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Management of congenital ichthyoses: European guidelines of care, part one.
Mazereeuw-Hautier, J; Vahlquist, A; Traupe, H; Bygum, A; Amaro, C; Aldwin, M; Audouze, A; Bodemer, C; Bourrat, E; Diociaiuti, A; Dolenc-Voljc, M; Dreyfus, I; El Hachem, M; Fischer, J; Gånemo, A; Gouveia, C; Gruber, R; Hadj-Rabia, S; Hohl, D; Jonca, N; Ezzedine, K; Maier, D; Malhotra, R; Rodriguez, M; Ott, H; Paige, D G; Pietrzak, A; Poot, F; Schmuth, M; Sitek, J C; Steijlen, P; Wehr, G; Moreen, M; O'Toole, E A; Oji, V; Hernandez-Martin, A.
Afiliación
  • Mazereeuw-Hautier J; Reference Centre for Rare Skin Diseases, Dermatology Department, Larrey Hospital, Toulouse, France.
  • Vahlquist A; Department of Medical Sciences, Uppsala University, Uppsala, Sweden.
  • Traupe H; Department of Dermatology, University Hospital of Münster, Von-Esmarch-Straße 58,, D-48149, Münster, Germany.
  • Bygum A; Department of Dermatology and Allergy Centre, Odense University Hospital, Odense, Denmark.
  • Amaro C; Hospital de Egas Moniz, Centro Hospitalar Lisboa Ocidental, Lisbon, Portugal.
  • Aldwin M; Ichthyosis Support Group, PO Box 1242, Yateley, GU47 7FL, U.K.
  • Audouze A; Association Ichtyose France, Bellerive sur Allier, France.
  • Bodemer C; Department of Dermatology, Reference Center for Genodermatoses and Rare Skin Diseases (MAGEC), Paris, France.
  • Bourrat E; Institut Imagine, Université Descartes, Sorbonne Paris Cité, Hôpital Necker-Enfants Malades, Paris.
  • Diociaiuti A; Department of Dermatology, Reference Center for Genodermatoses and Rare Skin Diseases (MAGEC), Paris, France.
  • Dolenc-Voljc M; Dermatology Division, Bambino Gesù Children's Hospital-IRCCS, Rome, Italy.
  • Dreyfus I; Department of Dermatovenereology, University Medical Centre Ljubljana, Faculty of Medicine, University of Ljubljana, Ljubljana, Slovenia.
  • El Hachem M; Reference Centre for Rare Skin Diseases, Dermatology Department, Larrey Hospital, Toulouse, France.
  • Fischer J; Dermatology Division, Bambino Gesù Children's Hospital-IRCCS, Rome, Italy.
  • Gånemo A; Institute of Human Genetics, Medical Center - University of Freiburg, Faculty of Medicine, University of Freiburg, Freiburg, Germany.
  • Gouveia C; Department of Dermatology, Institute of Clinical Research in Malmö, Skåne University Hospital, Lund University, Malmö, Sweden.
  • Gruber R; Department of Dermatology, Inselspital, Bern University Hospital, University of Bern, Bern, Switzerland.
  • Hadj-Rabia S; Department of Dermatology, Venereology and Allergology, Medical University of Innsbruck, Innsbruck, Austria.
  • Hohl D; Department of Dermatology, Reference Center for Genodermatoses and Rare Skin Diseases (MAGEC), Paris, France.
  • Jonca N; Institut Imagine, Université Descartes, Sorbonne Paris Cité, Hôpital Necker-Enfants Malades, Paris.
  • Ezzedine K; Department of Dermatology, Hôpital de Beaumont, Lausanne, Switzerland.
  • Maier D; Epithelial Differentiation and Rheumatoid Autoimmunity Unit (UDEAR), UMR 1056 Inserm - Toulouse 3 University, Purpan Hospital, Toulouse, France.
  • Malhotra R; Department of Dermatology, Hôpital Henri Mondor, EA EpiDerm, UPEC-Université Paris-Est Créteil, 94010, Créteil, France.
  • Rodriguez M; Dermatology Department, Iuliu Hatieganu University of Medicine and Pharmacy, Cluj-Napoca, Romania.
  • Ott H; Corneoplastic Unit, Queen Victoria Hospital NHS Trust, East Grinstead, U.K.
  • Paige DG; Department of Ear, Nose and Throat, Hospital Universitario Son Espases, Palma de Mallorca, Spain.
  • Pietrzak A; Division of Pediatric Dermatology and Allergology, Auf Der Bult Children's Hospital, Hanover, Germany.
  • Poot F; Department of Dermatology, Royal London Hospital, Barts Health NHS Trust, London, E1 1BB, U.K.
  • Schmuth M; Department of Dermatology, Venereology and Paediatric Dermatology, Medical University of Lublin, Lublin, Poland.
  • Sitek JC; ULB-Erasme Hospital, Department of Dermatology, Brussels, Belgium.
  • Steijlen P; Department of Dermatology, Venereology and Allergology, Medical University of Innsbruck, Innsbruck, Austria.
  • Wehr G; Department of Dermatology and Centre for Rare Disorders, Oslo University Hospital, Oslo, Norway.
  • Moreen M; Department of Dermatology, Maastricht University Medical Centre, GROW Research School for Oncology and Developmental Biology, Maastricht, the Netherlands.
  • O'Toole EA; Selbsthilfe Ichthyose, Kürten, Germany.
  • Oji V; Department of Dermatology, University Hospitals Leuven, Leuven, Belgium.
  • Hernandez-Martin A; Department of Microbiology and Immunology, KU Leuven, Belgium.
Br J Dermatol ; 180(2): 272-281, 2019 02.
Article en En | MEDLINE | ID: mdl-30216406
ABSTRACT
These guidelines for the management of congenital ichthyoses have been developed by a multidisciplinary group of European experts following a systematic review of the current literature, an expert conference held in Toulouse in 2016 and a consensus on the discussions. They summarize evidence and expert-based recommendations and are intended to help clinicians with the management of these rare and often complex diseases. These guidelines comprise two sections. This is part one, covering topical therapies, systemic therapies, psychosocial management, communicating the diagnosis and genetic counselling.
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Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Asunto principal: Terapia Conductista / Eritrodermia Ictiosiforme Congénita / Consenso / Fármacos Dermatológicos / Dermatología Tipo de estudio: Diagnostic_studies / Guideline / Qualitative_research / Systematic_reviews Límite: Humans País/Región como asunto: Europa Idioma: En Revista: Br J Dermatol Año: 2019 Tipo del documento: Article País de afiliación: Francia
Texto completo
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PubMed Links
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Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Asunto principal: Terapia Conductista / Eritrodermia Ictiosiforme Congénita / Consenso / Fármacos Dermatológicos / Dermatología Tipo de estudio: Diagnostic_studies / Guideline / Qualitative_research / Systematic_reviews Límite: Humans País/Región como asunto: Europa Idioma: En Revista: Br J Dermatol Año: 2019 Tipo del documento: Article País de afiliación: Francia