Your browser doesn't support javascript.
loading
The ethical framework for performing research with rare inherited neurometabolic disease patients.
Giannuzzi, Viviana; Devlieger, Hugo; Margari, Lucia; Odlind, Viveca Lena; Ragab, Lamis; Bellettato, Cinzia Maria; D'Avanzo, Francesca; Lampe, Christina; Cassis, Linda; Cortès-Saladelafont, Elisenda; Cazorla, Ángels Garcia; Baric, Ivo; Cvitanovic-Sojat, Ljerka; Fumic, Ksenija; Dali, Christine I; Bartoloni, Franco; Bonifazi, Fedele; Scarpa, Maurizio; Ceci, Adriana.
Afiliación
  • Giannuzzi V; Fondazione Per la Ricerca Farmacologica Gianni Benzi Onlus, Via Abate Eustasio 30, 70010, Valenzano, BA, Italy. vg@benzifoundation.org.
  • Devlieger H; Department of Development and Regeneration, University of Leuven, O&N IV Herestraat 49-box 805, 3000, Leuven, Belgium.
  • Margari L; Department of Basic Medical Sciences, Neuroscience and Sense Organs, "Aldo Moro" University of Bari, Piazza Giulio Cesare 11, 70124, Bari, Italy.
  • Odlind VL; Department of Obstetrics and Gynaecology, Uppsala Universitet, 751 85, Uppsala, SE, Sweden.
  • Ragab L; Cairo University, Al Orman Guiza, Giza, 12613, Egypt.
  • Bellettato CM; Brains for Brain Foundation - onlus, Padova, Italy.
  • D'Avanzo F; Brains for Brain Foundation - onlus, Padova, Italy.
  • Lampe C; Brains for Brain Foundation - onlus, Padova, Italy.
  • Cassis L; Department of Pediatric and Adolescent Medicine, Centre for Rare Diseases, Horst Schmidt Klinik Wiesbaden, Wiesbaden, Germany.
  • Cortès-Saladelafont E; Neurology, Gastroenterology Pathology and Clinical Biochemistry Departments, IRP-HSJD and CIBERER, Barcelona, Spain.
  • Cazorla ÁG; Neurology, Gastroenterology Pathology and Clinical Biochemistry Departments, IRP-HSJD and CIBERER, Barcelona, Spain.
  • Baric I; Neurology, Gastroenterology Pathology and Clinical Biochemistry Departments, IRP-HSJD and CIBERER, Barcelona, Spain.
  • Cvitanovic-Sojat L; University Hospital Centre Zagreb, Zagreb, Croatia.
  • Fumic K; School of Medicine, University of Zagreb, Zagreb, Croatia.
  • Dali CI; School of Medicine, University of Zagreb, Zagreb, Croatia.
  • Bartoloni F; University Hospital Centre Zagreb, Zagreb, Croatia.
  • Bonifazi F; Department of Clinical Genetics, Copenhagen University Hospital, Rigshospitalet, Copenhagen, Denmark.
  • Scarpa M; Fondazione Per la Ricerca Farmacologica Gianni Benzi Onlus, Via Abate Eustasio 30, 70010, Valenzano, BA, Italy.
  • Ceci A; Fondazione Per la Ricerca Farmacologica Gianni Benzi Onlus, Via Abate Eustasio 30, 70010, Valenzano, BA, Italy.
Eur J Pediatr ; 176(3): 395-405, 2017 Mar.
Article en En | MEDLINE | ID: mdl-28093642
Asunto(s)
Palabras clave
Texto completo
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Asunto principal: Ensayos Clínicos como Asunto / Enfermedades Raras / Investigación Biomédica / Consentimiento Informado / Enfermedades Metabólicas / Enfermedades del Sistema Nervioso Tipo de estudio: Guideline / Prognostic_studies Límite: Child / Humans País/Región como asunto: Europa Idioma: En Revista: Eur J Pediatr Año: 2017 Tipo del documento: Article País de afiliación: Italia
Texto completo
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Asunto principal: Ensayos Clínicos como Asunto / Enfermedades Raras / Investigación Biomédica / Consentimiento Informado / Enfermedades Metabólicas / Enfermedades del Sistema Nervioso Tipo de estudio: Guideline / Prognostic_studies Límite: Child / Humans País/Región como asunto: Europa Idioma: En Revista: Eur J Pediatr Año: 2017 Tipo del documento: Article País de afiliación: Italia