"You helped me keep my head above water"-experience of bereavement research after loss of a loved one in the ICU: insights from the ARREVE study.
Intensive Care Med
; 45(9): 1252-1261, 2019 09.
Article
en En
| MEDLINE
| ID: mdl-31407041
ABSTRACT
PURPOSE:
Bereavement research has helped to improve end-of-life practices in the ICU. However, few studies have explored bereaved relatives experience of research participation in this context. We aimed to explore the experience of bereaved relatives' participation in the ARREVE study which included three telephone follow-up calls to complete several quantitative tools.METHODS:
Volunteer relatives who participated in the 12-month follow-up call completed a questionnaire about research participation that included ten open-ended questions so that respondents could use their own words and thoughts. These open-ended questions were analyzed using qualitative analysis that examines themes within the data.RESULTS:
175/311 relatives completed the questionnaire. Three themes were derived from the thematicanalysis:
(1) struggling reactivation of emotional distress associated with the ICU experience and the loss is frequent, specifically during the 1st follow-up call. (2) Resilience as time goes by, research participation becomes increasingly positive. The calls are a help both in giving meaning to the relatives' experience and in accepting the loss. (3) Recognition research calls can compensate for the absence of support during bereavement.CONCLUSION:
Although some emotional difficulties must be acknowledged, bereavement research is overall associated with benefits, by facilitating emotional adjustments, meaning-making and resilience. Lack of support and social isolation during bereavement are frequent experiences, revealing that support strategies for bereaved relatives should be developed after the loss of a loved one in the ICU.Palabras clave
Texto completo:
1
Base de datos:
MEDLINE
Asunto principal:
Familia
/
Cuidados Paliativos al Final de la Vida
Tipo de estudio:
Qualitative_research
Límite:
Adult
/
Aged
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Female
/
Humans
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Male
/
Middle aged
Idioma:
En
Revista:
Intensive Care Med
Año:
2019
Tipo del documento:
Article
País de afiliación:
Francia