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The NYCKidSeq randomized controlled trial: Impact of GUÍA digitally enhanced genetic results disclosure in diverse families.
Suckiel, Sabrina A; Kelly, Nicole R; Odgis, Jacqueline A; Gallagher, Katie M; Sebastin, Monisha; Bonini, Katherine E; Marathe, Priya N; Brown, Kaitlyn; Di Biase, Miranda; Ramos, Michelle A; Rodriguez, Jessica E; Scarimbolo, Laura; Insel, Beverly J; Ferar, Kathleen D M; Zinberg, Randi E; Diaz, George A; Greally, John M; Abul-Husn, Noura S; Bauman, Laurie J; Gelb, Bruce D; Horowitz, Carol R; Wasserstein, Melissa P; Kenny, Eimear E.
Afiliación
  • Suckiel SA; Institute for Genomic Health, Icahn School of Medicine at Mount Sinai, New York, NY 10029, USA; Department of Medicine, Icahn School of Medicine at Mount Sinai, New York, NY 10029, USA. Electronic address: sabrina.suckiel@mssm.edu.
  • Kelly NR; Department of Pediatrics, Division of Pediatric Genetic Medicine, Children's Hospital at Montefiore/Montefiore Medical Center/Albert Einstein College of Medicine, Bronx, NY 10467, USA.
  • Odgis JA; Institute for Genomic Health, Icahn School of Medicine at Mount Sinai, New York, NY 10029, USA.
  • Gallagher KM; Department of Pediatrics, Division of Pediatric Genetic Medicine, Children's Hospital at Montefiore/Montefiore Medical Center/Albert Einstein College of Medicine, Bronx, NY 10467, USA.
  • Sebastin M; Department of Pediatrics, Division of Pediatric Genetic Medicine, Children's Hospital at Montefiore/Montefiore Medical Center/Albert Einstein College of Medicine, Bronx, NY 10467, USA.
  • Bonini KE; Institute for Genomic Health, Icahn School of Medicine at Mount Sinai, New York, NY 10029, USA.
  • Marathe PN; Institute for Genomic Health, Icahn School of Medicine at Mount Sinai, New York, NY 10029, USA.
  • Brown K; Department of Pediatrics, Division of Pediatric Genetic Medicine, Children's Hospital at Montefiore/Montefiore Medical Center/Albert Einstein College of Medicine, Bronx, NY 10467, USA.
  • Di Biase M; Department of Pediatrics, Division of Pediatric Genetic Medicine, Children's Hospital at Montefiore/Montefiore Medical Center/Albert Einstein College of Medicine, Bronx, NY 10467, USA.
  • Ramos MA; Department of Population Health Science and Policy, Icahn School of Medicine at Mount Sinai, New York, NY 10029, USA; Institute for Health Equity Research, Icahn School of Medicine at Mount Sinai, New York, NY 10029, USA.
  • Rodriguez JE; Institute for Genomic Health, Icahn School of Medicine at Mount Sinai, New York, NY 10029, USA.
  • Scarimbolo L; Institute for Genomic Health, Icahn School of Medicine at Mount Sinai, New York, NY 10029, USA.
  • Insel BJ; Institute for Genomic Health, Icahn School of Medicine at Mount Sinai, New York, NY 10029, USA.
  • Ferar KDM; Institute for Genomic Health, Icahn School of Medicine at Mount Sinai, New York, NY 10029, USA.
  • Zinberg RE; Department of Genetics and Genomic Sciences, Icahn School of Medicine at Mount Sinai, New York, NY 10029, USA; Department of Obstetrics, Gynecology and Reproductive Science, Icahn School of Medicine at Mount Sinai, New York, NY 10029, USA.
  • Diaz GA; Department of Genetics and Genomic Sciences, Icahn School of Medicine at Mount Sinai, New York, NY 10029, USA; Department of Pediatrics, Icahn School of Medicine at Mount Sinai, New York, NY 10029, USA.
  • Greally JM; Department of Pediatrics, Division of Pediatric Genetic Medicine, Children's Hospital at Montefiore/Montefiore Medical Center/Albert Einstein College of Medicine, Bronx, NY 10467, USA.
  • Abul-Husn NS; Institute for Genomic Health, Icahn School of Medicine at Mount Sinai, New York, NY 10029, USA; Department of Medicine, Icahn School of Medicine at Mount Sinai, New York, NY 10029, USA; Department of Genetics and Genomic Sciences, Icahn School of Medicine at Mount Sinai, New York, NY 10029, USA.
  • Bauman LJ; Department of Psychiatry and Behavioral Sciences, Albert Einstein College of Medicine, Bronx, NY 10467, USA; Department of Pediatrics, Albert Einstein College of Medicine, Bronx, NY 10467, USA.
  • Gelb BD; Department of Genetics and Genomic Sciences, Icahn School of Medicine at Mount Sinai, New York, NY 10029, USA; Department of Pediatrics, Icahn School of Medicine at Mount Sinai, New York, NY 10029, USA; Mindich Child Health and Development Institute, Icahn School of Medicine at Mount Sinai, New York
  • Horowitz CR; Department of Medicine, Icahn School of Medicine at Mount Sinai, New York, NY 10029, USA; Department of Population Health Science and Policy, Icahn School of Medicine at Mount Sinai, New York, NY 10029, USA; Institute for Health Equity Research, Icahn School of Medicine at Mount Sinai, New York, NY
  • Wasserstein MP; Department of Pediatrics, Division of Pediatric Genetic Medicine, Children's Hospital at Montefiore/Montefiore Medical Center/Albert Einstein College of Medicine, Bronx, NY 10467, USA.
  • Kenny EE; Institute for Genomic Health, Icahn School of Medicine at Mount Sinai, New York, NY 10029, USA; Department of Medicine, Icahn School of Medicine at Mount Sinai, New York, NY 10029, USA; Department of Genetics and Genomic Sciences, Icahn School of Medicine at Mount Sinai, New York, NY 10029, USA. Ele
Am J Hum Genet ; 110(12): 2029-2041, 2023 Dec 07.
Article en En | MEDLINE | ID: mdl-38006881
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Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Asunto principal: Revelación / Asesoramiento Genético Límite: Child / Humans Idioma: En Revista: Am J Hum Genet Año: 2023 Tipo del documento: Article
Texto completo
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Asunto principal: Revelación / Asesoramiento Genético Límite: Child / Humans Idioma: En Revista: Am J Hum Genet Año: 2023 Tipo del documento: Article