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A multicenter study on quality of life of the "greater patient" in congenital ichthyoses.
Abeni, Damiano; Rotunno, Roberta; Diociaiuti, Andrea; Giancristoforo, Simona; Bonamonte, Domenico; Schepis, Carmelo; Neri, Iria; Castiglia, Daniele; Zambruno, Giovanna; El Hachem, May.
Affiliation
  • Abeni D; IDI-IRCCS, Via Monti di Creta, 104, 00167, Rome, Italy.
  • Rotunno R; Dermatology Unit and Genodermatosis Unit, Genetics and Rare Diseases Research Division, Bambino Gesù Children's Hospital, IRCCS, Piazza Sant'Onofrio, 4, 00165, Rome, Italy.
  • Diociaiuti A; Dermatology Unit and Genodermatosis Unit, Genetics and Rare Diseases Research Division, Bambino Gesù Children's Hospital, IRCCS, Piazza Sant'Onofrio, 4, 00165, Rome, Italy. andrea.diociaiuti@opbg.net.
  • Giancristoforo S; Dermatology Unit and Genodermatosis Unit, Genetics and Rare Diseases Research Division, Bambino Gesù Children's Hospital, IRCCS, Piazza Sant'Onofrio, 4, 00165, Rome, Italy.
  • Bonamonte D; Dermatology Unit, Department of Biomedical Science and Human Oncology, University of Bari, Bari, Italy.
  • Schepis C; Genodermatosis Center, Oasi Scientific Institute, IRCCS, Troina, Italy.
  • Neri I; Dermatology-IRCCS Policlinico di S. Orsola, Department of Experimental, Diagnostic and Specialty Medicine (DIMES), Alma Mater Studiorum University of Bologna, Bologna, Italy.
  • Castiglia D; IDI-IRCCS, Via Monti di Creta, 104, 00167, Rome, Italy.
  • Zambruno G; Genodermatosis Unit, Genetics and Rare Diseases Research Division, Bambino Gesù Children's Hospital, IRCCS, Piazza Sant'Onofrio 4, 00165, Rome, Italy.
  • El Hachem M; Dermatology Unit and Genodermatosis Unit, Genetics and Rare Diseases Research Division, Bambino Gesù Children's Hospital, IRCCS, Piazza Sant'Onofrio, 4, 00165, Rome, Italy.
Orphanet J Rare Dis ; 16(1): 440, 2021 10 20.
Article in En | MEDLINE | ID: mdl-34670609
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Ichthyosiform Erythroderma, Congenital / Ichthyosis, Lamellar / Keratoderma, Palmoplantar Type of study: Clinical_trials / Observational_studies / Prevalence_studies / Risk_factors_studies Limits: Adult / Child / Humans Language: En Journal: Orphanet J Rare Dis Journal subject: MEDICINA Year: 2021 Type: Article Affiliation country: Italy
Fulltext
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PubMed Links
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Ichthyosiform Erythroderma, Congenital / Ichthyosis, Lamellar / Keratoderma, Palmoplantar Type of study: Clinical_trials / Observational_studies / Prevalence_studies / Risk_factors_studies Limits: Adult / Child / Humans Language: En Journal: Orphanet J Rare Dis Journal subject: MEDICINA Year: 2021 Type: Article Affiliation country: Italy