Dissemination Protocol for Community-Based Participatory Research Partnerships with Marshallese Pacific Islanders in Arkansas.

BACKGROUND: The Pacific Islander population in the United States (U.S.) has rapidly increased since 2000, especially in southern states like Arkansas where the largest population of Marshallese in the continental U.S. reside. The Marshallese community faces significant health disparities with high prevalence of diabetes, obesity, obesity-related cancers, and other chronic conditions. OBJECTIVES: Researchers have utilized a community-based participatory research (CBPR) approach that fully engages Marshallese stakeholders in research to address the community's health disparities. Sharing research findings with participants and stakeholders is a core principle of CBPR. METHODS: This manuscript describes the methods that the academic-community research partnership used to develop a dissemination protocol for sharing results from multiple pilot studies and randomized control trials. Examples and details of specific activities that resulted from putting the dissemination plan in action are presented. CONCLUSIONS: Implementation of CBPR principles ensures that researchers fully engage stakeholders in all aspects of research, including the dissemination of study results. This manuscript describes the dissemination protocol for an academic- community research partnership with the Marshallese community and provides a practical example for how to implement successful community-engaged dissemination.

Multicomponent Informed Consent with Marshallese Participants.

Pacific Islanders are the second fastest-growing population in the United States; however, Pacific Islanders, and Marshallese specifically, are underrepresented in health research. A community-based participatory research (CBPR) approach was used to engage Marshallese stakeholders and build an academic-community research collaborative to conduct health disparities research. Our CBPR partnership pilot tested a multicomponent consent process that provides participants the option to control the use of their data. Consent forms used concise plain language to describe study information, including participant requirements, risks, and personal health information protections, and were available in both English and Marshallese. This study demonstrates that when provided a multicomponent consent, the vast majority of consenting study participants (89.6%) agreed to all additional options, and only five (10.4%) provided consent for some but not all options. Our description of the development and implementation of a multicomponent consent using a CBPR approach adds a specific example of community engagement and may be informative for other indigenous populations.