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1.

Risk of subsequent gliomas and meningiomas among 69,460 5-year survivors of childhood and adolescent cancer in Europe: the PanCareSurFup study.

Heymer, Emma J; Hawkins, Michael M; Winter, David L; Teepen, Jop C; Sunguc, Ceren; Ronckers, Cécile M; Allodji, Rodrigue S; Alessi, Daniela; Sugden, Elaine; Belle, Fabiën N; Bagnasco, Francesca; Byrne, Julianne; Bárdi, Edit; Garwicz, Stanislaw; Grabow, Desiree; Jankovic, Momcilo; Kaatsch, Peter; Kaiser, Melanie; Michel, Gisela; Schindera, Christina; Haddy, Nadia; Journy, Neige; Cesen Mazic, Maja; Skinner, Roderick; Kok, Judith L; Gunnes, Maria W; Wiebe, Thomas; Sacerdote, Carlotta; Maule, Milena M; Terenziani, Monica; Jakab, Zsuzsanna; Winther, Jeanette F; Lähteenmäki, Päivi M; Zadravec Zaletel, Lorna; Haupt, Riccardo; Kuehni, Claudia E; Kremer, Leontien C; de Vathaire, Florent; Hjorth, Lars; Reulen, Raoul C.

Br J Cancer ; 130(6): 976-986, 2024 Apr.

Article in English | MEDLINE | ID: mdl-38243010

2.

IT-Related Barriers and Facilitators to the Implementation of a New European eHealth Solution, the Digital Survivorship Passport (SurPass Version 2.0): Semistructured Digital Survey.

de Beijer, Ismay A E; van den Oever, Selina R; Charalambous, Eliana; Cangioli, Giorgio; Balaguer, Julia; Bardi, Edit; Alfes, Marie; Cañete Nieto, Adela; Correcher, Marisa; Pinto da Costa, Tiago; Degelsegger-Márquez, Alexander; Düster, Vanessa; Filbert, Anna-Liesa; Grabow, Desiree; Gredinger, Gerald; Gsell, Hannah; Haupt, Riccardo; van Helvoirt, Maria; Ladenstein, Ruth; Langer, Thorsten; Laschkolnig, Anja; Muraca, Monica; Pluijm, Saskia M F; Rascon, Jelena; Schreier, Günter; Tomásikova, Zuzana; Trauner, Florian; Trinkunas, Justas; Trunner, Kathrin; Uyttebroeck, Anne; Kremer, Leontien C M; van der Pal, Helena J H; Chronaki, Catherine.

J Med Internet Res ; 26: e49910, 2024 05 02.

Article in English | MEDLINE | ID: mdl-38696248

3.

Systematic review and updated recommendations for cardiomyopathy surveillance for survivors of childhood, adolescent, and young adult cancer from the International Late Effects of Childhood Cancer Guideline Harmonization Group.

Ehrhardt, Matthew J; Leerink, Jan M; Mulder, Renée L; Mavinkurve-Groothuis, Annelies; Kok, Wouter; Nohria, Anju; Nathan, Paul C; Merkx, Remy; de Baat, Esmée; Asogwa, Ogechukwu A; Skinner, Roderick; Wallace, Hamish; Lieke Feijen, E A M; de Ville de Goyet, Maëlle; Prasad, Maya; Bárdi, Edit; Pavasovic, Vesna; van der Pal, Helena; Fresneau, Brice; Demoor-Goldschmidt, Charlotte; Hennewig, Ulrike; Steinberger, Julia; Plummer, Chris; Chen, Ming Hui; Teske, Arco J; Haddy, Nadia; van Dalen, Elvira C; Constine, Louis S; Chow, Eric J; Levitt, Gill; Hudson, Melissa M; Kremer, Leontien C M; Armenian, Saro H.

Lancet Oncol ; 24(3): e108-e120, 2023 03.

Article in English | MEDLINE | ID: mdl-37052966

4.

Risk of subsequent primary lymphoma in a cohort of 69,460 five-year survivors of childhood and adolescent cancer in Europe: The PanCareSurFup study.

Dudley, Isabelle M; Sunguc, Ceren; Heymer, Emma J; Winter, David L; Teepen, Jop C; Belle, Fabiën N; Bárdi, Edit; Bagnasco, Francesca; Gudmundsdottir, Thorgerdur; Skinner, Roderick; Michel, Gisela; Byrne, Julianne; Øfstaas, Hilde; Jankovic, Momcilo; Mazic, Maja Cesen; Mader, Luzius; Loonen, Jaqueline; Garwicz, Stanislaw; Wiebe, Thomas; Alessi, Daniela; Allodji, Rodrigue S; Haddy, Nadia; Grabow, Desiree; Kaatsch, Peter; Kaiser, Melanie; Maule, Milena M; Jakab, Zsuzsanna; Gunnes, Maria Winther; Terenziani, Monica; Zaletel, Lorna Zadravec; Kuehni, Claudia E; Haupt, Riccardo; de Vathaire, Florent; Kremer, Leontien C; Lähteenmäki, Päivi M; Winther, Jeanette F; Hjorth, Lars; Hawkins, Michael M; Reulen, Raoul C.

Cancer ; 129(3): 426-440, 2023 02 01.

Article in English | MEDLINE | ID: mdl-36444554

5.

Risk of subsequent primary oral cancer in a cohort of 69,460 5-year survivors of childhood and adolescent cancer in Europe: the PanCareSurFup study.

Sunguc, Ceren; Hawkins, Michael M; Winter, David L; Dudley, Isabelle M; Heymer, Emma J; Teepen, Jop C; Allodji, Rodrigue S; Belle, Fabiën N; Bagnasco, Francesca; Byrne, Julianne; Bárdi, Edit; Ronckers, Cécile M; Haddy, Nadia; Gudmundsdottir, Thorgerdur; Garwicz, Stanislaw; Jankovic, Momcilo; van der Pal, Helena J H; Mazic, Maja Cesen; Schindera, Christina; Grabow, Desiree; Maule, Milena M; Kaatsch, Peter; Kaiser, Melanie; Fresneau, Brice; Michel, Gisela; Skinner, Roderick; Wiebe, Thomas; Sacerdote, Carlotta; Jakab, Zsuzsanna; Gunnes, Maria Winther; Terenziani, Monica; Winther, Jeanette F; Lähteenmäki, Päivi M; Zaletel, Lorna Zadravec; Kuehni, Claudia E; Kremer, Leontien C; Haupt, Riccardo; de Vathaire, Florent; Hjorth, Lars; Reulen, Raoul C.

Br J Cancer ; 128(1): 80-90, 2023 01.

Article in English | MEDLINE | ID: mdl-36319851

6.

Impact of era of diagnosis on cause-specific late mortality among 77 423 five-year European survivors of childhood and adolescent cancer: The PanCareSurFup consortium.

Byrne, Julianne; Schmidtmann, Irene; Rashid, Humayra; Hagberg, Oskar; Bagnasco, Francesca; Bardi, Edit; De Vathaire, Florent; Essiaf, Samira; Winther, Jeanette Falck; Frey, Eva; Gudmundsdottir, Thorgerdur; Haupt, Riccardo; Hawkins, Michael M; Jakab, Zsuzsanna; Jankovic, Momcilo; Kaatsch, Peter; Kremer, Leontien C M; Kuehni, Claudia E; Harila-Saari, Arja; Levitt, Gill; Reulen, Raoul; Ronckers, Cécile M; Maule, Milena; Skinner, Roderick; Steliarova-Foucher, Eva; Terenziani, Monica; Zaletel, Lorna Zadravec; Hjorth, Lars; Garwicz, Stanislaw; Grabow, Desiree.

Int J Cancer ; 150(3): 406-419, 2022 02 01.

Article in English | MEDLINE | ID: mdl-34551126

7.

Childhood leukemia and non-Hodgkin's lymphoma survivors lack knowledge about their past disease and possible late effects. I-BFM ELTEC study with Chilean and Croatian participation.

Becker, Ana; Paris, Claudia; Roganovic, Jelena; Bustos, Cristina; Rosas, Amaia; Contreras, Paula; Zepeda-Ortega, Ana J; Bardi, Edit.

Support Care Cancer ; 30(5): 3839-3847, 2022 May.

Article in English | MEDLINE | ID: mdl-35034196

8.

Risk of digestive cancers in a cohort of 69 460 five-year survivors of childhood cancer in Europe: the PanCareSurFup study.

Reulen, Raoul C; Wong, Kwok F; Bright, Chloe J; Winter, David L; Alessi, Daniela; Allodji, Rodrigue M; Bagnasco, Francesca; Bárdi, Edit; Bautz, Andrea; Byrne, Julianne; Feijen, Elizabeth Am; Fidler-Benaoudia, Miranda M; Diallo, Ibrahim; Garwicz, Stanislaw; Grabow, Desiree; Gudmundsdottir, Thorgerdur; Guha, Joyeeta; Haddy, Nadia; Høgsholt, Stine; Jankovic, Moncilo; Kaatsch, Peter; Kaiser, Melanie; Kuonen, Rahel; Linge, Helena; Øfstaas, Hilde; Ronckers, Cecile M; Hau, Eva-Maria; Skinner, Roderick; van Leeuwen, Flora E; Teepen, Jop C; Veres, Cristina; Zrafi, Wael; Debiche, Ghazi; Llanas, Damien; Terenziani, Monica; Vu-Bezin, Giao; Wesenberg, Finn; Wiebe, Thomas; Sacerdote, Carlotta; Jakab, Zsuzsanna; Haupt, Riccardo; Lähteenmäki, Päivi M; Zadravec Zaletel, Lorna; Kuehni, Claudia E; Winther, Jeanette F; de Vathaire, Florent; Kremer, Leontien C; Hjorth, Lars; Hawkins, Michael M.

Gut ; 2020 Nov 02.

Article in English | MEDLINE | ID: mdl-33139271

9.

Guidance to Bone Morbidity in Children and Adolescents Undergoing Allogeneic Hematopoietic Stem Cell Transplantation.

Kuhlen, Michaela; Kunstreich, Marina; Niinimäki, Riitta; Dunstheimer, Desiree; Lawitschka, Anita; Bardi, Edit; Willasch, André; Bader, Peter; Högler, Wolfgang; Peters, Christina; Balduzzi, Adriana.

Biol Blood Marrow Transplant ; 26(2): e27-e37, 2020 02.

Article in English | MEDLINE | ID: mdl-31618689

10.

Guidance regarding COVID-19 for survivors of childhood, adolescent, and young adult cancer: A statement from the International Late Effects of Childhood Cancer Guideline Harmonization Group.

Verbruggen, Lisanne C; Wang, Yuehan; Armenian, Saro H; Ehrhardt, Matthew J; van der Pal, Helena J H; van Dalen, Elvira C; van As, Jorrit W; Bardi, Edit; Baust, Katja; Berger, Claire; Castagnola, Elio; Devine, Katie A; Gebauer, Judith; Marchak, Jordan Gilleland; Glaser, Adam W; Groll, Andreas H; Haeusler, Gabrielle M; den Hartogh, Jaap; Haupt, Riccardo; Hjorth, Lars; Kato, Miho; Kepák, Tomás; Koopman, Maria M W Rianne; Langer, Thorsten; Maeda, Miho; Michel, Gisela; Muraca, Monica; Nathan, Paul C; van den Oever, Selina R; Pavasovic, Vesna; Sato, Satomi; Schulte, Fiona; Sung, Lillian; Tissing, Wim; Uyttebroeck, Anne; Mulder, Renée L; Kuehni, Claudia; Skinner, Roderick; Hudson, Melissa M; Kremer, Leontien C M.

Pediatr Blood Cancer ; 67(12): e28702, 2020 12.

Article in English | MEDLINE | ID: mdl-32969160

11.

Hepatic late adverse effects after antineoplastic treatment for childhood cancer.

Mulder, Renée L; Bresters, Dorine; Van den Hof, Malon; Koot, Bart Gp; Castellino, Sharon M; Loke, Yoon Kong K; Post, Piet N; Postma, Aleida; Szonyi, László P; Levitt, Gill A; Bardi, Edit; Skinner, Roderick; van Dalen, Elvira C.

Cochrane Database Syst Rev ; 4: CD008205, 2019 04 15.

Article in English | MEDLINE | ID: mdl-30985922

12.

The PanCareSurFup cohort of 83,333 five-year survivors of childhood cancer: a cohort from 12 European countries.

Grabow, Desiree; Kaiser, Melanie; Hjorth, Lars; Byrne, Julianne; Alessi, Daniela; Allodji, Rodrigue S; Bagnasco, Francesca; Bárdi, Edit; Bautz, Andrea; Bright, Chloe J; de Vathaire, Florent; Feijen, Elizabeth A M; Garwicz, Stanislaw; Hagberg, Oskar; Haupt, Riccardo; Hawkins, Mike M; Jakab, Zsuzsanna; Kremer, Leontien C M; Kuehni, Claudia E; Kuonen, Rahel; Lähteenmäki, Päivi Maria; Reulen, Raoul C; Ronckers, Cécile M; Sacerdote, Carlotta; Vu-Bezin, Giao; Wesenberg, Finn; Wiebe, Thomas; Winter, David L; Winther, Jeanette Falck; Zaletel, Lorna Zadravec; Kaatsch, Peter.

Eur J Epidemiol ; 33(3): 335-349, 2018 Mar.

Article in English | MEDLINE | ID: mdl-29497894

13.

Recommendations for gonadotoxicity surveillance in male childhood, adolescent, and young adult cancer survivors: a report from the International Late Effects of Childhood Cancer Guideline Harmonization Group in collaboration with the PanCareSurFup Consortium.

Skinner, Roderick; Mulder, Renee L; Kremer, Leontien C; Hudson, Melissa M; Constine, Louis S; Bardi, Edit; Boekhout, Annelies; Borgmann-Staudt, Anja; Brown, Morven C; Cohn, Richard; Dirksen, Uta; Giwercman, Alexsander; Ishiguro, Hiroyuki; Jahnukainen, Kirsi; Kenney, Lisa B; Loonen, Jacqueline J; Meacham, Lilian; Neggers, Sebastian; Nussey, Stephen; Petersen, Cecilia; Shnorhavorian, Margarett; van den Heuvel-Eibrink, Marry M; van Santen, Hanneke M; Wallace, William H B; Green, Daniel M.

Lancet Oncol ; 18(2): e75-e90, 2017 02.

Article in English | MEDLINE | ID: mdl-28214419

14.

Genetic risk factors for inhibitors in haemophilia A.

Bardi, Edit; Astermark, Jan.

Eur J Haematol ; 94 Suppl 77: 7-10, 2015 Feb.

Article in English | MEDLINE | ID: mdl-25560788

15.

The views of European clinicians on guidelines for long-term follow-up of childhood cancer survivors.

Brown, Morven C; Levitt, Gillian A; Frey, Eva; Bárdi, Edit; Haupt, Riccardo; Hjorth, Lars; Kremer, Leontien; Kuehni, Claudia E; Lettner, Christina; Mulder, Renée L; Michel, Gisela; Skinner, Roderick.

Pediatr Blood Cancer ; 62(2): 322-328, 2015 02.

Article in English | MEDLINE | ID: mdl-25382221

16.

Practices of pediatric oncology and hematology providers regarding fertility issues: a European survey.

Terenziani, Monica; Spinelli, Marco; Jankovic, Momcilo; Bardi, Edit; Hjorth, Lars; Haupt, Riccardo; Michel, Gisela; Byrne, Julianne.

Pediatr Blood Cancer ; 61(11): 2054-8, 2014 Nov.

Article in English | MEDLINE | ID: mdl-25065353

17.

Scaling up and implementing the digital Survivorship Passport tool in routine clinical care - The European multidisciplinary PanCareSurPass project.

Filbert, Anna-Liesa; Kremer, Leontien; Ladenstein, Ruth; Chronaki, Catherine; Degelsegger-Márquez, Alexander; van der Pal, Heleen; Bardi, Edit; Uyttebroeck, Anne; Langer, Thorsten; Muraca, Monica; Nieto, Adela Cañete; Rascon, Jelena; Bagnasco, Francesca; Beyer, Stefan; Te Dorsthorst, Jeroen; Essiaf, Samira; Galan, Antonio Orduña; Kienesberger, Anita; O'Brien, Kylie; Palau, Marisa Correcher; Pluijm, Saskia M F; di Profio, Sonia; Saraceno, Davide; Schneider, Carina; Schreier, Günter; Trinkunas, Justas; Zamberlan, Igor; Grabow, Desiree; Haupt, Riccardo.

Eur J Cancer ; 202: 114029, 2024 May.

Article in English | MEDLINE | ID: mdl-38513384

18.

Radiation Doses Received by Major Organs at Risk in Children and Young Adolescents Treated for Cancer with External Beam Radiation Therapy: A Large-scale Study from 12 European Countries.

Diallo, Ibrahima; Allodji, Rodrigue S; Veres, Cristina; Bolle, Stéphanie; Llanas, Damien; Ezzouhri, Safaa; Zrafi, Wael; Debiche, Ghazi; Souchard, Vincent; Fauchery, Romain; Haddy, Nadia; Journy, Neige; Demoor-Goldschmidt, Charlotte; Winter, David L; Hjorth, Lars; Wiebe, Thomas; Haupt, Riccardo; Robert, Charlotte; Kremer, Leontien; Bardi, Edit; Sacerdote, Carlotta; Terenziani, Monica; Kuehni, Claudia E; Schindera, Christina; Skinner, Roderick; Winther, Jeanette Falck; Lähteenmäki, Päivi; Byrn, Julianne; Jakab, Zsuzsanna; Cardis, Elisabeth; Pasqual, Elisa; Tapio, Soile; Baatout, Sarah; Atkinson, Mike; Benotmane, Mohammed Abderrafi; Sugden, Elaine; Zaletel, Lorna Zadravec; Ronckers, Cecile; Reulen, Raoul C; Hawkins, Mike M; de Vathaire, Florent.

Int J Radiat Oncol Biol Phys ; 2024 Apr 04.

Article in English | MEDLINE | ID: mdl-38582233

19.

Updated International Guidelines for Survivorship Care after Pediatric Cancer: Practice Implications in a German and Austrian Comprehensive Care Network.

Gebauer, Judith; Baust, Katja; Bardi, Edit; Grabow, Desiree; Calminus, Gabriele; Ronckers, Cécile M; Langer, Thorsten.

Oncol Res Treat ; 46(9): 382-389, 2023.

Article in English | MEDLINE | ID: mdl-37517391

20.

Barriers and facilitators to the implementation of a new European eHealth solution (SurPass v2.0): the PanCareSurPass Open Space study.

de Beijer, Ismay A E; Hardijzer, Emma C; Haupt, Riccardo; Grabow, Desiree; Balaguer, Julia; Bardi, Edit; Cañete Nieto, Adela; Ciesiuniene, Audrone; Düster, Vanessa; Filbert, Anna-Liesa; Gsell, Hannah; Kapitancuke, Monika; Ladenstein, Ruth; Langer, Thorsten; Muraca, Monica; van den Oever, Selina R; Prikken, Sofie; Rascon, Jelena; Tormo, Maria Teresa; Uyttebroeck, Anne; Vercruysse, Gertrui; van der Pal, Helena J H; Kremer, Leontien C M; Pluijm, Saskia M F.

J Cancer Surviv ; 2023 Nov 28.

Article in English | MEDLINE | ID: mdl-38015382

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