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Evaluation of Outcomes and Quality of Care in Children with Sickle Cell Disease Diagnosed by Newborn Screening: A Real-World Nation-Wide Study in France.
Brousse, Valentine; Arnaud, Cécile; Lesprit, Emmanuelle; Quinet, Béatrice; Odièvre, Marie-Hélène; Etienne-Julan, Maryse; Guillaumat, Cécile; Elana, Gisèle; Belloy, Marie; Garnier, Nathalie; Chamouine, Abdourahim; Dumesnil, Cécile; Montalembert, Mariane De; Pondarre, Corinne; Bernaudin, Françoise; Couque, Nathalie; Boutin, Emmanuelle; Bardakjian, Josiane; Djennaoui, Fatiha; Ithier, Ghislaine; Benkerrou, Malika; Thuret, Isabelle.
Afiliación
  • Brousse V; Department of General Pediatrics and Pediatric Infectious Diseases, Sickle Cell Disease Reference Center, Necker-Enfants malades Hospital, Assistance Publique-Hôpitaux de Paris (AP-HP), Université de Paris, 75005 Paris, France. valentine.brousse@gmail.com.
  • Arnaud C; Department of Pediatrics, Sickle Cell Disease Reference Center, CHIC Hospital, Université de Paris-Est Créteil, 94000 Créteil, France.
  • Lesprit E; Department of Pediatrics, Sickle Cell Disease Reference Center, Trousseau Hospital, Assistance Publique-Hôpitaux de Paris (AP-HP), 75012 Paris, France.
  • Quinet B; Department of Pediatrics, Sickle Cell Disease Reference Center, Trousseau Hospital, Assistance Publique-Hôpitaux de Paris (AP-HP), 75012 Paris, France.
  • Odièvre MH; Department of Pediatrics, Louis Mourier Hospital, Assistance Publique-Hôpitaux de Paris (AP-HP), 92700 Colombes, France.
  • Etienne-Julan M; Sickle Cell Disease Unit, Sickle Cell Disease Reference Center, University Hospital of Pointe-à-Pitre/Abymes, BP 465 Pointe-à-Pitre, Guadeloupe, France.
  • Guillaumat C; Department of Pediatrics, Centre Hospitalier Sud Francilien, 91100 Corbeil-Essonne, France.
  • Elana G; Sickle Cell Disease Unit, Sickle Cell Disease Reference Center, University Hospital of Martinique, 97261 Fort De France, Martinique, France.
  • Belloy M; Department of Pediatrics, Robert Ballanger Hospital, 93600 Aulnay Sous Bois, France.
  • Garnier N; Department of Pediatric Onco-Hematology, Institut d'Hématologie et d'Oncologie Pédiatrique, 69008 Lyon, France.
  • Chamouine A; Department of Pediatrics, Mamoudzou Hospital, 97600 Mayotte, France.
  • Dumesnil C; Department of Pediatric Onco-Hematology, Charles Nicolle Hospital, 76600 Rouen, France.
  • Montalembert M; Department of General Pediatrics and Pediatric Infectious Diseases, Sickle Cell Disease Reference Center, Necker-Enfants malades Hospital, Assistance Publique-Hôpitaux de Paris (AP-HP), Université de Paris, 75005 Paris, France.
  • Pondarre C; Department of Pediatrics, Sickle Cell Disease Reference Center, CHIC Hospital, Université de Paris-Est Créteil, 94000 Créteil, France.
  • Bernaudin F; Department of Pediatric Onco-Hematology, Institut d'Hématologie et d'Oncologie Pédiatrique, 69008 Lyon, France.
  • Couque N; Department of Pediatrics, Sickle Cell Disease Reference Center, CHIC Hospital, Université de Paris-Est Créteil, 94000 Créteil, France.
  • Boutin E; Biochemistry and Molecular Biology Laboratory, Robert Debré Hospital, Assistance Publique-Hôpitaux de Paris (AP-HP), 75019 Paris, France.
  • Bardakjian J; Department of Public Health And Biostatistics, Henri Mondor Hospital, Assistance Publique-Hôpitaux de Paris (AP-HP), 94010 Créteil, France.
  • Djennaoui F; Department of Biochemistry and Genetics, Henri Mondor Hospital, Assistance Publique-Hôpitaux de Paris (AP-HP), 94010 Créteil, France.
  • Ithier G; Clinical Research Unit, Albert Chenevier Hospital, 94010 Créteil, France.
  • Benkerrou M; Sickle Cell Disease Reference Center, Robert Debré Hospital, Assistance Publique-Hôpitaux de Paris (AP-HP), 75019 Paris, France.
  • Thuret I; Sickle Cell Disease Reference Center, Robert Debré Hospital, Assistance Publique-Hôpitaux de Paris (AP-HP), 75019 Paris, France.
J Clin Med ; 8(10)2019 Oct 02.
Article en En | MEDLINE | ID: mdl-31581727
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Texto completo: 1 Base de datos: MEDLINE Tipo de estudio: Diagnostic_studies / Screening_studies Idioma: En Revista: J Clin Med Año: 2019 Tipo del documento: Article País de afiliación: Francia
Texto completo
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Base de datos: MEDLINE Tipo de estudio: Diagnostic_studies / Screening_studies Idioma: En Revista: J Clin Med Año: 2019 Tipo del documento: Article País de afiliación: Francia