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Management of congenital ichthyoses: European guidelines of care, part two.
Mazereeuw-Hautier, J; Hernández-Martín, A; O'Toole, E A; Bygum, A; Amaro, C; Aldwin, M; Audouze, A; Bodemer, C; Bourrat, E; Diociaiuti, A; Dolenc-Voljc, M; Dreyfus, I; El Hachem, M; Fischer, J; Ganemo, A; Gouveia, C; Gruber, R; Hadj-Rabia, S; Hohl, D; Jonca, N; Ezzedine, K; Maier, D; Malhotra, R; Rodriguez, M; Ott, H; Paige, D G; Pietrzak, A; Poot, F; Schmuth, M; Sitek, J C; Steijlen, P; Wehr, G; Moreen, M; Vahlquist, A; Traupe, H; Oji, V.
Afiliación
  • Mazereeuw-Hautier J; Reference Centre for Rare Skin Diseases, Dermatology Department, Larrey Hospital, Toulouse, France.
  • Hernández-Martín A; Department of Dermatology, Hospital Infantil Niño Jesús, Madrid, Spain.
  • O'Toole EA; Centre for Cell Biology and Cutaneous Research, Blizard Institute, Barts, and the London School of Medicine and Dentistry, Queen Mary University of London, London, U.K.
  • Bygum A; Department of Dermatology and Allergy Centre, Odense University Hospital, Odense, Denmark.
  • Amaro C; Hospital de Egas Moniz, Centro Hospitalar Lisboa Ocidental, Lisbon, Portugal.
  • Aldwin M; Ichthyosis Support Group, PO Box 1242, Yateley, GU47 7FL, U.K.
  • Audouze A; Association Ichtyose France, Bellerive sur Allier, France.
  • Bodemer C; Department of Dermatology, Reference Center for Genodermatoses and Rare Skin Diseases (MAGEC), Hôpital Saint-Louis, Paris, France.
  • Bourrat E; Institut Imagine, Université Descartes, Sorbonne Paris Cité, Hôpital Necker-Enfants Malades, Paris, France.
  • Diociaiuti A; Department of Dermatology, Reference Center for Genodermatoses and Rare Skin Diseases (MAGEC), Hôpital Saint-Louis, Paris, France.
  • Dolenc-Voljc M; Dermatology Division, Bambino Gesù Children's Hospital-IRCCS, Rome, Italy.
  • Dreyfus I; Department of Dermatovenereology, University Medical Centre Ljubljana, Faculty of Medicine, University of Ljubljana, Ljubljana, Slovenia.
  • El Hachem M; Reference Centre for Rare Skin Diseases, Dermatology Department, Larrey Hospital, Toulouse, France.
  • Fischer J; Dermatology Division, Bambino Gesù Children's Hospital-IRCCS, Rome, Italy.
  • Ganemo A; Institute of Human Genetics, Medical Center - University of Freiburg, Faculty of Medicine, University of Freiburg, Freiburg, Germany.
  • Gouveia C; Department of Dermatology, Institute of Clinical Research in Malmö, Skåne University Hospital, Lund University, Malmö, Sweden.
  • Gruber R; Department of Dermatology, Inselspital, Bern University Hospital, University of Bern, Bern, Switzerland.
  • Hadj-Rabia S; Department of Dermatology, Venereology and Allergology, Medical University of Innsbruck, Innsbruck, Austria.
  • Hohl D; Department of Dermatology, Reference Center for Genodermatoses and Rare Skin Diseases (MAGEC), Hôpital Saint-Louis, Paris, France.
  • Jonca N; Institut Imagine, Université Descartes, Sorbonne Paris Cité, Hôpital Necker-Enfants Malades, Paris, France.
  • Ezzedine K; Department of Dermatology, Hôpital de Beaumont, Lausanne, Switzerland.
  • Maier D; Epithelial Differentiation and Rheumatoid Autoimmunity Unit (UDEAR), UMR 1056 Inserm - Toulouse 3 University, Purpan Hospital, Toulouse, France.
  • Malhotra R; Depatment of Dermatology, Hôpital Henri Mondor, EA EpiDerm, UPEC-Université Paris-Est Créteil, 94010, Créteil, France.
  • Rodriguez M; Dermatology Department, Iuliu Hatieganu University of Medicine and Pharmacy, Cluj-Napoca, Romania.
  • Ott H; Corneoplastic Unit, Queen Victoria Hospital NHS Trust, East Grinstead, West Sussex, U.K.
  • Paige DG; Department of Ear, Nose and Throat, Hospital Universitario Son Espases, Palma de Mallorca, Spain.
  • Pietrzak A; Division of Pediatric Dermatology and Allergology, Auf Der Bult Children's Hospital, Hanover, Germany.
  • Poot F; Department of Dermatology, Royal London Hospital, Barts Health NHS Trust, London, E1 1BB, U.K.
  • Schmuth M; Department of Dermatology, Venereology and Paediatric Dermatology, Medical University of Lublin, Lublin, Poland.
  • Sitek JC; ULB-Erasme Hospital, Department of Dermatology, Brussels, Belgium.
  • Steijlen P; Department of Dermatology, Venereology and Allergology, Medical University of Innsbruck, Innsbruck, Austria.
  • Wehr G; Department of Dermatology and Centre for Rare Disorders, Oslo University Hospital, Oslo, Norway.
  • Moreen M; Department of Dermatology, Maastricht University Medical Centre, GROW Research School for Oncology and Developmental Biology, Maastricht, the Netherlands.
  • Vahlquist A; Selbsthilfe Ichthyose, Kürten, Germany.
  • Traupe H; Department of Dermatology, University Hospitals Leuven, Leuven, Belgium.
  • Oji V; Department of Microbiology and Immunology KU Leuven, Leuven, Belgium.
Br J Dermatol ; 180(3): 484-495, 2019 03.
Article en En | MEDLINE | ID: mdl-29897631
ABSTRACT
These guidelines for the management of congenital ichthyoses have been developed by a multidisciplinary group of European experts following a systematic review of the current literature, an expert conference held in Toulouse in 2016, and a consensus on the discussions. These guidelines summarize evidence and expert-based recommendations and intend to help clinicians with the management of these rare and often complex diseases. These guidelines comprise two sections. This is part two, covering the management of complications and the particularities of some forms of congenital ichthyosis.
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Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Asunto principal: Eritrodermia Ictiosiforme Congénita / Consenso / Dermatología / Ictiosis / Enfermedades del Prematuro Tipo de estudio: Guideline / Qualitative_research Límite: Humans País/Región como asunto: Europa Idioma: En Revista: Br J Dermatol Año: 2019 Tipo del documento: Article País de afiliación: Francia
Texto completo
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Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Asunto principal: Eritrodermia Ictiosiforme Congénita / Consenso / Dermatología / Ictiosis / Enfermedades del Prematuro Tipo de estudio: Guideline / Qualitative_research Límite: Humans País/Región como asunto: Europa Idioma: En Revista: Br J Dermatol Año: 2019 Tipo del documento: Article País de afiliación: Francia