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1.
BJOG ; 128(4): 676-684, 2021 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-32935467

RESUMEN

OBJECTIVE: To explore fetal medicine specialists' experiences of caring for parents following a diagnosis of fatal fetal anomaly (FFA) during the implementation of termination of pregnancy (TOP) for FFA for the first time. DESIGN: Qualitative study. SETTING: Fetal medicine units in the Republic of Ireland. POPULATION: Ten fetal medicine specialists from five of the six fetal medicine units. METHODS: nvivo 12 assisted in the thematic analysis of semi-structured in-depth face-to-face interviews. MAIN OUTCOME MEASURES: Fetal medicine specialists' experiences of prenatal diagnosis and holistic management of pregnancies complicated by FFA. RESULTS: Four themes were identified: 'not fatal enough', 'interactions with colleagues', 'supporting pregnant women' and 'internal conflict and emotional challenges'. Fetal medicine specialists feared getting an FFA diagnosis incorrect because of media scrutiny and criminal liability associated with the TOP for FFA legislation. Challenges with the ambiguous and 'restrictive' legislation were identified that 'ostracised' severe anomalies. Teamwork was essential to facilitate opportunities for learning and peer support; however, conflict with colleagues was experienced regarding the diagnosis of FFA, the provision of feticide and palliative care to infants born alive following TOP for FFA. Participants reported challenges implementing TOP for FFA, including the absence of institutional support and 'stretched' resources. Fetal medicine specialists experienced internal conflict and a psychological burden providing TOP for FFA, but did so to 'provide full care for women'. CONCLUSIONS: Our study identified challenges regarding the suitability of the Irish legislation for TOP for FFA and its rapid introduction into clinical practice. It illustrates the importance of institutional and peer support, as well as the need for supportive management, in the provision of a new service. TWEETABLE ABSTRACT: The implementation of termination services for fatal fetal anomaly is complex and requires institutional support.


Asunto(s)
Aborto Eugénico , Actitud del Personal de Salud , Anomalías Congénitas , Perinatología , Atención Prenatal , Relaciones Profesional-Paciente , Aborto Eugénico/ética , Aborto Eugénico/psicología , Femenino , Humanos , Relaciones Interprofesionales , Entrevistas como Asunto , Irlanda , Perinatología/ética , Embarazo , Atención Prenatal/ética , Atención Prenatal/organización & administración , Atención Prenatal/psicología , Relaciones Profesional-Paciente/ética , Investigación Cualitativa
2.
J Perinat Med ; 49(7): 837-846, 2021 Sep 27.
Artículo en Inglés | MEDLINE | ID: mdl-33882202

RESUMEN

Brain injury of the surviving twin from monochorionic pregnancies following intrauterine fetal demise during the second and third trimesters is a rare but severe complication. Monochorionicity and gestational age at the time of stillbirth seem to be decisive factors in terms of long-term neurologic outcome prediction for the survivor. Magnetic resonance imaging (MRI), diffusion weighted imaging (DWI) in particular, seem to bring the earliest and most accurate diagnosis. Ultrasound detection of brain damage is possible in later stages of fetal brain injury. It is essential to provide early diagnosis and multidisciplinary counsel to the parents to ensure informed decision making. For couples who choose to terminate pregnancy legislation related to late abortion might lead to further distress. Our paper aims to stress the importance of MRI DWI in the evaluation of surviving twins following single intrauterine fetal demise in monochorionic pregnancies and the delicate context of the medical professionals and parents facing this clinical situation, sometimes complicated by legal constraints.


Asunto(s)
Aborto Eugénico/legislación & jurisprudencia , Lesiones Encefálicas/diagnóstico por imagen , Enfermedades en Gemelos/diagnóstico por imagen , Muerte Fetal , Diagnóstico Prenatal/métodos , Gemelos Monocigóticos , Aborto Eugénico/ética , Aborto Eugénico/psicología , Toma de Decisiones , Imagen de Difusión por Resonancia Magnética , Femenino , Salud Global , Humanos , Padres/psicología , Embarazo , Embarazo Gemelar , Ultrasonografía Prenatal
3.
Sex Health ; 17(1): 77-86, 2020 02.
Artículo en Inglés | MEDLINE | ID: mdl-31958397

RESUMEN

Background Research focused on adolescents' attitudes towards abortion is limited, and validated scales are not routinely used. A greater understanding of adolescents' attitudes towards abortion could better inform the sexuality education strategies targeted at this age group. METHODS: A cross-sectional survey was completed by 1470 adolescents (437 males, 1033 females) aged 12-19 years and living in Perth, Australia. Participants were recruited from secondary schools, antenatal clinics and termination clinics to capture varying experiences of sexual activity and pregnancy. Survey items investigated abortion attitudes, sexual behaviour and pregnancy history alongside other demographic and psychosocial factors. Analyses included comparative means and adjusted linear regressions. RESULTS: Sexually active participants (n = 554) and females reporting a previous abortion (n = 196) held more supportive attitudes towards abortion (P < 0.001 for both). Among sexually active females, more supportive attitudes were held by those reporting a previous abortion (ß = 2.60, 95% confidence interval 0.93-4.27, P = 0.002), later age (≥16 years) at first vaginal intercourse (P < 0.001), use of oral contraception at last sex (P = 0.029), previous condom use (P < 0.001) and/or three or more oral sex partners in the previous 12 months (P = 0.005). For sexually active males, more supportive attitudes were reported by those whose female partners had used oral contraception at last sex (P = 0.013) or ever (P = 0.017). Multivariable analyses indicated that other correlates, including risky sexual behaviour, had minimal or no effect on attitudes. CONCLUSIONS: Adolescents' attitudes towards abortion appear to be influenced by their ability to personalise and contextualise the effect of a pregnancy. Associations between less-effective contraceptive use and reduced support for abortion may be explained by a diminished perceived risk of parenthood. Educational strategies should acknowledge and respond to differences in abortion attitudes as adolescents commence and navigate sexual relationships.


Asunto(s)
Aborto Eugénico/psicología , Aborto Inducido/psicología , Conducta del Adolescente/psicología , Actitud Frente a la Salud , Embarazo no Deseado/psicología , Psicología del Adolescente , Conducta Sexual/psicología , Aborto Eugénico/estadística & datos numéricos , Aborto Inducido/estadística & datos numéricos , Adolescente , Adulto , Australia , Niño , Estudios Transversales , Femenino , Humanos , Masculino , Embarazo , Encuestas y Cuestionarios , Adulto Joven
4.
J Clin Nurs ; 29(7-8): 1220-1237, 2020 Apr.
Artículo en Inglés | MEDLINE | ID: mdl-31887230

RESUMEN

AIM: To determine and describe the experiences of pregnant women who receive a diagnosis of chromosomopathy and/or foetal malformation during a prenatal check-up and who decide to legally terminate the pregnancy. BACKGROUND: When a pregnancy is terminated, the woman must cope with frustrated motherhood. The psychological consequences of this will largely depend on the care and support provided by health professionals. When a congenital anomaly is diagnosed, a patient-centred communication helps understanding, influences adaptation to the new situation and ensures the person concerned has sufficient (autonomy or independence or ability) to make appropriate decisions. METHODS: A qualitative study, based on a phenomenological approach, was carried out through nonparticipant observation and semi-structured interviews with 27 obstetric patients. NVivo 11 software was used, and content analysis was performed. The manuscript was developed using the COREQ guidelines to inform qualitative studies. RESULTS: The clinical relationship may be affected by communication problems such as patients' perceptions of scarce emotional involvement by obstetricians, by poor psychosocial support during the termination of the pregnancy and by insufficient follow-up after discharge. CONCLUSION: Nurses are in a privileged position to promote the empowerment of affected women. It is necessary to improve aspects related to the privacy of patients and the awareness and training of the interdisciplinary team in interpersonal communication. Post-loss follow-up is recommended to assess individual needs, thus facilitating an optimal approach to ease the grieving process. RELEVANCE TO CLINICAL PRACTICE: During the prenatal diagnosis, the existence of a fetal anomaly is emphasized, but support and follow up of the mother may be neglected; therefore, exhaustive knowledge about the obstetric history, the state of health and the expectations of patients is as important as a multidisciplinary team trained in counseling strategies and with a comprehensive care plan that covers all areas, especially those that control maternal emotions.


Asunto(s)
Atención Dirigida al Paciente/métodos , Mujeres Embarazadas/psicología , Diagnóstico Prenatal/psicología , Aborto Eugénico/psicología , Adulto , Consejo , Toma de Decisiones , Femenino , Humanos , Madres/psicología , Relaciones Enfermero-Paciente , Embarazo , Investigación Cualitativa , Adulto Joven
5.
Prenat Diagn ; 39(8): 595-602, 2019 07.
Artículo en Inglés | MEDLINE | ID: mdl-31063215

RESUMEN

OBJECTIVE: As prenatal diagnostic services expand throughout low-income countries, an important consideration is the appropriateness of these services for patients. In these countries, services now include prenatal ultrasound and occasionally genetic testing. To assess patient interest, we surveyed pregnant patients at a hospital in Addis Ababa, Ethiopia, on their preferences for prenatal testing and termination of affected pregnancies for congenital anomalies and genetic diseases. METHOD: One hundred one pregnant patients were surveyed on their preferences for prenatal testing and termination of affected pregnancies using a survey covering various congenital anomalies and genetic diseases. RESULTS: Eighty-nine percent of patients reported interest in testing for all conditions. Three percent of patients were not interested in any testing. Over 60% of patients reported interest in termination for anencephaly, early infant death, severe intellectual disability, hemoglobinopathy, and amelia. Patients were more likely to express interest in prenatal testing and termination for conditions associated with a shortened lifespan. CONCLUSION: Ethiopian patients were interested in prenatal testing and termination of pregnancy for many conditions. Advancing prenatal diagnostic capacities is a potential strategy for addressing the incidence of congenital anomalies and genetic disease in Ethiopia. Importantly, there exist many factors and technological limitations to consider before implementation.


Asunto(s)
Aborto Eugénico , Anomalías Congénitas/terapia , Feto/anomalías , Enfermedades Genéticas Congénitas/terapia , Prioridad del Paciente , Diagnóstico Prenatal , Aborto Eugénico/métodos , Aborto Eugénico/psicología , Aborto Eugénico/estadística & datos numéricos , Adulto , Anomalías Congénitas/epidemiología , Anomalías Congénitas/psicología , Etiopía/epidemiología , Femenino , Feto/diagnóstico por imagen , Enfermedades Genéticas Congénitas/diagnóstico , Enfermedades Genéticas Congénitas/epidemiología , Pruebas Genéticas/métodos , Pruebas Genéticas/estadística & datos numéricos , Humanos , Recién Nacido , Masculino , Prioridad del Paciente/psicología , Prioridad del Paciente/estadística & datos numéricos , Embarazo , Resultado del Embarazo/epidemiología , Diagnóstico Prenatal/métodos , Diagnóstico Prenatal/psicología , Diagnóstico Prenatal/estadística & datos numéricos , Encuestas y Cuestionarios , Adulto Joven
6.
Acta Obstet Gynecol Scand ; 97(10): 1228-1236, 2018 Oct.
Artículo en Inglés | MEDLINE | ID: mdl-29791717

RESUMEN

INTRODUCTION: In Denmark, first trimester screening has a very high uptake (>90%). If Down syndrome is diagnosed, termination rates are high (>95%). The aim of this study was to investigate the timing of the decision to terminate pregnancy following a diagnosis of Down syndrome and the factors influencing this decision. MATERIAL AND METHODS: Semi-structured, qualitative interview study with 21 couples who had received a prenatal diagnosis of Down syndrome and decided to terminate the pregnancy. Participants were recruited from obstetric departments between February 2016 and July 2017. Data were analyzed using thematic analysis. RESULTS: Five themes were identified: "initial decision-making", "consolidating the decision", "reasons and concerns shaping the termination of pregnancy decision", "the right decision is also burdensome", and "perceived influences in decision-making". For most couples, the initial decision to terminate pregnancy was made before or during the diagnostic process, but it was re-addressed and consolidated following the actual diagnosis. Imagining a family future with a severely affected Down syndrome child was the main factor influencing the termination of pregnancy decision. The decision was articulated as "right" but also as existentially burdensome for some, due to fear of regret and concern about ending a potential life. The decision to terminate pregnancy was considered a private matter between the couple, but was refined through interactions with clinicians and social networks. CONCLUSION: All couples made an initial decision prior to receiving the Down syndrome diagnosis. Knowledge of the couple's initial decision may facilitate patient-centered communication during and after the diagnostic process. Couples may benefit from counseling to deal with grief and existential concerns.


Asunto(s)
Aborto Eugénico/psicología , Síndrome de Down/psicología , Mujeres Embarazadas/psicología , Atención Prenatal/psicología , Diagnóstico Prenatal/psicología , Adulto , Toma de Decisiones , Dinamarca , Femenino , Humanos , Aceptación de la Atención de Salud/psicología , Embarazo , Primer Trimestre del Embarazo
7.
Arch Womens Ment Health ; 21(4): 453-459, 2018 08.
Artículo en Inglés | MEDLINE | ID: mdl-29502281

RESUMEN

We have defined a psychological intervention based on cognitive narrative therapy and the Ottawa decision framework to reduce adjustment problems following a termination of pregnancy (TOP) after a positive prenatal diagnosis (PND). The intervention is composed of four sessions: decision, subjectivation, metaphorization, and projecting. This study aims to assess the effectiveness of a cognitive narrative intervention to prevent depression and anxiety symptoms after TOP. The intervention was accepted by 24 participants. The outcome is compared with a control group of 67 women who also terminated a pregnancy after PND. Participants were from several Portuguese institutions; 64.4% had a genetic and 35.6% had ultrasound diagnosis; the mean age was 30.0 years and the mean gestational age was 19 weeks. There are two evaluations: a baseline at the 15th day and a sixth month follow-up after TOP, using Beck Depression Inventory, Zung Anxiety Scale, Perinatal Grief Scale, and an instrument capturing participant satisfaction. Six months after TOP, there is a lower mean of anxiety and depression (p < 0.05), between groups, with effect sizes on the follow-up of 0.54 for depression, 0.41 for anxiety, and 0.23 for perinatal grief. This intervention has very positive effects on women mental health, and we emphasize the importance of the meaning-making process in the context of terminating a wanted pregnancy.


Asunto(s)
Aborto Eugénico/psicología , Ansiedad/prevención & control , Terapia Cognitivo-Conductual/métodos , Depresión/prevención & control , Terapia Narrativa/métodos , Diagnóstico Prenatal/psicología , Adulto , Femenino , Pesar , Humanos , Estudios Longitudinales , Portugal , Embarazo , Resultado del Tratamiento
8.
Arch Womens Ment Health ; 21(4): 391-399, 2018 08.
Artículo en Inglés | MEDLINE | ID: mdl-29288285

RESUMEN

Termination of pregnancy after diagnosis of fetal anomaly (TOPFA) is a contested issue and stigma may negatively impact affected women's psychological reactions. This study examined the influence of perceived and internalized stigma on women's long-term adjustment to a TOPFA. One hundred forty-eight women whose TOPFA dated back 1 to 7 years responded to self-report questionnaires. The associations between perceived stigma at the time of the TOPFA, current internalized stigma and symptoms of grief, trauma and depression were modeled using multiple linear regression. The proportion of participants reporting scores above the cutoffs on the respective scale was 17.6% for grief, 18.9% for posttraumatic stress, and 10.8% for depression. After controlling for time since the TOPFA, pre-TOPFA mental health and obstetric variables, higher levels of current internalized stigma were related to higher levels of grief, trauma, and depression. Mediation analyses suggested that the effect of perceived stigma at the time of the TOPFA on symptoms of grief and trauma was mediated by current internalized stigma, but the cross-sectional design limited causal interpretation of results. Internalized stigma is associated with long-term psychological distress following a TOPFA. Perceived stigma at the time of the TOPFA may contribute to increased trauma and grief symptomatology, but results need to be validated in longitudinal studies. Health care providers and public initiatives should aim at reducing stigma among affected women.


Asunto(s)
Aborto Eugénico/psicología , Depresión/etiología , Feto/anomalías , Pesar , Diagnóstico Prenatal/psicología , Estigma Social , Trastornos por Estrés Postraumático/etiología , Adulto , Estudios Transversales , Depresión/psicología , Femenino , Alemania , Humanos , Embarazo , Factores Socioeconómicos , Trastornos por Estrés Postraumático/psicología , Estrés Psicológico/etiología , Estrés Psicológico/psicología , Encuestas y Cuestionarios
9.
Qual Health Res ; 27(5): 665-676, 2017 Apr.
Artículo en Inglés | MEDLINE | ID: mdl-26631684

RESUMEN

The nature of the ongoing bond maintained by the bereaved with the deceased has attracted considerable attention, but studies have generally ignored postdeath relationships when loss occurs in utero. The goal of this research was to reach an interpretive understanding of the continuing bond experience among Israeli mothers who underwent feticide, examining the strategies they use in maintaining a postdeath relationship with a child they did not know, whose death they chose and witnessed, within a social context that ignores their loss and forces them to silence their grief. The results highlight two themes: (a) strategies for relinquishing connection with the baby and (b) strategies for maintaining a postdeath relationship. These processes partially correspond with two theoretical views that shed light on interpretation of the results: the dual process of coping with bereavement and relational dialectic theory. Implications of the results to the practice of health providers are outlined.


Asunto(s)
Aborto Eugénico/psicología , Adaptación Psicológica , Aflicción , Pesar , Relaciones Madre-Hijo/psicología , Madres/psicología , Mujeres Embarazadas/psicología , Adulto , Femenino , Humanos , Persona de Mediana Edad , Embarazo
10.
Reprod Health Matters ; 24(47): 168-77, 2016 May.
Artículo en Inglés | MEDLINE | ID: mdl-27578350

RESUMEN

Pregnant women routinely undergo prenatal screening in Australia and this has become a common experience of motherhood. When prenatal screening or prenatal testing results in diagnosis of a serious fetal abnormality, women are presented with a decision to continue or terminate their pregnancy. Few recent studies have explored women's psychosocial experience of prenatal diagnosis and pregnancy termination for fetal abnormality, and within this small group of studies it is rare for research to consider the embodied aspect of women's experiences. This paper reports on qualitative findings from in-depth interviews with 59 women in Melbourne, Australia who received a prenatal diagnosis of a significant abnormality and decided to terminate the pregnancy. Interview transcripts were coded inductively through thematic analysis. Two themes about embodiment were generated from the interviews: transitioning embodiment, and vulnerable bodies in un/comfortable spaces. Theory of pregnant embodiment was drawn on in interpreting women's narratives. Recommendations arising from the analysis include health professionals recognising, acknowledging and accommodating the transitioning embodied state of women as they consider, prepare for, undergo and recover from pregnancy termination for fetal abnormality. Further recommendations address the connections and disconnections between this transitioning embodied state and the spaces of clinics, hospitals and home.


Asunto(s)
Aborto Eugénico/psicología , Anomalías Congénitas/diagnóstico , Mujeres Embarazadas/psicología , Diagnóstico Prenatal , Adulto , Australia , Toma de Decisiones , Femenino , Humanos , Entrevistas como Asunto , Embarazo
11.
Prenat Diagn ; 36(1): 92-9, 2016 Jan.
Artículo en Inglés | MEDLINE | ID: mdl-26531671

RESUMEN

OBJECTIVES: This study aimed to explore maternal-fetal medicine specialists' experiences of conducting feticide in late termination of pregnancy. METHODS: Participants were recruited via email. Purposeful sampling resulted in ten maternal-fetal specialists. Semistructured interviews were used to examine their experiences of conducting feticide. Interviews occurred across four English National Health Service hospitals. Interpretative phenomenological analysis was used. RESULTS: An ongoing doctor-patient relationship when conducting feticide facilitated participants' self-image as clinicians rather than technicians. Coping involved rationalisation, with feticide viewed as 'part of the job'. Supportive team relationships helped keep emotional expression within control. Participants were not distressed if they felt, through relationship-based decision-making, that the feticide aligned with their values and legal interpretation. To avoid negative judgements, they disclosed selectively, only telling trusted individuals that they conducted feticides. CONCLUSIONS: Participants experienced conducting feticides as difficult but necessary, eliciting pride from the skills involved. Some noted management of personal distress. Optimal conditions were involvement in the process from the initial decision-making and team support. Providing feticides was deemed as potentially stigmatising, with selective disclosure employed. Training in managing feticides and guidance on providing optimal service conditions may decrease selectivity of disclosures and enhance staff well-being and the quality of feticide provisions. © 2015 John Wiley & Sons, Ltd.


Asunto(s)
Aborto Eugénico/psicología , Aborto Terapéutico/psicología , Actitud del Personal de Salud , Perinatología , Segundo Trimestre del Embarazo , Aborto Eugénico/ética , Aborto Eugénico/métodos , Aborto Terapéutico/ética , Aborto Terapéutico/métodos , Inglaterra , Femenino , Humanos , Entrevistas como Asunto , Masculino , Relaciones Médico-Paciente , Embarazo , Investigación Cualitativa
12.
Prenat Diagn ; 35(8): 761-768, 2015 Aug.
Artículo en Inglés | MEDLINE | ID: mdl-25872901

RESUMEN

OBJECTIVE: The aim of the article is to examine the psychological impact, specifically symptoms of grief, post-traumatic stress and depression, in women and men who either terminated or continued a pregnancy following prenatal diagnosis of a lethal fetal defect. METHOD: This project investigated a diagnostically homogeneous group composed of 158 women and 109 men who lost a pregnancy to anencephaly, a lethal neural tube defect. Participants completed the Perinatal Grief Scale, Impact of Event Scale - Revised and Beck Depression Inventory-II, which measure symptoms of grief, post-traumatic stress and depression, respectively. Demographics, religiosity and pregnancy choices were also collected. Gender-specific analysis of variance was performed for instrument total scores and subscales. RESULTS: Women who terminated reported significantly more despair (p = 0.02), avoidance (p = 0.008) and depression (p = 0.04) than women who continued the pregnancy. Organizational religious activity was associated with a reduction in grief (Perinatal Grief Scale subscales) in both women (p = 0.02, p = 0.04 and p = 0.03) and men (p = 0.047). CONCLUSION: There appears to be a psychological benefit to women to continue the pregnancy following a lethal fetal diagnosis. Following a lethal fetal diagnosis, the risks and benefits, including psychological effects, of termination and continuation of pregnancy should be discussed in detail with an effort to be as nondirective as possible.


Asunto(s)
Aborto Eugénico/psicología , Anencefalia/diagnóstico , Depresión/etiología , Pesar , Diagnóstico Prenatal/psicología , Religión , Trastornos por Estrés Postraumático/etiología , Adaptación Psicológica , Adolescente , Adulto , Depresión/diagnóstico , Femenino , Muerte Fetal , Humanos , Modelos Logísticos , Masculino , Embarazo , Trastornos por Estrés Postraumático/diagnóstico , Adulto Joven
13.
J Genet Couns ; 24(1): 117-21, 2015 Feb.
Artículo en Inglés | MEDLINE | ID: mdl-25082303

RESUMEN

Parental decision-making to terminate or continue a pregnancy was studied after prenatal diagnosis of a chromosome aneuploidy among a sample of patients around the city of Nagoya, Japan. A total of 1,051 amniocentesis cases at 15-18 weeks of gestation were analyzed. Of these, 60 cases of chromosomal anomalies with aneuploidies were diagnosed by conventional cytogenetic analysis. Of the 45 diagnoses of autosomal chromosome aneuploidies, pregnancy was terminated in 93.3 % of the cases. Of the 15 cases diagnosed with sex chromosome aneuploidy, pregnancy was terminated in 46.7 %. Differences in parental decisions with respect to maternal age, gestational week at diagnosis, number of pregnancies per individual and existing number of children were not significant in patients diagnosed either with autosomal or sex chromosome aneuploidy. The findings indicate that when diagnosed with a chromosome aneuploidy in which a severe prognosis was expected, most couples decided to terminate the pregnancy in Japan. Implications of these findings for expanding the profession of genetic counseling are discussed and research recommendations are provided.


Asunto(s)
Trastornos de los Cromosomas/diagnóstico , Trastornos de los Cromosomas/psicología , Asesoramiento Genético/psicología , Padres/psicología , Diagnóstico Prenatal/psicología , Aborto Eugénico/psicología , Aberraciones Cromosómicas , Toma de Decisiones , Femenino , Humanos , Japón , Masculino , Edad Materna , Embarazo
14.
Z Psychosom Med Psychother ; 61(4): 309-26, 2015.
Artículo en Alemán | MEDLINE | ID: mdl-26646911

RESUMEN

INTRODUCTION: Since the development of assisted reproduction technology in the 1970s, assisted reproduction has become increasingly used by couples for various reasons. Concurrently, the diagnostic possibilities regarding the health of the unborn child have been elaborated. METHODS/RESULTS: The present literature review describes and discusses the possibilities of assisted reproduction (in-vitro fertilization (IVF), intracytoplasmic sperm injection ICSI, cryopreservation, conception of children with the help of a third person) with respect to their psychosocial meaning for those affected and for the children conceived in this manner. The psychological strain pairs experience in the context of prenatal diagnostics and the resulting decisions are illustrated by a case study. CONCLUSIONS: The continued progression in the possibilities and resulting conflicts and decision- making processes in reproductive medicine confronts clinicians and psychosomatic/psychotherapeutic practitioners with many new challenges. In conclusion clinical recommendations for the psychosocial counseling of couples are given.


Asunto(s)
Infertilidad/psicología , Infertilidad/terapia , Diagnóstico Prenatal/psicología , Técnicas Reproductivas Asistidas/psicología , Estrés Psicológico/complicaciones , Aborto Eugénico/psicología , Toma de Decisiones , Femenino , Humanos , Recién Nacido , Masculino , Donación de Oocito/psicología , Embarazo , Resultado del Embarazo/psicología , Apoyo Social
15.
Prenat Diagn ; 34(2): 153-8, 2014 Feb.
Artículo en Inglés | MEDLINE | ID: mdl-24806347

RESUMEN

OBJECTIVE: The aim of this study was to assess the attitudes of Muslim parents from Saudi Arabia with a deaf child towards prenatal diagnosis (PND) and termination of pregnancy (TOP) for deafness and 29 other genetic and medical conditions. METHODS: A questionnaire mainly focused on parent's attitude toward PND and TOP for 30 different hypothetical scenarios for a series of genetic, non-genetic and non-medical conditions was completed by 70 Saudi parents with a deaf child. The results were compared and scored, and parents' comments were noted. RESULTS: The attitude for PND was favorable (81.4%) and was influenced by the severity of the condition among men. Among women, it was influenced by cultural considerations. For TOP, average acceptance rate (25.2%) was lower than for PND. Attitudes toward TOP were fairly similar for men and women, as both groups would consider TOP for Alzheimer disease, cleft lip and palate, and cystic fibrosis. In addition, women also ranked high deafness and thalassemia for consideration of TOP. Acceptance for TOP was not influenced by gender, income, education level, number of children, or partner attending clinic. CONCLUSION: In the Saudi society, cultural consideration influences attitudes towards PND and TOP rather than the severity of the condition.


Asunto(s)
Aborto Eugénico/psicología , Actitud Frente a la Salud , Sordera , Padres/psicología , Diagnóstico Prenatal/psicología , Adulto , Cultura , Femenino , Humanos , Masculino , Embarazo , Arabia Saudita , Factores Sexuales , Encuestas y Cuestionarios
16.
Prenat Diagn ; 34(11): 1106-10, 2014 Nov.
Artículo en Inglés | MEDLINE | ID: mdl-24933243

RESUMEN

OBJECTIVE: To determine parental acceptance of minimally invasive autopsy (MIA) involving postmortem imaging and organ tissue sampling compared with conventional autopsy and to compare the acceptability of percutaneous versus laparoscopic-guided biopsy. METHODS: Following termination of pregnancy parents were offered the option of traditional autopsy and subsequently interviewed about their acceptance of MIA. The McNemar test for paired samples was used to assess the difference in acceptance of MIA and conventional autopsy. The Wilcoxon signed-rank test for paired samples was used to compare the acceptance score for percutaneous versus laparoscopic-guided biopsy. Logistic regression was selected to study the association of parental acceptance of conventional autopsy and MIA with different variables. RESULTS: Conventional autopsy was accepted by 42 (60.0%) of the 70 parents. Regression analysis showed that non-Muslim faith was the only factor significantly associated with acceptance of conventional autopsy (p = 0.030). Of 28 parents who initially refused conventional autopsy, 13(46.4%) subsequently accepted MIA, increasing acceptance to 78.6% (p < 0.001). Regression analysis showed that none of the factors significantly affected MIA acceptance. Parents expressed no preference between postmortem percutaneous versus laparoscopic-guided biopsy (p = 0.061). CONCLUSION: Post-mortem imaging combined with systematic organ biopsies is highly acceptable among all parents independent of their religion and the method used for organ biopsy.


Asunto(s)
Feto/patología , Padres/psicología , Aceptación de la Atención de Salud/psicología , Aborto Eugénico/psicología , Aborto Espontáneo/patología , Aborto Espontáneo/psicología , Adulto , Autopsia/métodos , Biopsia/psicología , Femenino , Muerte Fetal , Humanos , Recién Nacido , Masculino , Embarazo , Adulto Joven
17.
Prenat Diagn ; 33(3): 257-61, 2013 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-23348856

RESUMEN

OBJECTIVE: The aim of this study is to investigate whether the severity of a particular condition alone influences parents' attitudes toward prenatal diagnosis (PND) and termination of pregnancy (TOP) or are there other factors involved? METHODS: A questionnaire that mainly focuses on parent's attitude toward PND and TOP for 30 different hypothetical scenarios for a series of genetic, non-genetic, and non-medical conditions were completed by 400 Saudi parents. Results were compared and scored and parent comments were noted. Additionally, cross tabulation of thalassemia, considered the most severe and had the most favorable PND and TOP, against the 29 other conditions were carried out to find similarities and different views toward TOP and PND. RESULTS: We found that parents' attitudes toward PND and TOP for thalassemia are significantly associated with their attitudes in relation to all of the other conditions (p < 0.01). CONCLUSION: Saudi Parents' attitudes toward TOP and PND are not always influenced by the severity of the condition.


Asunto(s)
Aborto Eugénico/psicología , Actitud Frente a la Salud , Padres/psicología , Diagnóstico Prenatal/psicología , Femenino , Humanos , Masculino , Embarazo , Arabia Saudita , Índice de Severidad de la Enfermedad , Encuestas y Cuestionarios , Talasemia/psicología
18.
Prenat Diagn ; 33(8): 716-21, 2013 Aug.
Artículo en Inglés | MEDLINE | ID: mdl-23576206

RESUMEN

OBJECTIVE: To investigate attitude among Danes toward termination of pregnancy (TOP) for social reasons and fetal abnormality (Down's syndrome, cystic fibrosis, adult polycystic kidney disease and the missing of one upper extremity) at different gestational ages. METHOD: A questionnaire was mailed to 1000 Danish citizens aged 18 to 45 years randomly drawn from the Danish Central Personal Register. A significance level of 0.05 was used for statistical estimations. RESULTS: Response rate was 49%. Eighty-two percent supported TOP for social reasons < 18-week gestation. Apart from polycystic kidney disease and the missing of an extremity < week 18 gestation, the support for TOP varied significantly between each condition and decreased with increasing gestational age (non-overlapping confidence intervals, p < 0.05), with termination of Down's syndrome receiving the most support (85% < week 18 and 18% at week 26). Fewer would personally opt for termination. Preimplantation diagnostic was supported by a majority. Ninety percent gave consistent responses, and among these, a majority had a gradualistic approach to TOP. Religion and political affiliations were statistically associated with the investigated issues. CONCLUSION: Internationally compared Danes are less supportive of selective terminations. Their attitudes continue to be dominated by a gradualistic view on terminations.


Asunto(s)
Aborto Eugénico/psicología , Aborto Legal/psicología , Actitud , Feto/anomalías , Aborto Eugénico/estadística & datos numéricos , Aborto Legal/estadística & datos numéricos , Adolescente , Adulto , Dinamarca/epidemiología , Femenino , Humanos , Persona de Mediana Edad , Embarazo , Sistema de Registros , Factores Socioeconómicos , Encuestas y Cuestionarios , Adulto Joven
19.
Prenat Diagn ; 33(13): 1226-32, 2013 Dec.
Artículo en Inglés | MEDLINE | ID: mdl-24014379

RESUMEN

OBJECTIVE: Genetic counseling for thalassemia carriers is conducted by nongeneticist health care workers (HCWs) in many countries. The aim of the study was to assess Malaysian HCWs' genetic counseling practices with regards to discussing prenatal diagnosis (PND) and termination of pregnancy (TOP) when counseling thalassemia carriers. METHOD: A total of 118 Malaysian HCWs (52 doctors and 66 nurses) completed a structured questionnaire that enquired if they would discuss PND and TOP when counseling couples with thalassemia traits, and reasons for their responses were explored. RESULTS: All the nurses and 50 (96.1%) doctors were in favor of discussing PND. Only 29 (58%) doctors and 33 (50%) nurses were agreeable to discuss about the option of TOP. Main reasons given for declining to discuss TOP were views that "the condition was not serious enough" (54.9%), TOP is not permissible by their religion (17.6%) and abortion for this indication was illegal (13.7%). CONCLUSION: The results showed that HCWs in Malaysia lacked the comprehensive information and necessary skills required when counseling thalassemia carriers. When nongeneticist HCWs are tasked with such responsibilities, their practices and attitudes should be regularly evaluated so that areas of deficiencies could be identified and addressed.


Asunto(s)
Aborto Eugénico , Asesoramiento Genético , Personal de Salud/estadística & datos numéricos , Diagnóstico Prenatal , Práctica Profesional/estadística & datos numéricos , Talasemia beta/diagnóstico , Aborto Eugénico/psicología , Aborto Inducido/psicología , Adulto , Estudios Transversales , Femenino , Asesoramiento Genético/psicología , Asesoramiento Genético/estadística & datos numéricos , Personal de Salud/psicología , Humanos , Malasia/epidemiología , Masculino , Persona de Mediana Edad , Enfermeras y Enfermeros/psicología , Enfermeras y Enfermeros/estadística & datos numéricos , Médicos/psicología , Médicos/estadística & datos numéricos , Embarazo , Diagnóstico Prenatal/psicología , Diagnóstico Prenatal/estadística & datos numéricos , Religión , Encuestas y Cuestionarios , Talasemia beta/genética , Talasemia beta/psicología
20.
Qual Health Res ; 23(7): 924-36, 2013 Jul.
Artículo en Inglés | MEDLINE | ID: mdl-23558712

RESUMEN

Pregnancy termination for fetal abnormality (TFA) can have significant psychological consequences. Most previous research has been focused on measuring the psychological outcomes of TFA, and little is known about the coping strategies involved. In this article, we report on women's coping strategies used during and after the procedure. Our account is based on experiences of 27 women who completed an online survey. We analyzed the data using interpretative phenomenological analysis. Coping comprised four structures, consistent across time points: support, acceptance, avoidance, and meaning attribution. Women mostly used adaptive coping strategies but reported inadequacies in aftercare, which challenged their resources. The study's findings indicate the need to provide sensitive, nondirective care rooted in the acknowledgment of the unique nature of TFA. Enabling women to reciprocate for emotional support, promoting adaptive coping strategies, highlighting the potential value of spending time with the baby, and providing long-term support (including during subsequent pregnancies) might promote psychological adjustment to TFA.


Asunto(s)
Aborto Eugénico/psicología , Adaptación Psicológica , Aborto Eugénico/métodos , Adulto , Aflicción , Estudios Transversales , Composición Familiar , Femenino , Edad Gestacional , Número de Embarazos , Humanos , Embarazo , Estudios Retrospectivos , Autoimagen , Apoyo Social , Factores Socioeconómicos , Reino Unido
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