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1.
Aust N Z J Psychiatry ; 58(4): 334-344, 2024 Apr.
Article in English | MEDLINE | ID: mdl-37941361

ABSTRACT

OBJECTIVE: Trauma, social support and stress have been identified as factors which may be associated with the bipolar disorder illness course. However, these are yet to be examined in prospective studies as predictors of illness outcomes and overall quality of life in bipolar disorder. METHOD: One hundred and fourteen participants (N = 97; 85.1% female) living with bipolar disorder I (41.2%) or II (58.8%) completed a semi-structured interview and a range of self-report measures assessing trauma history, social support, perceived stress, depression, anxiety, mania, suicidality, number of mood episodes and quality of life, at baseline and 6-month follow-up. RESULTS: Childhood cumulative trauma, social support and perceived stress accounted for a substantial and significant portion of the variance in quality of life (62%; 23.6%), anxiety severity (34.6%; 24.5%) and depression severity (49.6%; 26.7%), at both baseline and 6-month follow-up. Perceived stress made significant unique contributions to the prediction of all outcomes, and social support made significant unique contributions to depression and quality of life in bipolar disorder. CONCLUSION: Stress and social support play an important role in bipolar disorder and in quality of life for people living with this condition. Given that stress and social support are modifiable risk factors, this provides a promising direction for future intervention-based research.


Subject(s)
Bipolar Disorder , Humans , Child , Female , Male , Quality of Life , Prospective Studies , Affect , Social Support
2.
J Clin Psychol ; 80(3): 692-713, 2024 Mar.
Article in English | MEDLINE | ID: mdl-38277425

ABSTRACT

BACKGROUND: The experience of cumulative trauma may be common in bipolar disorder (BD). However, it is not frequently reported as most studies focus on childhood trauma without examining differences in the amount of trauma experienced. This systematic review aimed to determine the prevalence of lifetime cumulative trauma in BD as well as explore associated illness outcomes. METHODS: A systematic review was completed in accordance with Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines. Both the prevalence and outcomes of cumulative trauma in BD were assessed. Five electronic databases were searched (Embase, MEDLINE, PsycINFO, Web of Science, and PTSD Pubs) for records from January 2010 until December 2022. RESULTS: A total of 20 studies, with 9304 participants were included in the narrative synthesis. At least one-third of BD participants had experienced cumulative trauma, with a prevalence range from 29% to 82%. The main outcomes associated with a history of cumulative trauma were earlier age of onset, longer episode duration, more lifetime mood episodes, greater likelihood of experiencing psychotic features, and higher likelihood of past suicide attempts. LIMITATIONS: This review has been limited by the lack of studies directly assessing cumulative trauma in BD. CONCLUSIONS: Cumulative trauma is prevalent in BD. Preliminary evidence indicates an association with a range of adverse outcomes, emphasizing the need for clinicians to obtain a detailed trauma history and to consider these risks in the management of the disorder. Future studies should report on the prevalence of cumulative trauma, particularly in adulthood as this area remains unexplored.


Subject(s)
Adverse Childhood Experiences , Bipolar Disorder , Humans , Bipolar Disorder/epidemiology , Prevalence , Affect
3.
J Clin Psychol ; 79(4): 1156-1165, 2023 04.
Article in English | MEDLINE | ID: mdl-36449416

ABSTRACT

BACGROUND: Exposure therapy is a core component of the evidence-based treatment of anxiety, obsessive-compulsive disorder (OCD), and posttraumatic stress disorder (PTSD). Despite this, many clinicians fail to use exposure therapy in clinical practice, with research highlighting a number of potential barriers. Those findings raise serious concerns regarding the effective dissemination and delivery of evidence-based treatments that in turn have a major impact on client care and cost-effectiveness of psychological interventions. AIMS: The present study aims to examine barriers to the use of exposure therapy in the clinical practice of Australian psychologists treating anxiety, OCD and PTSD. METHOD: One hundred registered psychologists, aged between 23 and 71 years and 84% female, participated in this study via online survey. RESULTS: Results suggest that the most common barriers to the use of exposure therapy include lack of confidence, negative beliefs about exposure therapy, insufficient underpinning theoretical knowledge, client-specific barriers, and logistical limitations. CONCLUSIONS: Future research may further examine those barriers and the components of additional training and supervision that can increase the uptake of exposure therapy, particularly in clinical areas where it is a gold standard of practice.


Subject(s)
Cognitive Behavioral Therapy , Implosive Therapy , Stress Disorders, Post-Traumatic , Humans , Female , Young Adult , Adult , Middle Aged , Aged , Male , Stress Disorders, Post-Traumatic/therapy , Implosive Therapy/methods , Cognitive Behavioral Therapy/methods , Treatment Outcome , Australia , Anxiety
4.
J Clin Psychol ; 77(9): 1985-1996, 2021 09.
Article in English | MEDLINE | ID: mdl-33655558

ABSTRACT

OBJECTIVES: Bipolar disorder research has primarily focused on clinical outcomes but there is increasing understanding of the importance of personal recovery. This study aimed to explore the relationship between functioning in key social roles including parenting and intimate relationships with personal recovery. METHOD: Participants with bipolar disorder (N = 393) were recruited to participate in an online survey. Participants provided clinical information and completed measures of personal recovery, parental and intimate relationship functioning. RESULTS: Parental functioning and intimate relationship functioning were found to be significantly associated with recovery scores with higher scores being associated with greater recovery. Parental functioning was also found to have a predictive effect, with higher parental functioning predicting greater recovery scores. CONCLUSIONS: This study suggests that greater parental functioning may have an important role in the experience of personal recovery for people living with bipolar disorder. Future studies should further assess how supporting parenting may contribute recovery outcomes.


Subject(s)
Bipolar Disorder , Humans , Interpersonal Relations , Parenting , Parents , Surveys and Questionnaires
5.
BMC Psychiatry ; 20(1): 154, 2020 04 06.
Article in English | MEDLINE | ID: mdl-32252700

ABSTRACT

BACKGROUND: Carers provide both practical and emotional support and often play an important role in coordination of care for recipients. The demands of caring may lead to increased levels of stress for the carer, which can affect mental health and quality of life. This study examined the relationship between being a carer and psychological distress (assessed using the Kessler Psychological Distress Scale [K10]), and explored the moderating effect of social support in that relationship using a large sample. METHODS: The study used data from the 45 and Up study, a large cohort study of individuals aged 45 years and over in New South Wales, Australia, and applied multiple regression methods and moderation analysis. The sample for the current study comprised 267,041 participants drawn from the baseline dataset, with valid data on the primary outcome (carer status). RESULTS: The mean age of participants was 62.73 (±11.18) years, and 4.23% and 7.13% were identified as full-time and part-time carers, respectively. Compared to non-carers, full-time carers had K10 scores that were on average, higher by 1.87, while part-time carers' K10 scores were on average higher by 1.60 points. A perception of social support reduced the strength of the relationship between carer status and psychological distress by 40% for full-time carers and 60% for part-time carers. CONCLUSIONS: The findings have important implications, for both prevention and treatment of psychological problems among carers. In terms of prevention, they suggest that public health campaigns focused on increasing awareness regarding the psychological burden faced by carers would be useful. In terms of intervention, potential treatments that focus on improving social support networks may be helpful. The results are particularly important in the current context of an ageing population in Australian and other developed countries, where caregiving is likely to play an increasing role in the care and support services.


Subject(s)
Caregivers/psychology , Psychological Distress , Quality of Life/psychology , Social Support , Stress, Psychological/epidemiology , Aged , Aged, 80 and over , Australia , Caregivers/statistics & numerical data , Cohort Studies , Female , Humans , Male , Middle Aged , New South Wales
6.
Health Qual Life Outcomes ; 16(1): 75, 2018 Apr 24.
Article in English | MEDLINE | ID: mdl-29690887

ABSTRACT

BACKGROUND: Despite the increasing number of evidence-based research on relational spirituality (RS) and quality of life (QoL) in medical-health research, little is known about the links between RS and QoL outcomes and the mechanisms by which RS aspects are functionally tied to QoL. OBJECTIVE: To determine how RS is perceived/positioned in relation to QoL, we (a) examined recent available data that identify and appraise the links between RS and QoL; (b) identified themes emerging from the association between RS and QoL, and (c) discussed the implications of the effects of RS on QoL outcomes. METHODS: We conducted an integrative research review of English-language peer-reviewed articles published between 2007 to March 2017 which examined an association between RS and QoL, as identified from a search of three databases: PubMed, PsycINFO, and ScienceDirect. RESULTS: A total of 20 studies were analysed. Of these, twelve (60%) reported positive association between RS and QoL, three (15%) studies reported inverse associations, whereas five (25%) studies showed evidence of lack of association (with two out of the five studies showing an indirect association). Physical health and psychological functioning were the most researched domains of QoL, and some studies suggest an attachment-based model of RS in the last 10 years of RS and QoL research. Studies conducted with participants with serious illnesses ranging from dementia, cardiac arrest, and breast cancer reported no association between RS and physical health. Our review shows evidence of both the direct and/or indirect effects of RS on QoL as a possible spiritual coping model for complementary alternative health therapy, albeit occurring through several religious-related psychosocial conduits. CONCLUSION AND IMPLICATION: RS appears to be associated with health benefits as indicated across QoL domains. General medical practitioners and other healthcare agencies could benefit from the understanding that a spiritual coping model could aid their patients, and therefore their clinical practices, in the healing process.


Subject(s)
Adaptation, Psychological , Attitude to Health , Quality of Life/psychology , Spirituality , Adult , Aged , Aged, 80 and over , Female , Humans , Male , Middle Aged
7.
Bipolar Disord ; 19(6): 434-443, 2017 09.
Article in English | MEDLINE | ID: mdl-28796389

ABSTRACT

OBJECTIVES: Menopause may be a time of increased mood symptoms for some women. This systematic review aimed to examine the severity of symptoms and prevalence of mood changes in women with bipolar disorder during peri-menopause and post-menopause. METHODS: A systematic review was undertaken in accordance with Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines. The two primary outcomes assessed were relapse rates and symptom severity during menopause. Databases searched were MEDLINE, EMBASE, PsychInfo, CINAHL and SCOPUS from January 1980 until December 2016. RESULTS: Nine studies, including a total of 273 participants diagnosed with bipolar disorder and who reported menopause, were included in the narrative synthesis. Menopause was reported to be associated with increased symptoms overall, and with depression in particular (range of 46%-91%). The collection of self-reported retrospective data was the most commonly used method to record menopause status. CONCLUSIONS: The impact of menopause on illness course for women with bipolar disorder is largely under-explored. Preliminary evidence suggests that it may be associated with increased bipolar symptoms. Further work is needed to explore how menopause may interact with bipolar disorder over time and the nature of these symptom changes, and if and how menopause may differ from other reproductive stages.


Subject(s)
Bipolar Disorder , Depression , Menopause/psychology , Bipolar Disorder/diagnosis , Bipolar Disorder/physiopathology , Depression/diagnosis , Depression/etiology , Disease Progression , Female , Humans , Qualitative Research
8.
BMC Psychiatry ; 17(1): 166, 2017 05 04.
Article in English | MEDLINE | ID: mdl-28472936

ABSTRACT

BACKGROUND: Multi-morbidity in older adults is commonly associated with depressed mood. Similarly, subjective reports of pain are also associated with both physical illness and increased depressive symptoms. However, whether pain independently contributes to the experience of depression in older people with multi-morbidity has not been studied. METHODS: In this study, participants were 1281 consecutive older adults presenting to one of 19 primary care services in Australia (recruitment rate = 75%). Participants were asked to indicate the presence of a number of common chronic illnesses, to rate their current pain severity and to complete the Geriatric Depression Scale. RESULTS: Results confirmed that the number of medical illnesses reported was strongly associated with depressive symptoms. Twenty-six percent of participants with multi-morbidity scored in the clinical range for depressive symptoms in comparison to 15% of participants with no illnesses or a single illness. In regression analyses, the presence of chronic pain (t = 5.969, p < 0.0005), diabetes (t = 4.309, p < 0.0005), respiratory (t = 3.720, p < 0.0005) or neurological illness (t = 2.701, p = 0.007) were all independent contributors to depressive symptoms. Even when controlling for each individual illness, and the overall number of illnesses (t = 2.207, p = 0.028), pain severity remained an independent predictor of depressed mood (F change = 28.866, p < 0.0005, t = 5.373, p < 0.0005). CONCLUSIONS: Physicians should consider screening for mood problems amongst those with multi-morbidity, particularly those who experience pain.


Subject(s)
Depressive Disorder/psychology , Pain, Intractable , Aged , Aged, 80 and over , Australia , Female , Health Services for the Aged , Humans , Male , Multimorbidity , Regression Analysis , Severity of Illness Index , Visual Analog Scale
9.
Aust N Z J Psychiatry ; 51(2): 161-167, 2017 Feb.
Article in English | MEDLINE | ID: mdl-27687774

ABSTRACT

OBJECTIVE: Although there is clear evidence that reproductive cycle events are associated with mood episodes for women with bipolar disorder, few studies have examined for relationships between these and specific clinical characteristics of the disorder. This study aimed to explore the relationship between mood symptoms associated with reproductive cycle events and features of the disorder indicative of a more severe lifetime course. METHOD: Totally, 158 women of at least 18 years of age participated in the study. Subjects were recruited through a specialist clinic at the Black Dog Institute, Sydney, Australia. RESULTS: In total, 77% of women reported increases in mood symptoms during perimenstrual, postnatal or menopausal periods. These women had an earlier age of onset for depressive and hypo/manic episodes and a greater likelihood of comorbid anxiety disorders, rapid cycling and mixed mood compared to those who did not report such reproductive cycle-associated mood changes. Women who experienced postnatal episodes were also more likely to experience worse mood symptoms perimenstrually and menopausally. CONCLUSION: First, reproductive cycle event-related worsening of mood was associated with a more severe lifetime course of bipolar disorder, and, second, it appears that some women have a greater propensity to mood worsening at each of these reproductive cycle events. If replicated, these findings provide important information for clinicians treating women with reproductive cycle event mood changes and highlight the need for improved therapeutics for such presentations.


Subject(s)
Bipolar Disorder/physiopathology , Menopause , Menstruation , Postpartum Period , Adult , Aged , Female , Humans , Middle Aged , Young Adult
10.
Am J Geriatr Psychiatry ; 24(1): 11-17, 2016 Jan.
Article in English | MEDLINE | ID: mdl-26743100

ABSTRACT

OBJECTIVE: To test the hypothesis that Problem Solving Therapy (PST) is more effective than Supportive Therapy (ST) in reducing suicidal ideation in older adults with major depression and executive dysfunction. We further explored whether patient characteristics, such as age, sex, and additional cognitive impairment load (e.g., memory impairments) were related to changes in suicidal ideation over time. DESIGN: Secondary data analysis using data from a randomized clinical trial allocating participants to PST or ST at 1:1 ratio. Raters were blind to patients' assignments. SETTING: University medical centers. PARTICIPANTS: 221 people aged 65 years old and older with major depression determined by Structured Clinical Interview for DSM-III-R diagnosis and executive dysfunction as defined by a score of 33 or less on the Initiation-Perseveration Score of the Mattis Dementia Rating Scale or a Stroop Interference Task score of 25 or less. INTERVENTIONS: 12 weekly sessions of PST or ST. MAIN OUTCOME MEASURES: The suicide item of the Hamilton Depression Rating Scale. RESULTS: Of the 221 participants, 61% reported suicidal ideation (SI). The ST group had a lower rate of improvement in SI after 12 weeks (44.6%) than did the PST group (60.4%, Fisher's exact test p = 0.031). Logistic regression showed significantly greater reductions in SI in elders who received PST at both 12 weeks (OR: .50, Z = -2.16, p = 0.031) and 36 weeks (OR: 0.5, Z = -1.96, p = 0.05) after treatment. CONCLUSIONS: PST is a promising intervention for older adults who are at risk for suicide. ClinicalTrials.gov Identifier: NCT00052091.


Subject(s)
Depressive Disorder, Major/psychology , Depressive Disorder, Major/therapy , Problem Solving , Psychotherapy/methods , Suicidal Ideation , Aged , Aged, 80 and over , Cognition Disorders/psychology , Diagnostic and Statistical Manual of Mental Disorders , Executive Function , Female , Humans , Male , Middle Aged , Psychiatric Status Rating Scales , Treatment Outcome
11.
Health Qual Life Outcomes ; 14: 14, 2016 Jan 25.
Article in English | MEDLINE | ID: mdl-26810328

ABSTRACT

BACKGROUND: Adolescence is a significant developmental stage marked by physical, psychological and social changes. While adolescents are generally perceived to be healthy, this stage of development is also associated with an emergence of risk factors that may have long-term consequences for their wellbeing. The aim of this study was to assess health related quality of life (HRQoL), and possible gender and age differences, in a sample of secondary school-aged adolescents over a three-year time period. METHODS: Australian adolescents (n = 403, aged 12-15 at baseline) across six New South Wales high schools completed the KIDSCREEN-27 Questionnaire at three time points. The KIDSCREEN-27 measures five HRQoL domains (physical wellbeing, psychological wellbeing, autonomy and parents relations, social support and peers, and school environment). Mixed-between-within-subjects ANOVA analyses were employed to examine HRQoL over time and across age and gender. RESULTS: HRQoL rates were comparable to the European-based KIDSCREEN norms with the exception of psychological wellbeing, which was considerably lower in this study's sample. Over time, for the total sample, there were significant changes on only one of the five dimensions (social support and peers). However, gender differences were found to be significant across three dimensions (physical wellbeing, psychological wellbeing, and autonomy and parents relations), with females reporting lower scores than males (i.e. lower HRQoL). Females' scores also declined over the three time points across two of the five HRQoL dimensions (social support and peers, and school environment), indicating reductions in HRQoL over time. Age differences were found across all but one dimension (autonomy and parents relations). CONCLUSIONS: Although statistically significant, the changes in HRQoL may not be clinically significant, as the effect sizes were small and therefore those changes would not be readily noticeable. Those changes, however, suggest that, while HRQoL is predominantly stable over time, fluctuations and declines, such as those found for females, may be early indicators of physical and psychological vulnerabilities. If such vulnerabilities are detected timely; they may be addressed with preventative measures or appropriate interventions.


Subject(s)
Adolescent Behavior/psychology , Mental Disorders/psychology , Parents/psychology , Quality of Life/psychology , Adolescent , Age Factors , Child , Female , Humans , Longitudinal Studies , Male , New South Wales , Peer Group , Risk Factors , Schools , Sex Factors , Social Support , Surveys and Questionnaires , Time Factors
12.
Infant Ment Health J ; 37(3): 302-12, 2016 05.
Article in English | MEDLINE | ID: mdl-27111339

ABSTRACT

Universal screening for maternal depression and assessment of psychosocial risks has been integrated into the routine perinatal care provided in many Australian hospitals, but to date, partners/fathers have been largely excluded from the process. This study explored the ways in which clinicians in health service settings include partners who attend antenatal and postnatal visits with women. Qualitative data were collected using observations (n = 54), interviews (n = 60), and discussion groups (n = 7) with midwives and child and family health nurses who conducted the appointments. Transcripts from observations, interviews, and discussion groups underwent qualitative analysis, and key themes were identified. Results showed partners to have little or no involvement in psychosocial assessment and depression screening. Thematic analysis revealed four key themes: negotiating partner exclusion, partial inclusion, women's business or a couple concern? and they know anyway. Partner involvement appeared to be challenged particularly by mandatory interpersonal violence screening, which, according to health service policy, is to be conducted confidentially. Overall, results highlighted partner involvement in perinatal depression screening and psychosocial assessment processes and identified some of the benefits such as partner disclosure, but also the challenges and complexities of inclusion of partners. Clinical implications and directions for further education and research are discussed.


Subject(s)
Depression, Postpartum/diagnosis , Family Nursing , Mental Disorders/diagnosis , Midwifery , Postnatal Care , Puerperal Disorders/diagnosis , Spouses , Adult , Anthropology, Cultural , Female , Humans , Interviews as Topic , Male , Nurses, Pediatric , Pregnancy , Spouses/psychology
13.
Qual Life Res ; 24(12): 2933-8, 2015 Dec.
Article in English | MEDLINE | ID: mdl-26063169

ABSTRACT

PURPOSE: The primary purpose of this study was to profile the health-related quality of life (HRQoL) in a sample of secondary school-aged children in Australia. The secondary purpose was to contribute to the international literature on the HRQoL of adolescents using the KIDSCREEN instrument. METHODS: The KIDSCREEN-27 Questionnaire was completed by 1111 adolescents aged between 11 and 17 from six Australian secondary schools. MANCOVA analysis was employed to examine age and gender differences. RESULTS: Over 70 % of participants reported high levels of HRQoL across all five dimensions. Age patterns were identified with younger adolescents reporting greater HRQoL than older adolescents. Similarly, gender differences were noted with male adolescents reporting higher scores than female adolescents on three out of five dimensions of HRQoL. CONCLUSIONS: This is the first study to measure HRQoL in Australian adolescents using the KIDSCREEN instrument. Consistent with previous research, gender and age differences were found across most dimensions of HRQoL. These results highlight the importance of comprehensively measuring the HRQoL in adolescents to capture developmental shifts and to inform preventative and supportive programs as needed.


Subject(s)
Quality of Life/psychology , Adolescent , Age Factors , Australia , Child , Female , Humans , Male , Sex Characteristics , Surveys and Questionnaires
14.
Arthritis Care Res (Hoboken) ; 76(2): 171-180, 2024 Feb.
Article in English | MEDLINE | ID: mdl-37779491

ABSTRACT

OBJECTIVE: Many studies have reported high rates of anxiety in adults with rheumatoid arthritis (RA). The aim of this systematic review was to examine those findings and determine the overall prevalence, severity, and commonly used measures of anxiety in individuals with RA. METHODS: Six databases were searched from January 2000 without restrictions on language/location, study design, or gray literature. All identified studies that examined anxiety prevalence and severity in adults with RA, as assessed with clinical diagnostic interview and/or standardized self-report measures, were considered for inclusion. Quality assessment of included studies was conducted using a modified Newcastle-Ottawa Evaluation Scale, and the findings were synthesized via a narrative approach. RESULTS: Across the 47 studies (n = 11,085 participants), the sample size ranged from 60 to 1,321 participants with seven studies including healthy controls or groups with other health conditions. The studies were conducted across 23 countries, and anxiety prevalence ranged from 2.4% to 77%, predominantly determined with standardized self-report measures, of which Hospital Anxiety and Depression scale was used most frequently; only eight studies used a clinical diagnostic interview to confirm a specific anxiety diagnosis. Notable associations with anxiety in RA were physical disability, pain, disease activity, depression, and quality of life. CONCLUSION: The reported prevalence of anxiety in RA varied widely potentially because of use of different self-report measures and cutoff points. Such cutoff points will need to be standardized to clinical thresholds to inform appropriate interventions for anxiety comorbidity in RA.


Subject(s)
Arthritis, Rheumatoid , Quality of Life , Adult , Humans , Prevalence , Arthritis, Rheumatoid/diagnosis , Arthritis, Rheumatoid/epidemiology , Anxiety/diagnosis , Anxiety/epidemiology , Comorbidity , Depression/diagnosis , Depression/epidemiology
15.
Semin Arthritis Rheum ; 65: 152381, 2024 Apr.
Article in English | MEDLINE | ID: mdl-38306813

ABSTRACT

OBJECTIVE: To gain consensus on the definitions and descriptions of the domains of the Outcome Measures in Rheumatology (OMERACT) core domain set for rheumatology trials evaluating shared decision making (SDM) interventions. METHODS: Following the OMERACT Handbook methods, our Working Group (WG), comprised of 90 members, including 17 patient research partners (PRPs) and 73 clinicians and researchers, had six virtual meetings in addition to email exchanges to develop draft definitions and descriptions. The WG then conducted an international survey of its members to gain consensus on the definitions and descriptions. Finally, the WG members had virtual meetings and e-mail exchanges to review survey results and finalize names, definitions and descriptions of the domains. RESULTS: WG members contributed to developing the definitions. Fifty-two members representing four continents and 13 countries completed the survey, including 15 PRPs, 33 clinicians and 37 researchers. PRPs and clinicians/researchers agreed with all definitions and descriptions with agreements ranging from 87% to 100%. Respondents suggested wording changes to the names, definitions and descriptions to better reflect the domains. Discussions led to further simplification and clarification to address common questions/concerns about the domains. CONCLUSION: Our WG reached consensus on the definitions and descriptions of the domains of the core domain set for rheumatology trials of SDM interventions. This step is crucial to understand each domain and provides the foundation to identify instruments to measure each domain for inclusion in the Core Outcome Measurement Set. CLINICAL SIGNIFICANCE: The current study provides consensus-based definitions and descriptions for the domains of the OMERACT core domain set for shared decision making interventions from patients/caregivers, clinicians and researchers. This is a crucial step to understand each domain and provides the foundation to identify instruments to measure each domain for inclusion in the Core Outcome Measurement Set for trials of SDM interventions.


Subject(s)
Rheumatology , Humans , Consensus , Decision Making, Shared , Outcome Assessment, Health Care
16.
BMC Psychiatry ; 13: 4, 2013 Jan 03.
Article in English | MEDLINE | ID: mdl-23286337

ABSTRACT

BACKGROUND: Engagement in Deliberate Self-Harm (DSH) is commonly measured by behavioural scales comprised of specific methods of self-harm. However, there is a scarcity of information about the degree to which the methods relate to the same DSH construct although such scales are routinely used to provide a DSH total score. This study addresses the shortfall by evaluating the dimensionality of six commonly used behavioural measures of DSH. METHODS: The DSH measures were Self-Injury Questionnaire Treatment Related (SIQTR), Self-Injurious Thoughts and Behaviors Interview (SITBI), Deliberate Self-Harm Inventory (DSHI), Inventory of Statements About Self-Injury (ISAS), Self-Harm Information Form (SHIF) and Self-Harm Inventory (SHI). The behavioural scales contained in each measure were administered to 568 young Australians aged 18 to 30 years (62% university students, 21% mental health patients, and 17% community members). Scale quality was examined against the stringent standards for unidimensional measurement provided by the Rasch model. RESULTS: According to the stringent post-hoc tests provided by the Rasch measurement model, there is support for the unidimensionality of the items contained within each of the scales. All six scales contained items with differential item functioning, four scales contained items with local response dependency, and one item was grossly misfitting (due to a lack of discrimination). CONCLUSIONS: This study supports the use of behavioural scales to measure a DSH construct, justifies the summing of items to form a total DSH score, informs the hierarchy of DSH methods in each scale, and extends the previous evidence for reliability and external validity (as provided by test developers) to a more complete account of scale quality. Given the overall adequacy of all six scales, clinicians and researchers are recommended to select the scale that best matches their adopted definition of DSH.


Subject(s)
Psychiatric Status Rating Scales , Self-Injurious Behavior/diagnosis , Adolescent , Adult , Female , Humans , Interview, Psychological , Male , Psychiatric Status Rating Scales/standards , Psychiatric Status Rating Scales/statistics & numerical data , Psychometrics , Reproducibility of Results , Self-Injurious Behavior/psychology , Surveys and Questionnaires , Young Adult
17.
BMC Womens Health ; 13: 18, 2013 Apr 09.
Article in English | MEDLINE | ID: mdl-23570282

ABSTRACT

BACKGROUND: There is increasing recognition of the need to identify risk factors for poor mental health in pregnancy and following birth. In New South Wales, Australia, health policy mandates psychosocial assessment and depression screening for all women at the antenatal booking visit and at six to eight weeks after birth. Few studies have explored in-depth women's experience of assessment and how disclosures of sensitive information are managed by midwives and nurses. This paper describes women's experience of psychosocial assessment and depression screening examining the meaning they attribute to assessment and how this influences their response. METHODS: This qualitative ethnographic study included 34 women who were observed antenatally in the clinic with 18 midwives and 20 of the same women who were observed during their interaction with 13 child and family health nurses after birth in the home or the clinic environment. An observational tool, 4D&4R, together with field notes was used to record observations and were analysed descriptively using frequencies. Women also participated in face to face interviews. Field note and interview data was analysed thematically and similarities and differences across different time points were identified. RESULTS: Most participants reported that it was acceptable to them to be asked the psychosocial questions however they felt unprepared for the sensitive nature of the questions asked. Women with a history of trauma or loss were distressed by retelling their experiences. Five key themes emerged. Three themes; 'Unexpected: a bit out of the blue', 'Intrusive: very personal questions' and 'Uncomfortable: digging over that old ground', describe the impact that assessment had on women. Women also emphasised that the approach taken by the midwife or nurse during assessment influenced their experience and in some cases what they reported. This is reflected in the themes titled: APPROACH: 'sensitivity and care' and 'being watched'. CONCLUSIONS: The findings emphasise the need for health services to better prepare women for this assessment prior to and after birth. It is crucial that health professionals are educationally prepared for this work and receive ongoing training and support in order to always deliver care that is empathetic and sensitive to women who are disclosing personal information.


Subject(s)
Depression, Postpartum/diagnosis , Depression/diagnosis , Parturition/psychology , Pregnancy Complications/diagnosis , Prenatal Diagnosis/psychology , Privacy/psychology , Surveys and Questionnaires , Adult , Depression/prevention & control , Depression, Postpartum/prevention & control , Female , Humans , Longitudinal Studies , Midwifery , New South Wales , Pregnancy , Pregnancy Complications/prevention & control , Program Evaluation , Risk Factors , Social Support
18.
BMC Health Serv Res ; 13: 133, 2013 Apr 08.
Article in English | MEDLINE | ID: mdl-23565716

ABSTRACT

BACKGROUND: There is growing recognition internationally of the need to identify women with risk factors for poor perinatal mental health in pregnancy and following birth. In the state of New South Wales, Australia the Supporting Families Early policy provides a framework of assessment and support for women and families and includes routine psychosocial assessment and depression screening. This study investigated the approach taken by Child and Family Health Nurses (CFHNs) following birth to assessment and screening as recommended by state policy. This was a qualitative ethnographic study that included 83 CFHN and 20 women. Observations occurred with thirteen nurses; with 20 women, in the home or the clinic environment. An additional 70 nurses participated in discussion groups. An observational tool (4D&4R) and field notes were used to record observations and analysed descriptively using frequencies. Field notes, interview data and discussion group transcripts were analysed thematically. METHODS: This was a qualitative ethnographic study that included 83 CFHN and 20 women. Observations occurred with thirteen nurses; with 20 women, in the home or the clinic environment. An additional 70 nurses participated in discussion groups. An observational tool (4D&4R) and field notes were used to record observations and analysed descriptively using frequencies. Field notes, interview data and discussion group transcripts were analysed thematically. RESULTS: CFHNs demonstrated a range of approaches to assessment and screening. Psychosocial assessment was conducted in 50% (10 out of the 20) of the interactions observed; however, all the women were screened using the Edinburgh Depression Scale. Four major themes that represent the approach taken to the assessment process were identified: 'Engagement: getting that first bit right', 'Doing some paperwork', 'Creating comfort' and 'Psychosocial assessment: doing it another way'. Nurses utilised other skills such as observing the women interacting with their baby, taking note of non verbal communication and using intuition to develop a clinical decision. CONCLUSION: Overall, nurses' took a sensitive and caring approach to assessment and screening, however, there were differences in interpretations of the policy recommendations across the two sites. Nurses adopt a flexible, relationship-based approach to the assessment process; however, they experience tension when required to incorporate structured psychosocial assessment processes. To undertake assessment and screening effectively, CFHNs require ongoing support, training and supervision to maintain this sensitive and emotionally challenging work.


Subject(s)
Depression, Postpartum/diagnosis , Family Nursing , Health Policy , Nurse-Patient Relations , Nursing Process/standards , Postnatal Care/standards , Adult , Depression/diagnosis , Depression/psychology , Depression, Postpartum/psychology , Domestic Violence/psychology , Family Nursing/methods , Female , Humans , Middle Aged , Negotiating , New South Wales , Pregnancy , Psychiatric Status Rating Scales , Risk Factors , Social Support
19.
Nurse Res ; 20(5): 11-9, 2013 May.
Article in English | MEDLINE | ID: mdl-23687844

ABSTRACT

AIM: To report on the development of an observation tool that can help a single researcher to collect field data about clinician and client interactions. BACKGROUND: Qualitative studies from a range of disciplines investigate the dynamics of interactions between clinicians and clients. These studies share and report findings but rarely provide details on the practical challenges and methods involved in managing such interactions when collecting rich ethnographic data. REVIEW METHODS: Development of the observational tool was informed by the study's requirements and context, previous research, and the authors cross-disciplinary knowledge and experience. DISCUSSION: In relation to how clinicians interact with clients and how clients respond, four domains have been identified and integrated into the observational tool. These domains act as prompts during observations of interactions between clients and nurses. Use of the tool has indicated its effectiveness in assisting with observations and the recording of field notes. CONCLUSION: The article shows how to develop a tool for qualitative field-data collection. The method can be adapted to studies that require observations of interactions and its components can be modified to suit their fields of study. IMPLICATIONS FOR PRACTICE OR RESEARCH: The 4D&4R tool discussed in this article provides indicators of clinician-client interactions and is transferable to other research and practice contexts


Subject(s)
Data Collection/methods , Nurse-Patient Relations , Nursing Methodology Research/methods , Qualitative Research , Researcher-Subject Relations , Australia , Humans
20.
J Pers Disord ; 37(6): 691-723, 2023 Nov.
Article in English | MEDLINE | ID: mdl-38038659

ABSTRACT

This systematic review aimed to explore social and occupational functioning levels in individuals with BPD and whether this varies according to symptomatic status, age, or gender. A multi-database search was conducted for articles, and of the 1164 records identified, 19 were included in this review. Of the 15 studies reporting on social functioning, 13 indicated significant levels of impairment, and of the 14 studies reporting on global functioning, all indicated significant impairment across both clinical and in-remission populations. Occupational functioning was primarily assessed as either a part of global functioning or by subscales within social functioning, highlighting a lack of use of dedicated measures for its assessment. This systematic review found that individuals with BPD experience a range of significant impairments in functioning persisting across the lifespan. Further studies are warranted to explore levels of functional impairment across all functional domains and factors associated with continual functional impairment in this population.


Subject(s)
Borderline Personality Disorder , Humans , Borderline Personality Disorder/epidemiology , Social Adjustment , Longitudinal Studies
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