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Ethical Considerations Related to Return of Results from Genomic Medicine Projects: The eMERGE Network (Phase III) Experience.
Fossey, Robyn; Kochan, David; Winkler, Erin; Pacyna, Joel E; Olson, Janet; Thibodeau, Stephen; Connolly, John J; Harr, Margaret; Behr, Meckenzie A; Prows, Cynthia A; Cobb, Beth; Myers, Melanie F; Leslie, Nancy D; Namjou-Khales, Bahram; Milo Rasouly, Hila; Wynn, Julia; Fedotov, Alexander; Chung, Wendy K; Gharavi, Ali; Williams, Janet L; Pais, Lynn; Holm, Ingrid; Aufox, Sharon; Smith, Maureen E; Scrol, Aaron; Leppig, Kathleen; Jarvik, Gail P; Wiesner, Georgia L; Li, Rongling; Stroud, Mary; Smoller, Jordan W; Sharp, Richard R; Kullo, Iftikhar J.
Afiliación
  • Fossey R; Department of Cardiovascular Diseases, Mayo Clinic, Rochester, MN 55905, USA. rlfossey@yahoo.com.
  • Kochan D; Department of Cardiovascular Diseases, Mayo Clinic, Rochester, MN 55905, USA. kochan.david@mayo.edu.
  • Winkler E; Center for Individualized Medicine and Department of Medical Genomics, Mayo Clinic, Rochester, MN 55905, USA. winkler.Erin2@mayo.edu.
  • Pacyna JE; Department of Health Sciences Research, Biomedical Ethics Research Program, Mayo Clinic, Rochester, MN 55905, USA. pacyna.joel@mayo.edu.
  • Olson J; Department of Health Sciences Research, Biomedical Ethics Research Program, Mayo Clinic, Rochester, MN 55905, USA. olsonj@mayo.edu.
  • Thibodeau S; Department of Laboratory Medicine and Pathology, Mayo Clinic, Rochester, MN 55905, USA. sthibodeau@mayo.edu.
  • Connolly JJ; The Children's Hospital of Philadelphia, Center for Applied Genomics, Philadelphia, PA 19104, USA. ConnollyJ1@email.chop.edu.
  • Harr M; The Children's Hospital of Philadelphia, Center for Applied Genomics, Philadelphia, PA 19104, USA. harrm@email.chop.edu.
  • Behr MA; The Children's Hospital of Philadelphia, Center for Applied Genomics, Philadelphia, PA 19104, USA. behrm@email.chop.edu.
  • Prows CA; Cincinnati Children's Hospital Medical Center, Cincinnati, OH 45229, USA. Cindy.Prows@cchmc.org.
  • Cobb B; Cincinnati Children's Hospital Medical Center, Cincinnati, OH 45229, USA. Beth.Cobb@cchmc.org.
  • Myers MF; Cincinnati Children's Hospital Medical Center, Cincinnati, OH 45229, USA. Melanie.Myers@cchmc.org.
  • Leslie ND; Cincinnati Children's Hospital Medical Center, Cincinnati, OH 45229, USA. Nancy.Leslie@cchmc.org.
  • Namjou-Khales B; Cincinnati Children's Hospital Medical Center, Cincinnati, OH 45229, USA. bahram.namjou@cchmc.org.
  • Milo Rasouly H; Department of Medicine, Division of Nephrology, Columbia University Medical Center, New York, NY 10027, USA. hm2673@cumc.columbia.edu.
  • Wynn J; Department of Pediatrics, Columbia University Medical Center, New York, NY 10032, USA. jw2500@cumc.columbia.edu.
  • Fedotov A; Irving Institute for Clinical and Translational Research, Columbia University Medical Center, New York, NY 10032, USA. avf2117@cumc.columbia.edu.
  • Chung WK; Departments of Pediatrics and Medicine, Columbia University Medical Center, New York, NY 10032, USA. wkc15@cumc.columbia.edu.
  • Gharavi A; Department of Medicine, Division of Nephrology, Columbia University Medical Center, New York, NY 10027, USA. ag2239@cumc.columbia.edu.
  • Williams JL; Genomic Medicine Institute, Geisinger, Danville, PA 17822, USA. jlwilliams3@geisinger.edu.
  • Pais L; Brigham and Women's Hospital and Harvard Medical School, Boston, MA 02115, USA. lspais@bwh.harvard.edu.
  • Holm I; Boston Children's Hospital, Boston, MA 02115, USA. Ingrid.Holm@childrens.harvard.edu.
  • Aufox S; Center for Genetic Medicine, Northwestern University, Chicago, IL 60611, USA. s-aufox@northwestern.edu.
  • Smith ME; Center for Genetic Medicine, Northwestern University, Chicago, IL 60611, USA. m-smith6@northwestern.edu.
  • Scrol A; Kaiser Permanente, Seattle, WA 98101, USA. scrol.a@ghc.org.
  • Leppig K; Kaiser Permanente, Seattle, WA 98101, USA. leppig.k@ghc.org.
  • Jarvik GP; Division of Medical Genetics, University of Washington, Seattle, WA 98195, USA. gjarvik@medicine.washington.edu.
  • Wiesner GL; Department of Medicine, Division of Genomic Medicine, Vanderbilt University Medical Center, Nashville, TN 37212, USA. georgia.wiesner@vanderbilt.edu.
  • Li R; National Human Genome Research Institute, Rockville, MD 20892, USA. lir2@mail.nih.gov.
  • Stroud M; Department of Medicine, Vanderbilt University Medical Center, Nashville, TN 37203, USA. mary.stroud@Vanderbilt.edu.
  • Smoller JW; Center for Genomic Medicine, Massachusetts General Hospital, Boston, MA 02114, USA. jsmoller@partners.org.
  • Sharp RR; Department of Health Sciences Research, Biomedical Ethics Research Program, Mayo Clinic, Rochester, MN 55905, USA. Sharp.Richard@mayo.edu.
  • Kullo IJ; Department of Cardiovascular Diseases, Mayo Clinic, Rochester, MN 55905, USA. kullo.iftikhar@mayo.edu.
J Pers Med ; 8(1)2018 Jan 03.
Article en En | MEDLINE | ID: mdl-29301385
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Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Idioma: En Revista: J Pers Med Año: 2018 Tipo del documento: Article País de afiliación: Estados Unidos
Texto completo
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Idioma: En Revista: J Pers Med Año: 2018 Tipo del documento: Article País de afiliación: Estados Unidos