ABSTRACT
BACKGROUND: Neonatal mortality (death within 0-28 d of life) in Kenya is high despite strong evidence that newborn care recommendations save lives. In public healthcare facilities, nurses counsel caregivers on term newborn care, but knowledge about the content and quality of nurses' recommendations is limited. PURPOSE: To describe the term newborn care recommendations provided at a tertiary-level, public referral hospital in Western Kenya, how they were provided, and related content taught at a university nursing school. METHODS: A rapid, focused ethnographic assessment, guided by the culture care theory, using stratified purposive sampling yielded 240 hours of participant observation, 24 interviews, 34 relevant documents, and 268 pages of field notes. Data were organized using NVivo software and key findings identified using applied thematic analysis. RESULTS: Themes reflect recommendations for exclusive breastfeeding, warmth, cord care, follow-up examinations, and immunizations, which were provided orally in Kiswahili and some on a written English discharge summary. Select danger sign recommendations were also provided orally, if needed. Some recommendations conflicted with other providers' guidance. More recommendations for maternal care were provided than for newborn care. IMPLICATIONS FOR PRACTICE: There is need for improved consistency in content and provision of recommendations before discharge. Findings should be used to inform teaching, clinical, and administrative processes to address practice competency and improve nursing care quality. IMPLICATIONS FOR RESEARCH: Larger studies are needed to determine whether evidence-based recommendations are provided consistently across facilities and other populations, such as community-born and premature newborns, who also experience high rates of neonatal mortality in Kenya.
Subject(s)
Hospitals , Infant Mortality , Humans , Infant, Newborn , KenyaABSTRACT
Current U.S. immigration policies disproportionately impact Mexican-origin mixed-status families, yet few studies examine the consequences of immigration enforcement (e.g., immigration-related arrest and detention) and deportation on sibling dynamics. Given this gap, this study focuses on the experiences and changes within sibling relationships in the aftermath of parental detention and deportation. We analyzed a subsample of 20 citizen children interviews (7 sibling dyads; 2 sibling triads) from a multi-site binational study that examined the psychosocial functioning of U.S. citizen children with undocumented Mexican parents. Using inductive thematic analysis, we explored the roles and functional importance of sibling relationships before and after experiences of parents' detention and deportation. Our findings suggest that prior to detention or deportation experiences, sibling relationships were described as "normal." After these experiences, however, sibling relationships changed and developed protective adaptations, including more open communication about their experiences and the assumption of caregiving roles. In cases where deportation did not occur, there still existed the threat of future immigration-related action, which contributed to fear and an inability to share feelings and experiences among siblings. Our findings suggest that sibling relationships might serve as an important locus of stability and protection. Yet, adaptive communication may not emerge as long as the threat of apprehension, detention, and deportation exists.
Las políticas migratorias actuales de los Estados Unidos afectan de manera desproporcionada a las familias de condición migratoria mixta de origen mexicano, sin embargo, pocos estudios analizan las consecuencias de la aplicación de las leyes de inmigración (por ej.: el arresto y la detención relacionados con la inmigración) y la deportación en la dinámica fraternal. Teniendo en cuenta esta falta de datos, el presente estudio se centra en las experiencias y los cambios dentro de las relaciones fraternales después de la detención y la deportación de los padres. Analizamos una submuestra de 20 entrevistas a niños ciudadanos (7 díadas de hermanos; 2 tríadas de hermanos) de un estudio binacional realizado en varios sitios que analizó el funcionamiento psicosocial de niños ciudadanos de los Estados Unidos con padres mexicanos indocumentados. Utilizando el análisis temático inductivo, analizamos los roles y la importancia funcional de las relaciones fraternales antes y después de las experiencias de detención y deportación de los padres. Nuestros resultados indican que, antes de las experiencias de detención o deportación, las relaciones fraternales se describieron como "normales". Sin embargo, después de estas experiencias, las relaciones fraternales cambiaron y surgieron adaptaciones protectoras, por ejemplo, una comunicación más abierta acerca de sus experiencias y la asunción de roles de cuidado. En los casos donde no hubo deportación, igualmente existió la amenaza de una futura acción relacionada con la inmigración, la cual generó miedo e incapacidad de compartir sentimientos y experiencias entre hermanos. Nuestros resultados sugieren que las relaciones fraternales podrían servir como lugar importante de estabilidad y protección. Sin embargo, es posible que la comunicación adaptativa no surja mientras exista la amenaza de arresto, detención y deportación.
Subject(s)
Parents , Siblings , Child , Emigration and Immigration , Humans , Mexico , Parents/psychology , Sibling RelationsABSTRACT
Among adolescents, Latinas are at an increased risk of experiencing suicidal ideation and attempts compared to non-Hispanic, White youth. Previous research indicates that family dynamics are influential as both protective and risk factors. Although significant research has been conducted over the past several decades examining the mother-daughter relationship, few studies have examined the father-daughter relationship among Latina adolescent suicide attempters. The relationship dynamics between fathers and daughters of Latina descent are both similar and unique compared to mother-daughter relationships. Given this, an in-depth analysis is warranted. To address this gap, the present study utilized dyadic thematic analysis to describe father-daughter relationships (N = 10 dyads, 20 individual interviews) and fathers' reactions to their Latina daughters' suicide attempt(s). Three themes emerged from the results (a) dynamic proximity, which describes the variation in emotional and physical closeness between fathers and daughters; (b) father as protector, which describes fathers' roles in protecting or failing to protect their daughters; (c) responses to the suicide attempt, which describes the various ways fathers responded to daughters' suicide attempts, ranging from helpful action to apathy. Themes gleaned from in-depth interviews informed a deeper understanding of these complex, multifaceted relationships, and how they may be linked to fathers' responses to daughters' suicide attempts. Implications for future research and clinical practice with youth at risk for suicidal ideations and behaviors, along with the impact of such experiences on families, are discussed.
Entre las adolescentes, las latinas corren un mayor riesgo de tener ideación e intentos suicidas en comparación con las jóvenes blancas no hispanas. Hay investigaciones previas que indican que la dinámica familiar influye tanto como factor protector como de riesgo. Aunque se ha investigado bastante durante las últimas décadas sobre la relación entre madre e hija, en pocos estudios se ha examinado la relación entre padre e hija en adolescentes latinas que han intentado suicidarse. La dinámica de la relación entre padres e hijas de ascendencia latina es tanto similar como única en comparación con la de la relación entre madres e hijas. En virtud de esto, es necesario un análisis profundo. Para subsanar esta carencia, en el presente estudio se utilizó el análisis temático diádico para describir las relaciones entre padres e hijas (N = 10 díadas, 20 entrevistas individuales) y las reacciones de los padres a los intentos de suicidio de sus hijas latinas. De los resultados surgieron tres temas: (a) la proximidad dinámica, que describe la variación en la cercanía emocional y física ente los padres y las hijas; (b) el padre como protector, que describe los roles de los padres a la hora de proteger o no proteger a sus hijas; (c) las respuestas al intento de suicidio, que describe las diversas maneras en las que los padres respondieron a los intentos de suicidio de las hijas, las cuales variaron desde medidas de ayuda hasta apatía. Los temas obtenidos de entrevistas detalladas informaron una mayor comprensión de estas relaciones complejas y multifacéticas, y de cómo pueden vincularse con las respuestas de los padres a los intentos de suicidio de las hijas. Se debaten las consecuencias para futuras investigaciones y para la práctica clínica con las jóvenes en riesgo de ideaciones y conductas suicidas, así como el efecto de dichas experiencias en las familias.
Subject(s)
Nuclear Family , Suicide, Attempted , Adolescent , Fathers/psychology , Female , Hispanic or Latino , Humans , Male , Nuclear Family/psychology , Suicidal Ideation , Suicide, Attempted/psychologyABSTRACT
OBJECTIVE: The diagnosis of an advanced cancer in young adulthood can bring one's life to an abrupt halt, calling attention to the present moment and creating anguish about an uncertain future. There is seldom time or physical stamina to focus on forward-thinking, social roles, relationships, or dreams. As a result, young adults (YAs) with advanced cancer frequently encounter existential distress, despair, and question the purpose of their life. We sought to investigate the meaning and function of hope throughout YAs' disease trajectory; to discern the psychosocial processes YAs employ to engage hope; and to develop a substantive theory of hope of YAs diagnosed with advanced cancer. METHOD: Thirteen YAs (ages 23-38) diagnosed with a stage III or IV cancer were recruited throughout the eastern and southeastern United States. Participants completed one semi-structured interview in-person, by phone, or Skype, that incorporated an original timeline instrument assessing fluctuations in hope and an online socio-demographic survey. Glaser's grounded theory methodology informed constant comparative methods of data collection, analysis, and interpretation. RESULTS: Findings from this study informed the development of the novel contingent hope theoretical framework, which describes the pattern of psychosocial behaviors YAs with advanced cancer employ to reconcile identities and strive for a life of meaning. The ability to cultivate the necessary agency and pathways to reconcile identities became contingent on the YAs' participation in each of the psychosocial processes of the contingent hope theoretical framework: navigating uncertainty, feeling broken, disorienting grief, finding bearings, and identity reconciliation. SIGNIFICANCE OF RESULTS: Study findings portray the influential role of hope in motivating YAs with advanced cancer through disorienting grief toward an integrated sense of self that marries cherished aspects of multiple identities. The contingent hope theoretical framework details psychosocial behaviors to inform assessments and interventions fostering hope and identity reconciliation.
Subject(s)
Neoplasms , Adult , Emotions , Grief , Humans , Southeastern United States , Uncertainty , Young AdultABSTRACT
Significant research questions persist regarding the short- and long-term outcomes of Latina adolescents who attempt suicide. To address these limitations, we utilize an ecodevelopmental framework to identify potential factors that shape differential outcomes following a suicide attempt. Through an exploratory, longitudinal, qualitative research design, we investigate two research questions: How do trajectories of well-being vary among Latina teens after a suicide attempt? What risk and protective factors might contribute to different trajectories? We conducted qualitative interviews with 17 Latina participants living in predominantly low-income households in New York City. Interviews took place within the 6 months following their suicide attempts, and again, 12 months later. Analysis revealed three distinct trajectories after a suicide attempt: resilience, tenuous growth, and chronic stress. Our findings elucidate potential factors that contribute to resilience following a suicide attempt and underscore the importance of prevention and intervention programs that foster adolescents' connectivity across ecodevelopmental contexts.
Subject(s)
Hispanic or Latino/psychology , Suicide, Attempted/ethnology , Suicide, Attempted/psychology , Adolescent , Chronic Disease , Female , Humans , Interviews as Topic , Longitudinal Studies , New York City/epidemiology , Poverty/ethnology , Poverty/psychology , Resilience, Psychological , Risk Factors , Stress, Psychological/ethnologyABSTRACT
Integrated behavioral health services have positive outcomes for patients and providers, but little is known about providers' perspectives on implementing these services. This community-based participatory research collaboration with a Federally Qualified Health Center examined provider perspectives on implementing a collaborative psychiatry consultation program in pediatric primary care. We interviewed providers (N = 14) from psychiatry, social work, primary care, and psychology regarding their experiences implementing the program, and their recommendations for its sustainability. Providers described interdisciplinary integration arising from the program, with accompanying benefits (e.g., increased access to care for patients with complex diagnostic profiles, increased learning and role satisfaction among providers), and challenges (e.g., increased burden on primary care providers, potential patient discomfort with team-based care). Our results highlight the complexities of implementing collaborative psychiatry consultation in pediatric primary care, and suggest the importance of supporting primary care providers and patients within this context.
Subject(s)
Community-Based Participatory Research , Delivery of Health Care, Integrated/organization & administration , Interdisciplinary Communication , Mental Health Services/organization & administration , Primary Health Care/organization & administration , Child , Child Health Services/organization & administration , HumansABSTRACT
Suicide is a critical issue among Latina youth. In this study, we use family case analysis to explore how gendered oppression, silencing, and violence shape suicidal behaviors among a sample of Latina daughters (n = 10), and their parents. For comparison, we include family narratives from Latina adolescents with no histories of suicide attempts (n = 10). Results suggest how secrets and silence, as indicative of gendered oppression, may catalyze a suicide attempt. The risks are particularly salient when daughter and mother both have experienced violence that conflicts with gendered cultural scripts. Findings highlight the importance of parental engagement and exploration of histories of violence in the treatment of Latina suicide attempters. Future research should incorporate the risk factors of gendered oppression and violence to better understand the development of suicidality among Latina women.
El suicidio es un problema crítico entre las jóvenes latinas. En este artículo, usamos un análisis de casos familiares para averiguar cómo la opresión de género, el silenciamiento y la violencia determinan conductas suicidas entre una muestra de hijas latinas (n = 10) y sus padres. Para comparar, incluimos relatos familiares de adolescentes latinas sin historias de intentos de suicidio (n = 10). Los resultados sugieren cómo los secretos y el silencio, como indicadores de la opresión de género, pueden catalizar un intento de suicidio. Los riesgos son particularmente prominentes cuando la madre y la hija han sufrido una violencia que contradice los guiones culturales de género. Los resultados destacan la importancia de la participación de los padres y del análisis de las historias de violencia en el tratamiento de mujeres latinas que han intentado suicidarse. Las investigaciones futuras deberían incorporar los factores de riesgo de la opresión de género y de la violencia para comprender mejor el desarrollo de las tendencias suicidas entre las mujeres latinas.
Subject(s)
Hispanic or Latino/psychology , Self Disclosure , Sexism/psychology , Suicide, Attempted/psychology , Violence/psychology , Adolescent , Case-Control Studies , Female , Humans , Interview, Psychological , Models, Psychological , Mother-Child Relations , Mothers/psychology , Suicide, Attempted/ethnology , Violence/ethnologyABSTRACT
Immigrant youth experience a combination of stressors, such as isolation and discrimination, that put them at a greater risk for negative mental health outcomes. Relying on interviews with 24 service providers who work with Latino immigrant youth, this article examines how they construct and intervene in the worlds of immigrant youth to improve youth's mental health outcomes. Inductive thematic analysis revealed providers' reliance on cultural interpretations of the psychosocial circumstances facing immigrant youth. Providers alternated between drawing on discourses that reproduced stereotypes, assumptions, and biases, while simultaneously striving to transcend sociocultural differences to focus on the lived experiences of their clients. Although providers acknowledged the importance of structural barriers, such as poverty and discrimination, they "bracketed" these issues when recommending interventions. The article highlights that as cultural competence increasingly becomes part of social services, this professional discourse may distract providers' attention from more relevant targets of intervention.
Subject(s)
Cultural Competency , Emigrants and Immigrants/psychology , Hispanic or Latino/psychology , Mental Health Services/organization & administration , Mental Health/ethnology , Acculturation , Adolescent , Humans , Interviews as Topic , Mental Health Services/standards , Poverty/psychology , Qualitative Research , Racism/psychology , Social Work/organization & administration , Socioeconomic Factors , United StatesABSTRACT
BACKGROUND: Written comments by medical student supervisors provide written foundation for grade narratives and deans' letters and play an important role in student's professional development. Written comments are widely used but little has been published about the quality of written comments. We hypothesized that medical students share an understanding of qualities inherent to a high-quality and a low-quality narrative comment and we aimed to determine the features that define high- and low-quality comments. METHODS: Using the well-established anthropological pile-sort method, medical students sorted written comments into 'helpful' and 'unhelpful' piles, then were interviewed to determine how they evaluated comments. We used multidimensional scaling and cluster analysis to analyze data, revealing how written comments were sorted across student participants. We calculated the degree of shared knowledge to determine the level of internal validity in the data. We transcribed and coded data elicited during the structured interview to contextualize the student's answers. Length of comment was compared using one-way analysis of variance; valence and frequency comments were thought of as helpful were analyzed by chi-square. RESULTS: Analysis of written comments revealed four distinct clusters. Cluster A comments reinforced good behaviors or gave constructive criticism for how changes could be made. Cluster B comments exhorted students to continue non-specific behaviors already exhibited. Cluster C comments used grading rubric terms without giving student-specific examples. Cluster D comments used sentence fragments lacking verbs and punctuation. Student data exhibited a strong fit to the consensus model, demonstrating that medical students share a robust model of attributes of helpful and unhelpful comments. There was no correlation between valence of comment and perceived helpfulness. CONCLUSIONS: Students find comments demonstrating knowledge of the student and providing specific examples of appropriate behavior to be reinforced or inappropriate behavior to be eliminated helpful, and comments that are non-actionable and non-specific to be least helpful. Our research and analysis allow us to make recommendations helpful for faculty development around written feedback.
Subject(s)
Clinical Clerkship , Formative Feedback , Helping Behavior , Internal Medicine/education , Writing , Adult , Cluster Analysis , Consensus , Female , Humans , Male , Young AdultABSTRACT
In this article, we explore the relationships among culture, family, and attempted suicide by U.S. Latinas. We analyzed qualitative interviews conducted with Latina teen suicide attempters (n = 10) and their parents. We also incorporated data collected from adolescents with no reported history of self-harm (n = 10) and their parents to examine why some individuals turned to suicide under similar experiences of cultural conflict. Our results reveal that Latina teens who attempted suicide lacked the resources to forge meaningful social ties. Without the tools to bridge experiences of cultural contradiction, the girls in our study described feeling isolated and alone. Under such conditions, adolescents turned to behaviors aimed at self-destruction. Unlike their peers who attempted suicide, adolescent Latinas with no lifetime history of attempted suicide were able to mobilize resources in ways that balanced experiences of acculturative tension by creating supportive relationships with other individuals.
Subject(s)
Adolescent Behavior/ethnology , Adolescent Behavior/psychology , Hispanic or Latino/psychology , Social Isolation/psychology , Suicide, Attempted/ethnology , Suicide, Attempted/psychology , Adolescent , Domestic Violence/psychology , Family , Female , Humans , Interpersonal Relations , Interviews as Topic , Male , Parent-Child Relations , Parents , Risk Factors , Stress, Psychological , United StatesABSTRACT
Despite an overall decline in mortality, breast cancer is the most commonly diagnosed cancer and the second most common cause of cancer death among African-American women. As such, clinicians should prepare to address the unique sociocultural and psychological concerns encountered by African-American women breast cancer survivors. The objective of this study is to examine, using qualitative methods, the main coping facilitators used by African-American women as they transition across the cancer continuum. The identification of these facilitators was then aligned with culturally sensitive interventions most useful with women coping with cancer along the cancer continuum. This was a secondary analysis of 20 videotaped stories of African-American breast cancer survivors collected as a part of the Washington University Center for Excellence in Cancer Communications project. The interview began with a discussion of how the survivor first became aware she had breast cancer, followed by a series of open-ended probes used to explore the following themes: coping, relationships, health care system experiences, follow-up care, and quality of life living with breast cancer. Survivors discussed their experiences and advice for targeting needs at each cancer stage from screening to diagnosis, treatment, and then survivorship. Survivor narratives point to key evidence-based clinical intervention strategies at each stage of the cancer trajectory. This study found that survivors see a cyclical cancer course, whereby African-American breast cancer survivors serve an important role in the lives of unscreened women, newly diagnosed women, and women in treatment.
Subject(s)
Adaptation, Psychological , Biomedical Research , Black or African American/psychology , Breast Neoplasms/psychology , Quality of Life , Self-Help Groups/statistics & numerical data , Survivors/psychology , Adult , Aged , Attitude to Health , Breast Neoplasms/diagnosis , Breast Neoplasms/therapy , Communication , Evaluation Studies as Topic , Female , Health Promotion , Humans , Middle Aged , Narration , Patient Education as Topic , PrognosisABSTRACT
In this article, I examine how race motivates women's decisions to undergo aesthetic rhinoplasty in Caracas, Venezuela. Through a combination of cultural domain analysis and thematic analysis of qualitative interviews, I explore how the preference for whiteness and associated facial features dovetail with the aesthetic ideals promoted by cosmetic surgeons. Rhinoplasty is offered by physicians and interpreted by patients as a resolution to body dissatisfaction and low self-esteem. The clinical ethos of objectivity established by cosmetic surgeons fails to acknowledge how perceptions of the self and body are strongly tied to racial marginalization: patients' efforts to alter the nose reveal attempts to change not only how the body looks, but how it is lived. As a result, cosmetic surgery only acts as a stop-gap measure to heighten one's self-esteem and body image.
Subject(s)
Ethnicity/psychology , Motivation , Racism/ethnology , Racism/psychology , Rhinoplasty/psychology , Self Concept , Adolescent , Adult , Aged , Body Image/psychology , Decision Making , Esthetics/psychology , Female , Humans , Interview, Psychological , Middle Aged , Qualitative Research , Venezuela , Young AdultABSTRACT
Parents' aspirations and expectations are communicated to their offspring. Children internalize their parents' aspirations and accept some of the expectations while rejecting others, all part of the developmental process and identity-consolidation. When the aspirations and expectations of youth and parents are incongruent, the outcomes in youths' behavior can be deleterious, such as when adolescents manifest suicidal behaviors. We examined aspirations expressed by 12 Latina adolescent suicide attempters and their parents and compared them to 12 non-suicidal Latinas and parents. Qualitative analyses revealed that incongruence of aspirations between girls and their parents were greater among suicidal teens. Suicidal and non-suicidal Latinas presented contrasting aspirations: the former on gaining independence and the latter on completing their education and pursuing careers. Findings may inform developmental research and ways in which clinicians and policymakers can help Latinas achieve their own and their parents' aspirations.
ABSTRACT
PURPOSE: Medical students receive a varying amount of training in medical ethics and are expected to navigate clinical ethical dilemmas innately. There is little literature on attempts to navigate ethical dilemmas experienced during early clinical experiences and whether current curricula prepare students for these dilemmas. This study explores the different ethical dilemmas experienced by medical students on their third-year clerkships and analyzes the factors, sources, and resolutions proposed by them. METHODS: From 2016 to 2018, third-year medical students completed a written assignment to describe, analyze, and reflect on a clinical situation in which they experienced an ethical dilemma. They identified specific ethical dilemmas present, potential preventative and aftermath solutions, and reflected on their professional development from their experience. The research team utilized applied thematic analysis to identify themes and patterns in the data. A thematic matrix was utilized to examine similarities and differences across medical students. RESULTS: Of the 162 reflections, 144 (88.9%) students indicated an ethical dilemma that included issues related to autonomy and beneficence. Of these, 116 (71.6%) students found the two ethical principles in direct conflict. Students identified three common sources of this conflict: lack of communication; unclear understanding of clinical policies regarding family authority and psychiatric capacity; and medical negligence. Lastly, students suggested different solutions for dealing with and preventing this conflict. CONCLUSION: Our findings suggest that an overwhelming number of students face ethical challenges when confronted with medical situations that raise conflicts between autonomy and beneficence. Their recommended solutions reveal an appeal among students to have tools and strategies in place to ease the need to make difficult decisions. Medical students might be better served by learning about the complexities of ethical decision-making and the likelihood of experiencing moral distress when they feel an inability to implement what they envision as the best solution.
Subject(s)
Students, Medical , Humans , Students, Medical/psychology , Ethics, Medical , Moral ObligationsABSTRACT
INTRODUCTION: A qualitative picture of the health care experiences prior to pregnancy can inform patient-centered strategies to optimize preconception health. This study describes health care utilization and experiences and how health care costs were covered in the year prior to pregnancy in a population of primarily Hispanic women with low income. METHODS: Pregnant participants were recruited from 5 Federally Qualified Health Center clinics. Semistructured interviews included questions about health care in the year prior to pregnancy. Transcripts were analyzed using a thematic approach that integrated deductive and inductive analysis. RESULTS: Most participants self-identified as Hispanic. Just under half were US citizens. All but one were Medicaid or Children's Health Insurance Program Perinatal coverage insurance during pregnancy and relied on a variety of strategies to cover prepregnancy health care costs. Almost all received health care during the year prior to pregnancy. Fewer than half reported an annual preventive visit. Health care needs that led to care-seeking included a prior pregnancy, chronic depression, contraception, workplace injury, a persistent rash, screening and treatment for sexually transmitted infection, breast pain, stomach pain (leading to gallbladder removal), and kidney infection. The ways in which study participants covered the costs of health care ranged in terms of sources and complexity. Although some participants described stable health care coverage, most reported changes throughout the year as they pieced together various health care coverage programs and out-of-pocket payments. When participants did seek health care prior to their current pregnancy, most described the experience in positive terms and focused on health care provider communication quality. Respect of patient autonomy was highly valued. DISCUSSION: Women with pregnancy-related health care coverage accessed care for a wide range of health care needs prior to pregnancy. Health care providers may consider strategies to respectfully introduce preconception care into any visit by an individual who could become pregnant.
Subject(s)
Hispanic or Latino , Insurance, Health , Female , Humans , Pregnancy , Health Services Accessibility , Insurance Coverage , Medicaid , Preconception Care , United StatesABSTRACT
BACKGROUND: Despite the widespread implementation of Health Care for the Homeless programs that focus on comprehensive, integrated delivery systems of health care for people experiencing homelessness, engaging and retaining people experiencing homelessness in primary care remains a challenge. Few studies have looked at the primary care delivery model in non-traditional health care settings to understand the facilitators and barriers to engagement in care. The objective of our study was to explore the clinic encounters of individuals experiencing homelessness receiving care at two different sites served under a single Health Care for the Homeless program. METHODS: Semi-structured interviews were conducted with people experiencing homelessness for an explorative qualitative study. We used convenience sampling to recruit participants who were engaged in primary care at one of two sites: a shelter clinic, n = 16, and a mobile clinic located in a church, n = 15. We then used an iterative, thematic approach to identify emergent themes and further mapped these onto the Capability-Opportunity-Motivation model. RESULTS: Care accessibility, quality and integration were themes that were often identified by participants as being important facilitators to care. Psychological capability and capacity became important barriers to care in instances when patients had issues with memory or difficulty with perceiving psychological safety in healthcare settings. Motivation for engaging and continuing in care often came from a team of health care providers using shared decision-making with the patient to facilitate change. CONCLUSION: To optimize health care for people experiencing homelessness, clinical interventions should: (1) utilize shared-decision making during the visit, (2) foster a sense of trust, compassion, and acceptance, (3) emphasize continuity of care, including consistent providers and staff, and (4) integrate social services into Health Care for the Homeless sites.
Subject(s)
Access to Primary Care , Delivery of Health Care, Integrated , Ill-Housed Persons , Humans , Primary Health Care , Qualitative Research , Social Problems , Social Determinants of HealthABSTRACT
Objective: Psychosocial stress contributes to asthma disparities for low-SES Latinx children, but primary and secondary control coping by children and parents is associated with better psychosocial and asthma outcomes. Therefore, we developed and pilot tested Adapt 2 Asthma (A2A), a family-based coping and asthma self-management intervention for low-SES Latinx families. Methods: Children, parents, and primary care providers (N=16) participated in five focus groups to refine A2A's content and delivery. Subsequently, families of children ages 9-12 with asthma (N=24) were recruited from primary care clinics and randomly assigned to receive A2A or enhanced usual care (EUC). Results: Based on focus groups, A2A was refined to address feasibility, Latinx-specific cultural factors, and provider-family gaps. Results of the pilot RCT showed that 92% of families completed all sessions of A2A, and there were high levels of satisfaction with and fidelity to A2A. There were no statistically significant differences between the A2A and EUC groups at 3-month follow-up, although there were small, non-significant effects favoring A2A on parent-reported asthma control, parent secondary control coping, and emergency department visits. Conclusions: We found evidence of acceptability, feasibility, and potential benefits of A2A for low-SES Latinx families. Findings provide guidance for future implementation in primary care.
ABSTRACT
The paper describes an approach to developing a data-driven development of a feedback theory of cognitive vulnerabilities and family support focused on understanding the dynamics experienced among Latina children, adolescents, and families. Family support is understood to be a response to avoidant and maladaptive behaviors that may be characteristic of cognitive vulnerabilities commonly associated depression and suicidal ideation. A formal feedback theory is developed, appraised, and analyzed using a combination of secondary analysis of qualitative interviews (N = 30) and quantitative analysis using system dynamics modeling and simulation. Implications for prevention practice, treatment, and future research are discussed.
Subject(s)
Hispanic or Latino , Suicidal Ideation , Adolescent , Child , Cognition , Depression/psychology , Humans , Risk FactorsABSTRACT
Using qualitative data collected from adolescent Latinas and their parents, this article describes ways in which family relationships are organized within low-income Latino families (n = 24) with and without a daughter who attempted suicide. Based on a family-level analysis approach, we present a framework that categorizes relationships as reciprocal, asymmetrical, or detached. Clear differences are identified: Families of non-attempters primarily cluster in reciprocal families, whereas families with an adolescent suicide attempter exhibit characteristics of asymmetrical or detached families. Our results highlight the need for detailed clinical attention to family communication patterns, especially in Latino families. Clinicians may reduce the likelihood of an attempt or repeated attempts by raising mutual, reciprocal exchanges of words and support between parents and daughter.
ABSTRACT
The Interpersonal-Psychological Theory of Suicide (IPTS) has emerged as an empirically supported theory of suicide risk, yet few studies have utilized IPTS to examine the suicidal behaviors of Latina adolescents. In this study, we explore the cultural and developmental appropriateness, as well as the explanatory fit, of IPTS within a sample of Latina adolescents. Data for this project were drawn from qualitative interviews conducted with Latina adolescents with (n=30) and without (n=30) histories of attempted suicide. We employed a deductive qualitative approach to define and compare core constructs of IPTS (perceived burdensomeness, thwarted belongingness, and acquired capability), and then use qualitative comparative analysis to evaluate how core constructs were linked with the occurrence of a suicide attempt. Consistent with IPTS, perceived burdensomeness, thwarted belongingness, and acquired capability were present in 20 of the 30 adolescents who had attempted suicide, and absent in 22 of the 30 adolescents with no lifetime history of suicidal behaviors. Notably, alternative combinations of IPTS constructs were found in 10 cases of adolescents who attempted suicide, suggesting a need to adjust IPTS to fit the developmental and cultural contexts of Latina teens. Although our results suggest predominantly positive support for IPTS, participants varied in terms of how their experiences resonated with the conceptual definitions put forward by the theory. Ultimately, our findings point to the ways in which developmental tensions are exacerbated by broader sociocultural dynamics, contributing to a broader understanding of suicide risk among ethnic minority adolescents.