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Future Oncol ; 20(9): 547-561, 2024 Mar.
Article in English | MEDLINE | ID: mdl-38197386

ABSTRACT

Aims: To characterize Black, Indigenous and People of Color (BIPOC) adolescent and young adult (AYA) cancer patients' experiences of patient engagement in AYA oncology and derive best practices that are co-developed by BIPOC AYAs and oncology professionals. Materials & methods: Following a previous call to action from AYA oncology professionals, a panel of experts composed exclusively of BIPOC AYA cancer patients (n = 32) participated in an electronic Delphi study. Results: Emergent themes described BIPOC AYA cancer patients' direct experiences and consensus opinion on recommendations to advance antiracist patient engagement from BIPOC AYA cancer patients and oncology professionals. Conclusion: The findings reveal high-priority practices across all phases of research and are instructional for advancing health equity.


Subject(s)
Neoplasms , Patient Participation , Humans , Adolescent , Young Adult , Delphi Technique , Medical Oncology , Neoplasms/therapy
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