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The Turner syndrome research registry: Creating equipoise between investigators and participants.
Prakash, Siddharth K; Lugo-Ruiz, Soniely; Rivera-Dávila, Michelle; Rubio, Nunilo; Shah, Avni N; Knickmeyer, Rebecca C; Scurlock, Cindy; Crenshaw, Melissa; Davis, Shanlee M; Lorigan, Gary A; Dorfman, Aaron T; Rubin, Karen; Maslen, Cheryl; Bamba, Vaneeta; Kruszka, Paul; Silberbach, Michael.
Afiliación
  • Prakash SK; Division of Medical Genetics, Department of Internal Medicine, University of Texas Health Science Center at Houston, Houston, Texas.
  • Lugo-Ruiz S; Division of Endocrinology, Department of Pediatrics, University of Texas Health Science Center at Houston, Houston, Texas.
  • Rivera-Dávila M; Division of Endocrinology, Department of Pediatrics, University of Texas Health Science Center at Houston, Houston, Texas.
  • Rubio N; Division of Endocrinology, Department of Pediatrics, University of Texas Health Science Center at Houston, Houston, Texas.
  • Shah AN; Division of Endocrinology, Department of Pediatrics, University of Texas Health Science Center at Houston, Houston, Texas.
  • Knickmeyer RC; Department of Pediatrics and Human Development, Institute for Quantitative Health Sciences and Engineering, C-RAIND Fellow, Michigan State University, East Lansing, Michigan.
  • Scurlock C; Turner Syndrome Society of the United States, Houston, Texas.
  • Crenshaw M; Division of Genetics, Johns Hopkins All Children's Hospital, St. Petersburg, Florida.
  • Davis SM; Division of Endocrinology, Department of Pediatrics, University of Colorado School of Medicine, Colorado, Aurora.
  • Lorigan GA; Department of Chemistry and Biochemistry, Miami University, Oxford, Ohio.
  • Dorfman AT; Division of Cardiology, Department of Pediatrics, Children's Hospital of Philadelphia, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, Pennsylvania.
  • Rubin K; Department of Pediatrics, Division of Diabetes and Endocrinology, Connecticut Children's Medical Center, Hartford, Connecticut.
  • Maslen C; Department of Molecular and Medical Genetics, Oregon Health & Science University, Oregon, Portland.
  • Bamba V; Division of Endocrinology, Department of Pediatrics, Children's Hospital of Philadelphia, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, Pennsylvania.
  • Kruszka P; Medical Genetics Branch, National Human Genome Research Institute, The National Institutes of Health.
  • Silberbach M; Division of Pediatric Cardiology, Department of Pediatrics, Oregon Health & Science University, Oregon, Portland.
Am J Med Genet C Semin Med Genet ; 181(1): 135-140, 2019 03.
Article en En | MEDLINE | ID: mdl-30758128
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Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Asunto principal: Investigación / Síndrome de Turner / Sistema de Registros Límite: Female / Humans / Male Idioma: En Revista: Am J Med Genet C Semin Med Genet Asunto de la revista: GENETICA MEDICA Año: 2019 Tipo del documento: Article
Texto completo
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PubMed Links
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Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Asunto principal: Investigación / Síndrome de Turner / Sistema de Registros Límite: Female / Humans / Male Idioma: En Revista: Am J Med Genet C Semin Med Genet Asunto de la revista: GENETICA MEDICA Año: 2019 Tipo del documento: Article