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Ensuring best practice in genomics education and evaluation: reporting item standards for education and its evaluation in genomics (RISE2 Genomics).
Nisselle, Amy; Janinski, Monika; Martyn, Melissa; McClaren, Belinda; Kaunein, Nadia; Barlow-Stewart, Kristine; Belcher, Andrea; Bernat, John A; Best, Stephanie; Bishop, Michelle; Carroll, June C; Cornel, Martina; Dissanayake, Vajira H W; Dodds, Agnes; Dunlop, Kate; Garg, Gunjan; Gear, Russell; Graves, Debra; Knight, Ken; Korf, Bruce; Kumar, Dhavendra; Laurino, Mercy; Ma, Alan; Maguire, Jane; Mallett, Andrew; McCarthy, Maria; McEwen, Alison; Mulder, Nicola; Patel, Chirag; Quinlan, Catherine; Reed, Kate; Riggs, Erin Rooney; Sinnerbrink, Ingrid; Slavotinek, Anne; Suppiah, Vijayaprakash; Terrill, Bronwyn; Tobias, Edward S; Tonkin, Emma; Trumble, Steve; Wessels, Tina-Marie; Metcalfe, Sylvia; Jordan, Helen; Gaff, Clara.
Affiliation
  • Nisselle A; Australian Genomics Health Alliance, Melbourne, VIC, Australia.
  • Janinski M; Murdoch Children's Research Institute, Melbourne, VIC, Australia.
  • Martyn M; Department of Paediatrics, The University of Melbourne, Melbourne, VIC, Australia.
  • McClaren B; Australian Genomics Health Alliance, Melbourne, VIC, Australia.
  • Kaunein N; Murdoch Children's Research Institute, Melbourne, VIC, Australia.
  • Barlow-Stewart K; Department of Paediatrics, The University of Melbourne, Melbourne, VIC, Australia.
  • Belcher A; Melbourne Genomics Health Alliance, Melbourne, VIC, Australia.
  • Bernat JA; Australian Genomics Health Alliance, Melbourne, VIC, Australia.
  • Best S; Murdoch Children's Research Institute, Melbourne, VIC, Australia.
  • Bishop M; Department of Paediatrics, The University of Melbourne, Melbourne, VIC, Australia.
  • Carroll JC; Australian Genomics Health Alliance, Melbourne, VIC, Australia.
  • Cornel M; Murdoch Children's Research Institute, Melbourne, VIC, Australia.
  • Dodds A; Faculty of Medicine and Health, University of Sydney, Sydney, NSW, Australia.
  • Dunlop K; Australian Genomics Health Alliance, Melbourne, VIC, Australia.
  • Garg G; Faculty of Medicine, University of Queensland, Brisbane, QLD, Australia.
  • Gear R; Stead Family Department of Pediatrics, University of Iowa, Iowa City, IA, USA.
  • Graves D; Australian Genomics Health Alliance, Melbourne, VIC, Australia.
  • Knight K; Murdoch Children's Research Institute, Melbourne, VIC, Australia.
  • Korf B; Australian Institute of Health Innovation, Macquarie University, Sydney, NSW, Australia.
  • Kumar D; Genomics Education Programme, Health Education England, Birmingham, UK.
  • Laurino M; Department of Family and Community Medicine, University of Toronto, Toronto, ON, Canada.
  • Ma A; Amsterdam University Medical Centre, Vrije Universiteit Amsterdam, Department of Clinical Genetics, Amsterdam Public Health Research Institute, Amsterdam, The Netherlands.
  • Maguire J; Department of Anatomy & Human Genetics Unit, University of Colombo, Colombo, Sri Lanka.
  • Mallett A; Melbourne Medical School, The University of Melbourne, Melbourne, VIC, Australia.
  • McCarthy M; Australian Genomics Health Alliance, Melbourne, VIC, Australia.
  • McEwen A; Centre for Genetics Education, NSW Health, Sydney, NSW, Australia.
  • Mulder N; Children's Hospital Westmead, Sydney Children's Hospitals Network, Sydney, NSW, Australia.
  • Patel C; Genetic Health Services New Zealand, Wellington, New Zealand.
  • Quinlan C; Australian Genomics Health Alliance, Melbourne, VIC, Australia.
  • Reed K; Royal College of Pathologists of Australasia, Sydney, NSW, Australia.
  • Riggs ER; Murdoch Children's Research Institute, Melbourne, VIC, Australia.
  • Sinnerbrink I; Department of Paediatrics, The University of Melbourne, Melbourne, VIC, Australia.
  • Slavotinek A; School of Medicine, University of Alabama at Birmingham, Birmingham, AL, USA.
  • Suppiah V; William Harvey Research Institute, Queen Mary University of London, London, UK.
  • Terrill B; Department of Pediatrics, University of the Philippines Manila, Manila, Philippines.
  • Tobias ES; Children's Hospital Westmead, Sydney Children's Hospitals Network, Sydney, NSW, Australia.
  • Tonkin E; Discipline of Genomic Medicine, Sydney Medical School, University of Sydney, Sydney, NSW, Australia.
  • Trumble S; Faculty of Health, University of Technology Sydney, Sydney, NSW, Australia.
  • Wessels TM; Australian Genomics Health Alliance, Melbourne, VIC, Australia.
  • Metcalfe S; Faculty of Medicine, University of Queensland, Brisbane, QLD, Australia.
  • Jordan H; Murdoch Children's Research Institute, Melbourne, VIC, Australia.
  • Gaff C; Department of Paediatrics, The University of Melbourne, Melbourne, VIC, Australia.
Genet Med ; 23(7): 1356-1365, 2021 07.
Article in En | MEDLINE | ID: mdl-33824503
ABSTRACT

PURPOSE:

Widespread, quality genomics education for health professionals is required to create a competent genomic workforce. A lack of standards for reporting genomics education and evaluation limits the evidence base for replication and comparison. We therefore undertook a consensus process to develop a recommended minimum set of information to support consistent reporting of design, development, delivery, and evaluation of genomics education interventions.

METHODS:

Draft standards were derived from literature (25 items from 21 publications). Thirty-six international experts were purposively recruited for three rounds of a modified Delphi process to reach consensus on relevance, clarity, comprehensiveness, utility, and design.

RESULTS:

The final standards include 18 items relating to development and delivery of genomics education interventions, 12 relating to evaluation, and 1 on stakeholder engagement.

CONCLUSION:

These Reporting Item Standards for Education and its Evaluation in Genomics (RISE2 Genomics) are intended to be widely applicable across settings and health professions. Their use by those involved in reporting genomics education interventions and evaluation, as well as adoption by journals and policy makers as the expected standard, will support greater transparency, consistency, and comprehensiveness of reporting. Consequently, the genomics education evidence base will be more robust, enabling high-quality education and evaluation across diverse settings.
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Genomics / Research Report Type of study: Evaluation_studies / Guideline Limits: Humans Language: En Journal: Genet Med Journal subject: GENETICA MEDICA Year: 2021 Type: Article Affiliation country: Australia
Fulltext
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PubMed Links
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Genomics / Research Report Type of study: Evaluation_studies / Guideline Limits: Humans Language: En Journal: Genet Med Journal subject: GENETICA MEDICA Year: 2021 Type: Article Affiliation country: Australia