Search details
1.
Direct costs of adhering to selected Duchenne muscular dystrophy Care Considerations: Estimates from a midwestern state.
Muscle Nerve
; 65(5): 574-580, 2022 05.
Article
in English
| MEDLINE | ID: mdl-35064961
2.
Time to diagnosis of Duchenne muscular dystrophy remains unchanged: Findings from the Muscular Dystrophy Surveillance, Tracking, and Research Network, 2000-2015.
Muscle Nerve
; 66(2): 193-197, 2022 08.
Article
in English
| MEDLINE | ID: mdl-35312090
3.
Association of genetic mutations and loss of ambulation in childhood-onset dystrophinopathy.
Muscle Nerve
; 63(2): 181-191, 2021 02.
Article
in English
| MEDLINE | ID: mdl-33150975
4.
Gender difference in clinical conditions among hospitalized adults with myotonic dystrophy.
Muscle Nerve
; 59(3): 348-353, 2019 03.
Article
in English
| MEDLINE | ID: mdl-30575975
5.
Clinical Follow-Up for Duchenne Muscular Dystrophy Newborn Screening: A Proposal.
Muscle Nerve
; 54(2): 186-91, 2016 08.
Article
in English
| MEDLINE | ID: mdl-27170260
6.
Hospitalizations and emergency room visits for adolescents and young adults with muscular dystrophy living in South Carolina.
Muscle Nerve
; 52(5): 714-21, 2015 Nov.
Article
in English
| MEDLINE | ID: mdl-25665090
7.
Evidence-based path to newborn screening for Duchenne muscular dystrophy.
Ann Neurol
; 71(3): 304-13, 2012 Mar.
Article
in English
| MEDLINE | ID: mdl-22451200
8.
Reproductive patterns among mothers of males diagnosed with Duchenne or Becker muscular dystrophy.
Am J Med Genet A
; 161A(1): 70-5, 2013 Jan.
Article
in English
| MEDLINE | ID: mdl-23239595
9.
Severe Legionella and Histoplasma Pneumonia Acquired From Spring Water.
Cureus
; 15(2): e34765, 2023 Feb.
Article
in English
| MEDLINE | ID: mdl-36909126
10.
Multi-Laboratory Evaluation of Prototype Dried Blood Spot Quality Control Materials for Creatine Kinase-MM Newborn Screening Assays.
Int J Neonatal Screen
; 9(1)2023 Feb 28.
Article
in English
| MEDLINE | ID: mdl-36975851
11.
Differentiation of Pediatric-Onset Duchenne and Becker Muscular Dystrophy Subphenotypes Using Data from the Muscular Dystrophy Surveillance Tracking and Research Network (MD STARnet).
J Neuromuscul Dis
; 9(1): 171-178, 2022.
Article
in English
| MEDLINE | ID: mdl-34776418
12.
Characteristics of Clinical Trial Participants with Duchenne Muscular Dystrophy: Data from the Muscular Dystrophy Surveillance, Tracking, and Research Network (MD STARnet).
Children (Basel)
; 8(10)2021 Sep 23.
Article
in English
| MEDLINE | ID: mdl-34682100
13.
Characterization of individuals with selected muscular dystrophies from the expanded pilot of the Muscular Dystrophy Surveillance, Tracking and Research Network (MD STARnet) in the United States.
Birth Defects Res
; 113(7): 560-569, 2021 04 15.
Article
in English
| MEDLINE | ID: mdl-32710484
14.
Using an Online, Modified Delphi Approach to Engage Patients and Caregivers in Determining the Patient-Centeredness of Duchenne Muscular Dystrophy Care Considerations.
Med Decis Making
; 39(8): 1019-1031, 2019 11.
Article
in English
| MEDLINE | ID: mdl-31722623
15.
Diagnostic Accuracy of Phenotype Classification in Duchenne and Becker Muscular Dystrophy Using Medical Record Data1.
J Neuromuscul Dis
; 5(4): 481-495, 2018.
Article
in English
| MEDLINE | ID: mdl-30320597
16.
Evaluating Implementation of the Updated Care Considerations for Duchenne Muscular Dystrophy.
Pediatrics
; 142(Suppl 2): S118-S128, 2018 10.
Article
in English
| MEDLINE | ID: mdl-30275256
17.
Muscular Dystrophy Surveillance, Tracking, and Research Network pilot: Population-based surveillance of major muscular dystrophies at four U.S. sites, 2007-2011.
Birth Defects Res
; 110(19): 1404-1411, 2018 11 15.
Article
in English
| MEDLINE | ID: mdl-30070776
18.
Diagnosis and management of Duchenne muscular dystrophy, part 1: diagnosis, and neuromuscular, rehabilitation, endocrine, and gastrointestinal and nutritional management.
Lancet Neurol
; 17(3): 251-267, 2018 03.
Article
in English
| MEDLINE | ID: mdl-29395989
19.
Diagnosis and management of Duchenne muscular dystrophy, part 3: primary care, emergency management, psychosocial care, and transitions of care across the lifespan.
Lancet Neurol
; 17(5): 445-455, 2018 05.
Article
in English
| MEDLINE | ID: mdl-29398641
20.
Secondary Conditions Among Males With Duchenne or Becker Muscular Dystrophy.
J Child Neurol
; 32(7): 663-670, 2017 Jun.
Article
in English
| MEDLINE | ID: mdl-28393671