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Customization of the TRU-PBMT App (Technology Recordings to better Understand Pediatric Blood and Marrow Transplant).
Vaughn, Jacqueline; Jonassaint, Jude; Summers-Goeckerman, Erika; Shaw, Ryan J; Shah, Nirmish.
Affiliation
  • Vaughn J; Durham NC, USA. Electronic address: Jacqueline.vaughn@duke.edu.
  • Jonassaint J; Durham NC, USA.
  • Summers-Goeckerman E; Durham NC, USA.
  • Shaw RJ; Durham NC, USA.
  • Shah N; Durham NC, USA.
J Pediatr Nurs ; 42: 86-91, 2018.
Article in En | MEDLINE | ID: mdl-30219304
ABSTRACT

PURPOSE:

Our investigative team is integrating mobile health technologies into pediatric blood and marrow transplant (PBMT) care. We aim to evaluate whether patient-generated health data can be used to monitor health status and enhance symptom management. While there are numerous health-related apps, none address the symptoms or care needs specific to PBMT patients. This article describes development of the Technology Recording to better Understand Pediatric Blood and Marrow Transplant (TRU-PBMT) mobile application. DESIGN AND

METHODS:

A one-time survey was distributed to PBMT clinicians, caregivers, and outpatients to elicit feedback and suggestions for the app's design.

RESULTS:

Feedback from clinicians (n = 23), caregivers (n = 5), and PBMT outpatients (n = 4) indicated the app would be acceptable and useable with this group of patients between eight and eighteen years of age. Suggestions from respondents included making the app language and graphics more child-friendly; adding symptoms such as fatigue, mucositis, bleeding; and a visual stool chart.

CONCLUSION:

Patient, caregiver, and clinician feedback was valuable in creation of the TRU-PBMT app. We designed a pediatric friendly, PBMT-symptom-specific app, which we will test in future studies. IMPLICATIONS FOR PRACTICE This app facilitates patient-generated health data collection and informs health care plans.
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Bone Marrow Transplantation / Telemedicine / Patient Portals / Patient Reported Outcome Measures Type of study: Qualitative_research Limits: Child / Female / Humans / Male Language: En Journal: J Pediatr Nurs Journal subject: ENFERMAGEM / PEDIATRIA Year: 2018 Type: Article

Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Bone Marrow Transplantation / Telemedicine / Patient Portals / Patient Reported Outcome Measures Type of study: Qualitative_research Limits: Child / Female / Humans / Male Language: En Journal: J Pediatr Nurs Journal subject: ENFERMAGEM / PEDIATRIA Year: 2018 Type: Article