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Efficacy, Retention and Tolerability of Everolimus in Patients with Tuberous Sclerosis Complex: A Survey-Based Study on Patients' Perspectives.
Willems, Laurent M; Rosenow, Felix; Schubert-Bast, Susanne; Kurlemann, Gerhard; Zöllner, Johann Philipp; Bast, Thomas; Bertsche, Astrid; Bettendorf, Ulrich; Ebrahimi-Fakhari, Daniel; Grau, Janina; Hahn, Andreas; Hartmann, Hans; Hertzberg, Christoph; Hornemann, Frauke; Immisch, Ilka; Jacobs, Julia; Klein, Karl Martin; Klotz, Kerstin A; Kluger, Gerhard; Knake, Susanne; Knuf, Markus; Marquard, Klaus; Mayer, Thomas; Meyer, Sascha; Muhle, Hiltrud; Müller-Schlüter, Karen; von Podewils, Felix; Ruf, Susanne; Sauter, Matthias; Schäfer, Hannah; Schlump, Jan-Ulrich; Syrbe, Steffen; Thiels, Charlotte; Trollmann, Regina; Wiemer-Kruel, Adelheid; Wilken, Bernd; Zukunft, Bianca; Strzelczyk, Adam.
Affiliation
  • Willems LM; Epilepsy Center Frankfurt Rhine-Main and Department of Neurology, Goethe-University Frankfurt, Schleusenweg 2-16 (Haus 95), 60528, Frankfurt am Main, Germany.
  • Rosenow F; LOEWE Center for Personalized Translational Epilepsy Research (CePTER), Goethe-University Frankfurt, Frankfurt am Main, Germany.
  • Schubert-Bast S; Epilepsy Center Frankfurt Rhine-Main and Department of Neurology, Goethe-University Frankfurt, Schleusenweg 2-16 (Haus 95), 60528, Frankfurt am Main, Germany.
  • Kurlemann G; LOEWE Center for Personalized Translational Epilepsy Research (CePTER), Goethe-University Frankfurt, Frankfurt am Main, Germany.
  • Zöllner JP; Epilepsy Center Frankfurt Rhine-Main and Department of Neurology, Goethe-University Frankfurt, Schleusenweg 2-16 (Haus 95), 60528, Frankfurt am Main, Germany.
  • Bast T; LOEWE Center for Personalized Translational Epilepsy Research (CePTER), Goethe-University Frankfurt, Frankfurt am Main, Germany.
  • Bertsche A; Department of Neuropediatrics, Goethe-University Frankfurt, Frankfurt am Main, Germany.
  • Bettendorf U; St. Bonifatius Hospital, Lingen, Germany.
  • Ebrahimi-Fakhari D; Epilepsy Center Frankfurt Rhine-Main and Department of Neurology, Goethe-University Frankfurt, Schleusenweg 2-16 (Haus 95), 60528, Frankfurt am Main, Germany.
  • Grau J; LOEWE Center for Personalized Translational Epilepsy Research (CePTER), Goethe-University Frankfurt, Frankfurt am Main, Germany.
  • Hahn A; Epilepsy Center Kork, Clinic for Children and Adolescents, Kehl-Kork, Germany.
  • Hartmann H; Department of Neuropediatrics, University Hospital for Children and Adolescents, Rostock, Germany.
  • Hertzberg C; Neuropediatric Practice, Hirschaid, Germany.
  • Hornemann F; Department of General Pediatrics, Division of Neuropediatrics, University Hospital Münster, Münster, Germany.
  • Immisch I; Epilepsy Center Frankfurt Rhine-Main and Department of Neurology, Goethe-University Frankfurt, Schleusenweg 2-16 (Haus 95), 60528, Frankfurt am Main, Germany.
  • Jacobs J; LOEWE Center for Personalized Translational Epilepsy Research (CePTER), Goethe-University Frankfurt, Frankfurt am Main, Germany.
  • Klein KM; Department of Neuropediatrics, Justus-Liebig-University Gießen, Gießen, Germany.
  • Klotz KA; Clinic for Pediatric Kidney, Liver and Metabolic Diseases, Hannover Medical School, Hannover, Germany.
  • Kluger G; Department of Neuropediatrics, Vivantes Klinikum Neukölln, Berlin, Germany.
  • Knake S; Department of Neuropediatrics, Leipzig University Hospital for Children and Adolescents, Leipzig, Germany.
  • Knuf M; Epilepsy Center Hessen and Department of Neurology, Philipps-University Marburg, Marburg (Lahn), Germany.
  • Marquard K; Department of Neuropediatrics and Muscle Disorders, Center for Pediatrics, Faculty of Medicine, University of Freiburg, Freiburg im Breisgau, Germany.
  • Mayer T; Department of Pediatrics and Clinical Neurosciences, Cumming School of Medicine, University of Calgary, Calgary, AB, Canada.
  • Meyer S; Epilepsy Center Frankfurt Rhine-Main and Department of Neurology, Goethe-University Frankfurt, Schleusenweg 2-16 (Haus 95), 60528, Frankfurt am Main, Germany.
  • Muhle H; LOEWE Center for Personalized Translational Epilepsy Research (CePTER), Goethe-University Frankfurt, Frankfurt am Main, Germany.
  • Müller-Schlüter K; Departments of Clinical Neurosciences, Medical Genetics and Community Health Sciences, Hotchkiss Brain Institute and Alberta Children's Hospital Research Institute, Cumming School of Medicine, University of Calgary, Calgary, AB, Canada.
  • von Podewils F; Department of Neuropediatrics and Muscle Disorders, Center for Pediatrics, Faculty of Medicine, University of Freiburg, Freiburg im Breisgau, Germany.
  • Ruf S; Berta-Ottenstein-Programme, Faculty of Medicine, University of Freiburg, Freiburg im Breisgau, Germany.
  • Sauter M; Clinic for Neuropediatrics and Neurorehabilitation, Epilepsy Center for Children and Adolescents, Schön Klinik Vogtareuth, Vogtareuth, Germany.
  • Schäfer H; Research Institute, Rehabilitation, Transition and Palliation, PMU Salzburg, Salzburg, Austria.
  • Schlump JU; Epilepsy Center Hessen and Department of Neurology, Philipps-University Marburg, Marburg (Lahn), Germany.
  • Syrbe S; Department of Pediatrics, Klinikum Worms, Worms, Germany.
  • Thiels C; Department of Pediatrics, University Medicine Mainz, Mainz, Germany.
  • Trollmann R; Department of Pediatric Neurology, Psychosomatics and Pain Management, Klinikum Stuttgart, Stuttgart, Germany.
  • Wiemer-Kruel A; Epilepsy Center Kleinwachau, Radeberg, Germany.
  • Wilken B; Department of Neuropediatrics, University Children´s Hospital of Saarland, Homburg, Germany.
  • Zukunft B; Department of Neuropediatrics, Christian-Albrechts-University Kiel and University Hospital Schleswig-Holstein, Kiel, Germany.
  • Strzelczyk A; Epilepsy Center for Children, University Hospital Neuruppin, Brandenburg Medical School, Neuruppin, Germany.
CNS Drugs ; 35(10): 1107-1122, 2021 10.
Article in En | MEDLINE | ID: mdl-34275102
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Tuberous Sclerosis / Surveys and Questionnaires / Medication Adherence / Patient Preference / Everolimus / Immunosuppressive Agents Type of study: Diagnostic_studies / Qualitative_research / Screening_studies Limits: Adolescent / Adult / Aged / Child / Child, preschool / Female / Humans / Infant / Male / Middle aged Country/Region as subject: Europa Language: En Journal: CNS Drugs Journal subject: FARMACOLOGIA / NEUROLOGIA / TERAPIA POR MEDICAMENTOS Year: 2021 Type: Article Affiliation country: Germany
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Tuberous Sclerosis / Surveys and Questionnaires / Medication Adherence / Patient Preference / Everolimus / Immunosuppressive Agents Type of study: Diagnostic_studies / Qualitative_research / Screening_studies Limits: Adolescent / Adult / Aged / Child / Child, preschool / Female / Humans / Infant / Male / Middle aged Country/Region as subject: Europa Language: En Journal: CNS Drugs Journal subject: FARMACOLOGIA / NEUROLOGIA / TERAPIA POR MEDICAMENTOS Year: 2021 Type: Article Affiliation country: Germany