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Characterizing informational needs and information seeking behavior of patients with breast cancer.
Ludwigson, Abigail; Huynh, Victoria; Vemuru, Sudheer; Romandetti, Karina; Fisher, Christine; Coons, Helen L; Pettigrew, Jessica; Hampanda, Karen; Kaoutzanis, Christodoulos; Ahrendt, Gretchen; Afghahi, Anosheh; Stewart, Camille; Tevis, Sarah.
Affiliation
  • Ludwigson A; University of Colorado School of Medicine, 13001 E 17th Pl, Aurora, CO, USA. Electronic address: Abigail.ludwigson@cuanschutz.edu.
  • Huynh V; Department of Surgery, University of Colorado School of Medicine, Aurora, CO, USA.
  • Vemuru S; Department of Surgery, University of Colorado School of Medicine, Aurora, CO, USA.
  • Romandetti K; Department of Surgery, University of Colorado School of Medicine, Aurora, CO, USA.
  • Fisher C; Department of Radiation Oncology, University of Colorado School of Medicine, Aurora, CO, USA.
  • Coons HL; Department of Psychiatry, University of Colorado School of Medicine, Aurora, CO, USA.
  • Pettigrew J; Department of Obstetrics and Gynecology, University of Colorado School of Medicine, Aurora, CO, USA.
  • Hampanda K; Department of Obstetrics and Gynecology, University of Colorado School of Medicine, Aurora, CO, USA.
  • Kaoutzanis C; Division of Plastic and Reconstructive Surgery, Department of Surgery, University of Colorado School of Medicine, Aurora, CO, USA.
  • Ahrendt G; Department of Surgery, University of Colorado School of Medicine, Aurora, CO, USA.
  • Afghahi A; Department of Medicine, University of Colorado School of Medicine, Aurora, CO, USA.
  • Stewart C; Department of Surgery, University of Colorado School of Medicine, Aurora, CO, USA.
  • Tevis S; Department of Surgery, University of Colorado School of Medicine, Aurora, CO, USA.
Am J Surg ; 227: 100-105, 2024 Jan.
Article in En | MEDLINE | ID: mdl-37863795
ABSTRACT

BACKGROUND:

Appropriate information may facilitate adjustment to cancer diagnoses. Our study aims to characterize informational satisfaction in breast cancer patients and assess resources used by patients to gain information.

METHODS:

Newly diagnosed Stage 0-III breast cancer patients seen at an academic medical center between May and September 2020 received questionnaires assessing information satisfaction. Patients indicated resources used to obtain information along with satisfaction with information received in various topics. A subset of questionnaire respondents completed semi-structured interviews.

RESULTS:

Fifty-two (35 â€‹%) patients completed the questionnaire. Patients received information from physicians (96 â€‹%), the internet (81 â€‹%), nurses (79 â€‹%), and fellow breast cancer patients (54 â€‹%). Interview participants preferred receiving information from providers when making medical decisions but found patient forums and social media to be important adjuncts for receiving information.

CONCLUSION:

Patients are satisfied with information received about diagnosis and treatment, but finances, sexual health, and fertility are less frequently discussed.
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Physicians / Breast Neoplasms Limits: Female / Humans Language: En Journal: Am J Surg Year: 2024 Type: Article
Fulltext
Print
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PubMed Links
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Physicians / Breast Neoplasms Limits: Female / Humans Language: En Journal: Am J Surg Year: 2024 Type: Article