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Measuring the Burden of Infodemics: Summary of the Methods and Results of the Fifth WHO Infodemic Management Conference.
Wilhelm, Elisabeth; Ballalai, Isabella; Belanger, Marie-Eve; Benjamin, Peter; Bertrand-Ferrandis, Catherine; Bezbaruah, Supriya; Briand, Sylvie; Brooks, Ian; Bruns, Richard; Bucci, Lucie M; Calleja, Neville; Chiou, Howard; Devaria, Abhinav; Dini, Lorena; D'Souza, Hyjel; Dunn, Adam G; Eichstaedt, Johannes C; Evers, Silvia M A A; Gobat, Nina; Gissler, Mika; Gonzales, Ian Christian; Gruzd, Anatoliy; Hess, Sarah; Ishizumi, Atsuyoshi; John, Oommen; Joshi, Ashish; Kaluza, Benjamin; Khamis, Nagwa; Kosinska, Monika; Kulkarni, Shibani; Lingri, Dimitra; Ludolph, Ramona; Mackey, Tim; Mandic-Rajcevic, Stefan; Menczer, Filippo; Mudaliar, Vijaybabu; Murthy, Shruti; Nazakat, Syed; Nguyen, Tim; Nilsen, Jennifer; Pallari, Elena; Pasternak Taschner, Natalia; Petelos, Elena; Prinstein, Mitchell J; Roozenbeek, Jon; Schneider, Anton; Srinivasan, Varadharajan; Stevanovic, Aleksandar; Strahwald, Brigitte; Syed Abdul, Shabbir.
Afiliación
  • Wilhelm E; US Centers for Disease Control and Prevention Atlanta, GA United States.
  • Ballalai I; Brazilian Inmunization Society São Paulo-SP Brazil.
  • Belanger ME; Department of Political Science and International Relations Université de Genève Geneva Switzerland.
  • Benjamin P; HealthEnabled Cape Town South Africa.
  • Bertrand-Ferrandis C; Olylo Paris France.
  • Bezbaruah S; Department of Epidemic and Pandemic Preparedness and Prevention World Health Organization Geneva Switzerland.
  • Briand S; Department of Epidemic and Pandemic Preparedness and Prevention World Health Organization Geneva Switzerland.
  • Brooks I; Center for Health Informatics School of Information Sciences University of Illinois Champaign, IL United States.
  • Bruns R; Johns Hopkins Center for Health Security Baltimore, MD United States.
  • Bucci LM; Immunize Canada Canadian Public Health Association Ottawa, ON Canada.
  • Calleja N; Directorate for Health Information and Research Ministry for Health Valletta Malta.
  • Chiou H; US Centers for Disease Control and Prevention Atlanta, GA United States.
  • Devaria A; US Public Health Service Commissioned Corps Rockville, MD United States.
  • Dini L; The George Institute for Global Health New Delhi India.
  • D'Souza H; Working Group Health Policy and Systems Research and Innovation Institute for General Practice Charité Universitätsmedizin Berlin Berlin Germany.
  • Dunn AG; The George Institute for Global Health New Delhi India.
  • Eichstaedt JC; Biomedical Informatics and Digital Health Faculty of Medicine and Health University of Sydney Sydney Australia.
  • Evers SMAA; Department of Psychology Stanford University Stanford, CA United States.
  • Gobat N; Institute for Human-Centered AI Stanford University Stanford, CA United States.
  • Gissler M; Department of Health Services Research Maastricht University Maastricht Netherlands.
  • Gonzales IC; Department of Country Readiness Strengthening World Health Organization Geneva Switzerland.
  • Gruzd A; Department of Knowledge Brokers THL Finnish Institute for Health and Welfare Helsinki Finland.
  • Hess S; Field Epidemiology Training Program Epidemiology Bureau Department of Health Manila Philippines.
  • Ishizumi A; Ted Rogers School of Management Toronto Metropolitan University Toronto, ON Canada.
  • John O; Department of Epidemic and Pandemic Preparedness and Prevention World Health Organization Geneva Switzerland.
  • Joshi A; Department of Epidemic and Pandemic Preparedness and Prevention World Health Organization Geneva Switzerland.
  • Kaluza B; The George Institute for Global Health New Delhi India.
  • Khamis N; Department of Epidemiology and Biostatistics Graduate School of Public Health and Health Policy City University of New York New York, NY United States.
  • Kosinska M; Department Technological Analysis and Strategic Planning Fraunhofer Institute for Technological Trend Analysis INT Euskirchen Germany.
  • Kulkarni S; Infection Prevention and Control Department Children's Cancer Hospital Egypt-57357 Ain Shams University Specialized Hospital Cairo Egypt.
  • Lingri D; Department of Social Determinants World Health Organization Geneva Switzerland.
  • Ludolph R; US Centers for Disease Control and Prevention Atlanta, GA United States.
  • Mackey T; European Healthcare Fraud and Corruption Network Aristotle Universtity of Thessaloniki Brussels Belgium.
  • Mandic-Rajcevic S; Department of Epidemic and Pandemic Preparedness and Prevention World Health Organization Geneva Switzerland.
  • Menczer F; Global Health Program Department of Anthropology University of California San Diego, CA United States.
  • Mudaliar V; Institute of Social Medicine Faculty of Medicine University of Belgrade Belgrade Serbia.
  • Murthy S; Observatory on Social Media Luddy School of Informatics, Computing, and Engineering Indiana University Bloomington, IN United States.
  • Nazakat S; The George Institute for Global Health New Delhi India.
  • Nguyen T; The George Institute for Global Health New Delhi India.
  • Nilsen J; DataLEADS (Health Analytics Asia) New Delhi India.
  • Pallari E; Department of Epidemic and Pandemic Preparedness and Prevention World Health Organization Geneva Switzerland.
  • Pasternak Taschner N; Technology and Social Change Project Harvard University Cambridge, MA United States.
  • Petelos E; Health Innovation Network Guy's and St Thomas' Hospital London United Kingdom.
  • Prinstein MJ; Center of Science and Society Columbia University New York, NY United States.
  • Roozenbeek J; Instituto Questão de Ciência São Paulo Brazil.
  • Schneider A; Department of Health Services Research Care and Public Health Research Institute Maastricht University Maastricht Netherlands.
  • Srinivasan V; Clinic of Social and Family Medicine Faculty of Medicine University of Crete Heraklion Greece.
  • Stevanovic A; American Psychological Association Washington DC, DC United States.
  • Strahwald B; Department of Psychology and Neuroscience University of North Carolina at Chapel Hill Chapel Hill, NC United States.
  • Syed Abdul S; Department of Psychology University of Cambridge Cambridge United Kingdom.
JMIR Infodemiology ; 3: e44207, 2023.
Article en En | MEDLINE | ID: mdl-37012998
Background: An infodemic is excess information, including false or misleading information, that spreads in digital and physical environments during a public health emergency. The COVID-19 pandemic has been accompanied by an unprecedented global infodemic that has led to confusion about the benefits of medical and public health interventions, with substantial impact on risk-taking and health-seeking behaviors, eroding trust in health authorities and compromising the effectiveness of public health responses and policies. Standardized measures are needed to quantify the harmful impacts of the infodemic in a systematic and methodologically robust manner, as well as harmonizing highly divergent approaches currently explored for this purpose. This can serve as a foundation for a systematic, evidence-based approach to monitoring, identifying, and mitigating future infodemic harms in emergency preparedness and prevention. Objective: In this paper, we summarize the Fifth World Health Organization (WHO) Infodemic Management Conference structure, proceedings, outcomes, and proposed actions seeking to identify the interdisciplinary approaches and frameworks needed to enable the measurement of the burden of infodemics. Methods: An iterative human-centered design (HCD) approach and concept mapping were used to facilitate focused discussions and allow for the generation of actionable outcomes and recommendations. The discussions included 86 participants representing diverse scientific disciplines and health authorities from 28 countries across all WHO regions, along with observers from civil society and global public health-implementing partners. A thematic map capturing the concepts matching the key contributing factors to the public health burden of infodemics was used throughout the conference to frame and contextualize discussions. Five key areas for immediate action were identified. Results: The 5 key areas for the development of metrics to assess the burden of infodemics and associated interventions included (1) developing standardized definitions and ensuring the adoption thereof; (2) improving the map of concepts influencing the burden of infodemics; (3) conducting a review of evidence, tools, and data sources; (4) setting up a technical working group; and (5) addressing immediate priorities for postpandemic recovery and resilience building. The summary report consolidated group input toward a common vocabulary with standardized terms, concepts, study designs, measures, and tools to estimate the burden of infodemics and the effectiveness of infodemic management interventions. Conclusions: Standardizing measurement is the basis for documenting the burden of infodemics on health systems and population health during emergencies. Investment is needed into the development of practical, affordable, evidence-based, and systematic methods that are legally and ethically balanced for monitoring infodemics; generating diagnostics, infodemic insights, and recommendations; and developing interventions, action-oriented guidance, policies, support options, mechanisms, and tools for infodemic managers and emergency program managers.
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Texto completo: 1 Banco de datos: MEDLINE Tipo de estudio: Guideline / Prognostic_studies Idioma: En Revista: JMIR Infodemiology Año: 2023 Tipo del documento: Article

Texto completo: 1 Banco de datos: MEDLINE Tipo de estudio: Guideline / Prognostic_studies Idioma: En Revista: JMIR Infodemiology Año: 2023 Tipo del documento: Article