Search details
1.
A pilot study of US HTC physical therapists' concordance of PT MASAC recommendations and educational needs.
Haemophilia
; 30(1): 169-179, 2024 Jan.
Article
in English
| MEDLINE | ID: mdl-38044083
2.
Test-retest reliability of a mobile application of the patient reported outcomes burdens and experiences (PROBE) study.
Haemophilia
; 30(3): 702-708, 2024 May.
Article
in English
| MEDLINE | ID: mdl-38439137
3.
Non-severe haemophilia: Is it benign? - Insights from the PROBE study.
Haemophilia
; 27 Suppl 1: 17-24, 2021 Jan.
Article
in English
| MEDLINE | ID: mdl-32870546
4.
Evaluation of the sexual health in people living with hemophilia.
Haemophilia
; 27(6): 993-1001, 2021 Nov.
Article
in English
| MEDLINE | ID: mdl-34538001
5.
Exploring regional variations in the cross-cultural, international implementation of the Patient Reported Outcomes Burdens and Experience (PROBE) study.
Haemophilia
; 25(3): 365-372, 2019 May.
Article
in English
| MEDLINE | ID: mdl-30861270
6.
Test-retest properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire and its constituent domains.
Haemophilia
; 25(1): 75-83, 2019 Jan.
Article
in English
| MEDLINE | ID: mdl-30520534
7.
Impact of hemophilia B on quality of life in affected men, women, and caregivers-Assessment of patient-reported outcomes in the B-HERO-S study.
Eur J Haematol
; 100(6): 592-602, 2018 Jun.
Article
in English
| MEDLINE | ID: mdl-29505680
8.
von Willebrand disease (VWD) and BATs: How do they connect and why should I care?
Haemophilia
; 28(3): e89-e90, 2022 05.
Article
in English
| MEDLINE | ID: mdl-35294992
9.
Impact of mild to severe hemophilia on education and work by US men, women, and caregivers of children with hemophilia B: The Bridging Hemophilia B Experiences, Results and Opportunities into Solutions (B-HERO-S) study.
Eur J Haematol
; 98 Suppl 86: 18-24, 2017 Apr.
Article
in English
| MEDLINE | ID: mdl-28319337
10.
Impact of mild to severe hemophilia on engagement in recreational activities by US men, women, and children with hemophilia B: The Bridging Hemophilia B Experiences, Results and Opportunities into Solutions (B-HERO-S) study.
Eur J Haematol
; 98 Suppl 86: 25-34, 2017 Apr.
Article
in English
| MEDLINE | ID: mdl-28319336
11.
Management of US men, women, and children with hemophilia and methods and demographics of the Bridging Hemophilia B Experiences, Results and Opportunities into Solutions (B-HERO-S) study.
Eur J Haematol
; 98 Suppl 86: 5-17, 2017 Apr.
Article
in English
| MEDLINE | ID: mdl-28319338
12.
Treatment outcomes, quality of life, and impact of hemophilia on young adults (aged 18-30 years) with hemophilia.
Am J Hematol
; 90 Suppl 2: S3-10, 2015 Dec.
Article
in English
| MEDLINE | ID: mdl-26619194
13.
Building the foundation for a community-generated national research blueprint for inherited bleeding disorders: facilitating research through infrastructure, workforce, resources and funding.
Expert Rev Hematol
; 16(sup1): 107-127, 2023 03.
Article
in English
| MEDLINE | ID: mdl-36920855
14.
Integrated Hemophilia Patient Care via a National Network of Care Centers in the United States: A Model for Rare Coagulation Disorders.
J Blood Med
; 12: 897-911, 2021.
Article
in English
| MEDLINE | ID: mdl-34707421
15.
Psychometric properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire.
BMJ Open
; 8(8): e021900, 2018 08 08.
Article
in English
| MEDLINE | ID: mdl-30093520
Results
1 -
15
de 15
1
Next >
>>