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Examining Data Repository Guidelines for Qualitative Data Sharing.
Antes, Alison L; Walsh, Heidi A; Strait, Michelle; Hudson-Vitale, Cynthia R; DuBois, James M.
Afiliación
  • Antes AL; 1 Washington University School of Medicine in St. Louis, MO, USA.
  • Walsh HA; 1 Washington University School of Medicine in St. Louis, MO, USA.
  • Strait M; 1 Washington University School of Medicine in St. Louis, MO, USA.
  • Hudson-Vitale CR; 2 University Libraries, Washington University in St. Louis, MO, USA.
  • DuBois JM; 1 Washington University School of Medicine in St. Louis, MO, USA.
J Empir Res Hum Res Ethics ; 13(1): 61-73, 2018 02.
Article en En | MEDLINE | ID: mdl-29226747
Qualitative data provide rich information on research questions in diverse fields. Recent calls for increased transparency and openness in research emphasize data sharing. However, qualitative data sharing has yet to become the norm internationally and is particularly uncommon in the United States. Guidance for archiving and secondary use of qualitative data is required for progress in this regard. In this study, we review the benefits and concerns associated with qualitative data sharing and then describe the results of a content analysis of guidelines from international repositories that archive qualitative data. A minority of repositories provide qualitative data sharing guidelines. Of the guidelines available, there is substantial variation in whether specific topics are addressed. Some topics, such as removing direct identifiers, are consistently addressed, while others, such as providing an anonymization log, are not. We discuss the implications of our study for education, best practices, and future research.
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Texto completo: 1 Banco de datos: MEDLINE Asunto principal: Investigación / Almacenamiento y Recuperación de la Información / Guías como Asunto / Difusión de la Información / Investigación Cualitativa / Ética en Investigación Tipo de estudio: Guideline / Qualitative_research Límite: Humans País/Región como asunto: America do norte Idioma: En Revista: J Empir Res Hum Res Ethics Asunto de la revista: ETICA Año: 2018 Tipo del documento: Article País de afiliación: Estados Unidos

Texto completo: 1 Banco de datos: MEDLINE Asunto principal: Investigación / Almacenamiento y Recuperación de la Información / Guías como Asunto / Difusión de la Información / Investigación Cualitativa / Ética en Investigación Tipo de estudio: Guideline / Qualitative_research Límite: Humans País/Región como asunto: America do norte Idioma: En Revista: J Empir Res Hum Res Ethics Asunto de la revista: ETICA Año: 2018 Tipo del documento: Article País de afiliación: Estados Unidos