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Developing a Novel Model to Improve Research and care for Cancer Survivors: a Feasibility Study.
Rosenberg, Shoshana M; Ligibel, Jennifer A; Meyerhardt, Jeffrey A; Jacobsen, Eric D; Garber, Judy E; Nekhlyudov, Larissa; Bunnell, Craig A; Nutting, Patricia; Sprunck-Harrild, Kim; Walsh, Sarah K; Partridge, Ann H.
Afiliación
  • Rosenberg SM; Dana-Farber Cancer Institute, 450 Brookline Ave, Boston, MA, 02215, USA. shoshana_rosenberg@dfci.harvard.edu.
  • Ligibel JA; Harvard Medical School, Boston, MA, USA. shoshana_rosenberg@dfci.harvard.edu.
  • Meyerhardt JA; Dana-Farber Cancer Institute, 450 Brookline Ave, Boston, MA, 02215, USA.
  • Jacobsen ED; Harvard Medical School, Boston, MA, USA.
  • Garber JE; Dana-Farber Cancer Institute, 450 Brookline Ave, Boston, MA, 02215, USA.
  • Nekhlyudov L; Harvard Medical School, Boston, MA, USA.
  • Bunnell CA; Dana-Farber Cancer Institute, 450 Brookline Ave, Boston, MA, 02215, USA.
  • Nutting P; Harvard Medical School, Boston, MA, USA.
  • Sprunck-Harrild K; Dana-Farber Cancer Institute, 450 Brookline Ave, Boston, MA, 02215, USA.
  • Walsh SK; Harvard Medical School, Boston, MA, USA.
  • Partridge AH; Dana-Farber Cancer Institute, 450 Brookline Ave, Boston, MA, 02215, USA.
J Cancer Educ ; 34(2): 229-233, 2019 04.
Article en En | MEDLINE | ID: mdl-29052110
Despite a growing number of clinical trials and supportive care programs for cancer survivors, recruitment of patients for these opportunities during the survivorship phase of care is challenging. We piloted a novel process to systematically educate patients about available research studies and supportive care programs as part of a survivorship care visit. Between 3/2015 and 8/2015, patients seen in the Adult Survivorship Program who had not previously received a treatment summary and survivorship care plan (TS/SCP) were provided with one accompanied by a list of survivorship research studies and care programs tailored to their diagnosis. Survivorship providers discussed the opportunities and recorded whether the patient was interested in relevant studies and placed referrals to study staff. Following the visit, we tracked study enrollment and surveyed patients about their experience. Fifty of 56 (89%) pilot participants completed the survey. Almost all (98%) reported that the TS/SCP visit and document helped with knowledge of research opportunities and supportive care interventions. Following receipt of the TS/SCP, 44% were interested in at least one study and in further follow-up with research staff. Of the 30 survivors eligible for at least one study, 6 (20%) have enrolled in at least one study to date. This pilot program demonstrates that the systematic sharing of available clinical studies and supportive care programming as part of a survivorship care plan visit is feasible and well received by cancer survivors and may facilitate and enhance accrual to clinical trials in the survivorship phase of care.
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Texto completo: 1 Banco de datos: MEDLINE Asunto principal: Actitud Frente a la Salud / Investigación Biomédica / Supervivientes de Cáncer Tipo de estudio: Guideline Límite: Adult / Aged / Female / Humans / Middle aged Idioma: En Revista: J Cancer Educ Asunto de la revista: EDUCACAO / NEOPLASIAS Año: 2019 Tipo del documento: Article País de afiliación: Estados Unidos

Texto completo: 1 Banco de datos: MEDLINE Asunto principal: Actitud Frente a la Salud / Investigación Biomédica / Supervivientes de Cáncer Tipo de estudio: Guideline Límite: Adult / Aged / Female / Humans / Middle aged Idioma: En Revista: J Cancer Educ Asunto de la revista: EDUCACAO / NEOPLASIAS Año: 2019 Tipo del documento: Article País de afiliación: Estados Unidos