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Sharing data for future research-engaging participants' views about data governance beyond the original project: a DIRECT Study.
Shah, Nisha; Coathup, Victoria; Teare, Harriet; Forgie, Ian; Giordano, Giuseppe Nicola; Hansen, Tue Haldor; Groeneveld, Lenka; Hudson, Michelle; Pearson, Ewan; Ruetten, Hartmut; Kaye, Jane.
Afiliación
  • Shah N; HeLEX Centre, Nuffield Department of Population Health, University of Oxford, Oxford, UK. Nisha.shah@dph.ox.ac.uk.
  • Coathup V; HeLEX Centre, Nuffield Department of Population Health, University of Oxford, Oxford, UK.
  • Teare H; HeLEX Centre, Nuffield Department of Population Health, University of Oxford, Oxford, UK.
  • Forgie I; Division of Molecular and Clinical Medicine, University of Dundee, Dundee, UK.
  • Giordano GN; Department of Clinical Sciences, Genetic and Molecular Epidemiology Unit, Lund University, Malmö, Sweden.
  • Hansen TH; The Novo Nordisk Foundation Center for Basic Metabolic Research, Section of Metabolic Genetics, Faculty of Health and Medical Sciences, University of Copenhagen, Copenhagen, Denmark.
  • Groeneveld L; Department of Epidemiology and Biostatistics, Vrije Universiteit Medical centre, Amsterdam, The Netherlands.
  • Hudson M; NIHR Exeter Clinical Research Facility, University of Exeter Medical School, Exeter, UK.
  • Pearson E; Division of Population Health & Genomics, School of Medicine, University of Dundee, Dundee, UK.
  • Ruetten H; Translational Medicine & Early Development, Sanofi-Aventis Deutschland GmbH, Frankfurt, Germany.
  • Kaye J; HeLEX Centre, Nuffield Department of Population Health, University of Oxford, Oxford, UK.
Genet Med ; 21(5): 1131-1138, 2019 05.
Article en En | MEDLINE | ID: mdl-30262927
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Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Asunto principal: Participación del Paciente / Difusión de la Información / Investigación Biomédica Tipo de estudio: Qualitative_research Límite: Adult / Aged / Aged80 / Female / Humans / Male / Middle aged País/Región como asunto: Europa Idioma: En Revista: Genet Med Asunto de la revista: GENETICA MEDICA Año: 2019 Tipo del documento: Article País de afiliación: Reino Unido
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Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Asunto principal: Participación del Paciente / Difusión de la Información / Investigación Biomédica Tipo de estudio: Qualitative_research Límite: Adult / Aged / Aged80 / Female / Humans / Male / Middle aged País/Región como asunto: Europa Idioma: En Revista: Genet Med Asunto de la revista: GENETICA MEDICA Año: 2019 Tipo del documento: Article País de afiliación: Reino Unido