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1.
J Health Polit Policy Law ; 45(3): 373-418, 2020 06 01.
Article in English | MEDLINE | ID: mdl-32084263

ABSTRACT

CONTEXT: Medicaid plays a critical role in low-income, minority, and medically underserved communities, particularly in states that have expanded Medicaid under the Affordable Care Act. Yet, the voices of underresourced communities are often unheard in decisions about how to allocate Medicaid's scarce resources, and traditional methods of public engagement are poorly suited to gathering such input. We argue that deliberative public engagement can be a useful tool for involving communities in setting Medicaid priorities. METHOD: We engaged 209 residents of low-income, medically underserved Michigan communities in discussions about Medicaid spending priorities using an exercise in informed deliberation: CHAT (CHoosing All Together). Participants learned about Medicaid, deliberated in small groups, and set priorities both individually and collectively. FINDINGS: Participants prioritized broad eligibility consistent with the ACA expansion, accepted some cost sharing, and prioritized spending in areas-including mental health-that are historically underfunded. Participants allocated less funding beyond benefit coverage, such as spending on healthy communities. Participants perceived the deliberative process as fair and informative, and they supported using it in the policy-making process. CONCLUSION: The choices of participants from low-income, medically underserved communities reflect a unique set of priorities and suggest that engaging low-income communities more deeply in Medicaid policy making might result in different prioritization decisions.


Subject(s)
Medicaid , Patient Protection and Affordable Care Act , Eligibility Determination , Humans , Policy Making , Poverty , United States
2.
Milbank Q ; 96(4): 675-705, 2018 12.
Article in English | MEDLINE | ID: mdl-30537366

ABSTRACT

Policy Points Engaging and involving underrepresented communities when setting research priorities could make the scientific research agenda more equitable, more just, and more responsive to their needs and values. Groups and individuals from minority and underserved communities strongly prioritized child health and mental health research, often choosing to invest at the highest possible level. Groups consisting of predominantly Native American or Arab American participants invested in culture and beliefs research at the highest level, while many groups did not select it at all. The priority given to culture and beliefs research by these groups illustrates the importance of paying special attention to unique preferences, and not just commonly held views, when getting public input on spending priorities for research. CONTEXT: A major contributor to health disparities is the relative lack of resources-including resources for science-allocated to address the health problems of those with disproportionately greater needs. Engaging and involving underrepresented communities in setting research priorities could make the scientific research agenda more equitable, more just, and more responsive to their needs and values. We engaged minority and underserved communities in informed deliberations and report here their priorities for health research. METHODS: Academic-community partnerships adapted the simulation exercise CHAT for setting health research priorities. We had participants from minority and medically underserved communities (47 groups, n = 519) throughout Michigan deliberate about health research priorities, and we used surveys and CHAT software to collect the demographic characteristics and priorities selected by individuals and groups. FINDINGS: The participants ranged in age (18 to 88), included more women than men, and were overrepresented by minority groups. Nearly all the deliberating groups selected child health and mental health research (93.6% and 95.7%), and most invested at the highest level. Aging, access, promote health, healthy environment, and what causes disease were also prioritized by groups. Research on mental health and child health were high priorities for individuals both before and after group deliberations. Access was the only category more likely to be selected by individuals after group deliberation (77.0 vs 84.0%, OR = 1.63, p = .005), while improve research, health policy, and culture and beliefs were less likely to be selected after group deliberations (all, p < .001). However, the level of investment in many categories changed after the group deliberations. Participants identifying as Black/African American were less likely to prioritize mental health research, and those of Other race were more likely to prioritize culture and beliefs research. CONCLUSIONS: Minority and medically underserved communities overwhelmingly prioritized mental health and child health research in informed deliberations about spending priorities.


Subject(s)
Biomedical Research/methods , Health Policy , Health Priorities , Minority Groups , Patient Selection , Vulnerable Populations , Adolescent , Adult , Aged , Aged, 80 and over , Female , Humans , Male , Middle Aged , Research Design , United States , Young Adult
3.
J Trauma Stress ; 31(2): 244-254, 2018 04.
Article in English | MEDLINE | ID: mdl-29669184

ABSTRACT

The inclusion of Persistent Complex Bereavement Disorder (PCBD) in the DSM-5 appendix signifies a call for research regarding the distinguishing features and clinical utility of proposed PCBD criteria. Rigorously constructed tools for assessing PCBD are lacking, especially for youth. This study evaluated the validity and clinical utility of the PCBD Checklist, a 39-item measure designed to assess PCBD criteria in youth aged 8 to18 years. Test construction procedures involved: (a) reviewing the literature regarding developmental manifestations of proposed criteria, (b) creating a developmentally informed item pool, (c) surveying an expert panel to evaluate the clarity and developmental appropriateness of candidate items, (d) conducting focus groups to evaluate the comprehensibility and acceptability of items, and (e) evaluating psychometric properties in 367 bereaved youth (Mage = 13.49, 55.0% female). The panel, clinicians, and youth provided favorable content validity and comprehensibility ratings for candidate items. As hypothesized, youth who met full PCBD criteria, Criterion B (e.g., preoccupation with the deceased and/or circumstances of the death), or Criterion C (e.g., reactive distress and/or social/identity disruption) reported higher posttraumatic stress and depressive symptoms than youth who did not meet these criteria, ηp2 = .07-.16. Youth who met Criterion C reported greater functional impairment than youth who did not, ηp2 = .08-.12. Youth who qualified for the "traumatic bereavement specifier" reported more frequent posttraumatic stress symptoms than youth who did not, ηp2 = .04. Findings support the convergent, discriminant, and discriminant-groups validity, developmental appropriateness, and clinical utility of the PCBD Checklist.


Subject(s)
Bereavement , Checklist , Mental Disorders/diagnosis , Mental Disorders/psychology , Psychiatric Status Rating Scales , Adolescent , Child , Consensus , Depression/diagnosis , Depression/etiology , Female , Focus Groups , Grief , Humans , Interviews as Topic , Male , Psychometrics , Stress Disorders, Post-Traumatic/diagnosis , Stress Disorders, Post-Traumatic/etiology
4.
Violence Vict ; 28(3): 429-42, 2013.
Article in English | MEDLINE | ID: mdl-23862308

ABSTRACT

Although impulsivity has been consistently linked to perpetration of sexual aggression, results lack clarity because they do not account for the substantial heterogeneity associated with the construct. The UPPS-P model (Lynam, Smith, Whiteside, & Cyders, 2006), which was proposed to clarify the multidimensional nature of impulsivity, has yet to be applied to sexual aggression. We measured UPPS-P Impulsivity in a sample of male college students who also self-reported on perpetration of sexual aggression. As predicted, impulsivity distinguished perpetrators from nonperpetrators. Perpetrators scored higher than non-perpetrators on Negative Urgency, Positive Urgency, and lack of Premeditation. Results suggest that the impulsivity traits most relevant to sexual aggression are the tendency to act impulsively when experiencing intense emotions (Positive and Negative Urgency) and lack of forethought and planning (lack of Premeditation).


Subject(s)
Character , Disruptive, Impulse Control, and Conduct Disorders/diagnosis , Disruptive, Impulse Control, and Conduct Disorders/psychology , Rape/psychology , Sex Offenses/psychology , Students/psychology , Adolescent , Affect , Exploratory Behavior , Humans , Male , Personality Inventory/statistics & numerical data , Psychometrics , Southeastern United States , Young Adult
5.
JMIR Cancer ; 9: e39631, 2023 Jan 31.
Article in English | MEDLINE | ID: mdl-36719719

ABSTRACT

BACKGROUND: Precision health offers the promise of advancing clinical care in data-driven, evidence-based, and personalized ways. However, complex data sharing infrastructures, for-profit (commercial) and nonprofit partnerships, and systems for data governance have been created with little attention to the values, expectations, and preferences of patients about how they want to be engaged in the sharing and use of their health information. We solicited patient opinions about institutional policy options using public deliberation methods to address this gap. OBJECTIVE: We aimed to understand the policy preferences of current and former patients with cancer regarding the sharing of health information collected in the contexts of health information exchange and commercial partnerships and to identify the values invoked and perceived risks and benefits of health data sharing considered by the participants when formulating their policy preferences. METHODS: We conducted 2 public deliberations, including predeliberation and postdeliberation surveys, with patients who had a current or former cancer diagnosis (n=61). Following informational presentations, the participants engaged in facilitated small-group deliberations to discuss and rank policy preferences related to health information sharing, such as the use of a patient portal, email or SMS text messaging, signage in health care settings, opting out of commercial data sharing, payment, and preservation of the status quo. The participants ranked their policy preferences individually, as small groups by mutual agreement, and then again individually in the postdeliberation survey. RESULTS: After deliberation, the patient portal was ranked as the most preferred policy choice. The participants ranked no change in status quo as the least preferred policy option by a wide margin. Throughout the study, the participants expressed concerns about transparency and awareness, convenience, and accessibility of information about health data sharing. Concerns about the status quo centered around a lack of transparency, awareness, and control. Specifically, the patients were not aware of how, when, or why their data were being used and wanted more transparency in these regards as well as greater control and autonomy around the use of their health data. The deliberations suggested that patient portals would be a good place to provide additional information about data sharing practices but that over time, notifications should be tailored to patient preferences. CONCLUSIONS: Our study suggests the need for increased disclosure of health information sharing practices. Describing health data sharing practices through patient portals or other mechanisms personalized to patient preferences would minimize the concerns expressed by patients about the extent of data sharing that occurs without their knowledge. Future research and policies should identify ways to increase patient control over health data sharing without reducing the societal benefits of data sharing.

6.
J Trauma Stress ; 25(1): 79-85, 2012 Feb.
Article in English | MEDLINE | ID: mdl-22354511

ABSTRACT

Previous research suggests that posttraumatic stress symptomatology is a partial mediator of the relationship between sexual assault history in adolescence/adulthood and physical health symptomatology (e.g., Eadie, Runtz, & Spencer-Rodgers, 2008). The current study assessed a broader, more inclusive potential mediator, trauma-related symptoms in the relationship between sexual victimization history (including both childhood and adolescent/adulthood sexual victimizations) and physical health symptomatology in a college sample. Participants were 970 young women (M = 18.69, SD = 1.01), who identified mostly as Caucasian (86.7%), from 2 universities who completed a survey packet. Path analysis results provide evidence for trauma-related symptoms as a mediator in the relationship between adolescent/adulthood sexual assault and physical health symptomatology, χ(2) (1, N = 970) = 1.55, p = .21; comparative fit index = 1.00; Tucker-Lewis index = 0.99; root mean square error of approximation = .02, 90% confidence interval [.00, .09], Bollen-Stine bootstrap statistic, p = .29. Childhood sexual abuse was not related to physical health symptomatology, but did predict trauma-related symptoms. Implications of these findings suggest that college health services would benefit from targeted integration of psychiatric and medical services for sexual assault survivors given the overlap of psychological and physical symptoms.


Subject(s)
Crime Victims/psychology , Health Status , Sex Offenses/psychology , Universities , Wounds and Injuries , Adolescent , Female , Humans , Surveys and Questionnaires , United States , Young Adult
7.
Violence Vict ; 27(1): 78-94, 2012.
Article in English | MEDLINE | ID: mdl-22455186

ABSTRACT

This study prospectively examined the relation between alcohol use and sexual assault in a sample (N = 319) of first-year college women. Both frequency of drinking and frequency of binge drinking were measured. Over the course of their freshman year, 19.3% reported experiencing at least one sexual assault. Frequent binge drinking and frequent drinking predicted a subsequent sexual assault; however, experiencing a sexual assault did not predict changes in alcohol use. Frequent binge drinking demonstrated a stronger association with sexual assault than did frequent drinking. Findings help clarify the relation between alcohol use and sexual assault in college women and call for continued differentiation in assessment of alcohol use.


Subject(s)
Alcohol Drinking/epidemiology , Crime Victims/statistics & numerical data , Interpersonal Relations , Spouse Abuse/statistics & numerical data , Students/statistics & numerical data , Women's Health , Alcohol Drinking/psychology , Attitude to Health , Crime Victims/psychology , Female , Humans , Prevalence , Prospective Studies , Risk Factors , Spouse Abuse/psychology , Students/psychology , Surveys and Questionnaires , United States/epidemiology , Universities , Young Adult
8.
Violence Vict ; 27(1): 25-32, 2012.
Article in English | MEDLINE | ID: mdl-22455182

ABSTRACT

The researchers assessed the predictors of victim-perpetrator relationship stability following a sexual assault. Participants included 254 women sexually assaulted by a friend, casual dating partner, or steady dating partner. Results suggested that most victim-perpetrator relationships (75%) continued following the sexual assault. Greater trauma symptomatology, less perpetrator blame, and nondisclosure of the assault by victims predicted relationship continuation with the perpetrator. Additionally, the odds of continuing the relationship were greater following acts of sexual coercion than following acts of completed rape. Close relationships (steady dating partner) were more likely to continue following the sexual assault than less close relationships (friends and casual dating partners). Unexpectedly, the odds of relationship stability were greater for women without histories of childhood sexual abuse than women with histories of childhood sexual abuse. Implications for future research and intervention are discussed.


Subject(s)
Adult Survivors of Child Abuse/psychology , Crime Victims/psychology , Guilt , Interpersonal Relations , Rape/psychology , Students/psychology , Adult , Adult Survivors of Child Abuse/statistics & numerical data , Child , Crime Victims/statistics & numerical data , Female , Humans , Judgment , Male , Rape/statistics & numerical data , Sexual Partners , Social Perception , Students/statistics & numerical data , Surveys and Questionnaires , United States/epidemiology , Young Adult
9.
Prog Community Health Partnersh ; 16(2S): 45-58, 2022.
Article in English | MEDLINE | ID: mdl-35912657

ABSTRACT

BACKGROUND: The coronavirus disease 2019 pandemic and activism against structural racism heightened awareness of racial-ethnic disparities and disproportionate burden among the underserved. The opioid crisis further compounds these phenomena, increasing vulnerability for substance use disorders (SUD). Community-based participatory research can facilitate multidisciplinary collaboration, yet literature on these approaches to prevent and reduce SUD and associated stigma remains limited. OBJECTIVE: Discrimination, stigma, and multiple crises with health care and systemic barriers increasingly marginalize the underserved, specifically around SUD. The Detroit Area Mental Health Leadership Team (DAMHLT, since 2015), aims to optimize SUD prevention, enhance resiliency and advocacy to advance knowledge on SUD research and influence community-level research and practice. LESSONS LEARNED: DAMHLT's approach on bidirectionality, community level access to real-time epidemiological data, advocacy (i.e., institutional responsiveness) and dissemination may be translational to other partnerships. CONCLUSIONS: As we move through an ever-changing pandemic, DAMHLT's lessons learned can inform partnership dynamics and public health strategies such as hesitancy on public health response.


Subject(s)
COVID-19 , Substance-Related Disorders , COVID-19/prevention & control , Community-Based Participatory Research , Humans , Public Health , Racial Groups , Substance-Related Disorders/prevention & control
10.
JMIR Cancer ; 8(3): e37793, 2022 Sep 16.
Article in English | MEDLINE | ID: mdl-36112409

ABSTRACT

BACKGROUND: Precision oncology is one of the fastest-developing domains of personalized medicine and is one of many data-intensive fields. Policy for health information sharing that is informed by patient perspectives can help organizations align practice with patient preferences and expectations, but many patients are largely unaware of the complexities of how and why clinical health information is shared. OBJECTIVE: This paper evaluates the process of public deliberation as an approach to understanding the values and preferences of current and former patients with cancer regarding the use and sharing of health information collected in the context of precision oncology. METHODS: We conducted public deliberations with patients who had a current or former cancer diagnosis. A total of 61 participants attended 1 of 2 deliberative sessions (session 1, n=28; session 2, n=33). Study team experts led two educational plenary sessions, and trained study team members then facilitated discussions with small groups of participants. Participants completed pre- and postdeliberation surveys measuring knowledge, attitudes, and beliefs about precision oncology and data sharing. Following informational sessions, participants discussed, ranked, and deliberated two policy-related scenarios in small groups and in a plenary session. In the analysis, we evaluate our process of developing the deliberative sessions, the knowledge gained by participants during the process, and the extent to which participants reasoned with complex information to identify policy preferences. RESULTS: The deliberation process was rated highly by participants. Participants felt they were listened to by their group facilitator, that their opinions were respected by their group, and that the process that led to the group's decision was fair. Participants demonstrated improved knowledge of health data sharing policies between pre- and postdeliberation surveys, especially regarding the roles of physicians and health departments in health information sharing. Qualitative analysis of reasoning revealed that participants recognized complexity, made compromises, and engaged with trade-offs, considering both individual and societal perspectives related to health data sharing. CONCLUSIONS: The deliberative approach can be valuable for soliciting the input of informed patients on complex issues such as health information sharing policy. Participants in our two public deliberations demonstrated that giving patients information about a complex topic like health data sharing and the opportunity to reason with others and discuss the information can help garner important insights into policy preferences and concerns. Data on public preferences, along with the rationale for information sharing, can help inform policy-making processes. Increasing transparency and patient engagement is critical to ensuring that data-driven health care respects patient autonomy and honors patient values and expectations.

11.
J Clin Transl Sci ; 6(1): e136, 2022.
Article in English | MEDLINE | ID: mdl-36590362

ABSTRACT

Introduction: The COVID-19 pandemic accelerated a trend for clinical and translational community-engaged research in adapting to an increasingly virtual landscape. This requires a framework for engagement distinct from in-person research and program activities. We reflect on four case studies of community engagement activities that inform a conceptual framework to better integrate the virtual format into community-engaged research reflecting key tenets of health equity and antiracist praxis. Methods: Four projects were selected by community-engaged research stakeholders for an in-depth review based on how much the virtual transition impacted activities such as planning, recruitment, and data collection for each project. Transitions to virtual engagement were assessed across ten areas in which community engagement has been demonstrated to make a positive impact. Results: Our analysis suggests a conceptual evaluation framework in which the ten community engagement areas cluster into four interrelated domains: (1) development, design, and delivery; (2) partnership and trust building; (3) implementation and change; and (4) ethics and equity. Conclusions: The domains in this conceptual framework describe critical elements of community engaged research and programs consistent with recommendations for health equity informed meaningful community engagement from the National Academy of Medicine. The conceptual framework and case studies can be used for evaluation and to develop guidelines for clinical and translational researchers utilizing the virtual format in community-engaged research.

12.
Am J Otolaryngol ; 31(6): 485-8, 2010.
Article in English | MEDLINE | ID: mdl-20015804

ABSTRACT

Tubular occlusion from red blood cell casts secondary to immunoglobulin A nephropathy (IgAN) is a rare, serious complication of tonsillitis that can cause acute renal failure, also referred to as acute kidney injury. IgAN is the most common primary glomerulonephritis with up to 20% of cases resulting in renal failure worldwide. Tonsillectomy is an effective treatment option for patients suffering from IgAN secondary to recurrent acute tonsillitis. Tonsillectomy alone or in combination with additional medical modalities improves renal function and can have a positive effect on long-term renal survival.


Subject(s)
Glomerulonephritis, IGA/etiology , Glomerulonephritis, IGA/therapy , Tonsillectomy , Tonsillitis/complications , Adult , Chronic Disease , Female , Humans , Recurrence , Tonsillitis/surgery
13.
Violence Vict ; 25(4): 504-17, 2010.
Article in English | MEDLINE | ID: mdl-20712148

ABSTRACT

This study utilized a cross-sectional design in order to explore the relationship between interpersonal effectiveness, defined as level of assertiveness, social perception, and perceived self-efficacy, and repeated sexual victimization in adolescence and adulthood. In addition, we compared global versus situation-specific measures of interpersonal effectiveness. Results indicated that global measures of interpersonal effectiveness failed to differentiate victim groups, and there were also no group differences in social perception. However, on situation-specific measures, revictimized women were significantly lower than nonvictims on sexual assertiveness and sexual self-efficacy. These results support the hypothesis that interpersonal functioning is related to sexual revictimization and highlight the need to measure interpersonal functioning specifically in sexual situations as it relates to women's sexual assault history.


Subject(s)
Assertiveness , Battered Women/psychology , Crime Victims/psychology , Interpersonal Relations , Self Concept , Sex Offenses/classification , Adult , Anxiety/diagnosis , Battered Women/statistics & numerical data , Crime Victims/statistics & numerical data , Cross-Sectional Studies , Female , Humans , Prospective Studies , Regression Analysis , Sex Offenses/psychology , Sex Offenses/statistics & numerical data , Students/statistics & numerical data , Surveys and Questionnaires , Universities , Women's Health , Young Adult
14.
J Trauma Dissociation ; 11(2): 193-209, 2010.
Article in English | MEDLINE | ID: mdl-20373206

ABSTRACT

Research suggests that many sexual assault survivors do not disclose their experience, which may increase associated distress. Pennebaker's emotional disclosure paradigm has been shown to ameliorate psychological and physical distress in individuals exposed to stressful events. The current study assessed the effectiveness of this paradigm with sexual assault survivors (N = 74). College women with a history of sexual assault wrote about their most severe victimization or about how they spend their time (control). Then 73 women (98.6%) completed a 1-month follow-up assessment. Results indicated that across writing sessions, the disclosure group reported greater reductions in negative mood immediately post-writing. However, both groups showed significant reductions in physical complaints, psychological distress, and traumatic stress symptoms at the 1-month follow-up, suggesting no added benefit to disclosure of a sexual assault using a brief written paradigm.


Subject(s)
Crime Victims/psychology , Rape/psychology , Self Disclosure , Stress, Psychological/psychology , Writing , Adolescent , Analysis of Variance , Female , Health Status Indicators , Humans , Psychiatric Status Rating Scales , Reproducibility of Results , Surveys and Questionnaires , Survivors/psychology , Trauma Severity Indices , Universities
15.
Otolaryngol Head Neck Surg ; 140(2): 197-201, 2009 Feb.
Article in English | MEDLINE | ID: mdl-19201288

ABSTRACT

OBJECTIVE: To determine whether patients with allergic rhinitis have altered FoxP3 gene expression and/or mutations. STUDY DESIGN AND METHODS: We collected nasal secretions from 14 volunteers (five of whom have allergic rhinitis) and five ENT allergy patients. Total RNA was isolated from these nasal secretions. The gene expression levels of FoxP3 were quantified by both semi-quantitative RT-PCR and real-time PCR using Actin as a housekeeping gene. The cDNA fragments amplified by RT-PCR were analyzed by DNA sequencing. RESULTS: We found that patients with allergic rhinitis had significantly lower FoxP3 mRNA compared to nonallergic controls (P < 0.01). In addition, we found a point mutation in the FoxP3 gene from a patient who not only has severe allergic rhinitis, but also has asthma. This mutation locates in a highly conserved region of FoxP3 gene and partially impaired FoxP3 functions. CONCLUSION: Our data indicate that either reduced FoxP3 gene expression or impaired FoxP3 functions are involved in the development of allergic disease in humans.


Subject(s)
Forkhead Transcription Factors/genetics , Point Mutation/genetics , Respiratory Hypersensitivity/genetics , Respiratory Hypersensitivity/metabolism , Rhinitis/genetics , Rhinitis/metabolism , Adult , Case-Control Studies , Forkhead Transcription Factors/metabolism , Humans , Nasal Lavage Fluid/chemistry , RNA, Messenger/metabolism , Respiratory Hypersensitivity/complications , Reverse Transcriptase Polymerase Chain Reaction , Rhinitis/complications
16.
J Otolaryngol Head Neck Surg ; 48(1): 33, 2019 Jul 23.
Article in English | MEDLINE | ID: mdl-31337433

ABSTRACT

BACKGROUND: Active tobacco smoking is a well-known risk factor for head and neck malignancy, and strong evidence has associated tobacco as the main carcinogenic factor in squamous cell cancers of this region. Evidence supporting a carcinogenic effect of second-hand smoke (SHS) on head and neck organs in non-smokers was also demonstrated with results consistent with those for active smokers. There is little data on the effects of SHS in patients previously treated for squamous cell carcinomas of the head and neck. OBJECTIVE: The purpose of this study was to prospectively evaluate the role of SHS on recurrence and survival in treated head and neck cancer patients. METHODS: We conducted a prospective cohort study to examine the association between self-reported SHS exposure and the risk of recurrence and mortality in patients treated for squamous cell cancers of the head and neck in a longitudinal fashion. Patients filled out an exhaustive smoking questionnaire on presentation and abbreviated questionnaires at each follow-up visit, which occurred every 6 months. Primary outcome measures were recurrence, development of a second primary malignancy, and recurrence-free survival. Chi square analysis was used to assess the association between SHS and the primary outcomes. A multivariate binary logistic regression analysis was applied to determine the independent predictors of recurrence. Cox proportional hazards and Kaplan Meier modeling were employed to assess the possible relationships between SHS exposure and time to develop the primary outcomes. RESULTS: Untreated new patients with a histologically confirmed diagnosis of first primary SCC of the UADT (defined as cancer of the oral cavity, the oropharynx, the hypopharynx, and the larynx) were recruited. Patients seen at The University of Texas Medical Branch (UTMB) Head and Neck oncology clinic from 1988 to 1996 were considered as cases in this study. One hundred and thirty-five patients were enrolled in the study. The median follow-up time for the sample was 54 months (3.92 years). Complete records were achieved for 92% of patients, thus 124 patients were included in the final analysis. SHS significantly correlated with recurrence and recurrence-free survival. The rate of recurrence was 46% in the group exposed to SHS and 22% in the non-exposed group. Based on multivariate binary logistic regression analysis, SHS exposure was detected as a significant independent predictor for recurrence (HR = 3.00 [95% CI 1.18-7.63]). Kaplan-Meier analysis demonstrated that patients who were not exposed to SHS had a statistically significant longer recurrence-free survival (log-rank P = 0.029). The mean survival for non SHS-exposed patients was 76 [63-89] months versus 54 [45-63] months for those exposed to SHS. CONCLUSIONS: SHS exposure is an independent predictor of recurrence and survival after head and neck cancer treatment. These results support the importance and efforts of reducing smoking at home in in the work-place.


Subject(s)
Squamous Cell Carcinoma of Head and Neck/etiology , Tobacco Smoke Pollution/adverse effects , Female , Humans , Male , Middle Aged , Neoplasm Recurrence, Local , Neoplasms, Second Primary/etiology , Prospective Studies , Risk Factors , Survival Rate
17.
J Clin Transl Sci ; 3(5): 218-226, 2019 Oct.
Article in English | MEDLINE | ID: mdl-31660246

ABSTRACT

Community advisory boards (CABs) are a valuable strategy for engaging and partnering with communities in research. Eighty-nine percent of Clinical and Translational Science Awardees (CTSA) responding to a 2011 survey reported having a CAB. CTSAs' experiences with CABs are valuable for informing future practice. This study was conducted to describe common CAB implementation practices among CTSAs; document perceived benefits, challenges, and contributions; and examine their progress toward desirable outcomes. A cross-CTSA collaborative team collected survey data from respondents representing academic and/or community members affiliated with CTSAs with CABs. Data representing 44 CTSAs with CABs were analyzed using descriptive statistics. A majority of respondents reported practices reflecting respect for CAB members' expertise and input such as compensation (75%), advisory purview beyond their CTSA's Community Engagement program (88%), and influence over CAB operations. Three-quarters provide members with orientation and training on roles and responsibilities and 89% reported evaluating their CAB. Almost all respondents indicated their CTSA incorporates the feedback of their CABs to some degree; over half do so a lot or completely. This study profiles practices that inform CTSAs implementing a CAB and provide an evaluative benchmark for those with existing CABs.

18.
Prog Community Health Partnersh ; 12(3): 263-271, 2018.
Article in English | MEDLINE | ID: mdl-30581169

ABSTRACT

BACKGROUND: Engaging communities in research is increasingly recognized as critical to translation of research into improved health outcomes. Our objective was to understand community stakeholders' perspectives on researchers, academic institutions, and how community is valued in research. METHODS: A 45-item survey assessing experiences and perceptions of research (trust, community value, equity, researcher preparedness, and indicators of successful engagement) was distributed to 226 community members involved in health research with academic institutions. RESULTS: Of the 109 respondents, 60% were racial/ethnic minorities and 78% were women, representing a range of community organizations, faith-based organizations, and public health agencies. Most (57%) reported current involvement with a Clinical and Translational Science Award (CTSA). Only 25% viewed researchers as well-prepared to engage communities and few (13%) reported that resources were available and adequate to support community involvement. Most community stakeholders (66%) were compensated for their involvement in research, but only 40% perceived compensation to be appropriate. Trust of research and perceptions that researchers value community were more positive among those who perceived their compensation as appropriate (P = .001). CONCLUSIONS: Appropriate compensation and resources to support community involvement in research may improve perceptions of trust and value in academic-community partnerships. Strategies are needed to increase researcher preparedness to engage with communities.


Subject(s)
Community-Based Participatory Research , Community-Institutional Relations , Research Personnel/psychology , Translational Research, Biomedical , Humans , Research Design , United States
19.
Prog Community Health Partnersh ; 12(2): 145-156, 2018.
Article in English | MEDLINE | ID: mdl-30270224

ABSTRACT

BACKGROUND: The institutions that comprise the Clinical and Translational Science Award (CTSA) consortium and the National Center for Advancing Translational Sciences continue to explore and develop community-engaged research strategies and to study the role of community academic partnerships in advancing the science of community engagement. OBJECTIVES: To explore CTSA institutions in relation to an Institute of Medicine recommendation that community engagement occur in all stages of translational research and be defined and evaluated consistently. METHODS: A sequential multimethods study starting with an online pilot survey followed by survey respondents and site informant interviews. A revised survey was sent to the community engagement and evaluation leads at each CTSA institution, requesting a single institutional response about the definitions, indicators, and metrics of community engagement and community-engaged research. RESULTS: A plurality of CTSA institutions selected the definition of community engagement from the Principles of Community Engagement. Although claiming unique institutional priorities create barriers to developing shared metrics, responses indicate an overall lack of attention to the development and deployment of metrics to assess community engagement in and contributions to research. CONCLUSIONS: Although definitions of community engagement differ among CTSAs, there seem to be more similarities than differences in the indicators and measures tracked and reported on across all definitions, perhaps owing to commonalities among program infrastructures and goals. Metrics will likely need to be specific to translational research stages. The assessment of community engagement within translational science will require increased institutional commitment.


Subject(s)
Community Participation/methods , Community-Based Participatory Research/methods , Translational Research, Biomedical/methods , Advisory Committees/organization & administration , Community-Based Participatory Research/standards , Humans , Interviews as Topic , Organizational Objectives , Pilot Projects , Surveys and Questionnaires , Translational Research, Biomedical/standards
20.
Otolaryngol Clin North Am ; 40(6): 1195-201, v-vi, 2007 Dec.
Article in English | MEDLINE | ID: mdl-18021834

ABSTRACT

Five decades ago, otolaryngology dealt primarily with infectious diseases of the head and neck. The quality of otolaryngology residency training programs was inconsistent and mostly determined by the institution and local faculty. The specialty flourished by developing new expertise in all facets of head and neck medicine and surgery through the leadership of outstanding clinicians and scientists in private practice and universities. Otolaryngology programs subsequently grew from weak divisions within a department of surgery with few faculty members to departments of otolaryngology with full-time, mostly fellowship-trained faculty. Teaching shifted from resident-to-resident to faculty teaching. Organized medicine encouraged systematic quality improvement and periodic review of programs for accreditation. Residencies were also bolstered through Medicare, Medicaid, and Veterans Administration hospitals, which provided funds for growth but limited flexibility of the faculty schedules. The American Academy of Otolaryngology/Head and Neck Surgery shouldered an enormous load of teaching and maintaining unity of the specialty from its birth to the present.


Subject(s)
Internship and Residency , Otolaryngology/education , Accreditation , Hospitals, Veterans , Humans , Medicaid , Medicare , Societies, Medical , Training Support , United States
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