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1.
Psychooncology ; 28(8): 1712-1720, 2019 08.
Article in English | MEDLINE | ID: mdl-31216078

ABSTRACT

OBJECTIVE: Evidence suggests that treatment side-effects of prostate cancer (CaP) substantially affect the psychosocial well-being of affected men and their partners. However, this phenomenon is poorly understood among high risk (1 in 4) Black African (BA)/Black Caribbean (BC) men and their partners, as they are currently under-represented in global research on CaP survivorship. This study explored the psychosocial experiences of BA/BC men with CaP and their partners in the United Kingdom as they lived through the side effects of CaP treatment within their own sociocultural and marital contexts. METHODS: Using constructivist grounded theory methodology, interviews and focus groups were conducted with eligible men (n = 25), partners (n = 11), and health care professionals (HCPs) (n = 11) recruited in England. Data were iteratively analysed using constant comparison following the key stages of initial, focused, and theoretical coding until saturation was achieved. RESULTS: Data analysis culminated in the development of a substantive theory "man in the driving seat," which describes the experiences of BA/BC men with CaP and their partners within their context. Culturally informed gender roles and identities influenced how men and partners responded and coped with the side effects of CaP treatment. There was a hierarchy of power within the BA/BC relationship, in which men were dominantly positioned as leaders, whilst partners mostly operated from a supportive but "accepting" position. CONCLUSION: Inclusive and culturally sensitive individual and couple-focused psychosocial support, which is devoid of stereotyping and recognises the experiences of both BA/BC men and their partners is recommended.


Subject(s)
Black People , Health Knowledge, Attitudes, Practice , Masculinity , Prostatic Neoplasms , Spouses , Adult , Aged , Black People/ethnology , Black People/psychology , Caribbean Region/ethnology , Focus Groups , Grounded Theory , Health Knowledge, Attitudes, Practice/ethnology , Humans , Male , Middle Aged , Prostatic Neoplasms/ethnology , Prostatic Neoplasms/psychology , Prostatic Neoplasms/therapy , Qualitative Research , Spouses/ethnology , Spouses/psychology , United Kingdom/ethnology
2.
Eur J Cancer Care (Engl) ; 28(2): e12977, 2019 Mar.
Article in English | MEDLINE | ID: mdl-30548713

ABSTRACT

Access and recruitment barriers may have contributed to the underrepresentation of Black African/Caribbean men and their partners in current psychosocial research related to prostate cancer survivors. Whilst some studies have explored recruitment barriers and facilitators from participants' perspectives, little is known from researchers' point of view. This paper aimed to address this gap in the literature. Recruitment strategies included the following: cancer support groups, researchers' networks, media advertisement, religious organisations, National Health Service hospitals and snowball sampling. Thirty-six eligible participants (men = 25, partners = 11) were recruited into the study. Recruitment barriers comprised of gate-keeping and advertisement issues and the stigma associated with prostate cancer disclosure. Facilitators which aided recruitment included collaborating with National Health Service hospitals, snowball sampling, flexible data collection, building rapport with participants to gain their trust and researcher's attributes. Findings highlight that "hard to reach" Black African/Caribbean populations may be more accessible if researchers adopt flexible but strategic and culturally sensitive recruitment approaches. Such approaches should consider perceptions of stigma associated with prostate cancer within these communities and the influence gatekeepers can have in controlling access to potential participants. Increased engagement with healthcare professionals and gatekeepers could facilitate better access to Black African/Caribbean populations so that their voices can be heard and their specific needs addressed within the healthcare agenda.


Subject(s)
Black People/ethnology , Patient Selection , Prostatic Neoplasms/ethnology , Adolescent , Adult , Advertising , Black or African American/ethnology , Black or African American/psychology , Aged , Black People/psychology , Disclosure , Female , Gatekeeping , Health Services Accessibility , Humans , Interinstitutional Relations , Male , Middle Aged , Patient Acceptance of Health Care/ethnology , Patient Acceptance of Health Care/psychology , Prostatic Neoplasms/psychology , Qualitative Research , Sexual Partners , Stereotyping , West Indies/ethnology , Young Adult
3.
AORN J ; 80(6): 1103-14, 1117-20, 2004 Dec.
Article in English | MEDLINE | ID: mdl-15641664

ABSTRACT

Using a case study approach, researchers conducted a focused exploration of the role of perioperative nurses. Data were collected in three different hospitals during 358 hours of observation and 34 hours of interviews with 35 nurses. Researchers also analyzed nursing documents, including the care plans of 230 patients. Findings show that various contextual mechanisms are influential in the role performance of perioperative nurses. This study highlights the importance of providing adequate support for perioperative nurses to perform their role in an intensely stressful environment. Patient-focused leadership and the promotion of a caring philosophy are needed to strengthen perioperative nursing and, ultimately, improve patient care.


Subject(s)
Nurse's Role , Organizational Culture , Perioperative Nursing/standards , Social Environment , Behavior , Humans , Models, Nursing , Northern Ireland , Nurse-Patient Relations , Organizational Case Studies , Physician-Nurse Relations , State Medicine
4.
Br J Perioper Nurs ; 12(12): 422, 2002 Dec.
Article in English | MEDLINE | ID: mdl-12572395
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