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An observational study of pediatric healthcare burden in Angelman syndrome: results from a real-world study.
Khan, Nasreen; Cabo, Raquel; Tan, Wen-Hann; Tayag, Regina; Bird, Lynne M.
Affiliation
  • Khan N; RWEC LLC, 73 Walsingham, Mendham, NJ, 07945, USA. Nasreen.khan@rwecon.com.
  • Cabo R; RWEC LLC, 73 Walsingham, Mendham, NJ, 07945, USA.
  • Tan WH; Division of Genetics & Genomics, Boston Children's Hospital; Harvard Medical School, 300 Longwood Avenue, Boston, MA, Boston, MA, 02115, USA.
  • Tayag R; PROMETRIKA, LLC, 100 Cambridgepark Drive, 2nd Floor, Cambridge, MA, 02140, USA.
  • Bird LM; Department of Pediatrics, San Diego; Clinical Genetics / Dysmorphology, Rady Children's Hospital San Diego, University of California, 3020 Children's Way #5031, San Diego, CA, 92123, USA.
Orphanet J Rare Dis ; 14(1): 239, 2019 11 04.
Article in En | MEDLINE | ID: mdl-31684986

Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Health Care Costs / Angelman Syndrome Type of study: Observational_studies / Prognostic_studies Limits: Child / Child, preschool / Humans / Infant Language: En Journal: Orphanet J Rare Dis Journal subject: MEDICINA Year: 2019 Type: Article Affiliation country: United States

Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Health Care Costs / Angelman Syndrome Type of study: Observational_studies / Prognostic_studies Limits: Child / Child, preschool / Humans / Infant Language: En Journal: Orphanet J Rare Dis Journal subject: MEDICINA Year: 2019 Type: Article Affiliation country: United States