and how to improve this is not yet known. Our research explores the barriers and enablers to interagency service integration for the Australian Nurse Family Partnership Program ANFPP in an urban setting. METHODS: A qualitative study using individual and group interviews. Purposive and snowball sampling was used to recruit clients, staff (internal and external to the program), Elders and family members. Interviews were conducted using a culturally appropriate 'yarning' method with clients, families and Elders and semi-structured interview guide for staff. Interviews were audio-recorded and transcribed prior to reflexive thematic analysis. RESULTS: Seventy-six participants were interviewed: 26 clients, 47 staff and 3 Elders/family members. Three themes were identified as barriers and three as enablers. Barriers: 1) confusion around program scope, 2) duplication of care, and 3) tensions over 'ownership' of clients. Enablers (existing and potential): 1) knowledge and promotion of the program; 2) cultural safety; and 3) case coordination, co-location and partnership forums. CONCLUSION: Effective service integration is essential to maximise access and acceptability of the ANFPP; we provide practical recommendations to improve service integration in this context.
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Enfermería de la Familia , Servicios de Salud del Indígena , Relaciones Interinstitucionales , Australia , Enfermería de la Familia/organización & administración , Femenino , Servicios de Salud del Indígena/organización & administración , Humanos , Lactante , Evaluación de Programas y Proyectos de Salud , Investigación CualitativaRESUMEN
The Intergovernmental Panel on Climate Change (IPCC) is an authoritative and influential source of reports on climate change. The lead authors of IPCC reports include scientists from around the world, but questions have been raised about the dominance of specific disciplines in the report and the disproportionate number of scholars from the Global North. In this paper, we analyze the as-yet-unexamined issue of gender and IPCC authorship, looking at changes in gender balance over time and analyzing women's views about their experience and barriers to full participation, not only as women but also at the intersection of nationality, race, command of English, and discipline. Over time, we show that the proportion of female IPCC authors has seen a modest increase from less than 5% in 1990 to more than 20% in the most recent assessment reports. Based on responses from over 100 women IPCC authors, we find that many women report a positive experience in the way in which they are treated and in their ability to influence the report, although others report that some women were poorly represented and heard. We suggest that an intersectional lens is important: not all women experience the same obstacles: they face multiple and diverse barriers associated with social identifiers such as race, nationality, command of English, and disciplinary affiliation. The scientific community benefits from including all scientists, including women and those from the Global South. This paper documents barriers to participation and identifies opportunities to diversify climate science.
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Cambio Climático , Investigación/estadística & datos numéricos , Mujeres , Comunicación , Recolección de Datos , Femenino , Gobierno , Humanos , Relaciones Interinstitucionales , Derechos de la MujerRESUMEN
Academic-practice partnerships are formalized relationships encouraged by the American Association of Colleges of Nursing to meet healthcare and societal needs. While Academic-practice partnerships have existed for decades, the process for evaluating their outcomes often lacks a robust, standardized structure. The purpose of this article is to describe one organization's process for developing and implementing an evaluation blueprint for appraising an Academic-practice partnership.
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Innovación Organizacional , Práctica Asociada/normas , Conducta Cooperativa , Humanos , Relaciones Interinstitucionales , Participación de los Interesados , Estados UnidosRESUMEN
This case study describes how an innovative, triple-win, academic-practice partnership model can be used to deepen the clinical expertise of advanced practice registered nurse (APRN) students and improve rural Americans' access to quality patient care. It features the experience and strategies used by a school of nursing and a local rural hospital system collaborating to provide clinical experiences for APRN students pursuing doctor of nursing practice degrees.
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Enfermería de Práctica Avanzada/educación , Bachillerato en Enfermería/organización & administración , Relaciones Interinstitucionales , Área sin Atención Médica , Población Rural/estadística & datos numéricos , Conducta Cooperativa , Humanos , Maryland , Evaluación de Necesidades , Investigación en Educación de Enfermería , Estudiantes de Enfermería/estadística & datos numéricosRESUMEN
This article describes an academic-clinical partnership program between a school of nursing and an American Nurse Credentialing Center Magnet®- and National Cancer Institute-designated Comprehensive Cancer Center based on a shared vision and multifaceted for optimal new graduate operating room (OR) recruitment and use of clinical partner resources. The program, now in its 3rd year, has a 100% retention rate among the cohorts. Implementing a multifaceted OR partnership program based on nursing theory is a strategy for workforce development to increase retention of new graduate OR nurses.
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Bachillerato en Enfermería/organización & administración , Hospitales de Enseñanza/organización & administración , Relaciones Interinstitucionales , Personal de Enfermería en Hospital/educación , Enfermería de Quirófano/educación , Enfermería de Quirófano/organización & administración , Sociedades de Enfermería/organización & administración , Recursos Humanos/organización & administración , Adulto , Femenino , Humanos , Masculino , Persona de Mediana Edad , National Institutes of Health (U.S.) , Objetivos Organizacionales , Estados UnidosRESUMEN
OBJECTIVE: In 2012, the state public health nurse (PHN) Leaders Workgroup formed with members from the state PHN Administrators organization and PHN faculty to facilitate the development of statewide PHN Academic practice partnerships (APP's). In 2016, the workgroup received a state Nurses Foundation grant for $6,000 followed by $5,000 in 2017 to fund the first 2 years of APP projects. DESIGN: The workgroup disseminated two calls for proposals to the Deans of state academic nursing institutions and local health department leaders, utilizing an application adapted from the American Association of Colleges of Nursing (AACN) APP Toolkit. Selection criteria included project intent; partner support; anticipated outcomes; budget; geographic location; and alignment with the Robert Wood Johnson Foundation (RWJF) Culture of Health framework. SAMPLE AND RESULTS: Sixteen proposals were received and reviewed by workgroup members resulting in 10 funded pilot projects. In 2018, the workgroup was awarded $55,980 from the RWJF to expand this initiative; funding an additional 10 APP's to date. Partnerships were reported as valuable by students, faculty, and practice partners. Barriers included provider participation, adherence to project timelines, communication, and the navigation of group dynamics. CONCLUSION: Academic practice partnerships positively impact patient outcomes, patient satisfaction, nursing outcomes, and student learners.
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Relaciones Interinstitucionales , Liderazgo , Salud Poblacional , Facultades de Enfermería , Estudiantes de Enfermería , Humanos , Facultades de Enfermería/organización & administración , Estudiantes de Enfermería/psicología , Estados UnidosRESUMEN
Pharmaceutical companies fund most clinical trials on drugs. However, there are clinical issues that might not be a priority from a commercial point of view, but that should certainly be addressed, given their importance for patients and society in general. Independent clinical research represents a fundamental pillar here and its basic element is investigator-initiated studies/trials. In these studies, it is the researcher who conceives the idea, develops the project and also acts as the sponsor. Most researchers are familiar with participating as collaborators in studies sponsored by pharmaceutical companies. In these studies, the company is in charge of all the scientific, legal and financial aspects, leaving the responsibility of the researcher mainly limited to the inclusion of patients and compliance with the protocol. On the contrary, the start-up and development of an independent research study requires considerable resources - of knowledge, money and time - and careful planning on the part of the researcher. In this manuscript, we will review the main characteristics of the studies initiated by the researcher and their fundamental differences with those sponsored by the pharmaceutical industry. We will also outline what its strengths and limitations are. Finally, we will propose some solutions to the main challenges they pose. Our ultimate goal is to stimulate potential researchers to undertake the challenge of conducting an independent clinical research project.
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Ensayos Clínicos como Asunto/organización & administración , Proyectos de Investigación , Investigadores , Protocolos Clínicos , Ensayos Clínicos como Asunto/normas , Exactitud de los Datos , Recolección de Datos/métodos , Industria Farmacéutica , Humanos , Relaciones Interinstitucionales , Liderazgo , Selección de Paciente , Apoyo a la Investigación como Asunto , España , Factores de TiempoRESUMEN
Although interorganizational relationships (IORs) are essential to the effective delivery of human services, very little research has examined relationships between juvenile justice agencies and behavioral health providers, and few studies have identified the most critical organizational and individual-level characteristics influencing IORs. Across 36 sites, juvenile probation officials (n = 458) and community behavioral health providers (n = 91) were surveyed about characteristics of their agencies, themselves, and IORs with each other. Generalized Linear Mixed Models were used to analyze the data. The strongest predictors included Perceived Organizational Support and individual Adaptability. Implications for research, theory and practice are discussed.
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Relaciones Interinstitucionales , Aplicación de la Ley , Conductas Relacionadas con la Salud , Humanos , Modelos OrganizacionalesRESUMEN
Food insecurity is an ongoing and persistent problem for many individuals and families in the United States and in New York City. The COVID-19 pandemic has exacerbated the scope of the problem and data show that food insecurity rates have increased almost three times over pre-COVID rates. In addition, with unemployment increasing daily and the closure of safety net programs and services, there became a need for creatively attending to the basic needs of individuals and families. SCO Family of Services (SCO), a large human service provider in New York City and Long Island, launched an innovative project with DoorDash during the early days of the COVID-19 pandemic and successfully got food into the homes of more than 1,900 families. This article discusses the practice innovation, project impact, lessons learned, and social work implications.
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COVID-19/epidemiología , Inseguridad Alimentaria , Relaciones Interinstitucionales , Servicio Social/organización & administración , Humanos , Estudios Longitudinales , Ciudad de Nueva York/epidemiología , Pandemias , Desarrollo de Programa , Evaluación de Programas y Proyectos de Salud , SARS-CoV-2 , Desempleo/estadística & datos numéricos , Estados Unidos/epidemiologíaRESUMEN
Covid-19 has profoundly impacted social work and has exposed the existing inequities in the health care system in the United States. Social workers play a critical role in the pandemic response for historically marginalized communities and for those who find themselves needing support for the first time. Innovative approaches to care management, including the Center for Health and Social Care Integration (CHaSCI) Bridge Model of transitional care provides a foundation from which social workers can rise to meet these new challenges.
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COVID-19/epidemiología , Atención a la Salud/organización & administración , Afecciones Crónicas Múltiples/epidemiología , Manejo de Atención al Paciente/organización & administración , Servicio Social/organización & administración , Anciano , Anciano de 80 o más Años , Humanos , Relaciones Interinstitucionales , Servicios de Salud Mental/organización & administración , Pandemias , Atención Dirigida al Paciente/organización & administración , SARS-CoV-2 , Automanejo , Telemedicina/organización & administración , Estados Unidos/epidemiologíaRESUMEN
In recent decades, there has been remarkable growth in scholarship examining the usefulness of community-engaged research (CEnR) and community-based participatory research (CBPR) for eliminating health inequities.This article seeks to synthesize the extant literature of systematic reviews, scoping reviews, and other related reviews regarding the context, processes, and research designs and interventions underlying CEnR that optimize its effectiveness. Through a scoping review, we have utilized an empirically derived framework of CBPR to map this literature and identify key findings and priorities for future research. Our study found 100 reviews of CEnR that largely support the CBPR conceptual framework.
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Investigación Participativa Basada en la Comunidad/organización & administración , Equidad en Salud/organización & administración , Humanos , Relaciones Interinstitucionales , Literatura de Revisión como AsuntoRESUMEN
A trend towards charging for access to research findings, tools and databases is becoming more prominent globally. But charging for the use of research tools and databases that are vital to research supporting national and international policy development might be unjustified. Financial barriers to accessing these tools and databases disproportionately affect low- and middle-income countries, who may have greater need for information that fuels research in their areas of concern. However, changing this trend is potentially possible. One example is the experience with the EuroQol-five-dimensional questionnaire (EQ-5D), a generic measure of health status used in economic evaluations for resource allocation decisions. Increasingly, governments and health-care providers are using the EQ-5D tool in patient-reported outcome measures to monitor quality of health-care provision, diagnose and track disease progression, and involve patients in their health care. The EuroQol Group, which owns the intellectual property rights to the EQ-5D, recently terminated their policy of charging for noncommercial, nonresearch uses of the tool. We share a brief history of this development and examine these charging policies in the context of the EQ-5D's use in national health-care research and policies, reflecting the trends and developments in the use of survey instruments on population health.
On observe à l'échelle mondiale une tendance de plus en plus marquée à la tarification de l'accès aux résultats, aux outils et aux bases de données de recherche. Cependant, la tarification de l'utilisation d'outils et de bases de données essentiels aux recherches appuyant l'élaboration de politiques nationales et internationales n'est pas toujours justifiée. Les obstacles financiers qui entravent l'accès à ces outils et bases de données affectent de manière disproportionnée les pays à revenu faible et intermédiaire, qui peuvent avoir davantage besoin d'informations pour alimenter des recherches sur leurs sujets de préoccupation. Il est toutefois possible d'infléchir cette tendance. Le questionnaire EuroQol-five-dimensions (EQ-5D), une mesure générale de l'état de santé utilisée dans les évaluations économiques pour les décisions relatives à l'affectation des ressources, constitue un exemple. Les gouvernements et les prestataires de soins de santé utilisent de plus en plus l'outil EQ-5D dans les mesures des résultats notifiés par les patients pour surveiller la qualité de la prestation des soins de santé, diagnostiquer et suivre l'évolution d'une maladie, et associer les patients à leurs soins de santé. Le groupe EuroQol, qui détient les droits de propriété intellectuelle relatifs à l'EQ-5D, a récemment mis fin à sa politique de tarification pour l'utilisation de l'outil à des fins non commerciales et dans un contexte autre que celui de la recherche. Nous retraçons brièvement ce cheminement et examinons ces politiques de tarification dans le contexte de l'utilisation de l'EQ-5D dans les recherches et politiques nationales sur les soins de santé, en rendant compte de l'évolution de l'utilisation du matériel d'enquête sur la santé de la population.
La tendencia a cobrar por el acceso a los resultados de las investigaciones, las herramientas y las bases de datos está cobrando cada vez más importancia en todo el mundo. Sin embargo, puede que no esté justificado cobrar por el uso de herramientas de investigación y bases de datos que son vitales para la investigación en apoyo del desarrollo de políticas nacionales e internacionales. Las barreras financieras para acceder a estas herramientas y bases de datos afectan desproporcionadamente a los países de ingresos bajos y medios, que pueden tener una mayor necesidad de información que impulse la investigación en sus áreas de interés. Sin embargo, es posible cambiar esta tendencia. Un ejemplo es la experiencia con el cuestionario de cinco dimensiones EuroQol (EQ-5D), una medida genérica del estado de salud utilizada en las evaluaciones económicas para las decisiones de asignación de recursos. Cada vez más, los gobiernos y los proveedores de la atención de la salud están utilizando la herramienta EQ-5D en las medidas de resultado informadas por el paciente para supervisar la calidad de la prestación de la atención de la salud, diagnosticar y hacer un seguimiento de la progresión de la enfermedad e involucrar a los pacientes en su cuidado de la salud. El Grupo EuroQol, propietario de los derechos de propiedad intelectual de EQ-5D, puso fin recientemente a su política de cobrar por los usos no comerciales y no relacionados con la investigación de la herramienta. En este artículo se presenta una breve historia de este desarrollo y se examinan estas políticas de cobro en el contexto del uso de EQ-5D en la investigación y las políticas nacionales de atención de la salud, reflejando las tendencias y los avances en el uso de los instrumentos de las encuestas sobre la salud de la población.