Your browser doesn't support javascript.
loading
Establishing core outcome domains in pediatric kidney disease: report of the Standardized Outcomes in Nephrology-Children and Adolescents (SONG-KIDS) consensus workshops.
Hanson, Camilla S; Craig, Jonathan C; Logeman, Charlotte; Sinha, Aditi; Dart, Allison; Eddy, Allison A; Guha, Chandana; Gipson, Debbie S; Bockenhauer, Detlef; Yap, Hui-Kim; Groothoff, Jaap; Zappitelli, Michael; Webb, Nicholas J A; Alexander, Stephen I; Furth, Susan L; Samuel, Susan; Neu, Alicia; Viecelli, Andrea K; Ju, Angela; Sharma, Ankit; Au, Eric H; Desmond, Hailey; Shen, Jenny I; Manera, Karine E; Azukaitis, Karolis; Dunn, Louese; Carter, Simon A; Gutman, Talia; Cho, Yeoungjee; Walker, Amanda; Francis, Anna; Sanchez-Kazi, Cheryl; Kausman, Joshua; Pearl, Meghan; Benador, Nadine; Sahney, Shobha; Tong, Allison.
Afiliación
  • Hanson CS; Sydney School of Public Health, The University of Sydney, Sydney, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, Australia. Electronic address: camilla.hanson@sydney.edu.au.
  • Craig JC; College of Medicine and Public Health, Flinders University, Adelaide, South Australia, Australia.
  • Logeman C; Sydney School of Public Health, The University of Sydney, Sydney, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, Australia.
  • Sinha A; Division of Nephrology, Department of Pediatrics, All India Institute of Medical Sciences, New Delhi, India.
  • Dart A; Department of Pediatrics and Child Health, The Children's Hospital Research Institute of Manitoba, University of Manitoba, Winnipeg, Manitoba, Canada.
  • Eddy AA; Department of Pediatrics, University of British Columbia, Vancouver, British Columbia, Canada.
  • Guha C; Sydney School of Public Health, The University of Sydney, Sydney, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, Australia.
  • Gipson DS; Division of Nephrology, Department of Pediatrics, University of Michigan, Ann Arbor, Michigan, USA.
  • Bockenhauer D; University College London Department of Renal Medicine, Great Ormond Street Hospital for Children, National Health Service Foundation Trust, London, UK.
  • Yap HK; Department of Pediatrics, Yong Loo Lin School of Medicine, National University of Singapore, Singapore, Singapore.
  • Groothoff J; Department of Pediatric Nephrology, Emma Children's Hospital Academic Medical Center, Amsterdam, The Netherlands.
  • Zappitelli M; Department of Nephrology, SickKids, Toronto, Ontario, Canada.
  • Webb NJA; Department of Paediatric Nephrology and National Institute for Health Research/Wellcome Trust Clinical Research Facility University of Manchester, Manchester Academic Health Science Centre, Royal Manchester Children's Hospital, Manchester, UK.
  • Alexander SI; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, Australia.
  • Furth SL; Department of Pediatrics, Perelman School of Medicine at the University of Pennsylvania, Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, USA.
  • Samuel S; Department of Pediatrics, Section of Nephrology, University of Calgary, Calgary, Alberta, Canada.
  • Neu A; Division of Pediatric Nephrology, The Johns Hopkins University School of Medicine, Baltimore, Maryland, USA.
  • Viecelli AK; Department of Nephrology, Princess Alexandra Hospital, Brisbane, Queensland, Australia; Australasian Kidney Trials Network, The University of Queensland, Brisbane, Queensland, Australia.
  • Ju A; Sydney School of Public Health, The University of Sydney, Sydney, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, Australia.
  • Sharma A; Sydney School of Public Health, The University of Sydney, Sydney, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, Australia.
  • Au EH; Sydney School of Public Health, The University of Sydney, Sydney, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, Australia.
  • Desmond H; Division of Nephrology, Department of Pediatrics, University of Michigan, Ann Arbor, Michigan, USA.
  • Shen JI; Division of Nephrology and Hypertension, Lundquist Institute at Harbor-University of California Los Angeles Medical Center, Torrance, California, USA.
  • Manera KE; Sydney School of Public Health, The University of Sydney, Sydney, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, Australia.
  • Azukaitis K; Center of Pediatrics, Institute of Clinical Medicine, Faculty of Medicine, Vilnius University, Vilnius, Lithuania.
  • Dunn L; Sheffield Teaching Hospitals, National Health Service Foundation Trust, Sheffield, UK.
  • Carter SA; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, Australia; Department of Nephrology and Murdoch Children's Research Institute, Royal Children's Hospital, Melbourne, Victoria, Australia.
  • Gutman T; Sydney School of Public Health, The University of Sydney, Sydney, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, Australia.
  • Cho Y; Department of Nephrology, Princess Alexandra Hospital, Brisbane, Queensland, Australia; Australasian Kidney Trials Network, The University of Queensland, Brisbane, Queensland, Australia.
  • Walker A; Department of Nephrology and Murdoch Children's Research Institute, Royal Children's Hospital, Melbourne, Victoria, Australia; Department of Pediatrics, University of Melbourne, Melbourne, Victoria, Australia.
  • Francis A; Child and Adolescent Renal Service, Queensland Children's Hospital, Brisbane, Queensland, Australia.
  • Sanchez-Kazi C; Department of Pediatrics, Loma Linda University Children's Hospital, Loma Linda, California, USA.
  • Kausman J; Department of Nephrology and Murdoch Children's Research Institute, Royal Children's Hospital, Melbourne, Victoria, Australia.
  • Pearl M; Department of Pediatrics, Division of Nephrology, University of California Los Angeles, David Geffen School of Medicine at University of California Los Angeles, Los Angeles, California, USA.
  • Benador N; Rady Children's Hospital, University of California at San Diego, San Diego, California, USA.
  • Sahney S; Department of Pediatrics, Division of Nephrology, University of California Los Angeles, David Geffen School of Medicine at University of California Los Angeles, Los Angeles, California, USA.
  • Tong A; Sydney School of Public Health, The University of Sydney, Sydney, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, Australia.
Kidney Int ; 98(3): 553-565, 2020 09.
Article en En | MEDLINE | ID: mdl-32628942
ABSTRACT
Trials in children with chronic kidney disease do not consistently report outcomes that are critically important to patients and caregivers. This can diminish the relevance and reliability of evidence for decision making, limiting the implementation of results into practice and policy. As part of the Standardized Outcomes in Nephrology-Children and Adolescents (SONG-Kids) initiative, we convened 2 consensus workshops in San Diego, California (7 patients, 24 caregivers, 43 health professionals) and Melbourne, Australia (7 patients, 23 caregivers, 49 health professionals). This report summarizes the discussions on the identification and implementation of the SONG-Kids core outcomes set. Four themes were identified; survival and life participation are common high priority goals, capturing the whole child and family, ensuring broad relevance across the patient journey, and requiring feasible and valid measures. Stakeholders supported the inclusion of mortality, infection, life participation, and kidney function as the core outcomes domains for children with chronic kidney disease.
Asunto(s)
Palabras clave
Texto completo
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Asunto principal: Insuficiencia Renal Crónica / Nefrología Tipo de estudio: Diagnostic_studies / Guideline / Prognostic_studies Límite: Adolescent / Child / Humans País/Región como asunto: Oceania Idioma: En Revista: Kidney Int Año: 2020 Tipo del documento: Article
Texto completo
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Asunto principal: Insuficiencia Renal Crónica / Nefrología Tipo de estudio: Diagnostic_studies / Guideline / Prognostic_studies Límite: Adolescent / Child / Humans País/Región como asunto: Oceania Idioma: En Revista: Kidney Int Año: 2020 Tipo del documento: Article