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Diagnosing primary ciliary dyskinesia: an international patient perspective.
Behan, Laura; Dunn Galvin, Audrey; Rubbo, Bruna; Masefield, Sarah; Copeland, Fiona; Manion, Michele; Rindlisbacher, Bernhard; Redfern, Beatrice; Lucas, Jane S.
Afiliación
  • Behan L; NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton Faculty of Medicine and University Hospital Southampton NHS Foundation Trust, Southampton, UK Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK School of Applied Ps
  • Dunn Galvin A; School of Applied Psychology, University College Cork, Cork, Ireland.
  • Rubbo B; NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton Faculty of Medicine and University Hospital Southampton NHS Foundation Trust, Southampton, UK Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK.
  • Masefield S; European Lung Foundation, Sheffield, UK.
  • Copeland F; Primary Ciliary Dyskinesia Family Support Group, UK.
  • Manion M; Primary Ciliary Dyskinesia Foundation, Minneapolis, MN, USA.
  • Rindlisbacher B; Primary Ciliary Dyskinesia Foundation, Switzerland.
  • Redfern B; Primary Ciliary Dyskinesia Family Support Group, UK.
  • Lucas JS; NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton Faculty of Medicine and University Hospital Southampton NHS Foundation Trust, Southampton, UK Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK.
Eur Respir J ; 48(4): 1096-1107, 2016 10.
Article en En | MEDLINE | ID: mdl-27492837
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Texto completo: 1 Banco de datos: MEDLINE Asunto principal: Síndrome de Kartagener / Disparidades en Atención de Salud / Cooperación Internacional Tipo de estudio: Diagnostic_studies / Guideline / Prevalence_studies / Prognostic_studies / Qualitative_research / Risk_factors_studies Límite: Adolescent / Adult / Aged / Child / Child, preschool / Female / Humans / Infant / Male / Middle aged País/Región como asunto: Europa Idioma: En Revista: Eur Respir J Año: 2016 Tipo del documento: Article
Texto completo
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Texto completo: 1 Banco de datos: MEDLINE Asunto principal: Síndrome de Kartagener / Disparidades en Atención de Salud / Cooperación Internacional Tipo de estudio: Diagnostic_studies / Guideline / Prevalence_studies / Prognostic_studies / Qualitative_research / Risk_factors_studies Límite: Adolescent / Adult / Aged / Child / Child, preschool / Female / Humans / Infant / Male / Middle aged País/Región como asunto: Europa Idioma: En Revista: Eur Respir J Año: 2016 Tipo del documento: Article