Fatigue in patients with syndromic heritable thoracic aortic disease: a systematic review of the literature and a qualitative study of patients' experiences and perceptions.

Velvin, Gry; Johansen, Heidi; Østertun-Geirdal, Amy; Bathen, Trine

Velvin, Gry; Johansen, Heidi; Østertun-Geirdal, Amy; Bathen, Trine.

Afiliación

Velvin G; TRS National Resource Centre for Rare Disorders, Sunnaas Rehabilitation Hospital, 1450, Nesoddtangen, Norway. Gry.velvin@sunnaas.no.
Johansen H; TRS National Resource Centre for Rare Disorders, Sunnaas Rehabilitation Hospital, 1450, Nesoddtangen, Norway.
Østertun-Geirdal A; Department of Social Work, Child Welfare and Social Policy, Faculty of Social Science, Oslo Metropolitan University, Oslo, Norway.
Bathen T; TRS National Resource Centre for Rare Disorders, Sunnaas Rehabilitation Hospital, 1450, Nesoddtangen, Norway.

Orphanet J Rare Dis ; 18(1): 119, 2023 05 19.

Article en En | MEDLINE | ID: mdl-37208760

Asunto(s)

Síndrome de Ehlers-Danlos Tipo IV; Síndrome de Loeys-Dietz; Síndrome de Marfan; Adulto; Niño; Humanos; Estudios Prospectivos; Investigación Cualitativa; Fatiga

Palabras clave

Exhaustion; Fatigue; Heritable thoracic aortic disease; Loeys-Dietz syndrome and vascular Ehlers-Danlos syndrome; Marfan syndrome; Qualitative focus groups; Systematic review

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Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Asunto principal: Síndrome de Loeys-Dietz / Síndrome de Ehlers-Danlos Tipo IV / Síndrome de Marfan Tipo de estudio: Observational_studies / Qualitative_research / Risk_factors_studies / Systematic_reviews Límite: Adult / Child / Humans Idioma: En Revista: Orphanet J Rare Dis Asunto de la revista: MEDICINA Año: 2023 Tipo del documento: Article País de afiliación: Noruega

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